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Old Oct 27, 2017, 07:21 PM
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Wander Wander is offline
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Hi all, I haven’t posted for a while as I have been utterly exhausted and in pain. After over a year of severe BP episodes it seems my body has crashed. I haven’t been this physically unwell for a long time. I can barely move and had to call in sick this weekend. This terrifies me as I had two months off due to depression only seven weeks ago. I must work next week even if I have to crawl in.

Now I am stable mentally but this crash is really getting me down. I lost my careyto Fibromyalgia in 2009 and I fought so hard to get my life back now I’m close to losing it all again. I even had to defer my exam at university. I missed out on three social events this week and feel so isolated. Exercise only makes it worse. I eat well and take a load of vitamins. My Rheumatologist has prescribed me hormones as he thinks the stress has depleted them. I start them on Monday and hope they work fast. I am drowning in despair. And terrified. This is not a life. I am trying to stay positive but do get waves of ideation hit me. I don’t know how much more I can take.
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  #2  
Old Oct 27, 2017, 10:27 PM
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Cocosurviving Cocosurviving is offline
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Hello there—I really hate your suffering. I hope you get better soon.
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1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
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  #3  
Old Oct 27, 2017, 11:33 PM
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~Christina ~Christina is offline
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Wander , I’m so sorry you are going through all this , I know exactly how you feel. My fibromyalgia is so bad right now I can’t take a deep breath.

(((((( hugs )))))
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  #4  
Old Oct 27, 2017, 11:41 PM
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Sunflower123 Sunflower123 is offline
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Member Since: Jan 2015
Location: USA
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Quote:
Originally Posted by Wander View Post
Hi all, I haven’t posted for a while as I have been utterly exhausted and in pain. After over a year of severe BP episodes it seems my body has crashed. I haven’t been this physically unwell for a long time. I can barely move and had to call in sick this weekend. This terrifies me as I had two months off due to depression only seven weeks ago. I must work next week even if I have to crawl in.

Now I am stable mentally but this crash is really getting me down. I lost my careyto Fibromyalgia in 2009 and I fought so hard to get my life back now I’m close to losing it all again. I even had to defer my exam at university. I missed out on three social events this week and feel so isolated. Exercise only makes it worse. I eat well and take a load of vitamins. My Rheumatologist has prescribed me hormones as he thinks the stress has depleted them. I start them on Monday and hope they work fast. I am drowning in despair. And terrified. This is not a life. I am trying to stay positive but do get waves of ideation hit me. I don’t know how much more I can take.
I’m sorry you are in such pain. I hope it’s okay to keep you in my thoughts and prayers. I sincerely hope things turn around for you soon.
  #5  
Old Oct 27, 2017, 11:43 PM
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Sunflower123 Sunflower123 is offline
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Member Since: Jan 2015
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Quote:
Originally Posted by ~Christina View Post
Wander , I’m so sorry you are going through all this , I know exactly how you feel. My fibromyalgia is so bad right now I can’t take a deep breath.

(((((( hugs )))))
Christina, I’m so sorry you are in such pain. I’d like to keep you in my thoughts and prayers as well that you get some relief.
Thanks for this!
~Christina
  #6  
Old Oct 28, 2017, 02:18 AM
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Wander Wander is offline
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Member Since: Jul 2014
Location: Milky Way
Posts: 4,746
Thanks so much for your support everyone. It means so much to me. Even though you are all far away IRL, I feel less lonely now.
__________________
Bipolar 1 with psychotic features
PTSD




"Phew! For a minute there I lost myself."

'Karma Police' by Radiohead
Hugs from:
*Laurie*
  #7  
Old Oct 29, 2017, 09:59 AM
Gabyunbound Gabyunbound is offline
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Member Since: May 2016
Location: U.S.
Posts: 944
I'm so sorry you're experiencing this! Chronic pain can and does affect every aspect of life, not just physically. Maybe your body is crashing from all of the stress, but the positive aspect of that -if it's the case- is that you may bounce back once you've had some rest from your episodes (though I know you continue to experience stress).

I have a pain syndrome (Central Pain Syndrome) that started after an emergency cervical spine surgery when my spinal cord was being dangerously compressed by a disc. Afterwards I felt like my skin had been torn off and every touch to my skin was excruciating. There's also an all-over burning, like on fire, aspect to it. Before good treatment, it would both cause depression and make it a lot worse. But the proper treatment has alleviated all of that. I've been very fortunate.

Please keep seeing your rheumatologist. Maybe there are other medications and treatments that can help. This is can only exacerbate other symptoms (sorry) and I hope you get relief soon. I know what it's like and it's hell. I so hope you improve soon. Your mind -and now body- need rest. You need a break and I hope you get it.
Thanks for this!
Wander
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