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#1
Sep 22, 2024, 12:20 PM
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Hoping for a better year coming up. I apparently have Type 2, and trying to find ways to deal with it, while looking for a job that won't fire me. This is hugely stressful.
September 22, 2024 |
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#2
Oct 05, 2024, 05:13 PM
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I totally get it. I developed N as long covid. It gets better over time. Probably not the case with you. Thank you for informing us that there is such a day in the calendar.
__________________
Bipolar I w/psychotic features Last inpatient stay in 2018 Lybalvi 10 mg Naltrexone 75 mg Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects) Long-term side effects from medications, some of them discontinued: - Hypothyroidism - Obesity BMI ~ 38 |
 PhilMC
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#3
Oct 24, 2024, 03:14 PM
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Update: My high ferritin (950) is causing me to wake up 3 times a minute. I'm trying to fix that, but that means blood letting a pint every week for the next 6 months.
I swear this is absolutely insane. |
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#4
Oct 24, 2024, 04:47 PM
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How about you donate double reds? This will take out more red blood cells and benefit others to boot.
__________________
Bipolar I w/psychotic features Last inpatient stay in 2018 Lybalvi 10 mg Naltrexone 75 mg Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects) Long-term side effects from medications, some of them discontinued: - Hypothyroidism - Obesity BMI ~ 38 |
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#5
Oct 24, 2024, 05:42 PM
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Taking a pint a week is the absolute highest anybody can achieve. Otherwise I die. This is once a week, not the usual once per two months for regular blood donation. This isn't donation, this is hospital therapeutic phlobotomy. The blood goes nowhere. Gets destroyed.
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#6
Oct 24, 2024, 09:07 PM
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Holy Moly! Has a cause been identified?
Yes, every eight weeks (or less frequently) is the routine for blood donations. My guess is that your donation would be refused anyway.
__________________
Major Depressive Disorder; Sleep Apnea; possibly on the spectrum Nuvigil 50mg; Wellbutrin 150mg; meds for blood pressure & cholesterol |
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#7
Oct 24, 2024, 11:10 PM
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yeah. for double reds, it is once every 16 weeks because of how long it takes the red blood cells to be built again
__________________
Bipolar I w/psychotic features Last inpatient stay in 2018 Lybalvi 10 mg Naltrexone 75 mg Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects) Long-term side effects from medications, some of them discontinued: - Hypothyroidism - Obesity BMI ~ 38 |
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#8
Oct 25, 2024, 07:47 AM
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No cause as of yet. Not sure if they'll look. Canadian healthcare is horrible. I'm off to the clinic now in fact. My donations just started, but to address this ferritin, it's on a therapeutic schedule that's monitored. Goes for 8 weeks then it should change. I'm still learning about this stuff.
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#9
Oct 25, 2024, 09:51 PM
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Please keep us posted! And good luck!
__________________
Major Depressive Disorder; Sleep Apnea; possibly on the spectrum Nuvigil 50mg; Wellbutrin 150mg; meds for blood pressure & cholesterol |
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#10
Oct 28, 2024, 02:51 PM
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I have a MSLT test this weekend. Not looking forward to it. This two week sleep archive shows my world is completely messed up. I also don't see myself coming out of this with any new info.
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#11
May 30, 2025, 09:52 AM
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Well here's an update. I moved to an apartment. I recorded myself this morning and I'm snoring heavily even with taping. So I don't know what to do. I have to fix this. My CPAP machine does nothing for me. If anything, costs me money and keeps me awake. I can't sleep using that contraption. I've tried over many years. No I don't need to buy the full $8000 package of every mask available.
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#12
May 31, 2025, 04:50 PM
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You might've mentioned this already; if so, sorry to ask...
What is the CPAP's pressure range set to? It seems to be too low. More modern machines are connected wirelessly "somewhere," so new settings can be sent remotely. Don't bother with a new mask unless the current one is cutting into you or leaking too much. Even then, it might need only a size adjustment. And snoring is better than not breathing, but it does indicate the therapy needs improvement. Also, is your ferritin still high?
__________________
Major Depressive Disorder; Sleep Apnea; possibly on the spectrum Nuvigil 50mg; Wellbutrin 150mg; meds for blood pressure & cholesterol |
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#13
May 31, 2025, 07:08 PM
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Ya it was optimized many tests ago at a sleep study. Nothing wireless about my unit. My mask isn't cutting nor leaking. It doesn't need adjustment. There's nothing wrong with the mask nor the setup. It just simply won't let me sleep.
Ferritin came down 50% within 3 months so they stopped looking at it. I don't need the blood letting as they once told me. It seems they don't really know what to do, to be honest. |
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#14
Jun 06, 2025, 11:06 AM
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That must be incredibly frustrating. Sorry that you're stuck in this predicament!
__________________
Major Depressive Disorder; Sleep Apnea; possibly on the spectrum Nuvigil 50mg; Wellbutrin 150mg; meds for blood pressure & cholesterol |
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#15
Jun 06, 2025, 12:10 PM
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Thank you. Yes it's hugely frustrating, and I have no clue what the future brings.
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#16
Yesterday, 08:31 PM
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Quote:
__________________
Bipolar I w/psychotic features Last inpatient stay in 2018 Lybalvi 10 mg Naltrexone 75 mg Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects) Long-term side effects from medications, some of them discontinued: - Hypothyroidism - Obesity BMI ~ 38 |
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#17
Yesterday, 11:10 PM
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I'm 8 seconds off Type 2. So I'm between IH and T2.
Recently things have gotten worse as I'm sleeping multiple times a day, but I'm hugely stressed and the beer has been a complete go-to for me recently. And yes, the problem with any sleep test is that it's in that situation of being in a test. My CPAP is horrible, as much as I've tried. They encourage using it like it's some kind of magic for everybody, but it's not, But that just screws with the test and they eventually say "See, you need this." The MSLT is about measuring how fast you come in and out of the need for sleep. If you dream often, it means you're deprived of meaningful sleep. That's pretty much what you'll get out of it. Further than that, you're in my territory where you need to test on your own what works best for you, regardless of what each does. Keep your CPAP as things change. Also focus on your overall health and make it a priority. It's a lifelong deal as this stems from a physiology problem as you get older. Cheers man. |
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#18
Today, 09:42 AM
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Oh, I am not a man, but we are in the same boat.
Do I understand it correctly that you do not fall asleep fast enough for type 2 dx? You fall asleep 8 seconds longer than the threshold for type 2? I think the same may be true for me. That worries me, too.
__________________
Bipolar I w/psychotic features Last inpatient stay in 2018 Lybalvi 10 mg Naltrexone 75 mg Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects) Long-term side effects from medications, some of them discontinued: - Hypothyroidism - Obesity BMI ~ 38 |
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#19
Today, 10:05 AM
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Falling asleep isn't a problem. I fall asleep 3 to 4 times a day now. Nobody knows how all of this is related. I just know it's completely taking up my schedule. I have metabolic syndrome and woke up head to toe in pain with inflammation.
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#20
Today, 10:02 PM
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Then I do not understand what you meant when you said that you were 8 seconds away from type 2.
__________________
Bipolar I w/psychotic features Last inpatient stay in 2018 Lybalvi 10 mg Naltrexone 75 mg Gabapentin 1500 mg+Vitamin B-complex (against extrapyramidal side effects) Long-term side effects from medications, some of them discontinued: - Hypothyroidism - Obesity BMI ~ 38 |
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