[Kiya]

Spondi- oh I’m sorry about your grandpa!! maybe he’ll prove the docs wrong? Lots of hugs!!

Cake- what a nightmare!! I’m sorry hun thinking of you!

My numbing/tingling/burning is spreading from sides of arm, leg, cheek to twice what it was. I’m getting scared and will see a nerve/muscle neuro in a week. I’ve been researching and I’d like him to look into CIDP for me. I feel like I don’t have a left side; like the arm, leg, and face are full of wet cotton.
Sometimes it’s icy hot, sometimes tingling, sometime just numbing or even painful. The thing that scares me most is how fast it is spreading.
One day at a time.
Hugs all!!

[January]

What is CIPD, Kiya?

[spondiferous]

Just wanted to check in quickly. Wishing you all well. Kiya - congrats on the results of your mom's biopsy! I hope the news continues to be good. That is rather puzzling though, the discrepency between the blood results and the bone results. Also I'm sorry to hear about the neuro stuff. I've been experiencing some of my own and it's not been a good time.

Jan - how is Belle doing today?

Christina - I hope you're doing okay. I've been thinking of you.

For anyone I forgot - know you're in my heart. Hugs for those who want/need them.

[Wild Coyote]

I'd had a few "good days" and am now paying for it. We all know how that goes!

Just catching up. Lots going on for everyone!

Hugs to all!

WC

[Gus1234U]

let us strive to keep 'a loving heart' ..

[Gus1234U]

(aren't you glad i figured out how to make my pics big again ?? )

i slept 12 hrs last nite and feel almost human today..
i wish the same for you all,,, esp. Kiya, who i hope has a treatable condition~!

[January]

Hi Everyone,

After tomorrow I hope to be able to write a line to each of you.Tomorrow I go back to the new pdoc. Can you believe it's been a month? He's going to have to tweak the meds, but I expected that. I find myself a bit shy because I laid bare my soul to him last month in order to get the help I so desperately need. Now, he knows many of my most frightening, and thus, embarrassing secrets...

His supervisor sat in on the session and I got absolutely no feedback from her until the very end. She looked at me with the most compassionate eyes I believe I have ever seen and told me they would help me with the flashbacks. I hadn't even mentioned them... I hope I never forget the compassion in her eyes. It was an almost mystical experience...

I'm still having problems getting out of the recliner. My legs and ankles are very swollen. Now, I've pulled a chest muscle or something and the pain is so sharp it takes my breath away sometimes when I move.

Miss Belle played a lot today although she tires easily. We play "fight" where she runs all around the apartment and then jumps on me and attacks me and then jumps down and runs all around again. She bats at me with her paws and it feels like cotton balls are hitting my hands. She pretends to bite me, but she really just growls and holds my finger in her mouth. She thinks she's being fierce though. Who am I to tell her she's wrong?

I love you all!

[cakeladie]

Well we only got 3 tricker treaters which was sad but since our kids are grown we have been getting fewer and fewer kids. We also used to decorate the house and without the kids we don't do it anymore.

We went from 90 + degeees to freezing cold and not being able to get warm or my muscles so stiff I could hardly move yesterday. Hubby was also driving me nuts and I think when you are in pain you want someone to understand and normally he does but last night he rubbed me the wrong way. When you cough and your whole back hurts or when you are 47 years old and can't get off the couch because you can't get your leggs to work you almost feel like you and your family will be better off without you.

Lately every breath hurts but insurance will not let me have oxygen until inam down to 79-80 02 rate right now I am at 86-88 02 rate. Hello normal is 97-99 who gives insurance the right to tell the doctor something different.

Ok I will crawl back in my hole aka my bed

[Gus1234U]

(cake, you need an advocate~! the medical standard for supplemental oxygen is 89% at rest.)

[cakeladie]

I have been fighting this fight with my insurance company for a while it's just getting worse. I found a company that sales used medical equipment and I am on the list for a portable 02 machine. When they get one it will have to be shipped to California. This company is in Colorado I think but they have all sorts of new and used medical equipment and supplies at very reasonable prices.

Sunny the cat got me up at 1:30 am again I got up and gave him treats and turned on the TV for him and then went back to bed. He didn't make another sound until 3:10 which I am ok with since we usually get up at 3:45 am. So I got up let MCGee in he's our feral cat that came to us when he was 8ozs and his eyes were matted shut. I bottled feed him and nursed him back to health but he likes being outside. So he goes out at night and during the summer he's outside most of the time. But during the day he stays in our backyard and he plays with our dog.

You know how I know I am really sick? It's when no matter what neither cat will leave my side.

I hope everyone is hanging in there. Haven't heard from Liz hope she is ok and Jan very very proud of you 5 hours that's awsome

Hugs for everyone

[January]

It's very late and it's taken me this long to work up the energy to write even a few lines to you. There is a mix up on my klonopin and I do not know if I am right, the Dr. is right or the pharmacy is right. I just don't know who is right and at this time of night I can't call the pharmacy or the pdoc. I don't know how much medicine to take.

Things went well with the pdoc today. He increased the antidepressant. I keep falling asleep during the day and we don't know if it's the antidepressant or if my body is trying to catch up sleep from all the months of insomnia. I guess this month will tell the tale.

Love to all.

[lizardlady]

Hi all! Haven't touched the computer after work this week. Came home from work and crashed each night.

Left knee is still sore, but not as bad as it was. Lord, but I get tired of listening to myself whinge.

Cake, your weather sounds like here in the winter - 80s one day, freezing the next, then back to the 80s. Our poor old bodies don't have time to adjust.

Jan, Belle's "fighting" reminds me of the poster that says "inside the heart of a small dog is the heart of a BIG dog." New pdoc and supervisor sound like keepers.

Kiya, I hope you get an answer soon.

I know I missed people, sorry. Hugs to everyone!

[January]

Belle is very sick today. She ate some leaves. I have to watch her, she'll try to eat anything. She chews the strangest things. I also gave her a miniature tennis ball and she ate some rubber peices out of it. On top of that, I gave her some nibbles of a sugar cookie, so the poor thing has been gastrointestionally sick all day.

The increase in the depression med made me sleep almost all day. I was in a lot of pain last night, so it was hard to sleep.

I didn't get the klonopin issue fixed today. I'm going to have enough, so I think I'll just keep my big mouth shut about it.
I might be better off that way.

Love to all.

[Kiya]

(((( all ))))) hugs and compassion!!

[spondiferous]

some weird weather here right now. had a bit of a blizzard last night - it was pretty awesome but it's cold this morning so i've got the heat on. i'll probably do some reading and writing today. i had a super busy week where i was doing a lot and it felt good but i've crashed again and i'm just craving warmth and comfort and softness.

I have been reading but not responding to this thread except with 'thanks' and 'hugs'. I hope you all are okay today, and that you have whatever kind of weekend you need to have. Hugs to those who want/need them.

[January]

Belle and I both have been sick today. I'll spare you the details.

Belle often climbs up my chest and rubs the top of her head under my chin. She fooled me today. Instead, she climbed up and gave me a big slurp right on my mouth. I made such a loud sound of protest that she jumped up into the air, whirled and farted right into my mouth and nose.

So, how's your day been?

[Gus1234U]

when i dragged myself out of bed this morning (at 11:00) there were 4 little does outside my window, calm as you please. what a thrill~!

i am astonished that i am this ill~ it's not as bad as February, and i was able to help the guy from Habitat to stabilize my hot water heater and fix the sink, so hopefully things will get better.... i feel for you all, esp. those who feel this way much of the time~~~

[Gus1234U]

[Kiya]

Fighting another cold. And also depression again.
Hugs

[January]

[COLOR="Teal"]Gus, I want you well now, please. I know you don't like me to worry about you, but I am worried.

Kiya, I want you better now, also. I'm sorry about the depression and hope it levels out soon. Are you taking a med for it?

Everyone, I really thought I'd be able to write each of you long before this, but it's not working out as I had planned. The new pdoc increased the anti-depressant Wed., and yesterday and today I've been more anxious than before. I've been snoozing a lot, but when I'm not, things are bad. I don't know why this is happening.

I love each of you. I'm sorry I haven't managed to write.

[Gus1234U]

(every anti-depressant works differently on each person,,,
that's why doctors have "practices" ....) LOLOLOL

[lizardlady]

One of the disease infested little walking petri dishes (kids) at school infected me this week. Have a wicked head cold. Am treating the symptoms and staying quiet hoping to get ahead of it.

Thinking of all of you, but don't have the gumption to do more than thank and hug posts.

[Wild Coyote]

I hope everyone feels better soon!

Just checking in and it seems many have acute illnesses on top of chronic illnesses.

It will be a very busy week. My elderly mom lives with us and is having a hip replacement late in the week. She was called in two months before her previously scheduled surgery; there was a cancellation.

I hope everyone recovers from the acute illnesses soon.

Love to All!
WC

[Gus1234U]

[cakeladie]

You know it seems like I take two steps forward and three steps back. Hubby and I got into an argument on Friday so without saying anything to him I got my book and went to sleep in the sewing room/office. He got really mad. He had to be at work at 3 am so he had to leave at 2:30 am it's OT so he didn't mind. So when he got home he was mad at me for sleeping in the sewing room. Like I don't get to be mad? My feelings were hurt. By the end Of the day everything was ok. But lord I need a break.

He had to be back at work at 3:00 am today and with the time change lord was it hard. I was able to go back to sleep after he left but McGee wanted to go outside and was banging on my door. It was raining and cold so I said no. I managed to go to sleep but woke up gasping for air I couldn't breathe. So I have to put my pride to the side and look into a system that if I can't breathe or fall I push a button for help. Hubby works a lot and I am home alone a lot. I am 48 years old that's not that old but I have got to do something am I over reacting?

I feel like crap and I have so much stuff to do. Stuff for our trip and just everyday cleaning my muscles are so tight that every step hurts. Did you guys know that I have to use a plastic cup with handles because a regular cup or a coffee cup is to heavy for me to hold. The same thing with plates etc. I am just a mess.

Sending positive vibes and hugs to everyone

Liz feel better