Daughter's illness is escalating

(((((((((((((((((( KD & Family )))))))))))))))))))
You are your family are in my thoughts and prayers

((((((((((KD and Family))))))))))

I shall keep my fingers, toes, hooves crossed, praying everything will all work out well. Sending good vibes your way~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

(((((((((((( kimmydawn and family )))))))))))))

((((((((((((KD et al)))))))))))))))

(((((((((((((((((Kim and family))))))))))))))))))))

Thanks, guys.

She's had a rough afternoon.

She's so traumatized from all this. I thought she'd be happy when the dr called and said her counts were good, and that she didn't have to go up on her PTU.

Well, she started bawling. I asked her why and she's upset that even though she's glad it's not her thyroid and doesn't have to go up on her meds, it concerns her that SOMETHING ELSE is going on and they just don't know like they didn't know about all of this. I can so see that.

I tried to point out that her heart and symptoms are calming back down now and maybe we should focus on that, but she's just so freaking fearful of her own body and that her first, and only, child has to be in there.

Pray for her please...for some peace of mind...just a little.

KD

My thoughts and prayers are with you Kimmydawn...I pray your daughter will be okay...and that the baby will be delivered okay...I will pray every day for you and your family!!

KD, you, your daughter and grandbaby have my heartfelt prayers with you. You and your daughter must BOTH be very strong.
Take care,

Okie

Your family is in my prayers.... freewill

((((((((((((((((KimmyDawn and family))))))))))))))))

Thoughts and prayers are with you and your family.

(((((((((((((( everyone ))))))))))))))))))

Thank you so much for sharing your stories, your prayers and thoughts.

My daughter just had an emergency appt. with her OB. Little Jonathan's heart rate is PERFECT as is the pregnancy growth. He's not experiencing any tachycardia which is a huge concern for my daughter.

He listened to her heart for a long time and is sending her to a cardiologist. She's very anxious and upset, but he said he didn't hear anything real concerning but feels she needs an echocardiogram. She's had the tachycardia so long and it's escalating so he wants to make sure everything's OK with her heart through all this.

She's had two EKG's but he wants this done.

He wants to see her again on Weds. to check her over again, and Jonathan's heart rate as well.

She's still to do nothing but pee.

Thank you again! Good news today and yesterday.

KD

Dear Kimmydawn,

Many warm wishes, thoughts, and prayers for you and your family especially during this time.
xoxoxoxoxoxo

I'll pray for your daughter and her little one...and...of course for you. Strength...peace...God bless you and yours!
Dan

((((((((((((((( everyone )))))))))))))))))))

We're so blessed to have the prayers and thoughts! They're working!

My daughter's heart rate is not going over 160 now again. We know her counts to indicate hyperthyroidism are good. That's awesome!

I explained to her dr. that I think she needs more reassurance than she gets and maybe until he's born she could come in between sessions just to check the baby's heart rate and growth. He's so sweet and it was no problem.

She's just traumatized through all this and needs that reassurance. In her mind, I don't think she can "imagine" all this yuck not affecting her baby. She wants him born as soon as he's safe to deliver as well.

We're going on, and it's going pretty well.

KD

Thats good news KD....so happy to hear it!

I can't imagine all that is going through her mind and yours as well. It must be so stressful at times.

Always in my thoughts and prayers

Hugsssssss
J

ty

Yes, I have alot of concern. Alot of it, I discuss here.

Some of it, I can't discuss anywhere, because it's the "what if's" that make me feel what I can't put into words and try to keep my mind from going to. I'm doing pretty good with that, though.

Mom did good yesterday. She was ramping up again and I said, "let's just call the dr. to check and avoid the ER." He was so awesome. It was just the medicine she needed.

Love,

KD

I certainly understand all that KD. The what if's are really hard to get through sometimes.

It sounds like her doc is wonderful. I'm so very glad you both have him/her there to help when needed. Good thinking on your part to call instead of run to the ER. That place will make even the calmest person stressed!

Your family is so lucky to have you!

Hugssss
J

{{{{{{{{{{{{{{{{KD & Family }}}}}}}}}}}}}}}}}} So glad to hear the better news hon.. I am sorry all this is happening to you guys. Its so not fair ! I will continue my thoughts and prayers to you guys that everyone stays as healthy, happy and feeling as peaceful as possible.

Luv ya
Beth

Good news KD! I pray the word keeps coming back as such. My best to you and your family.

Thanks guys.

I was just out to the ER with daughter. Her palpitations got to the point where she was having tightness in her chest and severe pounding.

They're concerned that she's been going through this for so long and now her resting tachycardia rarely goes below 120.

They've given her a mild beta blocker after calling a cardio. He said this one would be safe for the pregnancy and she's supposed to see him sometime next week for the echo and further testing/checking.

They explained that the cycle of physical anxiety due to the tachycardia/palpitations creates more anxiety which makes the tachycardia worse, repeat, repeat, repeat. Hopefully with the beta blocker it can cycle down a bit for her.

Just an update...

Love and thanks,

KD

KD~ If she is anything like me with my tachy... the beta will help. And it will make her sleepy too. So hopefully she will feel more rested. Hope this does help her!!

Hugz
Beth

Kimmy Dawn....my thoughts and prayers are with you and with your daughter. Please know I am thinking about you.

Annie

Thanks, Beth. We're hoping so.

Thank you, Annie.

UPDATE -

Doctors! ARGH!!!!!

The endo's office called today and they'd messed up. They told us that her counts looked good...counts for grave's and which would indicate hyperthyroidism.

We went to the ER last Saturday, right? We told them, then told OB last week that her counts looked good so the heart acting up couldn't be from hyperthyroidism...in fact that was the nurse's exact words..."If it keeps up go to ER because it's not due to hyperthyroidism. Your counts look good." We don't know if the dr. messed up or the nurse did because this is the same nurse that writes down 72 for a heartrate every time daughter goes in when it's not been that for a year!

Anyhow, the endo's office must've received the same report that the OB received from the ER. They called today to ask daughter if she'd increased her PTU as stated. NUTS! They said her counts were OK so the increase probably wasn't necessary. She didn't increase!

They informed her that her FT4 is 5.3!!! For those of you that aren't aware, that's very OFF...about five times higher than should be and indicating, of course, pretty significant hyperthyroidism. ARGH!!!! The highest it's ever been was in the beginning when she first went and that was 4.5.

That's why she is getting hepatitis again. That's why her heart is out of control with sinus tachycardia and another type of arythmia.

We saw the cardio today and she's to have an ultrasound of her heart to make sure it's not been damaged through all this.

I do feel better in that he explained her severe weakness, dizziness and shortness of breath are all explained by this, then add hyperthyroidism and pregnancy, it's ten-fold.

This leaves the very serious question...why is she hyperthyroid again when it should be stabalizing and she's taking her meds??? This med isn't even for pregnant women and now she has to take even more than she should.

If her hyperthyroidism doesn't calm, or her liver counts increase, she could be looking at surgery while pregnant if it's determined that Jonathan wouldn't do well outside. Then, they might have to make a decision which would be safer for him...inside or outside.

Sooo...

She has to have more bloodwork Monday, then an appt. set with endo. Also Monday she's to have a high risk ultra sound to check the baby thoroughly...specifically his growth, head and thyroid. See, if the antibodies cross the placenta, he can be hyperthyroid with an enlarged thyroid and need meds. If the PTU crosses the placenta, he can be born hypothyroid and need meds. The high risk is his developing tachycardia while still in the womb which could reduce his blood flow to the brain. He's not done that at all that has been noticed. She has to have more tests Wednesday then, and see the OB the following Weds.

She's to take a beta-blocker now twice per day regularly to regulate her heart as well as slow it down.

My poor baby. She's so traumatized and dumbstruck, living an existence that is beyond her.

Continued thoughts and prayers PLEASE~

KD

kd how many weeks is she now?