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#1
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Ron Unger's latest blog post.
Quote:
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"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
![]() fishsandwich, Tsunamisurfer
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#2
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How interesting! A few things come to mind:
1. Re: Passivity and drugs. That was certainly my experience of them. It wasn't that I was no longer hearing voices, it was that I just didn't care about the voices, or indeed anything else. I often worry that this passivity has remained with me somewhat -- even after three years off the drugs -- as I am extremely docile and lazy now. I used to be highly ambitious and have all sorts of goals and dreams. 2. Re: Doctors' attitude to hearing voices. It's interesting to hear somebody else confirm this. I remember a conversation once where I protested against having my medication put up by telling the doctor that the only things my voices had asked me to do for the past month was eat two Mars Bars and two carrots every day at half past four. They would badger me if I didn't. It was annoying, yes. Bad for the blood sugar, yes (though it's not as if the drugs aren't equally diabetes-inducing ![]() 3. I had the pleasure of meeting Rachael Waddingham on several occasions and I don't have anything to say about her except that she is AMAZING woman and I strongly recommend people to read her blog.
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Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#3
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I keep wondering if the best thing my son could do right now might be to take his dosage down a notch. It seems a bit counterintuitive because he's not doing all that well currently. But there's no initiative there at all.
__________________
"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
#4
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I think the only possible good use for meds is to find the right balance (short-term) between dulling the experiences somewhat, but also leaving enough of them there that you start to learn to cope. Basically what the article says.
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Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#5
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Quote:
One problem I see with the long-term use for a lot of people is that the drug becomes less effective over time. My adopted son has five bio siblings from his mom, two of whom are dx'd with sz. His brother Dustin is my fb friend (btw, he is so lonely and isolated it breaks my heart). He told me he has sz, that it's a biological disease, a chemical imbalance in the brain, yadda yadda yadda. I told him that wasn't proven, there were other theories, etc. "Well," he says, "the meds took care of my problem. I'll just take the meds." Two months later he says the meds aren't working anymore. ![]() Anyway... the last time we lowered my son's dose to 5 mg (Nov. 2011), he immediately started having a lot of what I call 'magical thinking' - which is okay. But then he started having rages, totally unpredictable to me what would set them off. He'd be in my face screaming so the spit was hitting me. The last one before I absolutely insisted he put the dose back up, he threw the kitchen furniture around. Right now he's at 6.125 mg which is a compromise I asked the pdoc to do for me - b/t 5 and 7.5. The pdoc told him to put it up to 7.5 last Monday, but he hasn't, and I haven't the heart to insist on it. So, I'm scared of 5 mg. But I see him struggling with depression, total lack of initiative/interest, and taking no pleasure in anything. All could be med side effects. A lower dose makes sense. And when he was on the lower dose he said he felt "great" - even though I was miserable.
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"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
#6
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He probably felt great because he could feel enough to do things again -- it's just, that thing was screaming at you, which is obviously not OK. Some other "thing to do" has to be found. I wonder if you can just spell that out to him.
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#7
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Incidentally, I'm always impressed you try to help your son so much.
All my mother ever wanted was for me to be drugged to the hilt, and I was never violent. I think she wanted that because it was easiest - it was what the doctors wanted - and she was frightened.
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#8
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Yeah, I'm not sure how much control he had. Some, obviously, because he didn't hit me or anything. And mostly we could talk it out and reach some insights - which is really the point, isn't it? But it was exhausting, and I was walking on eggshells all the time. I was scared to come home from work, because I never knew who I was going to meet - Dr. Jekyll or Mr. Hyde.
__________________
"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
#9
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It's a real shame he can't live in a supportive MH care environment. One where he's not treated like just a patient, but where they have staff (who work shifts! and get rests!) to help.
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Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#10
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Quote:
"Mental illness" doesn't just happen within the person with the dx. It happens between people - in relationships. Maybe for some people it's more within the person and for others it's more between people. I can't pretend to quantify it. But the interpersonal part is there, and it's the only part I can really hope to change, so I have to play it for all it's worth. You know, when I adopted my younger son, the lessons I learned were such a gift. Maybe I've said this here before, but I'll say it again. We saw so many therapists, and I always approached it as family therapy because he invariably manipulated the situation. So I'd go into the sessions too. And within the first few sessions, they were always talking to me. And I'd be thinking, "WTF? I'm not the one with the problem here." But, of the two of us, I was the only one willing to change. So I learned that if I change, he'll change too. It was a gift, because if you take a parent with a screwed up kid and say to him or her, "You're going to have to change," the parent is going to hear "You're a bad parent" - which may or may not be true. That's maybe what that parent's thinking anyway - which is why parents love the medical model. No blame for moms and dads! But if you have a kid you didn't even meet until he was almost 13 years old, the blame bit goes away, and with it the guilt and shame and the reflexive need to protect yourself and the message can get through more easily. I eventually ended up finding Beyond Consequences - which is a program with beaucoup problems, don't get me wrong - but it also has some good stuff I could use. I liked that it was love-based. Anyway I used what I learned with my adopted son on my bio son - kind of the reverse of what you'd expect, eh? The issues are somewhat different, but it gave me a place to start.
__________________
"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
#11
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Quote:
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![]() I can't help but think now, though, that he rejected it because he could easily have been subject to it. Also may have been a generational thing: he lived through the ****ing War, so how could I possibly have "problems"?? Quote:
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
![]() costello
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#12
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interesting.. good read =p
__________________
God is good all the time! Mark 10:18 "Why do you call me good?" Jesus answered. "No one is good--except God alone. |
![]() costello
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#13
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![]() Actually I think of interpersonal aspects of mental illness as going way beyond parents. I would extend it out to the family, community, society, country - theoretically, the whole world. All kinds of social and economic and cultural things can impact on mental health and increase or decrease the amount of mental illness. Quote:
![]() Quote:
![]() I like the notion of helping a dysregulated person by regulating yourself.
__________________
"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
#14
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Quote:
![]() Quote:
Hopefully the court will agree with me and give me money. ![]() Quote:
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#15
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You pretty much have to throw out all the parenting advice you ever heard, and then you don't know what the hell to do. So, you turn to the "experts." Most of the experts are going to tell you to do all that normal parenting stuff that doesn't work. Like giving "consequences" (i.e., punishments - which is where Beyond Consequences gets its name). Or setting up a reward system. Neither of these work with kids dx'd with RAD, but most therapists don't seem to get this. They just think you're doing it wrong. I had one traditional therapist who was very familiar with the types of behaviors you see in foster and adopted children. She admitted that reward systems don't work with RAD kids. Here's the kind of thing a RAD kid will do - just an example. You tell him if he gets all homework handed in all week, he'll get to rent a video game Friday evening. He hands his homework in all week, but Friday afternoon he punches a classmate and is suspended from school for a week. But he still insists on having the reward, because after all he "earned" it. No parent's going to give the reward under those circumstances. And any normal kid would understand why. When a kid does that kind of thing over and over again, you realize it's not a coincidence. My son told me outright that he intended to game the system. Funny story: I put braces on my son's teeth. The orthodontist had one of those reward systems. He'd give the kid a wooden token for, say, showing up on time or having his teeth brushed and clean. You could exchange the tokens for a variety of items which were displayed in a glass case at the entrance. Most kids earned 2 to 4 tokens per visit. My son earned 5 tokens total in 18 months of going there. The smallest item you could get there cost 6 tokens. So he never got a reward. I still have the 5 wooden tokens in my desk. It's almost emblematic of trying to use a reward system to change the behavior of an attachment disordered child. Mainstream psychiatry and psychology really have nothing to offer here. I had therapists advise me not to adopt him, to return him to the state. After the adoption I had many, many people - including professionals of all stripes (special educators, police, etc.) - tell me it was hopeless, he'll never change. The wikipedia article: http://en.wikipedia.org/wiki/Reactiv...hment_disorder; treatment section: http://en.wikipedia.org/wiki/Reactiv...rder#Treatment (my bolding) Quote:
Medications aren't really helpful. They do prescribe them. My son was supposed to be taking depakote, but mostly he threw them away. Once when I cleaned out his room, I found about two months worth of depakote hidden all around it. That's why the pdoc kept saying his blood tests weren't at a therapeutic dose. ![]() So, with no help from the mainstream, people turn to the alternatives - and some of those are awful. At the very kindest they involve exerting absolute control over the child. So, yeah, when I stumbled on Beyond Consequences I was so delighted. It said I could love my son. No one adopts a child hoping they'll spend their lives in a constant power struggle. People adopt hoping to have a child to love. It's really hard when the kid rejects that love. Anyway, probably way more than you wanted to know. Thanks for letting me talk it out. It really brings home to me why I take the stance I do with my older son. His psychotic illness exploded into my world while I was struggling with the younger son's problems and really influenced how I see things. Some of my philosophies: 1. "Mental illness" happens between people. 2. You can help the person in distress by learning to calm and regulate yourself. 3. Try to see things from the distressed person's point of view. No matter how utterly bizarre it seems, you can understand it if you start with the assumption that it makes sense to him - and really work at it. 4. Even the biggest catastrophes can be weathered. 5. Time is a great healer, and time is on our side.
__________________
"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
![]() fishsandwich
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#16
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1) Thanks for the article costello
![]() ![]() 2) Re RAD I have 2 adoptive younger siblings and it is definitely a challenge, especially the older one who was nearly 8 before we got him. He's almost 16 now and nothing has changed. The medical professionals don't have any answers and my parents are exhausted dealing with him. I wonder if we even did the best thing by adopting them, because my parents are so stressed out about them (the youngest one has ADHD too). I will check out that website that you mentioned costello to see if it has any insight for my parents. The only thing is I fear it may be too late for the 15-year-old now, which is incredibly sad ![]() Anyway, thank you costello for the links ![]() *Willow* |
![]() costello
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#17
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i heard most foster children have mental/emotional problems than not.
__________________
"We're all born to broken people on their most honest day of living"
The Dopamine Flux www.thedopamineflux.com Youtube channel https://www.youtube.com/user/MozePrayIII |
![]() costello
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#18
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I spent most of my life talking with my 'voice' and it seems like it only made it worse. Of course I didn't even know it wasn't normal until meds 'coincidentally' took it away. My anti-anxiety med made me tired and Wellbutrin was added to help up my mood and energy level and ended up making the hallucinations go away. I can see how voices shouldn't automatically be considered negative, but I can't think of anything positive coming from mine. And so what if I have the strength to not acknowledge the voice. I feel like I'm barely hanging on without it there, why should I live my life trying to survive it plus everything else?
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God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference. |
![]() costello, fishsandwich
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#19
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I don't think the article is saying you should HAVE to live with your voices constantly, it's saying that you should learn to because even the best drugging will not guarantee a 100% remission.
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
![]() costello, ickydog2006
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#20
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Thanks fish. I think that wording actually helps. It makes sense that people should learn to survive with them since meds arn't a guarantee. And I know this article wasn't meant to say that 'all voices are just misunderstood and are valuable, it just kinda felt that way to me. I can see how some voices could be interpreted as useful to learning more about oneself. I think I felt like this article was acting as if you could just learn from the voices and once your inner issues are resolved they'll just go away (I know it pretty much said the opposite, and that they'll still be there, just more tolerable). I guess learning to survive with my voice was benneficial, in that I know if meds arn't a long term solution, I can still survive and not harm or kill anyone. I feel like I already want to do a lot of the bad things the voice was talking about, it just made it all the harder to resist with it constantly there.
__________________
God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference. |
![]() costello, fishsandwich
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#21
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I used a similar technique to one of those the article mentions -- just learning to passively accept when I'm hearing a voice. I often hear benign voices -- they say things like "Go buy milk!", "Wear shoes with laces you can tie!", "Cross the road now!", "The sky is green today!", etc. -- and I don't think they have any particular meaning. Nor do I care if they do have meaning, whatever it is must be pretty banal
![]() I just learn to sit with them and not just passively do or believe whatever they say. I can even dismiss/tolerate even the occasional aggressive voice with this kind of attitude, but I can see how you wouldn't want to do that if your voices were mean to you constantly.
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
![]() costello, ickydog2006
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