in quite a bit of pain today and all i've done (in the whole day) is get some cola from the shop

it's days like this when I realise I really don't manage my pain well (in fact I don't believe I manage any of my illnesses well)

[lizardlady]

pfrog, how you doing hon?

bad fibro pain and also bad tummy.

not sure the food I had yesterday agreed with me much

@lizardlady ... I'm doing alright ... Sorry to hear you are having a flare ... Those suck extra badly!

I have an appointment with a new Primary Care Physician in a whole different practice this morning and am hoping it goes well.

Needless to say, after what happened with my other PCP last week, my ability to trust the medical community is once again on extremely shaky ground!

I have wondered if the reason provided is the real one or a cover for something else that may have happened.

Regardless, like the Dixie Chicks song says - I ain't ready to make nice!

About all I'm looking for right now is a place to get a basic yearly check-up, a place to go to when I get sick with a cold or something like that in between those, and a PCP that can make referrals to specialists when and if needed.

Other than that ...

[lizardlady]

Pfrog, good luck with the new doc. I wonder if docs know how hard/stressful it is to find a new one.

I agree, there's something off about how your last one stopped seeing patients.

I'm sure current flare is the result of outrageous stress at work. Found out yesterday that my boss and his boss have my back against some shyte being thrown at me. Knowing that helps with my stress. Plus I start a week off tomorrow!

Enjoy your time off, @lizardlady!

I like my new PCP and her staff right nicely!

She's pretty sure I do have lupus ... Waiting on lab and biopsy to confirm.

If it is lupus, that's a horrible condition to have, but ...

At least we can start treating it and hopefully mitigate some of the crappiness I've been feeling.

I'd be happy with just feeling 25% less crappy than I've felt here lately!

yesterday I had my shower, and it was so painfull (to the point where it took me like 50 minits to recover from it)

I was in pain for much of yesterday, today's a bit better- but I didn't get any sleep last night because of my back (ugg) and it's killing me- the back, that is. not that I didn't get any sleep (I'm used to that one).

[lizardlady]

Pfrog, that's great news about your new doc. Not great news about possible lupus, but it will be good to have an answer.

Reading up on Lupus ... Whew Boy!, what a convoluted mess it is! ... But, I sure am getting a lot of answers to all the WTF's I've had about how fast my health has gone south on me these past couple of years ... But even further back than that (starting about 10 years ago), all those inexplicable things that are now no longer so inexplicable (and though random also make perfect sense and fit together like a macabre puzzle) ... Ama-Za-Za-Zing!

[lizardlady]

Pfrog, that's how I felt when I got my fibro diagnosis. OMG about what was to come, but it explained soooooo much.

(*(*(*(*pfrog*)*)*)*)

[lizardlady]

Does anyone know how Cakelady is? Haven't seen any posts from her in ages.

Hon if you are around could you let us know how you are?

[lizardlady]

I did too much yesterday. Got up feeling kind of off, but went ahead and pushed through. I know better and am paying for it today.

[~Christina]

Awww Liz .... I’m guilty of just doing far to much and paying for it.

Hope your pain eases quickly !

[~Christina]

Hey !

I have numerous things going on

I was on the Enbrel shot for over a year and it kept me psoriasis clear and greatly helped my PsA.

Well I have a huge out break of psoriasis , totally new places, right eyebrow and my lady parts!!! omg I know right !! My inflammation rate had been slowly climbing up so it’s no surprise that Enbrel just pooped out on me.

Anyway my rheumatologist is switching me over to Humira. Apparently it can be a very painful shot. Not overjoyed with that bit, but if it helps I’ll suffer through it.

My GP told me to take Mucinex 600mg twice a day, apparently it is shown to help Fibro pain in many legit studies. I’ve just started it consistently last week , so I’m hopeful. If nothing else it will keep me from getting congested lol

[lizardlady]

(*(*(*(*Christina*)*)*)*) It's so disappointing when meds poop out. I hope the shot is not painful.

Outbreak on your lady parts! OMG!

[~Christina]

Yes .. there. Of. All. Places.

The steroid ointment medication is helping albeit to slow in my opinion.

I also have a one month trip to Florida coming up ... it’s a long story but will be staying with friends for 3 weeks and I’m just losing my mind at the thought of being gone so long , my whole routine that helps keep my bipolar stable will be gone.

I grew up in Florida. I know what August and September weather is ... our friends usually keep there ac on 80, yes I’m going to die, I’d actually prefer to die before this trip even happens.

#CantAGirlCatchABreak

Good Morning, Fibro Friends ... Gentle Hugs For All That Need One (Including Me!) ...

I've been wondering ... If it does turn out that I have Lupus instead of Fibro, will it be okay to continue participating in this thread since chronic pain and fatigue are part and parcel, or would y'all prefer I start a different thread?

Appreciate y'all's honesty on how you feel about it ...

,
Pfrog!

[lizardlady]

Pfrog, I would miss you if you left us. Please keep posting here.
(*(*(*(*pfrog*)*)*)*)

Whew!

Thank You, @lizardlady ...

I would miss y'all too!

[~Christina]

Pfrog!!!! You most certainly have to stay put!

This is a sucky observation I have made over the years but I’ve never met someone with Lupus that doesn’t also have Fibro

When I first stumbled onto this forum I thought I just had Fibro but nope now I also have PsA... so pain is pain and I find posting here for support is most comforting.

Sorry I’m not a daily poster but sometimes if I post about it it makes it worse, stupid eh?

@~Christina ... Thank you too! ...

And I don't think it's stupid that sometimes it makes it worse to post or talk about it.

When it hurts, everything hurts - even talking about it!

[lizardlady]

Oh Pfrog, I love Aunty Acid! Thanks

[lizardlady]

Christina and Pfrog, there are times I don't want to post about it either.

[lizardlady]

Fibro, aka the irritable everything syndrome, is effecting my digestive system. I had pb&j for supper hoping it would not upset things. This truly stinks.