[Waterbear]

Hello. My T mentioned that she thought that it could be a possibility that I am on the Autism spectrum today, that maybe I had Asperger's Syndrome. I could do with chatting with someone with knowledge of or experience living life with Autism or Asperger's. Is there anyone who might be able to help?

[Differentlywired]

I was diagnosed Feb this year.

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[Differentlywired]

It took me a while to get my head round it when it was first brought up by a support worker... Then people kept bringing it up- especially when my daughter was diagnosed.

My current T was the one who made me see that I should find out one way or another

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[Waterbear]

Thabk you for replying. Where abouts in the world are you? I was wondering if you minded me asking how it came about through your support worker and whether you had a T at the time? Do you think it has helped you to have a diagnosis?

I think for me it would help other people to understand me better and it would help me give myself a bit more compassion rather than just thinking I am useless at relationships and in social situations.

I have an awful lot of questions but no one to talk to, my H is away working for a few months and I am a little lacking in the friend department. Thanks again for replying.

[Differentlywired]

Originally Posted by Waterbear

Thabk you for replying. Where abouts in the world are you? I was wondering if you minded me asking how it came about through your support worker and whether you had a T at the time? Do you think it has helped you to have a diagnosis?


I think for me it would help other people to understand me better and it would help me give myself a bit more compassion rather than just thinking I am useless at relationships and in social situations.


I have an awful lot of questions but no one to talk to, my H is away working for a few months and I am a little lacking in the friend department. Thanks again for replying.

I live in the UK...

I didn't have a T when a support worker brought it up 3 years ago.
I was too busy dealing with getting my daughter diagnosed and problems with her education.

I have a T now, who was the one who brought it up again and was the main reason I got assessed.

Yes having the diagnosis has helped massively.

I understand me now, and it helps me see my whole life through the lens of Autism, it has given me answers, people understand me better.

Also I am easier on myself. Exactly what you think may help, I am useless at social stuff, but now I know why and it helps.



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[Waterbear]

That does sound as if it would be very helpful, glad for tiu that you got the support to help you get diagnosed and that it has helped, and for your daughter too. My T said that it can be genetically and that, from what I have told her, it sounds like my Dad could be too, though I don't think he would take too well to being told that. He has been very successful in his proffessional life, possibly helped by this, if it is the case. Thing is, he seems comfortable in social situations, unlike me.

Were you diagnosed on the NHS, and if so, please would you mind talking me through how that works? I have read that it can be done but I don't know how or how easy it is. Mostly I think that the NHS is difficult to navigate.

[Differentlywired]

Originally Posted by Waterbear

That does sound as if it would be very helpful, glad for tiu that you got the support to help you get diagnosed and that it has helped, and for your daughter too. My T said that it can be genetically and that, from what I have told her, it sounds like my Dad could be too, though I don't think he would take too well to being told that. He has been very successful in his proffessional life, possibly helped by this, if it is the case. Thing is, he seems comfortable in social situations, unlike me.


Were you diagnosed on the NHS, and if so, please would you mind talking me through how that works? I have read that it can be done but I don't know how or how easy it is. Mostly I think that the NHS is difficult to navigate.

Yeah, my dad has realised that he is probably on the spectrum, he doesn't have as many social difficulties or sensory issues.

Yes I was diagnosed on the NHS.
If you google the autism strategy and have a look your GP has to send you for a referral if you believe you are on the autism spectrum.

I went to my GP and they sent me to the autism spectrum conditions assessment service.

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[Waterbear]

Thanks, I will take a look. Did it take long?

[Differentlywired]

Originally Posted by Waterbear

Thanks, I will take a look. Did it take long?

No it didn't take long at all. 6weeks from referral to assessment and diagnosed at that appointment- I had my dad and brother write letters about my development and my only friend came with me to the assessment and was very honest about things. I had to fill in self assessment forms too.

It's weird because my daughter goes to a special needs school and it took 2 years for Paeds to diagnose her.

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[Waterbear]

Thanks, that is quick, and a big difference for you and your daughter!

I had read that you need to have input from family, but that would mean opening up to them, something I have never done before and something that scares me terribly. I will be talking to my T about things next week I think. I don't have any friends that know me enough to contribute but I wonder if my T would get involved at all.

Anyways, thanks ever so much for chatting with me, it really is appreciated. Take care and if you ever want to talk, not that I know anything or am that good at chatting, feel free to pm me. Thanks again.

[Differentlywired]

Originally Posted by Waterbear

Thanks, that is quick, and a big difference for you and your daughter!


I had read that you need to have input from family, but that would mean opening up to them, something I have never done before and something that scares me terribly. I will be talking to my T about things next week I think. I don't have any friends that know me enough to contribute but I wonder if my T would get involved at all.


Anyways, thanks ever so much for chatting with me, it really is appreciated. Take care and if you ever want to talk, not that I know anything or am that good at chatting, feel free to pm me. Thanks again.

You are welcome.

If you want to chat again about the possibility of getting an assessment/diagnosis- feel free to pm

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[catnip123]

I was diagnosed 5 years ago. My T didn't need any input from my family to be able to make a diagnosis. I think the diagnosis has helped me a lot. It helped me realize that there are a lot of other people with issues similar to mine