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  #26  
Old May 08, 2012, 08:49 PM
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OMG! To be confined for over 10years, and not mentally ill?! sounds like being in jail for a crime you didn't commit. Poor her! I hope she didn't develop a mental disorder from that! Must have been horrific to say the least.

My husband read this thread today at the hospital and a few articles on the web regarding mental disorders until my visitation time was up (family members are allowed to visit for 2 hours daily 4-6pm)
His doctor said his progress is remarkable so far.

My husband told his doctor he was diagnosed with PTSD in the U.K when he had his first episode about 8 years ago and his doctor in the U.K had to tell the authorities to give him a break (as per the investigation, as it was evidently starting to affect his mental health) Thank God he is giving us more information and starting to have insight on his mental state. He also told us that as at the time, he thought his doctor was in on it too, to harm him. So he quit treatment. I think he is ready to conquer his disorder head on!

He didn't mind at all that I was sharing his info anonymously here.
He joked and said I need therapy too. I have lost alot of weight. I get depressed easily. His mum visited him for the first time today and he was quite happy to see her.

His doctor changed his anti epileptic drug (he has been using the same one for close to 10yrs now). He is presently being monitored to see how he would react to the new one. He isn't on anti psychotics anymore. Doctor thinks he should be discharged in 2 weeks max. I'm just so glad and hopeful about our future together.

Truth is, we are educated folks, so we chose to take him to the hospital. There are many local/traditional healing homes. A lot of uneducated/unenlightened families take their sick relatives there to seek treatment. You don't want to hear what goes on in these homes. Some beat up the sick, claiming they are beating out the bad spirits out of them, and/or perform rituals! Ridiculous! Some too take the ill to churches to cast the evil spirits out of the mentally ill. I leave the rest to your imagination.
They are said to be possessed by evil spirits. All this further adds to the stigmatization. Many in our society still believe this to be true.
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  #27  
Old May 08, 2012, 09:03 PM
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He joked and said I need therapy too. I have lost alot of weight. I get depressed easily.
I'm glad he's doing so well. Take care of yourself, hon.
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  #28  
Old May 08, 2012, 09:38 PM
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That's an important key for my son too. He begins to isolate and has no one to talk things over with, so he retreats further from reality.

Thanks for the info. Costello. I know better now. I think the whole episode has brought us closer. There are presently over 50 patients in my husbands unit/ward, it's an all male ward. Most who have been married/ in relationships before are divorced, and others have been abandoned by their girlfriends. My husband is the envy of the other patients. His doctors think this has played a very important role in his recovery! Yay!

Frankly, I and another lady are the only wives that visit. My husband's nurses remind him of this fact all the time. Telling him how lucky he is to have a supportive wife. He seems to trust me a whole lot more.

It's important to listen and try to understand. But sometimes my son really just wants to hear me say, "You're mistaken." At this point he trusts me enough to believe what I say. It took a long time to get that trust though. Paranoid people really don't trust easily.

When hubby was in a state of psychosis, that was the only time he showed paranoia towards me. Normally, I tend to be the one person he seems to trust. But, I know we've only been together 3years so perhaps it's still too early to say. But as always, I remain hopeful it stays that way.
Even now, he only eats hospital food and mine. He didn't eat the food his mum brought him today. I encouraged him to, but he said there are patients in the ward who need it more. (he tends to be generous when his ok) so I that don't if it's paranoia or not.


The only thing I'm sure about with pot is that it makes my son worse when he uses it.

He has promised to quit and I think he means it when he apologizes for using it and says pot for him is a thing of the past. His doctor says it is what is causing his problems. That his paranoia escalates into a state of psychosis. My husband was the one who discussed the possibility of his AED affecting him too. We'll see.

I think I asked you this in that long post that I lost yesterday: You said something about epilepsy and antiseizure medication. Then you said he'd quit his treatment. I wasn't sure if you meant he'd quit his epilepsy medication.
I meant his psychotherapy treatment. He uses his AEDs as required. Says he cannot afford to have another seizure. I hope the new one works for him. There are quite a few patients at the hospital who do not use street drugs, no history of family mental health problems, but have some mental disorder (don't know which for sure) due to their being epileptic. I hope this is not going to be the case for my husband. Again, time will tell.
  #29  
Old May 08, 2012, 09:40 PM
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You too Costello, do take care of you. Xoxo
  #30  
Old May 09, 2012, 05:59 AM
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I think he spends more time dealing with the trauma inflicted by the mental health system than he does coping with the original problems.
Ack, yes. I've been obsessing about this for years. Nobody really takes me seriously when I say I was traumatised by the mental health system. I wish there was some way to make it better.
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  #31  
Old May 09, 2012, 06:34 AM
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Ack, yes. I've been obsessing about this for years. Nobody really takes me seriously when I say I was traumatised by the mental health system. I wish there was some way to make it better.
Yea, people say, "Well, it couldn't be helped. Those things had to happen." Shrug.

It's wrong on at least two grounds: First, a lot of times it can be helped. It isn't always necessary to descend on a confused person and "do something" to "fix" things. Sometimes if you just wait, things change on their own. We're in too much of a rush to intervene IMO. Wait and see is an option we don't exercise often enough.

Second, even if it is necessary to inflict the trauma, that doesn't mean the pain of the trauma should be ignored. If I were trapped in a collapsing house, and it were necessary to amputate my leg quickly without anesthesia in order to free me and move me to safety, that would be necessary but very traumatic on many levels. If I needed to talk about it later and process that trauma, I would hope that the therapist wouldn't respond with a whiny, "Well, they had to do it to keep you from being crushed by the house. Did you expect them to just leave you to die? You really should be more grateful and quit complaining about this!"
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  #32  
Old May 09, 2012, 03:08 PM
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I can understand how traumatic it is to go through an experience like that. I hope therapy cures it over time. If more developed societies than ours are yet to put a better system in place to handle mental health crisis, I wonder when we can hope for a better system in Africa.

My husband told me he has nightmares from it (the experience) Poor him and everyone else that had to go through such a traumatic experience. Honestly, it can only add to his paranoia. I can only hope he overcomes it.

I think what I will do next time is to invite his doctor or a social worker from the hospital to our home to persuade him to seek help. That's definitely a better option.
But in a psychotic state, he most likely would walk the hospital staff out! Also, his episode had gone on for way too long. I and his parents had been persuading him to seek help for over 6 months with no result. And he was becoming very hostile and violent towards us. Especially me. I'm the one that lives with him and I was very scared too. With my limited knowledge of his condition as at that time. His condition kept getting progressively worse. Were we to wait until he hurts someone or someone hurts him in a fight?

The way he was picked up was a frightening experience for me too. Being in my room and hearing the struggle outside our home and my husband's screams of "kidnappers, kidnappers"..yet I really couldn't do anything about it. And i sat in my room crying. It is an experience I never ever want to go through again. But I can't afford to live with the guilt of it. No, I really cannot afford to.
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  #33  
Old May 09, 2012, 03:54 PM
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The way he was picked up was a frightening experience for me too. Being in my room and hearing the struggle outside our home and my husband's screams of "kidnappers, kidnappers"..yet I really couldn't do anything about it. And i sat in my room crying. It is an experience I never ever want to go through again. But I can't afford to live with the guilt of it. No, I really cannot afford to.
Oh, honey, lots of hugs. That's traumatic for anyone concerned; but I don't think you should feel guilty about it (and I'm saying that as somebody who has been on the receiving end). You did what you had to do at the time.
Thanks for this!
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  #34  
Old May 09, 2012, 03:57 PM
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Yea, people say, "Well, it couldn't be helped. Those things had to happen." Shrug.

It's wrong on at least two grounds: First, a lot of times it can be helped. It isn't always necessary to descend on a confused person and "do something" to "fix" things. Sometimes if you just wait, things change on their own. We're in too much of a rush to intervene IMO. Wait and see is an option we don't exercise often enough.
The hardest bit for me is that I was never confused, self-harming, etc. I was just an identified psychotic who refused to seek treatment and got really belligerent about not needing psychiatry. The first time I was hospitalised, I had a full-time job and was studying for a master's degree part time -- and by all accounts doing well at both.
  #35  
Old May 09, 2012, 04:19 PM
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The hardest bit for me is that I was never confused, self-harming, etc. ...
I really don't understand that. If you're not hurting anyone and you're just going about your business, why not leave you alone? How did you come into contact with mental health services?
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  #36  
Old May 09, 2012, 04:21 PM
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The hardest bit for me is that I was never confused, self-harming, etc. I was just an identified psychotic who refused to seek treatment and got really belligerent about not needing psychiatry. The first time I was hospitalised, I had a full-time job and was studying for a master's degree part time -- and by all accounts doing well at both.
My hubby was that way too whilst working.
He worked as a lawyer in the public sector until August last year. And doing well. Though he was paranoid about his co workers, he didnt act upon his paranoia. The paranoia later got so bad (I think due mainly to work stress and his use of cannabis) and he started fighting colleagues at work. He quit his job when he was invited by the disciplinary committee of his work place.
His condition got worse after he quit.
He became mostly delusional, argumentative, angry, aggressive, violent, etc. He worked there for almost 4 years.
Are you working now? I think work helps to keep the mind busy and delusions at bay. Just my thought from observing my hubby. Do you think that to be true?
  #37  
Old May 09, 2012, 04:25 PM
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I really don't understand that. If you're not hurting anyone and you're just going about your business, why not leave you alone? How did you come into contact with mental health services?
I wondered about that too. But he said self-harming, so I guess you could harm others. No?
I think we all have a degree of paranoia, confusion, etc in us. What is considered a problem is when we start to act upon them.
  #38  
Old May 09, 2012, 05:11 PM
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I really don't understand that. If you're not hurting anyone and you're just going about your business, why not leave you alone? How did you come into contact with mental health services?
I was in the (normal) hospital with a flu and some infections after a trip to north Africa . . . I kept insisting that they should turn off a radio I was hearing in my room, except there was no radio and I didn't have a hallucinogenic infection. Then they said I had to be transferred to psych to be evaluated for psychosis. I refused adamantly but I wasn't in a position to check myself out of hospital, so they transferred me anyway.
Then when I got physically better, I absconded from the psych ward. That was the most idiotic thing I've ever done. [I think the docs took it as "proof" that I was so unwell they needed to be sectioned. Then my parents got involved and the whole thing really went to ****. My father was abusive to me and my mother when I was growing up, but he was put in charge of my care as my 'nearest relative'. And that was my descent into mental health services.]

Last edited by fishsandwich; May 09, 2012 at 05:23 PM.
  #39  
Old May 09, 2012, 05:16 PM
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My hubby was that way too whilst working.
He worked as a lawyer in the public sector until August last year. And doing well. Though he was paranoid about his co workers, he didnt act upon his paranoia. The paranoia later got so bad (I think due mainly to work stress and his use of cannabis) and he started fighting colleagues at work. He quit his job when he was invited by the disciplinary committee of his work place.
His condition got worse after he quit.
He became mostly delusional, argumentative, angry, aggressive, violent, etc. He worked there for almost 4 years.
Are you working now? I think work helps to keep the mind busy and delusions at bay. Just my thought from observing my hubby. Do you think that to be true?
Oh yes, I am one of those people who loves my work and being very busy. I graduated from my first degree really very young, but I never felt really well with myself until I got into employment. It's nice to have that structure and that distraction. I don't know if this is true for other people, but having the level of income [several times] higher than what I would get on the dole is a huge help for my mental state, too. I know money isn't supposed to make you happy, but frankly for me it sometimes does.

Coincidentally, I'm about to qualify as a lawyer also (my third career, yay); I'm trying to find a way to pay for doing an LL.M degree next academic session, but they're just so expensive.
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  #40  
Old May 09, 2012, 05:19 PM
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I wondered about that too. But he said self-harming, so I guess you could harm others. No?
I think we all have a degree of paranoia, confusion, etc in us. What is considered a problem is when we start to act upon them.

I'm a lady -- in my experience, the docs don't usually worry about women harming others until we actively do. I never have; never even thought about it.
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  #41  
Old May 09, 2012, 07:32 PM
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I kept insisting that they should turn off a radio I was hearing in my room, except there was no radio and I didn't have a hallucinogenic infection. Then they said I had to be transferred to psych to be evaluated for psychosis.
Oh, for heaven's sake! What country were you in at the time? It seems like an extreme reaction - especially with no hint of danger to self or others.

I wonder what I would have done in your parents' position. I'd like to think I'd have handled it differently. I probably would have.

My son was so paranoid and disorganized during his first episode. He thought people were following him and trying to kill him. He occasionally said that he was going to have to kill this or that person because they wouldn't leave him alone. That alarmed me. I was afraid someone would get hurt.

But even at that, once the psychosis started to clear, I let him go about his business and didn't try to force treatment on him. One day, several months, after the episode started he suddenly told my sister that he realized he'd "imagined" it all. He said he felt like he'd been in a waking dream.

Actually I think my penchant for not interfering irritated one case worker. I remember her telling me that my son was "very, very ill" - as if I weren't aware of that. At this point he was living in a neighboring state. I think she felt I should swoop in and ... do something. I found out later she was bad mouthing me to my son, criticizing me. I guess she really strongly disliked me. I'm not sure why she thought talking me down to my son was a good idea. I suspect a lot of people who work in the mental health system have issues of their own.

Our last conversation was pretty ugly. When I asked her what she was expecting me to do, she told me she thought I should get guardianship of my son. She was surprised to learn I'd talked to an attorney who had advised me not to unless and until it was an emergency.

Hmmm... It's just hit me that my emergency threshhold may be higher than most. Hearing a radio playing when there isn't one doesn't constitute an emergency in my view.
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  #42  
Old May 10, 2012, 02:23 AM
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Oh, for heaven's sake! What country were you in at the time? It seems like an extreme reaction - especially with no hint of danger to self or others.
I thought that, but eh. I can't help but wonder if the fact that I am a young woman somehow made a difference, like they were more willing to override my wishes because they saw me as silly and weak or something. I was in the UK.

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I wonder what I would have done in your parents' position. I'd like to think I'd have handled it differently. I probably would have.
I'm sure you would have. My father was abusive and I don't think he was interested in handling it.

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I found out later [the case worker] was bad mouthing me to my son, criticizing me. I guess she really strongly disliked me. I'm not sure why she thought talking me down to my son was a good idea. I suspect a lot of people who work in the mental health system have issues of their own.
She's an idiot who should have lost her job for that. And yes, most people who work in the system have their own issues (often their own diagnosis). I don't think there's any other reason to go into that profession; it's not like it's a nice job or well remunerated.

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Hmmm... It's just hit me that my emergency threshhold may be higher than most. Hearing a radio playing when there isn't one doesn't constitute an emergency in my view.
I think the real catalyst was more when I ran away than when I heard a radio. I agonise over how different my life would be if I hadn't absconded.
  #43  
Old May 10, 2012, 06:09 AM
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She's an idiot who should have lost her job for that.
I complained about her to her supervisor and gently suggested she find a different line of work. This was after a conversation I had with her which I can only characterize as bizarre. The supervisor asked if I wanted to make a formal complaint, and I said 'no.' This was a year and a half ago. It was only recently my son told me the stuff about her complaining about me to him. I really can't think how she thought that was a good idea.

I knew people who went into those lines of work had issues from adopting my younger son. I adopted a teenaged boy from foster care several years ago, and the social workers who work with foster kids make the social workers at the mental health center look like pikers. Wow! Talk about having issues. They have huge amounts power but no real experience or training in working with traumatized children and apparently no heart. Cross them and they yank the kid away from you and move them on to yet another home. And they can't be openly scrutinized - for confidentiality reasons. They're very scary.

Quote:
I think the real catalyst was more when I ran away than when I heard a radio. I agonise over how different my life would be if I hadn't absconded.
I understand the temptation to do the 'what if' thing, but it's really a waste of time. Sometimes I think we have to have some faith that what is is what's best, that things are working out the way they're supposed to. I don't know if that's really true or not, but holding that thought keeps me from panicking.
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  #44  
Old May 10, 2012, 12:37 PM
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Some of the social workers at hubby's hospital can be really rude and nasty. I think it's partly due to the fact that they are underpaid, frustrated and the hospital understaffed. I feel pity for them.

I wear a huge smile when I visit. And I never forget to thank the hospital staff (nurses, social workers, doctors, etc) for taking care of my hubby. They seem nicer to me than the other visitors! I am usually received warmly.
We are allowed to give the staff tips, so I usually do. That makes them nicer to my hubby too.
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  #45  
Old May 10, 2012, 01:13 PM
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Hmmm... It's just hit me that my emergency threshhold may be higher than most. Hearing a radio playing when there isn't one doesn't constitute an emergency in my view.[/QUOTE]

I think it is. But i doubt hearing a radio playing when there isn't one would constitute an emergency for most folks. What usually does is violent behavior or threats of violence.
For me, threats of violence didn't constitute an emergency. Even my hubby fighting others didn't (I assumed he had good reason), even seeing his collection of knives, baseball bats etc, in our home, still didn't. But when he started attempting to use it on me and our neighbors (he was starting to bang on their doors holding a baseball bat and carrying a knife in his pockets), It became an emergency.
But, had I known he had psychosis, I wouldn't have waited for it to go on for so long before seeking help.
  #46  
Old May 10, 2012, 01:21 PM
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I'm a lady -- in my experience, the docs don't usually worry about women harming others until we actively do. I never have; never even thought about it.

I'm sorry Fishsandwich for assuming you are a man.
Glad to hear about your educational accomplishments. Best wishes.
  #47  
Old May 10, 2012, 01:24 PM
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Some of the social workers at hubby's hospital can be really rude and nasty. I think it's partly due to the fact that they are underpaid, frustrated and the hospital understaffed. I feel pity for them.
There's nothing wrong with smiling and treating people civilly. I don't like the idea of tipping, though. I don't think it's even allowed here. If it were, I'd suspect that those whose families didn't tip would be treated badly in order to drive home the point that they should tip. I don't want to have to pay extra to get courteous service from nurses and social workers.
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  #48  
Old May 10, 2012, 01:31 PM
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Some of the social workers at hubby's hospital can be really rude and nasty. I think it's partly due to the fact that they are underpaid, frustrated and the hospital understaffed. I feel pity for them.

I wear a huge smile when I visit. And I never forget to thank the hospital staff (nurses, social workers, doctors, etc) for taking care of my hubby. They seem nicer to me than the other visitors! I am usually received warmly.
We are allowed to give the staff tips, so I usually do. That makes them nicer to my hubby too.
That's a good coping strategy! I wish you didn't have to bribe them to treat your husband well, but I suppose in times like this whatever works, goes!

Edit: I realised this might sound sarcastic over the Internet, but it's not meant in that way
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  #49  
Old May 10, 2012, 01:37 PM
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There's nothing wrong with smiling and treating people civilly. I don't like the idea of tipping, though. I don't think it's even allowed here. If it were, I'd suspect that those whose families didn't tip would be treated badly in order to drive home the point that they should tip. I don't want to have to pay extra to get courteous service from nurses and social workers.
Some places just work on bribery. Greece was like that. You had to bribe the doctor to get a form signed saying you're too ill to do the military service, or to get birth control pills if you were a smoker.
Thanks for this!
costello, Queen.A
  #50  
Old May 10, 2012, 01:44 PM
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But, had I known he had psychosis, I wouldn't have waited for it to go on for so long before seeking help.
If I were hearing voices and I wasn't a danger to myself or anyone else and I didn't want to seek help for some reason - maybe the voices didn't bother me, for example - I would resent it if some other person - a family member or mental health professional - decided that I had to accept help.

If it were a safety issue or if I weren't thinking clearly, then obviously other people who care about me might have to intervene. But in fishsandwich's experience, she was hallucinating but she wasn't in distress, there was no risk to herself or others, and she didn't want the treatment. She was a competent adult who made a decision to refuse treatment. In my view she should have been left alone.

I guess I have too good of an imagination. I can imagine myself in that position, and I would be so angry to be confined and medicated against my will.

Having said that, I know how tricky it is. I've been on the other side. It isn't easy to know what to do. I have doubts and second thoughts when I don't intervene. But I also have doubts and second thoughts when I do intervene. You just try to be as loving as you can, assess the tools you have available, and take your best guess.
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