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  #1  
Old Jul 10, 2015, 07:46 PM
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cashart10 cashart10 is offline
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I saw a new GP today. I really liked her. She recommended me to a nutritionist and I am very excited about this. I have never before seen my current size in my life and it makes me self loathe. Hopefully she can help me counteract all of these drugs. But then, of course, if I do start Clozaril, I will blow up like a freaking balloon (I understand it is worse than Zyprexa). We shall see.

She also looked down at my med list, looked up at me, and said, you know you take an unusually high amount of meds, right? (And all the people said "Amen")

My IOP therapist and my mom also discussed this very thing today and my therapist is still working to get me into a pdoc at the hospital. That will give me a second set of eyes prior to Sept (which is the soonest available second opinion I could get). Anyway, I just thought I'd share...another professional who agrees with what I suppose is the obvious.
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Every finger in the room is pointing at me
I want to spit in their faces then I get afraid of what that could bring
I got a bowling ball in my stomach I got a desert in my mouth
Figures that my courage would choose to sell out now

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Dx: Schizoaffective Disorder
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  #2  
Old Jul 10, 2015, 07:50 PM
boogiesmash boogiesmash is offline
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what's gp and iop? Hope she works out!!
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  #3  
Old Jul 10, 2015, 07:57 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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You made me smile there. I'm glad you feel well enough to have little jokes in there.

I hope you get the 1st 2nd opinion too. Like I said I would take clozaril if I knew I'd tried everything but I'd want to be sure that I'd done everything.

Ooh, I just remembered....Several years ago we were getting close to it and I was trying to go back to work and getting worse instead of better. I asked my pdoc why nothing was helping me and why I would get worse when I was trying so hard to be better and wanted nothing but to go back to work. She said before we had to make really hard decisions she wanted 2nd opinions so she hooked me up with 2 other pdocs. One has done IP for many, many years and the other is the head of psychiatry at the big hospital I go to. I wound up IP instead of seeing them (I did see the IP guy I think once but not for the consult, just b/c he was on call) and had forgotten. But that's the kind of thing I want before Clozaril, my dr double-checking herself. 3 drs. saying clozaril would be a lot easier to take than just one. I think she knew I trusted her totally but that hearing this from others would be a good thing.
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  #4  
Old Jul 10, 2015, 07:58 PM
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cashart10 cashart10 is offline
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Quote:
Originally Posted by boogiesmash View Post
what's gp and iop? Hope she works out!!
gp= general practitioner

iop= intensive outpatient program

Thank you!
__________________
*****

Every finger in the room is pointing at me
I want to spit in their faces then I get afraid of what that could bring
I got a bowling ball in my stomach I got a desert in my mouth
Figures that my courage would choose to sell out now

Tori Amos ~ Crucify

Dx: Schizoaffective Disorder
  #5  
Old Jul 10, 2015, 08:02 PM
Capriciousness Capriciousness is offline
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This is great news Cash! I'm glad.
Thanks for this!
cashart10
  #6  
Old Jul 10, 2015, 08:29 PM
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cashart10 cashart10 is offline
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Quote:
Originally Posted by BeyondtheRainbow View Post
You made me smile there. I'm glad you feel well enough to have little jokes in there.

I hope you get the 1st 2nd opinion too. Like I said I would take clozaril if I knew I'd tried everything but I'd want to be sure that I'd done everything.

Ooh, I just remembered....Several years ago we were getting close to it and I was trying to go back to work and getting worse instead of better. I asked my pdoc why nothing was helping me and why I would get worse when I was trying so hard to be better and wanted nothing but to go back to work. She said before we had to make really hard decisions she wanted 2nd opinions so she hooked me up with 2 other pdocs. One has done IP for many, many years and the other is the head of psychiatry at the big hospital I go to. I wound up IP instead of seeing them (I did see the IP guy I think once but not for the consult, just b/c he was on call) and had forgotten. But that's the kind of thing I want before Clozaril, my dr double-checking herself. 3 drs. saying clozaril would be a lot easier to take than just one. I think she knew I trusted her totally but that hearing this from others would be a good thing.

It sounds like you really do have an exceptional pdoc! I *feel* that my pdoc is exceptional mostly, but I'm not sure how much of that is the length of and friendliness of our relationship and how much of that is truly him being exceptional. I am rather hoping for that 1st second opinion. The only thing that would prevent it is insurance. I will find out early next week I'm sure.
__________________
*****

Every finger in the room is pointing at me
I want to spit in their faces then I get afraid of what that could bring
I got a bowling ball in my stomach I got a desert in my mouth
Figures that my courage would choose to sell out now

Tori Amos ~ Crucify

Dx: Schizoaffective Disorder
  #7  
Old Jul 10, 2015, 08:38 PM
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Nammu Nammu is offline
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Great news, cash! I'm glad there's people looking at the total amount of meds and thinking about that. I'm doing so much better on less, there was a time I was on depokote, lithium and seri quill plus a couple of ADs and benzodiazepines. Looking back at that I kind of wonder how I could function at all.
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Thanks for this!
cashart10
  #8  
Old Jul 10, 2015, 08:39 PM
Anonymous200280
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All the best Cashat! I dont know how the systems work over there but it sounds like you are getting the right kind of care
Thanks for this!
cashart10
  #9  
Old Jul 10, 2015, 08:41 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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The relationship thing can get tricky. I trust mine completely regarding meds, even when we do things that are unusual, because she is a pharmacist and a psychiatrist and she specializes in hard to treat patients so she knows a lot of tricks. Plus when she doesn't know she finds someone who does; she's talked to a few other drs about me over the years that I know of. But I like that I can question her or make an opinion known (she had suggested trying a low dose of Depakote, the drug of evil, a while back and I kind of begged not to do that and she listened) and it's ok. She's not perfect and we've had our moments where things haven't been perfect (like it taking me about 6 calls and 4 emails to get an appt. for this month despite having been so sick lately) but she always comes through for me. She had breast cancer several years ago and in all the time she was treated I think she missed 2 appointments, both for surgeries. I think I have missed 3 months total of seeing her in the last 12 years. So I should stop worrying but that's sometimes what I do best.
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  #10  
Old Jul 10, 2015, 08:58 PM
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cashart10 cashart10 is offline
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Quote:
Originally Posted by sidestepper View Post
Great news, cash! I'm glad there's people looking at the total amount of meds and thinking about that. I'm doing so much better on less, there was a time I was on depokote, lithium and seri quill plus a couple of ADs and benzodiazepines. Looking back at that I kind of wonder how I could function at all.
Yes, I take all of these and take very high doses of almost all of these. Ridiculous:

Lithium
Lamictal
Abilify
Haldol
Zoloft
Klonapin
Vyvanse

Just yesterday, in IOP, with people I've only just met, I had to pause mid sentence and ask what I was talking about. Cognitively, I am mostly just an ignorant, non functioning invalid. I am otherwise a fairly intelligent individual.
__________________
*****

Every finger in the room is pointing at me
I want to spit in their faces then I get afraid of what that could bring
I got a bowling ball in my stomach I got a desert in my mouth
Figures that my courage would choose to sell out now

Tori Amos ~ Crucify

Dx: Schizoaffective Disorder
Hugs from:
Nammu
  #11  
Old Jul 10, 2015, 09:22 PM
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raspberrytorte raspberrytorte is offline
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My current weight makes me self loathe too. I am so done being on seroquel. I'm going to have to buy new jeans if I stay on it any longer! Me to husband: Well, it's obvious I've gained a ton of weight! My jeans are tight! I'm starting to be able to feel my legs rubbing together when I walk! (this was said a little hysterically. lol) Husband response: One more week on it isn't going to make much of a difference. I don't care. I'd love you even if you weighed 300 pounds!

Ugh.

Anyway, happy to hear that you'll hopefully be getting your med situation sorted out.
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  #12  
Old Jul 11, 2015, 12:10 AM
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Crazy Hitch Crazy Hitch is offline
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Woohoo - you know what - I saw a nutritionist at one stage - was one of the best things I ever did.

Made me feel like a whole new person.

And I'm sure you will too!

Hahaha I've never seen this emoji but it's cool:
  #13  
Old Jul 11, 2015, 10:35 PM
Anonymous53806
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I am happy that the new GP and you clicked on a good note. Hopefully the nutritionist is awesome also. I have never seen one but have worked with one and their patients and I hear a lot of good things come out of their visits.
  #14  
Old Jul 11, 2015, 11:24 PM
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RisuNeko RisuNeko is offline
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I used to be on 12 psych meds and now I'm only on 3 and feel way more sane and much more like a person.

My current/soon to be ex pdoc has been pushing for me to go on clozaril for like 7 months and now refuses to work with me because of my "noncompliance" by not wanting to go on clozaril. It's definitely supposed to be a last resort or at least used in really tough situations and he was recommending it for me when my meds were working and I was feeling better than I have for 3 years or more. He's a jerk and an idiot.
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  #15  
Old Jul 12, 2015, 10:13 AM
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raspberrytorte raspberrytorte is offline
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Yeah, risu, your pdoc sounds just awful. I'm sorry you have to deal with such a jerk.
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
  #16  
Old Jul 12, 2015, 11:39 AM
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emptyspace emptyspace is offline
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Quote:
Originally Posted by cashart10 View Post
Yes, I take all of these and take very high doses of almost all of these. Ridiculous:

Lithium
Lamictal
Abilify
Haldol
Zoloft
Klonapin
Vyvanse

Just yesterday, in IOP, with people I've only just met, I had to pause mid sentence and ask what I was talking about. Cognitively, I am mostly just an ignorant, non functioning invalid. I am otherwise a fairly intelligent individual.
I feel your pain. I take almost as many and at this point have no idea if they work at all!

I went to a nutritionist and she was great. I felt like it changed my thinking about the food relationship. Good luck!
Glad your new GP is good. They can be hit or miss.... in my experience... mostly misses.
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