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#1
May 23, 2007, 11:38 PM
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Need thoughts, prayers and/or meditations please.
There are indications that my daughter's grave's disease is escalating despite the usage of the auto-immune drugs that aren't approved for pregnancy and are known to cross the placenta. She'll be 26 wks tomorrow. They said that they were concerned about her third trimester because she didn't even out as most do during the second trimester. We're just entering it and it's proving concerning. When she last went to the endo, he said that her counts were up and her goiter had grown even more...significantly. Indicators. Since she's been pregnant and hyperthyroid her heart rate could get as high as the 160's but always come right back down to 110-120. Well, starting this past weekend and still continuing, it's going up into the 180's just to pee. If she stays up, it stays up. It's rarely going below 120 now...even sleeping and resting. Also, she's been feeling like she's fading out if she stands too long. Her body's so weak from fighting so hard for so long in this condition and due to heart rate. Also, now, she's extremely short of breath just to pee. A shower leaves her in a crying heap, out of breath and extremely weak. She's done NOTHING but rest. The dr's called her in for emergency bloodwork and put an ASAP on it, with orders that she's to go to ER with ANYTHING concerning. They've increased her PTU, 1/2 again as much as she's taking now...she's up to 300 mg. per day. To top it off, PTU can affect the liver and hurt the white blood counts, and she ALREADY has hepatitis right now as well...due to the grave's and hyperthyroidism...her second round with it during all this. My prayer at this point is that little Jonathan be delivered as soon as possible and him be OK...even if he's in the hospital for a bit. I'm wondering how soon it will be until he's safer out here than he is in there. Also, my daughter will be able to do what she needs to take care of her out of control body...including beta blockers. My daughter was just 19 this past November, and is the strongest person I know. Keep them in your thoughts, prayers and meditations please. Thanks and love, KD
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#2
May 23, 2007, 11:44 PM
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(((((KD and family))))))
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#3
May 23, 2007, 11:56 PM
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thank you (((((((((( candy ))))))))))
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#4
May 23, 2007, 11:58 PM
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KD, Stella was born at 24 weeks. She is a healthy three year old now. Smaller but just as loud as any other three year old that i know!!!
your daughter is surrounded with care, here at PC, and you are too.........take care of yourself..........xoxoxo pat |
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#5
May 23, 2007, 11:59 PM
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(((((((((((((((( kd and family ))))))))))))))))
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#6
May 24, 2007, 12:03 AM
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Thank you, Pat.
I keep reminding myself of what you've told me and it helps...alot. I had to tell her today that it's time to ask the doctor's some hard questions...like when delivery should be considered, when would he be safer outside the womb, etc. They're helping her find a good pediatrician that will help with this, and of course, her endo will be involved with Jonathan's care as well because he could be born hyperthyroid if her antibodies cross the placenta, or he could be born hypothyroid, etc. if the PTU crosses the placenta. If this happens, he might have to be watched and on meds himself for the first 8 wks or so. Thanks again, KD
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#7
May 24, 2007, 12:06 AM
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I did want to add that included in prayers, thoughts and meditations is that Jonathan NOT experience tachycardia himself.
He's not so far, and that's one of their biggest concerns. KD
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#8
May 24, 2007, 12:52 AM
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(((((((((((((((((GKD))))))))))))))))))))))))
My thoughts and prayers go out to you and your family!
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Please donate to your local animal humane shelter! Thank-you! 
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#9
May 24, 2007, 01:08 AM
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thank you (((((((((((((((Zen)))))))))))))))
KD
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#10
May 24, 2007, 05:27 AM
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(((((KD and family))))))
our thoughts are with you all hoping and praying they all come through this ok
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 No kind action ever stops with itself. One kind action leads to another. Good example is followed. A single act of kindness throws out roots in all directions, and the roots spring up and make new trees. The greatest work that kindness does to others is that it makes them kind themselves.
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#11
May 24, 2007, 05:46 AM
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((((((((((((((love and care)))))))))))))
to you and your family, you are all strong and i'm sure evrything will be ok. my thoughts are with you jinnyann xoxoxoxo |
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#12
May 24, 2007, 06:04 AM
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kd my prayers are with you and yours hon. maybe they can give her that medication to mature his lungs soon and get him delievered. keep us posted hon
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He who angers you controls you! |
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#13
May 24, 2007, 06:48 AM
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((((((((((((((((((((((((((KD & Family)))))))))))))))))))))))))))
More prayers and healing wishes being sent your way my friend. I'm so sorry you are all going through this and I pray the doctors can work their miracles for you all! Love & Hugs J |
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#14
May 24, 2007, 08:07 AM
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(((((((((((((((((((((((Kimmy and daughter)))))))))))))))))))))) You and she are in my thoughts.
BB
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#15
May 24, 2007, 08:14 AM
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(((((((((((KD,daughter,jonathan))))))))))
Prayers and healing thoughts for each of you. Lori |
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#16
May 24, 2007, 08:39 AM
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KD, my thoughts and prayers are with you and your family. I hope she sees improvement and/or you all find some workable answers very soon.
About her heart rate and peeing...maybe she could use a bedside commode or even a bedpan if that would help her rest and conserve her energy? (((((((KD, daughter, and little Johnathon)))))) gg
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Have you ever considered piracy? You'd make a wonderful Dread Pirate Roberts. |
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#17
May 24, 2007, 10:08 AM
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KD and Family--
You are in my thoughts and prayers. May God surround you all in His loving arms and may you rest in Him. purplesecrets |
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#18
May 24, 2007, 10:13 AM
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((((((( Daughter )))))))))
((((((( Dear Jonathan )))))))) (((((((( Kimmy ))))))))))) My thoughts and prayers are with all of you and all your family. Love and hugs, Jan
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#19
May 24, 2007, 11:04 AM
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<font color="purple"> sending prayers for you , your family, your daughter and baby Jonathan (((((((((((((((((family)))))))))))))))))</font>
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Melinda  Today, NOW! Is the time to tell that someone you love them.....  because tomorrow just might be too late!
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#20
May 24, 2007, 12:14 PM
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(((((( Kimmy ))))))
(((((( Daughter )))))))) ((((((( Baby Jonathan ))))))))) I hope they can deliver him into an incubator for a bit so daughter can recover. He's definitely a miracle baby. Sending prayers up for you and family. Ya'll have a village behind you.
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#21
May 24, 2007, 12:36 PM
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<font color="blue"> I'm sorry your Daughter with child is having such a hard time,and I will keep them both in my prayers! I'm sure that her having your support,is helping her emotionally more than you think. I'll pray for you to have strength as well,to help you cope with this hard time in your life as well.
*Justice* </font> |
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#22
May 24, 2007, 12:57 PM
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*tears*
Thank you so much everyone! This is the longest period of "maintaining/watch and see" that I've ever been through, with such concern added. Wow. It's wearing, yes. My daughter is doing a bit better today! Her heart rate hasn't gone over 164!!!! That's normal for her these last several months. Prayers/thoughts/meditations seem to be working! She seems less hyperthyroid acting (there are certain physical and emotional ways to tell). I'm beginning to wonder if she'd missed some meds and not told anyone? It could flat our be the power of CARE.  We're still waiting for the dr. to call to let us know her levels and if they've escalated, and what to do about the meds. Her OB called with concern, but said she needs to stick close to her endo right now. I guess he's just going to be involved from here on out to help this little one actually enter this world. My boy is going to mamaw's today as an unexpected treat for us all I get to spend my time cleaning and doing laundry, but that will help me feel better...more in control. Tonight he'll be tired and sleep and I'll have some alone time then hopefully. Thank you all so much and I wanted to let you know *in appearance* she seems to be doing some better! KD
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#23
May 24, 2007, 01:13 PM
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((((((((((Kimmy)))))))))))) my heart is with you and your family
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"You look at me, and you dont like what you see. But this is the price of living with you, Mother. " - White Oleander |
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#24
May 24, 2007, 02:12 PM
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We are keeping all our fingers crossed here.
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 good things come to those who wait, and wait and wait |
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#25
May 24, 2007, 02:31 PM
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I'm sending good thoughts your way.
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