[ACC_gal]

I Just found out amongst my other conditions I have dysautonomia and Deep brain stimulation was reccomended for me ( after my MVP is fixed of course) I was told as a pleasent side effect it would lessen my sevre OCD symptoms.. I researched this and found out folks really ARE having these stimulators implanted for OCD alone.. even without epilepsy(which I have anyhow) My mother and niece seem very KEEN on wanting my entire personality changed but I feel like I won't be me. is this REALLY a good idea? They just can't seem to except the fact I have severe health conditions and tonight told me I have NO reason to be angry.. really??? I have mitral valve prolapse to the point they want to do surgery.. or I face heart failure. I have dysautonomia. my brain is misfiring, I have two congenital neuro birth defects. I have NO reason to be angry?? Well who the H wouldn't be! Not only that I am being told WHAT to do with my body in the event of my death by my own neice who is only 9. What right does she have?!!! What I want to do is presevre my body.. like they do for body worlds, and have already recieved their forms. My T says I am of sound mind and perhaps I should move on to assisted living. She says my niece and mother are trying to run the entire show.. not ME or my doctors.

[IowaFarmGal]

Sending hugs and well wishes. It is your decision to make and your body. Good Luck with your heart surgery.

[Maven]

I agree, it's your body, your choice. I hate when "normal" family and friends try to force treatments you don't want to try. Side effects and risks are very real reasons to be concerned. Of course it doesn't bother them; they just want you to be normal and stop stressing them out. They don't care if you're like a zombie or lose your sex drive or creativity. Stand firm, you decide!

[shezbut]

ACC_gal,

I sure can understand what you're saying!

It is absolutely YOUR decision to make. It is your body and mind ~ not the doctors or your family's. I assume that from their perspective, they want to relieve you of whatever illnesses they possibly can. I like to think that they don't want you to suffer from any illnesses. So, if there's a possibility that something can help you feel a little better, they jump at that idea. That's my take on it anyway...

Regarding the facts about deep brain stimulation ~ doctors have found it to be helpful for a variety of illnesses, (strangely imo) including seizure control. I was hospitalized for severe depression a year or so after my brain surgery (for E). One of the doctors made the mistake of recommending it to me and I flipped out on him!! I told him that there was " no f'ing way that I was undergoing another brain surgery to control my depression, I have E!" He replied that they've found the surgery to actually help seizures, blah, blah.

His reassurance meant nothing to me. That was a big NO!!! from me. I don't regret my decision at all. I strongly recall how painful my surgery was, as well as how difficult it was to recover from it. The doctors haven't experienced it themselves. They've merely witnessed patients undergo the surgery in hopes of improving their lives. In my opinion, we all have different limits on how far we're willing to go in the treatment of our illnesses.

Some info is attached about the deep brain stimulation. Gentle hugs to you ~ take care!

http://www.mayoclinic.com/health/dee...lation/MY00184

[ACC_gal]

Originally Posted by shezbut

ACC_gal,

I sure can understand what you're saying!

It is absolutely YOUR decision to make. It is your body and mind ~ not the doctors or your family's. I assume that from their perspective, they want to relieve you of whatever illnesses they possibly can. I like to think that they don't want you to suffer from any illnesses. So, if there's a possibility that something can help you feel a little better, they jump at that idea. That's my take on it anyway...

Regarding the facts about deep brain stimulation ~ doctors have found it to be helpful for a variety of illnesses, (strangely imo) including seizure control. I was hospitalized for severe depression a year or so after my brain surgery (for E). One of the doctors made the mistake of recommending it to me and I flipped out on him!! I told him that there was " no f'ing way that I was undergoing another brain surgery to control my depression, I have E!" He replied that they've found the surgery to actually help seizures, blah, blah.

His reassurance meant nothing to me. That was a big NO!!! from me. I don't regret my decision at all. I strongly recall how painful my surgery was, as well as how difficult it was to recover from it. The doctors haven't experienced it themselves. They've merely witnessed patients undergo the surgery in hopes of improving their lives. In my opinion, we all have different limits on how far we're willing to go in the treatment of our illnesses.

Some info is attached about the deep brain stimulation. Gentle hugs to you ~ take care!

http://www.mayoclinic.com/health/dee...lation/MY00184

Thanks for this! I am not bothered much by my OCD but the Dysautonomia is a real pain to me.. if they could GARENTEE this would cure or greatly reduce my dysautonomia symptoms I would go for it.. but NOT for just OCD. I did find a center in alabama for autonomic disorders though and plan to check them out for treatment.