[wildflowerchild25]

I don't think latuda is working out for me. I have such intense anxiety I'm going crazy. I can't be happy about my new job because I'm certain my old supervisor is going to spill the beans about why I was fired and they will rescind the offer because I wasn't completely honest in my interview. Never mind that I already filled out paperwork to get started. I'm sure it will fall through. And usually I can reason my way out of my anxiety but it's not working.

If it's not this thing it's another. I can't eat. I can't sleep. I can't relax because of the restlessness. I can't be happy. I'm not in an episode at all but I can't take this anxiety. What's the point of lowering the dose if I can't raise it again if things get bad? **** this.

I see my nurse on August 10 and I'm going to tell her it's not working out. My only other hope is vraylar. That's a new one. Supposed to have less side effects than other meds but who knows. Weight gain is a side effect but what can I do? None of the neutral ones work for me.

I hate that invega raised my prolactin so much. I didn't want to do this med experimentation again. It worked so well. But I guess that's what happens.

I know I shouldn't stop it on my own but I didn't take it today just to see if that helps. Not so far. I see my therapist today so I will talk to her about all this. I'm miserable.

[UpDownAround]

Latuda made me want to crawl out of my skin the second week I was on it. There was no third week.

Latuda didn't work well for me either. I hope talking to your therapist helps you feel better and that she can give you some good advice.

It sounds like you gave the med an honest try, though.

Maybe you won't gain weight in vraylar. Rexulti and Abilify both have weight gain as a side effect, but I didn't gain anything. So I guess you never know

I hope you feel better soon

[Crook32]

Latuda gave me akathisia and had me crawling out of my skin. I am now on Tegretol but the jury is still out on that. But I am not as anxious stopping Latuda.

[Sunflower123]

I'm sorry you're having such a tough time on Latuda. I hope you feel better soon and find something that works better for you.

I'm sorry that you're struggling with lurasidone/Latuda. I hated the stuff! They doped me up with loads of benzos and I was still crawling the walls and pacing 30,000 steps a day. I literally could only stop when I was in too much pain to walk anymore. I only got up to 55.5mg (dosing is different in the UK) over 2-3 weeks before I begged to stop as I couldn't take it anymore and was severely suicidal. Thankfully it went away soon after stoping.

I wish you the best with your next med Sucks about the invega when it worked so well...there is a drug that can lower prolactin though - did you ever try that?

ETA: Bromocriptine or Cabergoline.

*Willow*

[wildflowerchild25]

Yeah I'm actually on cabergoline now to lower the prolactin. The other problem with invega is my insurance refused to cover and my nurse stopped getting samples to give me. Plus I had some extra pyramidal symptoms (jaw tightening, speech slurring). So overall it was just time to switch.

I wish I didn't have to be on an AP at all but there are no mood stabilizers I can take with emsam except depakote. I wouldn't be good at getting the blood work done for depakote and it causes such terrible weight gain I don't know if it would be worth it.

[bioChE]

Depakote didn't cause weight gain for me, but it did make me stupid and started destroying my liver. Glad my psychiatrist checked my liver enzymes and took me off it.

[*Laurie*]

I'm sorry the Latuda hasn't worked out for you. I think you've given it a good try. I don't blame you for stopping.

[Unrigged64072835]

I'm sorry it's not working for you.

[99fairies]

Have you ever tried geodon? Worked great for me for years. Only reason I went off it was because I was on too many AP's.

[wildflowerchild25]

Yes, geodon didn't work for me. Didn't really keep the mania away and gave me restless legs. Also sedated me so I couldn't take it during the day.

Believe me, I've been on practically everything. Vraylar is my last hope. Or zyprexa, but again, weight gain and sedation.

[wildflowerchild25]

double post.

[wildflowerchild25]

I took a nice shower with my lavender products and did a face mask. So I feel a little better. I was kind of depressed today too, probably from the anxiety. It's exhausting feeling like my world is going to cave in all the time. My nurse appt is in ten days. I'm debating whether to stop the latuda on my own. If I do, that's ten days without any meds at all, which could tip off an episode. On the other hand I'm curious to see what it would be like to be med free for ten days. It's like playing with fire though. And my nurse would NOT be pleased. My therapist didn't say one way or the other whether I should stop it.

I don't know if I can take another ten days of this though.

[BeyondtheRainbow]

If your nurse already knows she's prescribing Vraylar next could you just call and ask if you can stop the Latuda and get started on Vraylar?

[wildflowerchild25]

I suppose I could try. I'm not sure she would without seeing me. But it can't hurt to just call and ask.

[BeyondtheRainbow]

If it saves 10 days of suffering it's worth the call.

[wildflowerchild25]

I just called and left a message. I just said I didnt want to keep taking it but I didn't know what to do. She will probably call me back during work tomorrow and I won't actually get to talk to her but maybe she'll have some idea. Maybe she can even get me in early. It's not a terrible emergency, I'm not suicidal or severely depressed, but if I can stop this madness sooner rather than later I'd like to.

[BeyondtheRainbow]

I understand. I have been terrified my pdoc would want me to wait until I see her again in 3 weeks to get my clozapine dose increased (because there is some concern that what I've been going through was a bad reaction to increasing last time) and while I could make it 3 weeks I did not want to have to.

I remember that feeling on Latuda and I don't think I could have kept taking it for 10 days more than I had to, especially knowing I was going to have to start something else at the end of that time.

[*Laurie*]

Yes, please try to connect with your nurse. Don't suffer through this for ten days.

[Wander]

If you stop it try and taper off. When I stopped 80 mg of Latuda I had awful discontinuation symptoms and became very depressed overnight. Once I went back on 80 mg and tapered slowly I had no problems.

[wildflowerchild25]

I was a mess this morning. Near tears, chest pains, nausea. I calmed down at work thank god. I took only 40mg this morning with the intention of tapering off. I'm pretty sure my pnurse isn't in on wednesdays so I won't hear from her until tomorrow. I have 40mg and 20mg pills so I'm going to taper off over the next week or so until I can get in to see my nurse.

[wildflowerchild25]

Nurse never called me back but today was much better. I didn't panic as soon as I woke up. I wasn't intensely bored all day at home with my son. Not as much fidgeting. I took 40mg yesterday and forgot to take it today. I won't take it in the am tomorrow either to see if I can stay awake better at work.

Nurse will just have to deal with it.

[Tkb1966]

I'm glad I read your post. I see a new pdoc Monday and latuda is one I've never tried. I have bad anxiety and have taken other meds that made me want to crawl out of my skin. I don't ever want to feel that way again! So no latuda for me. I do need to find something that works for my anxiety though, So far nothing.

I hope you get in early or she says you can stop. Is it a med you can just stop or do you have to go off slowley?

[wildflowerchild25]

I am absolutely losing it today. My mind is racing and I feel like I'm freaking out. I just left another message for my pnurse. I don't think she's even in on fridays but it was worth a shot. I think I'm going hypomanic but it's not a good kind. I feel like I don't even know where I am. My mind is going a hundred miles an hour. I'm trying to breathe and tell myself I'm ok. I appear normal thank god. I don't know what to do if she doesn't call back. I need some klonopin so I can sleep. I only slept four hours last night. If I continue not sleeping I will get worse. I'm going to take the latuda as soon as I can eat something. Maybe it will put a lid on this or maybe it will make me worse but I have no other options.

**** med changes, this is exactly what I was afraid was going to happen. I've been stable for a year and a half and I do NOT need an episode right now.