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Old Mar 06, 2014, 11:05 PM
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shortandcute shortandcute is offline
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for me it's:
people not believing that you suffer from bad depression because they've seen you during your manic episodes

being misdiagnosed with a bunch of other things, when it would served you better if they got it right the first time

hearing people say things like, "My nephew was diagnosed as manic-depressive, but I just told the doctor 'No, he's just an idiot, and if he'd just get his **** together and quit drinking, he'd be fine."

people telling you there's no such thing as bipolar because of an article they read online
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  #2  
Old Mar 06, 2014, 11:30 PM
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Doing or saying crazy things to people who have no idea about my diagnosis and regretting it later on but being unable to explain why things happened the way they did
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  #3  
Old Mar 06, 2014, 11:32 PM
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Having people judge you because if you're bipolar they think you are crazy and dangerous.
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Old Mar 06, 2014, 11:36 PM
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For me the hardest thing is when I am completely normal for months and I forget about it and live normal and then get that rude awakening of another episode coming on. I never got use to that.
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  #5  
Old Mar 06, 2014, 11:38 PM
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What's hard is being stigmatized and marginalized because you have a mental illness. Especially when you go to a doctor who doesn't know you and they want to discuss your psych history before they even look at you for the complaint you came in for. Or you go to the ER with a broken toe and the VERY FIRST thing they see in your medical record is your bipolar diagnosis, and then they're reluctant even to prescribe pain medication.

I'm a well-educated R.N. with a responsible job, but to some I'll always be just another crazy person whose word carries little credibility. That is supremely frustrating and I think it's one of the worst things about having this illness.
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  #6  
Old Mar 07, 2014, 08:11 AM
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The one thing I'm most annoyed with is when I finally tell someone I'm bipolar and there response is some variation of "but you're too happy/you smile too much" to be bipolar. ***** you don't see inside my head. You would be running in the opposite direction.

And my husband sometimes telling me it's mind over matter. Really? That's all it takes? Wow thanks I've never thought of trying that

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  #7  
Old Mar 07, 2014, 08:21 AM
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Socializing in a group and not being able to shut up and giving too much information.
Then going home and being worried about everything that I had said and thinking I acted like an idiot which I probably did....

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  #8  
Old Mar 07, 2014, 09:06 AM
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The worst part is being depressed and being told "oh I've been depressed - just put on your big girl panties and suck it up". Really? Don't you think I would do that if I could??
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  #9  
Old Mar 07, 2014, 09:10 AM
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I would say having to hide who I really am. Having no one to talk to who understands. When I am in an episode it is so difficult to carry on as normal but I feel I have to. I wish I could be free to be myself.
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  #10  
Old Mar 07, 2014, 09:10 AM
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the hardest part is the horrible depressions (like I'm in now)
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  #11  
Old Mar 07, 2014, 10:18 AM
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shortandcute shortandcute is offline
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.....being so frazzled and upset that you can't remember which meds you were prescribed, so you scream at the pharmacist and tell her that you psych. doctor is f***ing with you--then later you realized you messed up and feel so guilty that you fall into a deep depression...

....people never knowing how to act around you because---due to your "mood swings," no one knows how you're gonna react.....

suddenly getting upset about things that usually don't bother you, so your sister (or whoever) thinks that you have a guilty conscious about something, but you can't really explain why you acted the way you did.....
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  #12  
Old Mar 07, 2014, 10:21 AM
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Quote:
Originally Posted by newgal2 View Post
the hardest part is the horrible depressions (like I'm in now)
Oh, I know! I could never completly put into words the deep, dark pit I'm in during my depression.
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  #13  
Old Mar 07, 2014, 10:22 AM
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.....the mixed episodes.................and the anxiety attacks
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  #14  
Old Mar 07, 2014, 10:28 AM
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Quote:
Originally Posted by shortandcute View Post
Oh, I know! I could never completly put into words the deep, dark pit I'm in during my depression.
shortandcute, are you in a depression right now?
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  #15  
Old Mar 07, 2014, 11:37 AM
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Not being able to trust my (transient, turbulent) emotions and instincts.
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  #16  
Old Mar 07, 2014, 12:31 PM
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That the legal system discriminates against bipolar parents in custody disputes is a bad one.

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  #17  
Old Mar 07, 2014, 12:34 PM
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Some days everything is awful about being bipolar...other days it's okay to be bipolar. That sounds pretty...bipolar of me. LOL
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  #18  
Old Mar 07, 2014, 04:49 PM
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Quote:
Originally Posted by newgal2 View Post
shortandcute, are you in a depression right now?
not so much right now...but I was in one for a long time pretty recently
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  #19  
Old Mar 07, 2014, 04:57 PM
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Not being able to figure out what is true and what is not when I'm too far down or too far up.

Not knowing whether my emotions are appropriate or blown out of proportion.

Not being able to control my anger when that part of the cycle hits me. Even when I know that I have no reason to be angry.

But more than all of those, I hate not being able to trust myself and the decisions I make. (When I'm not stable)

I don't know... I don't think I expressed this very well right now.

Oh, and I hate that even good changes can push me off the cliff.

And I hate that I way too often end up telling everyone how ****ing fantastic I am.

Last edited by Axiom; Mar 07, 2014 at 05:13 PM.
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  #20  
Old Mar 07, 2014, 05:06 PM
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Cocosurviving Cocosurviving is offline
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1. I feel the similar to WFC. But I avoid ppl so they do not see I'm not like them.

2. I feel really out of place a lot even among others with BP because I do not get much depression/suicide. I feel like an outcast bc I'm on the opposite end of the spectrum mania/homicide.

3. I hate the mixed episodes and pure manic ones too. I've been hospitalized twice bc of mixed episodes with extreme mania and psychosis. I do no like crying and being extreme pissed off so bad I'm ready to explode all at the same time.

3. For some weird reason I now have no remorse for the things I do, try to do or say to ppl when I'm ill.

4. I hate the side effects from meds. My meds do help me to an instant. After my onset (prior to taking meds) and after taking them I notice cognitive dysfunctions. Problems with reading, focusing, coordination etc....

5. I hate worrying abt having health insurance.

6. I hate worrying abt working three times as hard to get a job now. I'm a double minority now but I'm trying to hide one.

7. I hate tell the gov'n all my biz and busting my axx for damn near two years. Knowing all the while it's still a roll of the dice.

8. Like others I get tired of people looking terrified when u get u the nerve to tell them u have BP. Afterwards ur kicking yourself thinking "shxt she's usually open minded".


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  #21  
Old Mar 07, 2014, 05:09 PM
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Quote:
Originally Posted by BipolaRNurse View Post
What's hard is being stigmatized and marginalized because you have a mental illness. Especially when you go to a doctor who doesn't know you and they want to discuss your psych history before they even look at you for the complaint you came in for. Or you go to the ER with a broken toe and the VERY FIRST thing they see in your medical record is your bipolar diagnosis, and then they're reluctant even to prescribe pain medication.

I'm a well-educated R.N. with a responsible job, but to some I'll always be just another crazy person whose word carries little credibility. That is supremely frustrating and I think it's one of the worst things about having this illness.

BipolaRNurse, I can relate to u. I had a bad reaction to a med once. EMS was called out I had to tell them the med and what it was for. I was treated like I had cooties. I was "not" manic. I was in a store and got very dizzy. The med made me very light head. The EMS techs looked at me like they were scared and stayed a good distance from me.


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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #22  
Old Mar 07, 2014, 06:38 PM
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I just hate the way my brain is wired.
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  #23  
Old Mar 07, 2014, 07:04 PM
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I hate the sleeplessness
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  #24  
Old Mar 07, 2014, 07:09 PM
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I just picked up this diagnosis, and for once I think it is correct [after 40 years of collecting them...]. What is hard is that I was an attorney, now I am broke and unemployed. People just think I am slacking because I can pull off 4-6 hours of "role playing" as someone who is ok. Associates, family and friends - they don't realize that I am beyond depressed, agitated, paranoid, or lost. I am afraid because I don't feel like I can function any more. :-(

Last edited by Hopeful Camel; Mar 07, 2014 at 07:12 PM. Reason: misspelled words
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  #25  
Old Mar 07, 2014, 09:10 PM
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Each hospitalization, some damn doctor changing meds just because.

That's not the hardest thing but it pisses me off.

I don't what the hardest thing is. Probably the unpredictability of the illness, and feeling dragged around by it. The burned bridges, the stigma, the whole damn thing.

My wife has to be tired of the fallout of my moods, talking about them, worrying about them or waiting for them to shift when things are going well.

Just writing about this is causing me to feel sad and get that falling feeling in my stomach.

This disorder sucks.
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Last edited by Raging Phoenix; Mar 07, 2014 at 11:07 PM.
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