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  #626  
Old Sep 01, 2020, 05:01 PM
fern46 fern46 is offline
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Originally Posted by BethRags View Post


I really like the way you put that! Since being on Seroquel I've gained a lot of weight and I feel rather defeated because I don't have a weight loss "goal." Upon reading your post I realize that there doesn't have to be a goal - other than to feel comfortable.
Exactly that! Comfortable in our own skin is priceless.
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  #627  
Old Sep 01, 2020, 06:11 PM
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Originally Posted by fern46 View Post
It was like being trapped in an 80s video game with no graphics. Not a good time, but its over. Yay!
Do not wish to freak you out, but I did, in fact, have a brain MRI at Good Sam today.

Cue Twilight Zone theme music...
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  #628  
Old Sep 01, 2020, 06:12 PM
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I had to go off lithium too. It also damaged my thyroid but I got lithium toxicity. I was taken off and have been off permanatly. Id suggest that you never go on lithium. in the first place. At the very least you will damage your thyroid.
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  #629  
Old Sep 01, 2020, 06:51 PM
fern46 fern46 is offline
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Originally Posted by bpcyclist View Post
Do not wish to freak you out, but I did, in fact, have a brain MRI at Good Sam today.

Cue Twilight Zone theme music...
So strange. What are they looking for?
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  #630  
Old Sep 01, 2020, 07:17 PM
Soupe du jour Soupe du jour is offline
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fern46 and bpcyclist, the most wonderful part of MRIs is when they're over. You got through them alright. I hope the results are some help in some way. Even receiving good results is a help.
  #631  
Old Sep 01, 2020, 07:22 PM
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So strange. What are they looking for?
Strange and wondrous neurological defects..

No, seriously, looking for whether I have an absent left VIth and weird-damaged VIIth cranial nerves, details of my prefrontal cortex, visual cortex, and limbic systems. Schizophrenia-like gray and white matter changes.

Yay!

Hope yours is fruitful...
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  #632  
Old Sep 01, 2020, 08:42 PM
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Originally Posted by bpcyclist View Post
Strange and wondrous neurological defects..

No, seriously, looking for whether I have an absent left VIth and weird-damaged VIIth cranial nerves, details of my prefrontal cortex, visual cortex, and limbic systems. Schizophrenia-like gray and white matter changes.

Yay!

Hope yours is fruitful...
Wow that's pretty amazing about your brain!
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Gabapentin 600 mg
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  #633  
Old Sep 01, 2020, 10:26 PM
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Wow that's pretty amazing about your brain!
My brain is super weird.
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  #634  
Old Sep 02, 2020, 05:48 AM
fern46 fern46 is offline
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Originally Posted by bpcyclist View Post
Strange and wondrous neurological defects..

No, seriously, looking for whether I have an absent left VIth and weird-damaged VIIth cranial nerves, details of my prefrontal cortex, visual cortex, and limbic systems. Schizophrenia-like gray and white matter changes.

Yay!

Hope yours is fruitful...
Since we apparently share a brain maybe they should be looking for the same with me. In my case we're looking for indicators of temporal lobe epilepsy. It may be nothing, but it was time to rule it out if nothing else.

My brain was playing songs nonstop during my EEG. I bet that made it a fun read for the neurologist
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  #635  
Old Sep 02, 2020, 05:49 AM
fern46 fern46 is offline
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My brain is super weird.
Ditto. If nothing else, all of us here can join that club.
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  #636  
Old Sep 02, 2020, 11:10 AM
fern46 fern46 is offline
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My kids are in school today and I had time to myself. I went to the pool and worked out hard. It felt great. I then came home and had a nice chat with my husband without any interruptions. It is nice just having the two of us around for a while. My kids are awesome, but breaks are healthy from time to time.

I also rocked out several chores so I am go I going to relax for a while before carpool.
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  #637  
Old Sep 02, 2020, 11:32 AM
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I have more moving news. Every year, I have this recertification paperwork to do for section 8. Well now right before I move is when I have to do it! Ugh. As if I needed something else on top of moving! This paperwork is all proofs and two inches thick by the time Im ready to mail it back in.
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Ingrezza 80 mg
Propranolol 40 mg
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Vraylar 4.5 mg

Gabapentin 600 mg
Klonopin 1 mg 2x daily
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  #638  
Old Sep 02, 2020, 03:46 PM
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Originally Posted by fern46 View Post
Since we apparently share a brain maybe they should be looking for the same with me. In my case we're looking for indicators of temporal lobe epilepsy. It may be nothing, but it was time to rule it out if nothing else.

My brain was playing songs nonstop during my EEG. I bet that made it a fun read for the neurologist
Too bad it was not an fmri. Your temporal lobes would have lit up like a Christmas tree.
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  #639  
Old Sep 02, 2020, 03:49 PM
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6 miles running yesterday and today. Really lovely. My mood is euthymic. So rare for me. And I am out of a med. Maybe this is going to help.
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  #640  
Old Sep 02, 2020, 04:01 PM
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My sister came over for lunch and to also drop something off for me. My fridge is pretty bare since we'll be heading away soon, so I bought manicotti lunch specials from my favorite pizzeria restaurant. I decided to make it all look nice by transferring them from the takeout containers to my own baking dish and salad bowl. My sister was so impressed and said "John (our brother) always tells me that dinner at your house is always so great and that your meals are better than anyone else's! I think he's right."

After my sister said the above, I just smiled and said thanks. Yes, my response sort of implied that I had made today's lunch myself, but I didn't see the need to fess up to buying it. After all, I have made homemade manicotti (even yummier ones) many times in the past.

Then about one minute later, my sister compliments the meal again, so my husband replies "Yes, Alfredo's Pizzeria has always made delicious food!"

You can only imagine the look I gave him. He didn't say that deliberately to out me. He was rather oblivious to the previous exchange.
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  #641  
Old Sep 02, 2020, 07:23 PM
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Whoops! I posted the above in the wrong thread. Sorry!

Today I felt fine, physically, other than my clogged ear. Hubby and I had two (yes two) different covid tests. In the morning, we went to an urgent care center. That was formal (with lots of forms to fill out) with a nurse administering it, and a doctor popping in. The afternoon one was literally done by ourselves, while in our car at a Rite Aide Pharmacy drive through. Why two? Because we must have results within 72 hours of our flight. Timing for getting results is a bit iffy. Tick, tick, tick.

I cheated on my diet today. The good thing is that I threw some leftover cookies in the trash. My sister brought them. They sucked. Definitely not worth the calories. Looking forward to French pastries.
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  #642  
Old Sep 02, 2020, 07:51 PM
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My weekly weigh in today showed that I'm in the next lower 10 pound bracket. Just by one pound but I'll take it! That's 43 pounds down from my highest! Twenty down from a year ago.
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  #643  
Old Sep 03, 2020, 09:03 AM
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Pretty darn sore today, hips and back. Gonna hafta just do yoga and take the day off. Maybe a short little walk.
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  #644  
Old Sep 03, 2020, 10:13 AM
Anonymous32451
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so my care team have just been on the phone- and apparently, they want to arange for me to have live in care (based on what I've been telling them about
my pain, and the minimal results they are seeing in an improvement)

I was basically told today by the team that my body is on it's way out, and I was told they won't give me anything else- won't try me with anything else,
I should just accept it, and accept the fact that I'm going to need extra care

they said if their's ever any concerns email us, but I'm looking at a waiting list of 6 months to get the kind of care I need, and until then, I just need
to "struggle on"

I am only in my 20;s, and I certainly didn't want to here this at such a young age

but their it is. I guess a new era and a new reality (new normal) is on it's way, a lot sooner than I'd hoped
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  #645  
Old Sep 03, 2020, 11:51 AM
fern46 fern46 is offline
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Originally Posted by raging vortex View Post
so my care team have just been on the phone- and apparently, they want to arange for me to have live in care (based on what I've been telling them about
my pain, and the minimal results they are seeing in an improvement)

I was basically told today by the team that my body is on it's way out, and I was told they won't give me anything else- won't try me with anything else,
I should just accept it, and accept the fact that I'm going to need extra care

they said if their's ever any concerns email us, but I'm looking at a waiting list of 6 months to get the kind of care I need, and until then, I just need
to "struggle on"

I am only in my 20;s, and I certainly didn't want to here this at such a young age

but their it is. I guess a new era and a new reality (new normal) is on it's way, a lot sooner than I'd hoped
So sorry. I know you live in constant pain. I imagine this is a lot to take in. Hugs
Thanks for this!
Soupe du jour
  #646  
Old Sep 03, 2020, 11:55 AM
Soupe du jour Soupe du jour is offline
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Originally Posted by raging vortex View Post
so my care team have just been on the phone- and apparently, they want to arange for me to have live in care (based on what I've been telling them about
my pain, and the minimal results they are seeing in an improvement)

I was basically told today by the team that my body is on it's way out, and I was told they won't give me anything else- won't try me with anything else,
I should just accept it, and accept the fact that I'm going to need extra care

they said if their's ever any concerns email us, but I'm looking at a waiting list of 6 months to get the kind of care I need, and until then, I just need
to "struggle on"

I am only in my 20;s, and I certainly didn't want to here this at such a young age

but their it is. I guess a new era and a new reality (new normal) is on it's way, a lot sooner than I'd hoped
I'm sorry you're going through this, raging vortex. I do have great hope that someday there will be some treatment that eases some of your pain. It's rough to have to be patient, but it's always worth it, in my view. You are young and you do have a long life ahead of you, surely with better and less painful moments.
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  #647  
Old Sep 03, 2020, 11:59 AM
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Originally Posted by Soupe du jour View Post
I'm sorry you're going through this, raging vortex. I do have great hope that someday there will be some treatment that eases some of your pain. It's rough to have to be patient, but it's always worth it, in my view. You are young and you do have a long life ahead of you, surely with better and less painful moments.


I'm not sure about long

if my past attempts are anything to go by..
  #648  
Old Sep 03, 2020, 12:00 PM
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Originally Posted by fern46 View Post
So sorry. I know you live in constant pain. I imagine this is a lot to take in. Hugs


thank you
  #649  
Old Sep 04, 2020, 03:29 AM
Anonymous32451
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had a partial shower today

just did what I could (parts that wern't too painfull)

mostly I was in agony
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  #650  
Old Sep 04, 2020, 04:44 AM
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My ear hurts, probably because of the tmj jaw pain ugh!
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