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#1
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I've had sculiosis in my back for about 2 years or so now and they're a killer. I have 3 curves, my biggest one at the end of my spine, but when I found out I had them it wasn't necessary for therapy, braces, etc. When I lean to each side of my body, my spine moves and everything. I get alot of back pains where I feel the need to crack them out but my parents say "That's not good". Anyone have any suggestions or any stretches I could try?
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"I tried to be perfect, but nothing was worth it. I don't believe it makes me real." |
#2
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my mother has suffered this aall her life, and a physio taught my father how to put the bones that were moving back 'in'- every night before she goes to bed he presses down on her back and 'sorts' it out. I don't know if this is of any help, but maybe is an option you could look into i.e. getting one of your parents to learn what to do, so you can get a bit of relief especially before bed... Good luck.
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I know that behind every grey cloud there is a silver lining; I just need to be patient enough to find it!!! |
#3
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Have you googled scoliosis on the internet? I know there are good exercises to help build strong muscles, but if the curve continues you really should seek professional help. Braces can prevent much future pain, imo. TC
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#4
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I have mild levoscoliosis in my lower back . L1-5 . I ended up going to physical therapy for fibromyalgia and this condition. But the one thing that helps me alot is seeing my chiropractor and massage therapist once a month now. Dont know if that is an option for you.. but it has helped me some. I still get lower back pain alot. But my chiro does this stretching thing on my back and omg does it feel good and it makes it feel like everything is lining up . I actually felt like I was walking taller when I left there!! Hope this helps some.. take care!!
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#5
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#6
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My problem is that in highschool now, they don't check for sculiosis and either does my regular doctor. And the only doctors I see are psychiatrists and I don't think they're much help!
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"I tried to be perfect, but nothing was worth it. I don't believe it makes me real." |
#7
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Hi my heart goes out to you
I know just how you feel I to have scoliosis & have had it from birth I was offered an op on my back about 10 yrs ago but never had it as I wasnt even 20 yrs but it has got so bad that I am waiting to see if I can have it done now as I can not walk with out cruches & I am in so much pain that is almost in posibale I live 3 mins a way from my childrens school & it took me an hour to get there & back when I took them in yesterday I hope that you get help with your back I found that what ever I done was not possible for more than a few mins & even then I could only do them a few days a week as they hurt my back so much.
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Really happy in life ![]() Happy in love ![]() Just in a load of pain all the time ![]() |
#8
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I have been going to all sorts of Drs. over an 18 yr span. Most tell me to "try" Tylenol, as if I haven't tried every over the counter med. Just infuriates me. I finally found a doctor that now prescribes pain meds and muscle relaxers. What a wonderful understand doctor. Finally someone believed the pain was real and I wasn't a drug seeking faker.
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#9
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I have Scoliosis but I did not develop until I was in my late forties. I have Scoliosis and Kyphosis and my spinal cord moves and when it does I can't hardly stand the pain and it evidently is hitting a nerve and it is like I feel cold blood cursing through my veins and then it turns hot and I start hyperventilating because it is so strange to me and scary.
When it first began happening I had no idea of what it was that felt like it was going from my head to my toes and it was cold as ice and I could feel it moving and I would turn really hot and seriously I thought I was going to die and then my left arm would turn numb along with my left leg and foot and if I dared to move it would scare me and hurt so badly pain wise I could not stand it. I went and had a MRI and they diagnosed me with Scoliosis, Kyphosis, Degenerative Disc Disease and Neurological damage and they tried me on various pain medications and none of them worked very well. I was finally put on methadone and it worked much better than all the rest but I have been taking it thirteen years. I have been on my dose of 280 mg for 3.5 years and I am going into withdrawal ny morning. My Doctor which is Psychiatrist and I have an Orthopedic Scoliosis Specialist has conversed and decided to put me on Luvox instead of increasing my 280mg because they say the Luvox will make the methadone last longer and I can start to reduce my dose. No way! I have not heard anything good about Luvox and why should I take it just to increase my methadone dose or will it help reduce my anxiety and relax my muscles. I have not been able to take Flexeril or any of the muscle relaxants. Xanax works almost as great as the pain medication because I suppose I tense up and begin to have back spasms and it makes everything worse. What is your opinion of Luvox (flovoxamine maleate 50mg) taken three times a day with methadone 280mg. I do not use crutches or a wheelchair yet but I cannot walk very far or stand on my feet very long. It has totally destroyed my shopping trips and I barely can take a bath and roll my hair without it causing me agonizing pain. My has progressively become worse through the years but I feel if He would increase my pain medication it would help me do what I must do. If you have always been able to bathe, fix your own hair, clean your house and go shopping with your friends and family and now you find yourself hardly able to do these things it can become very frustrating. I still do not approve of prescribing Luvox when I am not depressed from endogenous sources and I am not a canditate for OCD. He is only prescribing it because He does not want to increase my methadone. He thinks my dose is too high because He has never treated a person on such a high dose. I have been on methadone since 1993 and my dose has gradually been increased due to my pain and now I have been on 280 mg for 3.5 years. I have developed a tolerance to the medication and I need a dose increase. Please what can I expect from Luvox and have any of you ever taken it? How do you feel about the medication and did it have any side effects and how do you think it would react with methadone? Is it difficult to discontinue the medication? Help? I need some answers before I see him again. Please someone must know something about this medication. Help me? ![]() |
#10
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Hi sufferers,
Back braces are only used in young children to stop the curve from getting worse, while their bones are still forming. For us late bloomers they are useless. I know pain will be with me forever. Sometimes a moist heating pad gives some temp relief as does a hot bath. And I do mean temporary, but any relief sometimes is nice. I know my chronic pain contributes to my depression. Hard not to be down when in pain all the time. I have learned to do things a little at a time. Nothing gets done like a normal person does it. Vacumning used to bring me to tears in about 15 secs and I was shot out for 24 hrs. I bought a Roomba, so now I don't have that to worry about and my floors have never looked better. It was NOT a luxury but a medical necessity. Anti-depressants have helped along with pain pills and soma muscle relaxers. Though at times nothing helps. I find if I am sleepy I hurt worse so I take a nap and that always helps when I am having a really bad spell. I hope some of this may help someone. |
#11
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I do have it to (im 22yo and have been in pain since about 18yo) i have done it all, chiro, massage, pt, meds...nothing seems to work. I only have 14% curvature but the muscle pull in different directions, and have muslce spasms quite often...i missed a weekend of work because of it recently..so frustrated i need some advice...
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"A new day has begun, more challenges will arise, each day harder than the next...will this girl's soul survive? She has emptiness in her heart, growing greater than the day before, her self-esteem is shattered, how can she take it anymore?" Part of a poem I wrote called "One Day at a Time" |
#12
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scoliosis and kyphosis here, and degenerative disc disorder(or is it disease, I cant remember) and I feel your pain.
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#13
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I'm getting the degenerative disc from age and not having any fun with it. Have you tried accupuncture or electrical stimulation? I'm having the muscle spasms a lot in my arm.
I had the muscle thing with my neck when I was younger, usually got worse because of stress. Does your pain get better/worse from anything you can determine? Last time I started a new job, I had the bad neck for a couple weeks, hard with a new job and all but it was a challenging job and I guess I was really scared. I had a full semester of grad school planned that started a couple weeks ago but I dropped it because of my neck/shoulder/arm. I'm doing better now, think the stress was getting to me there somewhat too. I finish up with PT this week. Don't know that that has helped a whole lot but was "reassuring" and a bit comforting? I do remember when I had my intake interview with my physical therapist, she had me do a lot of different moves before she found "the" one (shrugging my shoulders :-) that relieved the pain some. I was reading this site: http://www.spine-dr.com/ linked from here: http://www.scoliosis.org/links.php
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