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  #1  
Old Feb 02, 2016, 11:37 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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(New people: I'm doing a very big med change that requires hospitalization. Due to issues at the hospital I've been waiting a month to go in for this).

I have had a number of emails with my dr tonight. The dr who will be my dr in the hospital was on call tonight and actually wanted me to go in tonight but it was after I'd had meds and it's a 2 hour drive. Tomorrow I don't have a ride so I left it up to my pdoc whether it would mess things up to ask to go Thursday or not. She just got back to me and said she'll call and reserve a bed for me tomorrow to go in Thursday. That way I don't have to drive myself (my mom isn't available tomorrow) and then need someone to come up with my mom to drive my car home when I'm discharged since I probably won't be able to drive myself.

So it won't be finalized until that bed hold is in place tomorrow but it is happening finally. And to make it better my hospital dr is on call this weekend so my treatment will continue through the weekend without a pause for "nobody feels comfortable dealing with this without being more familiar with the case" as would happen is someone else were on call.

I actually feel like I might sleep tonight.
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  #2  
Old Feb 02, 2016, 11:46 PM
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  #3  
Old Feb 02, 2016, 11:53 PM
hopeless2015 hopeless2015 is offline
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So glad you finally have a plan, best wishes and HUGS!!

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  #4  
Old Feb 02, 2016, 11:55 PM
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B2008 B2008 is offline
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Was just thinking about how long it seems like this has been in the works for you. I'm not familiar with hospital stays but I've followed your threads and could not believe how long it has taken! I hope you get everything you need from this stay and the meds help in a positive way. ♥️

No matter how small, a positive change deserves to be celebrated!
  #5  
Old Feb 03, 2016, 12:08 AM
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I wish you good luck
  #6  
Old Feb 03, 2016, 12:09 AM
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BeyondtheRainbow BeyondtheRainbow is offline
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This is unusually long by a lot. My other direct admits have been the next day. My one ER admit was 30 hours but that just happened to be a weekend every bed was full. I now know to avoid my hospital on Sundays if possible.

This just required coordination and time on multiple drs' parts and that was hard.
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Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #7  
Old Feb 03, 2016, 12:10 AM
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BeyondtheRainbow BeyondtheRainbow is offline
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Thank you. This used to be scary but now I don't even care how scary it is, I just want to do it and be done with it.

Quote:
Originally Posted by coldwut View Post
I wish you good luck
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Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #8  
Old Feb 03, 2016, 12:23 AM
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Good news help is on the way! How long will you be staying?
  #9  
Old Feb 03, 2016, 12:29 AM
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BeyondtheRainbow BeyondtheRainbow is offline
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I don't know. I'm guessing a couple weeks but it depends how I handle the Seroquel rapid taper and then getting on the Clozaril. I don't know how much they'll overlap the 2; they couldn't outpatient but IP they are more able to do so. It also depends on the doctor; I haven't seen this one rush his patients out the door in the past. So I'm really not sure. Since I"m going in on a Thursday I imagine it will be at least until a week from the upcoming Monday or later that week. But I have no real idea. Usually I try to find out all this ahead of time and this time I haven't been overly curious about a lot of it. My pdoc says removing the Seroquel will make it so that anything the Seroquel has covered may come out. I haven't been off heavy sedatives in 14 years so have no idea what that means except paranoia, anger, really rapid cycling, agitation, all kinds of good stuff. The more of that stuff the longer I'll be there. My therapist seems to think 2 weeks minimum, maybe longer just because this is such a big change. But he's guessing; he hasn't seen someone do this.
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Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #10  
Old Feb 03, 2016, 01:21 AM
kkrrhh kkrrhh is offline
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That's so great! I hope everything goes really well, good luck!
Thanks for this!
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  #11  
Old Feb 03, 2016, 01:33 AM
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Very glad to hear you're finally going to the hospital!! Best of luck to you, as always.
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I'm GOING TO THE HOSPITAL!!!!!!!!!!

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  #12  
Old Feb 03, 2016, 02:21 AM
Aquarius33 Aquarius33 is offline
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Oh yaaaaaaay! Im happy your gettin closer to gettin a bed at the hospital! I see my doc at 845am tomorrow n im hopin she has the referral. She said she would talk to the doc at hospital n see if we can get a bed. Now I gotta find a ride. Im hopin this new med works n I dont get worse when takin me off the lithium n abilify. But I think I should go to hospital 2 get the support I need. Ive been goin back n forth on goin n not. Im nervous bout it but I already have my kids dad takin kids for me over wk end. Idk
Thanks for this!
BeyondtheRainbow
  #13  
Old Feb 03, 2016, 02:32 AM
Anonymous41403
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So happy for you!
Thanks for this!
BeyondtheRainbow
  #14  
Old Feb 03, 2016, 05:28 AM
Anonymous37904
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Good luck, I'm glad they are finally getting it all arranged for you!
Thanks for this!
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  #15  
Old Feb 03, 2016, 06:32 AM
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BeyondtheRainbow BeyondtheRainbow is offline
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Have you been IP before? I think it is good when you are making big adjustments to be in there so that they can monitor. They can also get the worst of it fast.

(in case this is your first time) I was so scared before I went in the first time (for a big med change). I had fought and refused hospitalization for a really long time and then my pdoc wanted me IP to go on this drug.

It's not bad. It's not vacation but the last time I was in there I was depressed with suicidal stuff and needed help with adjusting some meds while I came off something that was working but causing a bad side effect. I was in there with a great group of people and by the end of the first full day I was playing a game and laughing so hard. I hadn't laughed in a very long time and I laughed so much with that group of people. (It's a mood disorder unit so most people have depression and only a few bipolar. I really enjoyed just being depressed with everyone else). There are groups and things to keep you busy during the week; weekends are usually really boring. I've had good experiences, even when I had to be there for Christmas. I used to have 3 complaints, the food, the social worker and nurse Cynthia but they changed the food to pretty good stuff and nurse Cynthia must have retired so all that's left is dealing with the social worker. Last time I was there she told the team she'd found a support group for me (I live in a really rural area without support groups). She refused to tell me about it. Turns out when I was discharged that she printed off all the DBT groups in the state and that was "MY" group. The nearest one was 90 minutes away at minimum and my therapist doesn't think DBT is what I really need.

Good luck with your appointment. The ride thing stinks. That's why I can't go today (or last night if only my mom didn't go to sleep really early). I'm scared they'll want to send me home and I'll not have anyone to get me. In the past I've driven myself but this time that's not a good idea.

Quote:
Originally Posted by Aquarius33 View Post
Oh yaaaaaaay! Im happy your gettin closer to gettin a bed at the hospital! I see my doc at 845am tomorrow n im hopin she has the referral. She said she would talk to the doc at hospital n see if we can get a bed. Now I gotta find a ride. Im hopin this new med works n I dont get worse when takin me off the lithium n abilify. But I think I should go to hospital 2 get the support I need. Ive been goin back n forth on goin n not. Im nervous bout it but I already have my kids dad takin kids for me over wk end. Idk
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #16  
Old Feb 03, 2016, 06:37 AM
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I'm so happy that you're finally going ip. I know it's been really frustrating and a long time coming. Take care!
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Hasn't helped yet.
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Thanks for this!
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  #17  
Old Feb 03, 2016, 07:14 AM
Anonymous41403
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I wish in a way I could go in while I taper off the zyprexa. I think I want to try invega or abilify but I want to be put on congentin and other meds to stop the akathisia before it happens. But on the other hand I'm doing ok and other ppl need it more than me. I'm not coming off a high dose of one med rapidly and going on one that needs all these tests to be ok, like you are. Are you nervous?
Thanks for this!
BeyondtheRainbow
  #18  
Old Feb 03, 2016, 08:41 AM
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wildflowerchild25 wildflowerchild25 is offline
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I'm so happy that things are finally moving! Hopefully it won't be that bad. We will miss you around here!
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  #19  
Old Feb 03, 2016, 09:18 AM
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BeyondtheRainbow BeyondtheRainbow is offline
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Quote:
Originally Posted by rose1985 View Post
I wish in a way I could go in while I taper off the zyprexa. I think I want to try invega or abilify but I want to be put on congentin and other meds to stop the akathisia before it happens. But on the other hand I'm doing ok and other ppl need it more than me. I'm not coming off a high dose of one med rapidly and going on one that needs all these tests to be ok, like you are. Are you nervous?
Not really. I know it will be hard and I'm a little afraid of what it will be like without being sedated to my teeth but mostly I am just so ready to be done with this and hopefully feel better soon.

I know your zyprexa taper is scary but honestly med tapers usually aren't that terrible. When I tapered completely off my AD that was bad (I was changing to an MAOI so had to stop the old one first). I came off a huge dose of Depakote with a taper and never felt a thing except relief that I was getting rid of the stuff. I've tapered off or come off lithium rapidly without problems, etc.

I'm not sure they'll give cogentin until you display symptoms because if you are taking it immediately they won't know what is going on "under" the drug. Because of my history of movement disorders I did get a script for cogentin when I started loxapine (old med) this summer. It didn't occur to me that I was having muscle rigidity until about a day before I saw my pdoc so I didn't use the script until she told me to but at least I had it if I'd realized why I was in pain sooner. (I had a bunch of plausible reasons until I finally realized that wasn't the issue, that I was hurting in places my explanation didn't address and when I took a PRN klonopin it stopped hurting. Then I said "OH!").
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
  #20  
Old Feb 03, 2016, 09:24 AM
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raspberrytorte raspberrytorte is offline
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Good news, rainbow. Finally!
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The night belongs to you. 🌙- sleep token

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What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
Thanks for this!
BeyondtheRainbow
  #21  
Old Feb 03, 2016, 10:18 AM
ButchDeni ButchDeni is offline
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Good to hear this! I wish you the best of luck!
  #22  
Old Feb 03, 2016, 12:30 PM
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I hope your treatment at hospital goes really well
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Thanks for this!
BeyondtheRainbow
  #23  
Old Feb 03, 2016, 12:48 PM
Anonymous52845
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good luck. Clozapine is a very good med and I hope it helps you as much as it's helped me
Thanks for this!
BeyondtheRainbow
  #24  
Old Feb 03, 2016, 04:22 PM
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gina_re gina_re is offline
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Good Luck!!! I'm glad it's finally happening. Please take care.
Thanks for this!
BeyondtheRainbow
  #25  
Old Feb 03, 2016, 04:33 PM
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Hashi/bipolar mom Hashi/bipolar mom is offline
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I'm so relieved for you! I know you have been waiting a long time for this. I'm wishing you so much luck and success!
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.6mg Clonidine (for sleep and anxiety)
40mg Propanol (for sleep)
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Thanks for this!
BeyondtheRainbow
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