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  #1  
Old Aug 27, 2016, 03:37 PM
A18793715 A18793715 is offline
Grand Poohbah
 
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Thankfully I stopped taking abilify fast enough for mine to go away.

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  #2  
Old Aug 28, 2016, 02:33 PM
lazlo lazlo is offline
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I am taking Olanzapine. I heard that tardive dyskinesia is a risk if this is taken for a long time. But whats a 'long time'? A year? Ten years? And tradeoff dyskinesia can be PERMANENT!
  #3  
Old Dec 21, 2016, 10:13 AM
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neodoering neodoering is offline
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Abilify didn't cause it for me, but Risperidone certainly does. I was on a high dose for a couple of years, and now my psychiatrist has reduced the dose by 75% because my hands were shaking so much. In addition, she's switching me over to Latuda, which has less of this problem. I have a friend with bipolar whose hands shake like crazy due to all the years of sketchy medications. He had hardly lift a glass to drink or use a pen or pencil. This is a real problem, and if your meds are causing it, get off those meds!
  #4  
Old Dec 21, 2016, 04:20 PM
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dmhobbit dmhobbit is offline
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my nurse at the free mental clinic just called me to say they are putting me on benztropine for my shakey hands and tremors. it may or may not work or it may kill me. IDK. this place is more like a candy pill dispensory. i'm already on 6 psych meds and now they want to put me on another parkinon's medication just because i was desccribing my symptoms since my doctor took time off for illness so me and the nurse had a phone session.

So freaking sick of taking pills, the amount, the time i'm supposed to take them, being someplace else and not having any with me. this stuff has me more messed up than any street drug i've ever tried and quit. I just want my 420 is all.

i feel we are collectively screwed. end of line.
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  #5  
Old Dec 21, 2016, 06:05 PM
still_crazy still_crazy is offline
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I take vitamins to reduce the risk of tardive dyskinesia. There was a paper published in the early 80s in which the doctors used high dose B-complex, niacinamide (B3), vitamin E, vitamin C, and B6 plus whatever antipsychotics they were prescribing, to see if TD rates would go down. They went down a lot (the study lasted 10ish years), which is amazing, considering that they were using the old drugs, a lot of times at high doses.

I'm 5ish years into 30mgs/Abilify daily, and no tics, no twitches, no stiff walking, etc.
Hugs from:
dmhobbit
Thanks for this!
dmhobbit
  #6  
Old Dec 21, 2016, 07:33 PM
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dmhobbit dmhobbit is offline
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Quote:
Originally Posted by still_crazy View Post
I take vitamins to reduce the risk of tardive dyskinesia. There was a paper published in the early 80s in which the doctors used high dose B-complex, niacinamide (B3), vitamin E, vitamin C, and B6 plus whatever antipsychotics they were prescribing, to see if TD rates would go down. They went down a lot (the study lasted 10ish years), which is amazing, considering that they were using the old drugs, a lot of times at high doses.

I'm 5ish years into 30mgs/Abilify daily, and no tics, no twitches, no stiff walking, etc.
I take the GNC Mega Men 50+ Vitamins. I think I need the max formula with high doses of B Vitamin Complex. I'll have to make a trip to GNC and get the Mega Vitamins and a bottle of protein mix cause I don't always eat properly. Thanks for you reply!
__________________

DX: schizoaffective bipolar type, panic disorder, ocd, depression, night terrors, seizure disorder.

RX: neurontin, depakote, klonopin, lamictal, lisinopril, metroprolol er, zyprexa, trazadone, prilosec.

"You don't stop playing because you grow old, you grow old because you stop playing!" - a sign at our city park

~ dmhobbit ~
Thanks for this!
still_crazy
  #7  
Old Dec 24, 2016, 07:06 AM
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dmhobbit dmhobbit is offline
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Quote:
Originally Posted by dmhobbit View Post
I take the GNC Mega Men 50+ Vitamins. I think I need the max formula with high doses of B Vitamin Complex. I'll have to make a trip to GNC and get the Mega Vitamins and a bottle of protein mix cause I don't always eat properly. Thanks for you reply!
Walgreens has an excellent B-Complex only on their website and it has like 16670% of B-12. I start the Cogentin Monday and my nurse told me to call back in a week to see how i am doing.
__________________

DX: schizoaffective bipolar type, panic disorder, ocd, depression, night terrors, seizure disorder.

RX: neurontin, depakote, klonopin, lamictal, lisinopril, metroprolol er, zyprexa, trazadone, prilosec.

"You don't stop playing because you grow old, you grow old because you stop playing!" - a sign at our city park

~ dmhobbit ~
Thanks for this!
still_crazy
  #8  
Old Dec 24, 2016, 02:16 PM
still_crazy still_crazy is offline
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I don't know how many vitamins you're willing to take, but vitamin E (preferably natural form with mixed tocopherols) is very helpful. There's some research that shows that taking vitamin E at a high dose can help TD --if-- you take it fairly soon after you develop TD. Many studies used 1600 IU, although they used the synthetic version, which the alternative health people say isn't as good.

Vitamin C works well with Vitamin E, and you need both, anyway. I take 1,000 IU natural form E w/ mixed tocopherols (with a high fat meal every day) and then I take 20 grams time release vitamin C. Most people do just fine with far, far less Vitamin C than I take. Vitamin C helps reduce paranoia for some people, including me, so I've ramped up the dose to extra-high levels.
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