Ok people I really need support, prayers and good wishes

Lots and lots of and continuing thoughts for strength and healing.

Hey.. Just another day. Hes not worse infection wise, Vitals are all stable. He is exhausted.. Exhausted fighting this monster and we have no idea how he got it.

Thanks everyone

I did some googling and apparently you can catch this bacteria in tap water.

source: Stenotrophomonas maltophilia: an Emerging Global Opportunistic Pathogen

I'm obviously not a doctor, but I wonder if your husband has neutropenia? Apparently people with neutropenia oftentimes do NOT show any symptoms, other than increased risk for infections. That could possibly explain why you didn't catch it, but he did. If he is on certain meds, then those meds can trigger neutropenia. I think you should google his meds to see if they carry this risk. Possibly also check your water filters since it sounds like people on oxygen usually require water as part of the humidifier? If you really want, you can ask for a neutropenia blood test if there are other reasons for a blood test (e.g., if he has diabetes, cholesterol, etc. as well). You can test all those conditions at the same time, so you wouldn't be going out of your way to get it tested if you're also testing for diabetes, cholesterol, etc..

Source: Neutropenia (low neutrophil count) - Mayo Clinic

(((Hugs))) Christina! Sending my best thoughts for you and your husband. Hope he recovers soon! And hope for extra patience for the both of you. <3

Still thinking of you and hubby. *waves wand sending healing vibes hubby's way. *

Hey Blue ... Thanks so much!!! For taking time to look into this further.. Thank you Thank Thank you !!! Yes he has extensive blood work done to rule out neutropenia.. they are also running blood cultures.

We have a well over 300 ft deep, We filter our water, We have sent in a sample of our water for testing.. prior filter and after. We do not run Humidifyers, He hasnt used the water bottle on his Oxygen concentrater for a couple years as that can build up moisture in tubing, We change out his tubing every 2 weeks, But now we are week..

Our Doctor is also frustrated because this infection doesnt want to budge. Im sure next appt on Monday we will be switching to another antibiotic.. We have 2 more oral antibiotics that we can try. The whole goal is to keep him out of the hospital at all costs, because if he catches something on top of this, he wont make it..

Thanks everyone for support..

I hope they find an antibiotic that helps, quickly. Thinking of you both.

Still praying for you guys here...

Continued prayers for you and your husband.

Much love and continued prayers for you and your husband

Continued thoughts and prayers for you and your husband.

Thanks for the continuing support , it means alot, Helps me feel less alone

My Husband is still sick, I wish I was seeing or hearing some kind of real improvement..... Nope. But, Hes not getting "worse" So holding his own is a plus I'll take today.

No sleep so If I start getting all wonky typing just ignore me I have no idea when I last slept.

I am thinking and praying for you and your husband.I wish he gets well soon and you relax.i am sending my good energy and thoughts .Hugs

Checking in every day to see how you guys are doing. Im not good at saying mushy stuff, but i am thinking about you.

(((((( `Christina and Steve )))))

May you feel surrounded by Love!

I am hoping and praying!!!

I'm checking your post every day, too. Thank God he's holding his own. That has to be good

Sorry your sleep is so bad lately but glad Steve is holding his own. Thoughts and love to you both!

As always.....

Checked in on PC this morning just to see how it was going for you. I'm sorry to hear your sleep is being crappy. I wish Steve was improving, but you're right, holding steady is good.

Sending continued prayers, support, hugs and healing vibes. Sorry you’re having trouble sleeping. Thinking of you and your husband.

You guys are so great !

Steve is the same..... I did get a few hours of sleep finally. I am just exhausted tho Doctor Appt Monday Our Doctor will start him on another new antibiotic ... I hope and pray this one works.

Love you all

Argh !

My husbands color was off and I asked him how he was feeling he said worse.. I said whats your Oxygen level ???" I dont know I havent checked it" It was 86 .. I dragged his oxygen tubing to him. Ugh Ugh Ugh ... Well hes color is better and his sat is up to 92

This man is gonna give me a heart attack But at 86 and likely 82 ABG he truly isnt thinking right due to lack of damn oxygen.

I love him but some days I wanna wack him in the head

I know how that feels!

Yikes! I am glad you noticed and were able to get him some oxygen. Yeah, he's probably not thinking clearly in that state. Hope you're both doing okay today.

Well Damn .. He has been running a low grade temp all day.. 99.1-99.8 Which is not good. We see the Doctor in the morning.. Hes been on his oxygen most all of the day, off he is 87-89.. Hes only 91-92 on But it keeps his heart rate down...

I am hoping this next antibiotic we get tomorrow is the one !

I hope so, Christina. Of course, let us know how the appointment goes.