I wish they would stop stressing me...

What I have to deal with already steals all my energy. And now I got a letter from the rheumathology clinic that basically kicked me out last year. The reason, the doc judged that despite my symptoms and my very abnormal labs, I have to be well because I have a psychiatric diagnosis and then I guess you cannot have anything wrong with your body. Something is killing off my thyroid and is now starting to eat away at my kidneys but I'm too "perky" to be sick (doc's words).

So since I lost all trust in this doc I agree I can just as well be referred to the GP for yearly tests. So when the referral doesn't come I contact the clinic and ask why they haven't referred me. They said they don't "need to", the clinic can just look my records up in the system. Like OOKK... But they need a referral. They say they will send one (they never do).

And NOW I got an appointment with rheumy doc that I should take tests at least a week before the appointment, and the appt is thursday... Say what? A week before? An appointment? WHY?

So once again I try to get in touch with them and this time they have entered the online system so I can actually send a message directly to the doc. I did. It wasn't nice. Their canceling form didn't work though, so I will still have to call and cancel tomorrow mornings because the reception is only open then....

It makes me want to scream. I can't believe after all the doc said about me not being sick and all and completely made all my symptoms into nothing together with my feelings, forgot what he did and thinks I'm supposed to come back because he failed to record this in his computer.

I don't have the energy for this. I feel like I can't breathe...

It sounds like walking in a molasses pond. I guess they want the lab work done 1 week before the appt because it may take as long as a week to get the lab work results to the doc's office.

Your health concerns are valid and you need a primary doctor. I can understand why the whole process is a frustrating place to be. The process does not produce results as quick as a trip to MacDonald's.

So, I just responded to your post to give you support. You are doing your best despite this energy and time consuming circumstance. Take care.

Yea I can understand if they want the labs done on time. But then they should give me an actual week, not a few days. I can't go back in time from when I got the letter and do the labs before I got it...

I completely understand the snail mail delay that shorted you of getting the lab work done in the time frame they requested. They should have like, made sure it would be at least two weeks before the appointment to allow you to follow the directions regarding the lab work.

(((jimi)))

I'm sorry that your rheumatology doctor is such an jerk!! He sounds like the type of doc that gives specialists like him a bad name. It makes no sense that you gave to be referred to a GP to me, but service policies are always screwy ~ senseless .

I hope that this doctor makes up for the mistakes made by he and his team made in your treatment. I also hope that you get reasonable answers to your valid concerns soon.

Very best wishes to you...

Thanx.

Problem is rheumathology (at least here) is seen as a crap branch, not much better than psychiatry. Most of the worst doctors end up there... It never seems to be a doctor's first choice.....

But I had a nice nurse calling me this morning. She was very cooperative so I guess she was the one taking the heat for the doc since the docs don't read their emails, nurses no... which is crappy since none of them ever did anything to me. Anyway, she asked very trying if I wanted another doc instead. I just said No. So at least I got them out of my way, just crap that the docs don't answer to their own mistakes. And no, I didn't want a different doc there, I have had a few others, two were outright abusive in different ways. One was good but she was just hired in from another county so that makes me feel even more that this one is pretty much crap.

That is backed up by a nurse I know, she quit at that hospital because she felt the care is not safe for the patients.

Now I just have to tackle the GP. I'm in a better mood now so I could probably just remind her of what I said and make it nice. I was so stressed out I had nothing but harsh words. But getting one thing fixed I will see if I can make my GP nice the way I perceive her. It was like I thought Oh not her too. But she seemed nice when I met her so maybe if I'm nice and reminding I can remind her and ask a few more things, plus if there will be a followup (She seemed to plan it from the start but then it disappeared along the way).

The rheumy sure deserved his, I know him well enough. This GP I have met once and in a better mood I will give her another chance. And if I'm referred back to her from rheumy I do need her and the I can't be teed off at her, I don't think she would be helpful then. So I'll give her a chance...