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#151
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I’ve been up since 5am yesterday. Whhhhhy can’t I sleep
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schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
![]() MuddyBoots
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#152
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Quote:
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"Good morning starshine.... the earth says hello"- Willy Wonka |
#153
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![]() Moose72
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#154
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I have to stop the Topmax (AD) Because of the "lights" I'm seeing, which indicate potential retina problems (tears, detachment). Serious issues - a frighteningly not uncommon effect of the medication. It has been pulled from the market a couple of times, not sure why it's still available, at all.
Saw med dude yesterday, he denied the optical issue ![]() @BeyondtheRainbow, I spoke with med dude very openly, persistently, but without being pushy, about Emsam. He said "I can't prescribe a med I'm not familiar with" and "An AD can cause hypomania" and "That's a really new MAOI...they cause all sorts of side effects and can be dangerous because of the potential issues MAOI's can cause." Later in the appointment he did say he'd "do some reading about that medication Emsam." ![]() As for the enormous research medical univ psych near me (Univ of Calif, Davis School of Medicine)- they are "full to capacity and not taking new patients at this time." (I'm sure they take new patients who are of particular interest to them, referred by so-and-so, just not off the street people.) But, thank you again so much for your support ![]() My next suggestion to med dude was Symbyx (Prozax/Zyprexa combo that is being used specifically for BD). From the research I've done it has very high ratings from patients. However, Symbyx is a weight gainer. His reply was that "These things are all off label, but you seem to want to try them." ![]() ![]() ![]() Med dude remains very calm, patient, and sympthetic. I don't mean to say he isn't. He simply cannot put the patient's needs over his young, inexperienced ego, and that is a huge problem. That I have 4 decades of experience with psych meds doesn't seem to count for anything with him. Clearly other medical professional's opinions or experiences do not mean a damned thing to him. He finally agreed to prescribe a very low dose of Symbyx, but said, "I mean, do you want to gain weight?" ![]() I would feel sad to leave him, like I'm hurting his feelings. I wish I could find him years from now. But I keep looking into other options. I have to. That said- I have yet to find another option. btw, @Random 503, I made a point of asking med dude *the question*. What is the big concern if I become hypomanic, or even slightly manic? Because I have never had a true full-on manic episode. His answer was, "Mania can result in having to go into the hospital, or jail, or even death!" I acknowledged that with an "Okay," then told him I'm far more concerned about these severe depressions I've been experiencing in the past several years than I am about a hypomanic episode. He replied with something vague, while scrolling on his phone, an mmm.....hmm...
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![]() Mountaindewed, MuddyBoots, Nammu
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#155
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I slept some. My friend promised not to tell the worst person ever my secrets. I knew he was great.
Now this evil man np can shove it
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schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
![]() *Beth*, MuddyBoots, Soupe du jour
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![]() *Beth*
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#156
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I really want to drink, but valium...
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"I don't know what I'm looking for." "Why not?" "Because...because...I think it might be because if I knew I wouldn't be able to look for them." "What, are you crazy?" "It's a possibility I haven't ruled out yet," |
![]() *Beth*, HALLIEBETH87, Nammu, Random 503
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#157
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Many moons ago, many many moons ago I was ip and was given a pass to go with a friend. We went out to eat and I had a drink with my meal. I don’t remember what meds I was on but she dropped me off and the nurse found me facing the wall, just standing there facing the wall. I had amnesia and the next day they were all warning me the danger of mixing drink with my meds. I was flabbergasted as I’d only had the one drink….with a meal! Scary 😦
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Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
![]() *Beth*, HALLIEBETH87, Moose72
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#158
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I paid my car tags today $363. Whew. Happy birthday hallie! Insurance deductible started over too so another big expense.
I’m broke but I’m happy!!!!’n
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schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
![]() Nammu
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#159
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![]() *Beth*
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#160
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![]() Nammu
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#161
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If I can get away from the NP and see regain my safety from satan
With praise and prayer-I should be fine!
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schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
![]() Fuzzybear, MuddyBoots, Sunflower123, wildflowerchild25
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#162
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I hope you can find someone to help you soon. It’s unfair that this happened after you’ve been doing so well for so long!
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Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
![]() HALLIEBETH87
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![]() HALLIEBETH87
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#163
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Still no word on the job application. Based on the stuff I read online about this company I should have heard something by now. So idk. Maybe I did flub an answer. I didn't upload my resume. Or they do think I'm a liabilty because I get SSI. Hopefully I'll hear something though eventually.
My niece was here all day. And yeah she shreiked like a banshee most of the day. My mom tried everything my sister had written down. We took her on a ride to the Starbucks drive thru which calmed her down for a bit. I got a drink with pistachio in it and I still can't do anything with nuts in it. I thought maybe I had gotten over it. I have pretty bad tylenol, pepcid, and zofran, resistant gallbladder type pain and nausea from it now. So today wasn't the greatest with my niece screaming all day and not hearing back from the job and the stomach issues. My mom is at the store now picking me up a huge amount of yogurt, bread and caffeine free diet Coke since its pretty much all I can and will still eat. I had a can of roast beef and it didnt go well but at least it was a lot of protein.
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"Good morning starshine.... the earth says hello"- Willy Wonka |
![]() *Beth*, Fuzzybear, MuddyBoots, Soupe du jour, Sunflower123
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#164
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My husband and I head back to the States from Mexico tomorrow. We are glad we finally visited Mexico, but we have no intension of ever returning. It would take a while to discuss our impressions. Like most places, there were good ones and bad ones, but sadly more negative, and I say "sadly" because I feel for the average Mexican citizen. Like many places in the world, the people are not served well by the small group of rich elites here and foreign investors enrich themselves and share next to nothing with the people of the country. We appeciated the chance to talk to some people here who were frank about the situations of many of their compatriots.
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Dx: Bipolar type 1 Psych Medications: * Tegretol XR (carbamazepine ER) 800 mg * Lamictal (lamotrigine) 150 mg * Seroquel XR (quetiapine ER) 500 mg I also take meds for blood pressure, cholesterol, and tachycardia. |
![]() Fuzzybear, Mountaindewed, MuddyBoots, Nammu, Sunflower123
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![]() MuddyBoots, Nammu, Sunflower123, ~Christina
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#165
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![]() Fuzzybear, HALLIEBETH87, MuddyBoots, MuseumGhost, Nammu
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#166
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From the bottom of my heart, I wish you luck.
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![]() MuseumGhost
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![]() Random 503
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#167
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Hello all! Doing well tonight! The doctor’s appointment went successfully and I’ll have surgery the first week of February. We’ll make a quick trip up North for mom to visit her sisters first.
I’ve been out of samples of one of my medications for 3 weeks now - Vraylar with the holidays and the building being remodeled coming into play. I think I’m okay without it. Got appointment after appointment coming up with a trip to see my daughter and her fiancée for the weekend sandwiched in between. I hope everyone has a peaceful evening. Much love ![]() |
![]() Mountaindewed, MuddyBoots, Nammu, Soupe du jour
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![]() MuddyBoots, Soupe du jour, ~Christina
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#168
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I think he truly knows NOTHING about Emsam. It's not an old drug but it has been out since 2006 I think and I'm sure he prescribes plenty of things released later than that. The side effect profile is pretty low and my pdoc says it is less likely to cause mood lability. I don't know why but I am pretty sure I've been told that before. I hope he really does read about it. I have a feeling it may take an actual pdoc to get Emsam but I don't know what you do when there aren't pdocs available. It's like clozaril, they have to be comfortable prescribing it. Even though Emsam is really a non-issue if you just know that you have to follow the rules strictly to avoid problems. I do worry sometimes about what will happen when my pdoc retires, whether she'll find someone for me who is comfortable with my MAOI/clozaril combination. I know she'll find another pdoc at the same hospital (important because I need psych to work with anesthesia if or when I need more breast biopsies) and will personally pick someone but it's hard to imagine the same level of support I have now. Ugh. I'm sorry UC Davis can't take you. I guess I don't know what it is like to get into those places. I went to one big hospital initially because I was in a clinical trial so they wanted me and then I saw my pdoc in private practice for a few years until she moved to the big hospital where I see her now. She brought me along for the ride to the big place so I didn't have to do anything. I hope the Symbyx works for you. I thought with the prozac included in the mix it was supposed to be more weight neutral? Maybe that's just for some people or maybe I'm making that up. Please take care of yourself. This has to work out sometime. It did for me and I was a walking mess for years before it was resolved.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
![]() *Beth*, Fuzzybear, MuddyBoots, Nammu
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![]() *Beth*
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#169
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I know I keep saying it, but again... @BeyondtheRainbow, your kindness and experience has been a life raft for me this extremely hard season. That med dude knows nothing at all about Emsam & his ignorant bias against MAOI's is glaringly evident. I did give him credit for offering to read about Emsam. I don't expect him to agree to prescribe it, but if he educates himself, hey, maybe it'll help someone down the line.
Your pdoc is a treasure. Hopefully, whoever you hook up with in the future will work from your current psych records and make good use of the information. I wish, wish prescribers would stop getting all hung up in diagnoses and treat symptoms. I mean, the strong hypomanias I experienced in my late-30's are hardly my concern now - this frightening, deep depression at age 60 is scaring me badly. Their perspectives often leave me clueless.
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![]() Fuzzybear, MuddyBoots, Nammu
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#170
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We're being hit with a "bomb cyclone." Apparently, a tornado, a hurricane, and a cyclone are the same event, but are called by different names depending upon where they occur. My front door sounds like it's going to come off, the wind is howling, the rain is beating, and I'm feeling on edge.
I wonder what will happen with regard to the Speaker of the House situation.
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![]() Fuzzybear, HALLIEBETH87, Mountaindewed, MuddyBoots, MuseumGhost, Nammu, VerMOZZica
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#171
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Thanks Beth. I wish I could reach through the computer and give you a hug and then find you a good, experienced pdoc. Your situation is heartbreaking. I went through a couple really bad psych experiences and have been blessed that they were the last. In 2002 I saw a pdoc who didn't understand high-functioning so she said I couldn't be bipolar because I couldn't have held my job if I were bipolar. She spent 8 minutes per session with me and had no idea what was going on. The worst of it was 2 or 3 years later I got a bill for $3000 from them for a reason I never understood. It felt like a slap having to pay it. The other bad time was after the clinical trial. My current pdoc worked a few days per month at the counseling place I go to but her waiting list was months long. So I tried all 6 of the places in my city. 5 said no and 1 said they'd call me back. It's been 20 years so I'm thinking they may not call ![]() I hope the same happens to you. You may want to see if UC is doing any clinical trials You get really good care and at least the one I did will slide you into their program after you finish. I didn't because it was too far (ironically I go further now) but I could have stayed with them and wanted to as I really liked the pdoc I saw during most of the study.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
![]() *Beth*
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![]() *Beth*
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#172
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I'm sorry your niece screamed like a banshee all day @Mountaindewed. That's draining. I had a close friend, we were having children at the same time, and her baby cried relentlessly. Non-stop screaming. My friend was in a miserable marriage, she was so depressed, but in a strange way it helped her be patient with her baby. I felt so sorry for both of them.
I'm definitely not up on applying for jobs these days, but maybe sending your resume would be a good idea. Whatever the case, you're sure being hard on yourself about it all.
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![]() Mountaindewed, MuseumGhost
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#173
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![]() MuseumGhost
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#174
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@*Beth* Cllinical trials are kinda cool. I was in one that helped get lamictal approved for bipolar. I got 6 months of free psychiatric care, free meds for at least part of the study and (you don't need this part) I was able to learn a lot about the disorder that was new to me.
I have also donated blood for a study but that's no big deal. The med trial was a big thing. I also got to meet and work with a dr I called the Guru because he's one of the top experts in bipolar in the world. He knew everything. I don't know. I just know that was something I did that was positive.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
![]() *Beth*
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![]() *Beth*, Nammu
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#175
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My bedroom floor flooded overnight. I grabbed every towel and sheet except my wedding sheets, just couldn't bring myself to throw them on the floor. The mop was useless. The water was coming in through an unsealed window frame, running down the wall. I also packed towels on the ledge. What I am going to do with all this sopping wet stuff, I don't know. The rain and wind does not, not stop.
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![]() Fuzzybear, Mountaindewed, MuddyBoots, MuseumGhost, Nammu, VerMOZZica
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![]() ~Christina
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