[icinggurl]

I've had misophonia since I was around 10 yrs old. I have yet to meet a mental health professional that even knows what this is and I've been in the system for over 20 years The only exception is my own counselor. When I asked my psychiatrist if she had heard of it, she said no and seemed to have no interest in finding out about it. In the past, I kept hearing the whole PTSD flashbook thing, but I have zero memories of any sexual abuse in my childhood. I was in therapy for 10 yrs and never did recall the repressed memories that I was told I had. Does anyone have any ideas or success in explaining misophonia to psychiatrists/therapists? I appreciate any thoughts/experiences!

[icinggurl]

Oh, one more thing - I really feel that some of the psychiatric illness I have/had have only been exacerbated as a result of misophonia. Mental illness runs in my family, but the fact that I already had a genetic predisposition, makes me wonder if dealing with this misophonia stressors is what actually threw me over the edge into complete madness/psychosis eventually.

I am not familiar with this disorder? illness? Could you please explain it a little if it's not too painful for you.

Now, about talking to shrinks. I take absolutely no crap from them. It's my mind and my body and I know what is best for me way better than they do. Some are kind and they do listen to you, but others have that "God complex" thing going on.

Every mental health facility has a patient advocate. If you are not getting the best care, that is your next step. I might say to your shrink-"I know you are not familiar with this, but I have it and it is important for me to be able to talk to you about it, so could you please study it so you can give me some real feedback.

Mine was cold and emotionless, which made me uncomfortable from the start. Then he insulted my work. "Now we don't want you to get so manic that you write three books in two weeks. Snicker, snicker."

Since writing a book can take between one and two years and sometimes a lot longer, I was floored. I never spoke to him again. I went to my patient advocate and explained the situation and they placed me with a med nurse, which was fine with me.

As far as playing that medication roulett game, they say it takes two or three weeks to 'fully feel the effects of the medication.' Bull pucky. They tried abilify on me and I knew within three days that it was f**king me up. I'm not saying this works for everyone, but sometimes you gotta shout to make them listen.

So no matter how many letters they have after their name, don't ever let them make you feel inferior. Keep in mind they are not doing this for free or from the kindness of their heart. The state is paying them, which means they work for you.

I am so sorry you have alll these awful things to deal with, but your health care does not have to be one of them. I wish you all the best, my dear and hope that things only get better for you from here.

[kjv2acts]

I had never heard of it until I saw a guest on Dr. Phil. It was astonishing to learn that I was not the most intolerant b***h on Earth. It has a name! Dr. Phil said there was a very specific medication for the condition, so you might want to go to his site and research it. I'm still trying to adjust to my new dx and meds, on top of the OCD, anxiety and insomnia I've been treated for the last 8 years, so I hope you will look into it and let me know what you learn. It's just too much for me right now, but I support you! Please update me. L

[icinggurl]

I've been given neurontin for it in the past and it did seem to help some. It seems to have become worse in recent years, but I've also had a lot of other family stress going on which exacerbates all my symptoms anyway.
I don't know why some mental health professionals stay on the job frankly. They can be such aholes like we are SO annoying to them for being sick. Sorry jerk - we aren't having a good time here either.
I'm on social security disability and I've wondered if there are case workers or advocates for people like me? I've looked online, but I'm not sure where to find this. Mostly its to just back me up when I visit other doctors that aren't mental health. Some seem to think that because I have a disorder, I'm also a complete idiot. I probably have as many college degrees as they do........

[icinggurl]

Oh and I heard about it from my counselor. I read an article recently where a neuro-audiologist (or something like that) thinks it's actually a thing that's hard wired into our brains, kind of like right or left handedness. I've also heard that it could be a structural issue similar to the deformity that causes "perfect pitch" among musicians. Btw as a musician myself, perfect pitch sounds like a nightmare.......

[medicalfox]

I would talk to an audiologist about this disorder. I have autism and with most people with autism I have sensory disorders as well, but not all of them are diagnosed. I probably do have this disorder because I absolutely can not stand mouth noises and they make me irrationally angry or give me anxiety. I noticed in my teens that being so angry and hateful towards simple mouth noises was abnormal since no one else was ever bothered by them. I just assumed it was disordered sensory processing from my autism that caused it like how I am super sensitive to temperatures and need my room to be at least 75 degrees for my hands/feet to not be cold.

[Dix888]

Misophonia is real. Some psychiatrists will have read about it. It especially affects people with bipolar & autism. I have had it all my life but only recently read about it. I have to wear ear plugs if I am going to be in a grocery store due to all the noise. I cannot go to theme parks or discos due to this problem. It is not your imagination. It's real---but there is no known cure. I've talked about this with others who have it & they say the ear plugs are the best solution for now.

Originally Posted by icinggurl

I've had misophonia since I was around 10 yrs old. I have yet to meet a mental health professional that even knows what this is and I've been in the system for over 20 years The only exception is my own counselor. When I asked my psychiatrist if she had heard of it, she said no and seemed to have no interest in finding out about it. In the past, I kept hearing the whole PTSD flashbook thing, but I have zero memories of any sexual abuse in my childhood. I was in therapy for 10 yrs and never did recall the repressed memories that I was told I had. Does anyone have any ideas or success in explaining misophonia to psychiatrists/therapists? I appreciate any thoughts/experiences!

[icinggurl]

Originally Posted by medicalfox

I would talk to an audiologist about this disorder. I have autism and with most people with autism I have sensory disorders as well, but not all of them are diagnosed. I probably do have this disorder because I absolutely can not stand mouth noises and they make me irrationally angry or give me anxiety. I noticed in my teens that being so angry and hateful towards simple mouth noises was abnormal since no one else was ever bothered by them. I just assumed it was disordered sensory processing from my autism that caused it like how I am super sensitive to temperatures and need my room to be at least 75 degrees for my hands/feet to not be cold.

That would make sense. My nephew has auditory processing disorder and I've read that it's possible for their to be familial links with autism spectrum disorders.