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  #1  
Old Jul 03, 2013, 08:20 PM
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I am so sick of people who've known me all my life telling me that I could get over my agoraphobia if I loved my kids enough. I'm not good enough because I can't go to see fireworks, or take them to a theme park, fair, or on any type of vacation. I take my meds & am waiting on a decision on my disability/ssi claim. They know I'm sick. Does it make them feel better to point out what my illness costs me? It IS all in my head & that's the problem. I try to function to a level of not completely batshit, but that isn't always an option. Friends should support you & they don't. Sick of being treated like a freak. Sick of being a freak.
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Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
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  #2  
Old Jul 03, 2013, 08:28 PM
Anonymous100103
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Hang in there & do what you have to do to take care of you. Those who don't have your problem can never relate. So please don't let what they say bring you down. Take care! Hugs!
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  #3  
Old Jul 03, 2013, 08:34 PM
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Thanks. It's just sad that my friends of 20 years can't accept me. Guess I quit paying attention to who my friends were. Now there are none. Too bad
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Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
  #4  
Old Jul 04, 2013, 12:32 AM
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healingme4me healingme4me is offline
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MS patients, many, go through something similar. I get what you mean. And it stinks that when you need compassion, it isn't there.

What happens with MSers, is that it can be a struggle for some going places and doing things and keeping up. Struggles with fatigue from heat can set in, leaving amusement parks, outdoor activities, etc, something that just isn't in the cards, on those very days. And healthier people, just cannot relate to nor understand what it means that they aren't able to keep up the pace, etc. ((MS patients, sometimes get a lot of 'it's all in your head' rhetoric in life))

A friend of 20 years, why can't they be more understanding of your situation?

Something else, I have learned about people. The mere mention of applying for SSI/SSDI triggers a not so tender spot inside themselves. Could that, also, be part of your 'friends' issue?

Thanks for this!
not quite right
  #5  
Old Jul 04, 2013, 12:44 AM
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What brought me into this thread, the title. Have we met?

I've come across people, that are judgmental, that speak harshly, etc. And the first line/title that pops in my head...

Do You Know Me?! Do I know you?!
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not quite right
  #6  
Old Jul 04, 2013, 10:45 AM
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Quote:
Originally Posted by healingme4me View Post
What brought me into this thread, the title. Have we met?

I've come across people, that are judgmental, that speak harshly, etc. And the first line/title that pops in my head...

Do You Know Me?! Do I know you?!
The ssi/ds could have some play. One of these "friends" has been denied & I believe is hateful because I have a good chance of winning my case. Every time someone says something about my attitude, actions, or pretty much anything I ask them, have we met? Do you know me? Sadly I'm finding out the answer is no, you don't. And I suppose I don't really know them either. sadly the only people who understand are here, in the pc community & most have never seen my face.
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. . .


Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
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  #7  
Old Jul 04, 2013, 11:42 AM
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I've gotten the same treatment from my family, altho it's calmed down a little.
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  #8  
Old Jul 04, 2013, 09:45 PM
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Marla500 Marla500 is offline
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Quote:
Originally Posted by Cracking Slowly View Post
Hang in there & do what you have to do to take care of you. Those who don't have your problem can never relate. So please don't let what they say bring you down. Take care! Hugs!
very, very true!! you have to walk a mile in someone else's shoes to really get where they are coming from.
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  #9  
Old Jul 05, 2013, 05:45 PM
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Originally Posted by Marla500 View Post
very, very true!! you have to walk a mile in someone else's shoes to really get where they are coming from.
I wouldn't wish my shoes on my worst enemy. But, that's it in a nutshell. I keep hearing that I make bad decisions. Well, not everybody is given the same choices. I try to choose the least crappy of my crappy options. I try not to judge. Though I must admit I have no tolerance for ignorance. But most of the time I feel like I'm on trial and the world keeps judging me. I wonder if they knew the whole story, would they still find me guilty? Probably so. Empathy is lost among the masses. I make no excuses, this is what I am. I just wish that was good enough. I heard on the news that mental illness doesn't carry the stigma it used to. I don't agree. If my closest friends & family have no compassion, I highly doubt I'll receive it from the general public. Now I'm just rambling because I'm so tired of keeping it inside.i guess I shall stop now & put my crazy away. Until next time
__________________
. . .


Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
Hugs from:
shortandcute
  #10  
Old Jul 05, 2013, 11:05 PM
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Marla500 Marla500 is offline
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well, you are in good company here!
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not quite right
  #11  
Old Jul 06, 2013, 05:59 AM
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Originally Posted by Marla500 View Post
well, you are in good company here!
I'm.so grateful I found this place when I did. Just knowing real people out there understand what it's like is relieving. I'm not alone. None judge, and there's advice that really helps. It's helped me hang on. Much love to all
__________________
. . .


Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
Hugs from:
healingme4me, shortandcute
  #12  
Old Jul 06, 2013, 08:43 AM
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henrydavidtherobot henrydavidtherobot is offline
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You are not a freak. You have an illness. It must be very hard not to be able to take your kids out. I'm sorry that you are having such a hard time. Hang in there.
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  #13  
Old Jul 06, 2013, 02:23 PM
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Originally Posted by Marla500 View Post
well, you are in good company here!
Absolutely. I'm not a freak here. Can't say that very often. Lol.
__________________
. . .


Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
Hugs from:
healingme4me
Thanks for this!
healingme4me
  #14  
Old Jul 06, 2013, 03:02 PM
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MaryJayne47 MaryJayne47 is offline
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I personally don't have the same problems as you, but I hate when people close to me don't understand my problems. When they tell you to just stop being that way. Its frustrating, insensitive and not fair. At least you know you have a problem and have been taking steps to better yourself, like joining this site Now THATs something to be proud of! I commend you on your efforts and really hope that people close to you start to realize those positive parts of you instead of the negative ones.
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healingme4me, not quite right
  #15  
Old Jul 06, 2013, 04:54 PM
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I've accepted how people see me. I''ve missed out on life, but, the life I have is mine & I am who I am. I'm not ashamed of my failures, I am the person I am today because that is who I'm supposed to be. Like it or don't. I'm perfectly imperfect.
__________________
. . .


Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
Hugs from:
healingme4me, MaryJayne47
Thanks for this!
healingme4me, MaryJayne47, shortandcute
  #16  
Old Jul 07, 2013, 10:22 AM
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Quote:
Originally Posted by not quite right View Post
I wouldn't wish my shoes on my worst enemy. But, that's it in a nutshell. I keep hearing that I make bad decisions. Well, not everybody is given the same choices. I try to choose the least crappy of my crappy options. I try not to judge. Though I must admit I have no tolerance for ignorance. But most of the time I feel like I'm on trial and the world keeps judging me. I wonder if they knew the whole story, would they still find me guilty? Probably so. Empathy is lost among the masses. I make no excuses, this is what I am. I just wish that was good enough. I heard on the news that mental illness doesn't carry the stigma it used to. I don't agree. If my closest friends & family have no compassion, I highly doubt I'll receive it from the general public. Now I'm just rambling because I'm so tired of keeping it inside.i guess I shall stop now & put my crazy away. Until next time
Oh, I hear ya on that one! I get tired of people telling me that if I just read the Bible more, or ate healthier, or whatever, I would always feel happy. I quit going to church because a lot of the people there stopped socializing with me because I wasn't "happy" enough for them!
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  #17  
Old Jul 07, 2013, 02:24 PM
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Originally Posted by shortandcute View Post
Oh, I hear ya on that one! I get tired of people telling me that if I just read the Bible more, or ate healthier, or whatever, I would always feel happy. I quit going to church because a lot of the people there stopped socializing with me because I wasn't "happy" enough for them!
I never went to church because it's not my thing, but they tend to be judgmental. I have gotten way to old to pretend that I'm anything less than unpleasant. I'm ready to introduce people to the real me & they're not going to know what happened. I guess if they don't like it, they can go away. I got a kitten & it seems to love me just fine. What fun is bein crazy if you don't have a cat?
__________________
. . .


Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
Hugs from:
healingme4me, shortandcute
Thanks for this!
pngindreamr, shortandcute
  #18  
Old Jul 11, 2013, 08:37 PM
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pngindreamr pngindreamr is offline
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I relate to this. My friends think I can easily change and I have heard many times from family members that I am a "drama queen" and I just "take things too seriously". Sorry but who would choose this? I would love for my mind to function like theirs- so I cannot understand why they think we are letting this happen??

But hugs to you! I am sure you are doing the best you can parenting and don't let them get you down. You are not alone.
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The good life is a process, not a state of being. It is a direction not a destination.
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not quite right
  #19  
Old Jul 12, 2013, 11:54 PM
Anonymous50123
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Hey there,

I just wanted to drop in and let you know that it sounds like you're doing the best you can do right now. Unfortunately, some people can't tell when someone is doing their best and that can be very tough.


You're doing your best and that's what counts!
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Thanks for this!
healingme4me, not quite right
  #20  
Old Jul 13, 2013, 03:52 PM
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MaryJayne47 MaryJayne47 is offline
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Quote:
Originally Posted by not quite right View Post
I've accepted how people see me. I''ve missed out on life, but, the life I have is mine & I am who I am. I'm not ashamed of my failures, I am the person I am today because that is who I'm supposed to be. Like it or don't. I'm perfectly imperfect.
I almost want to add this to my favorite quotes. You actually made me feel better about myself reading that. Brought tears to my eyes. Thank you for being who you are
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not quite right
  #21  
Old Jul 15, 2013, 04:19 PM
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Quote:
Originally Posted by MaryJayne47 View Post
I almost want to add this to my favorite quotes. You actually made me feel better about myself reading that. Brought tears to my eyes. Thank you for being who you are
Feel free to quote me any time. I'm glad that it found it's way to you. No one should have to live their lives according to the expectations of others. One day you just have to make peace with yourself & others can do so, also, or move on. I've wasted too much time & too many tears trying to be who I never could be, & really don't wanna be, anyway. Be yourself, I like you.
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Burning mud in my eyes blinding me from the truth
If it's a shadow in me the dark is a tidal wave inside of you
You've been taking communion
Getting drunk on your antidote
I'll save a seat next to me down below
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