Thank you @lizardlady ...

[lizardlady]

Fibro and CFS both triggered. Hurt all over and exhausted.

I have an appointment for a SSDI Psych Eval next week.

That pertains to my PTSD / Anxiety / Depression ...

While my mental health has been impacted, it's the physical health issue that's actually caused the disability though.

Of course it's all interconnected, so ...

My SSDI Attorney is pretty sure I don't have any worries about getting approved, but it's distressing to me the uncertainty of it all.

I'll be relieved when everything is pfinally settled and in place.

[Cocosurviving]

Rare Disease Day 2021 (Feb 28th) was nice.
I like awareness walks and runs. I ran for my rare diseases. I ran for my teenager’s rare diseases. I ran for all BIPOC with rare diseases. I ran for Ahmad Abrey, Finish The Run.

I am in so much pain today that I just want to cut everything off from the waist down, hang it on a hook in the closet and pforget it was ever a part of me!

My meeting with Social Security (Psych Eval) is today. I'm pretty sure it will also involve the impact my physical health issues are having on my emotional health.

I'm a bit anxious because so much has gone wrong with my physical health that I'm afraid I'll pforget something important that needs to be discussed pertaining thereto.

On top of all that I'm still hurting right badly and when I'm hurting like this it's difficult to pfocus and concentrate on much else other than that.

So please keep me in your thoughts & prayers ...

Thanks!

[lizardlady]

(*(*(*(*pfrog*)*)*)*)

I love the idea of hanging the parts that hurt in the closet!

[lizardlady]

Pfrog, re ss appt. How about making a list of things you want to mention and take it with you to the appt?

Thank you @lizardlady!

I did make and take a list, but never even had to pull it out of my pocket.

We talked a pfew minutes about my physical health issue, how rapidly I've declined since the allergic reaction to the antibiotic in 2009, and the impact that all this has had on my mental health.

I told her it was quite devastating to lose my ability to do all the things I love including my job, walks at the botanical garden, fishing, etc. I also told her I worried where I'd be in another 3-5 years and how I'd hoped to be able to make it until I was 65 before I had to quit work, and that this definitely wasn't what I wanted nor how I had envisioned spending my "golden" years.

She was quite empathetic regarding my plight and stated that she'd do everything in her power to see that my claim gets approved.

It was nice to pfinally hear a professional emphatically state HOW COULD IT NOT ... Meaning there's no way someone can live in this kind of chronic physical pain & continued loss of pfunction and it not have an impact on their mental health.

So here's hoping I hear something here before too long.

I'll be sure to keep you posted and let you know as soon as I do.

Thanks Again!

sounds positive, frog. good to hear!

[lizardlady]

Pfrog, sounds like it was a good meeting. Fingers crossed for you.

my overeating continues to dominate me today. it's barely even late afternoon and I've eaten a lot of cookies

showered today

used lemmon soap

it hurt. ug. that's me for the day

I just ate mcdonalds

yum!

[Cocosurviving]

Dealing with a chronic illness flare up.

Resting, no walking or running until Sunday.

Dinner Beyond Meat plant 🪴 based, fresh acorn squash and sweet potato.

the state of my body is really depressing me today. it really ****ing hurts and it's a general mess. I did however find something to smile about today... watched call the midwife and seeing the babies on their made me smile.

my leg clicked while I was walking.

that hurt too!

[Cocosurviving]

Happy International Womxn’s Day!
Unfortunately, I feeling worse than yesterday and was not able to participate in any awareness runs or walks. This sinus infection has my throat sore, I feel very fatigued, runny nose and my Hereditary Angioedema decided to flare up as well.

[~Christina]

Hey evveryone

Sorry I am not around much../ I fell an hit my head, so i am dealing with a conccusion ,, Hit my head bad and entire body hurts, But todaay I am better or so my husband says ,

Anyway hoope you all are doing okay : hug:

[lizardlady]

(*(*(*(*Christina*)*)*)*)

Sending healing thoughts your way

Warm, Gentle Hugs @~Christina ...

[SlumberKitty]

Weather has been mild which has been helpful for the fibro symptoms but tomorrow rain. I can already tell the difference in the weather and my muscles and joints are hurting.

[Cocosurviving]

It seems that each time I have a sinus infection or respiratory infection it triggers both of my rare diseases.

Thursday, March 11th 2021- I have my consultation with my new immunologist. I have my fingers crossed that he will be a provider that listens.

Chronic Idiopathic Urticaria- I’ve tried several antihistamines over the years and the only one that works for CIU is hydroxyzine...unfortunately it’s a sedative.

Xolair is not a good match for me...it’s too risky in regards to the side effects and other autoimmune diseases that I have.

Hereditary Angioedema-I have one Firazyr injection remaining. My previous immunologist did not feel comfortable prescribing me a preventative medication. He said, the side effects were too much for my health.

I’m having a day of extreme frustration.

I’m tired of itchy chronic hives, not regular hives that feel like my skin is on fire covering my whole body and face.

I’m tired of my face, feet and hands looking like I was jumped into a gang.

I’m also tired of fatigue, sore throat and runny nose.

I’m tired of having so many chronic illnesses that finding treatments is difficult.

I’m also so hurt that I’ve lost multiple family members. The grief is so real. I know my ancestors are in my corner and watching over me but the pain of missing my family members hurts deeply.

I’ve been continuing to eat fresh fruits, vegetables, drinking a lot of water and non-caffeine herbal teas. Hoping this sinus infection will pass which would calm my flare ups. I purchased a new Fibromyalgia cookbook. I’m looking forward to feeling better and being able to cook the recipes.

I hit my head today on the wardrobe door. outch!. I am in ****ing agony, and I'm sure in a few hours I'll be a lot worse because, well... that's usually how it goes. I'm meant to get something from the shop today, but **** it. it can wait.. I can barely move. another day in front of the tv. oh so ****ing new..

Originally Posted by Cocosurviving

It seems that each time I have a sinus infection or respiratory infection it triggers both of my rare diseases.

Thursday, March 11th 2021- I have my consultation with my new immunologist. I have my fingers crossed that he will be a provider that listens.

Chronic Idiopathic Urticaria- I’ve tried several antihistamines over the years and the only one that works for CIU is hydroxyzine...unfortunately it’s a sedative.

Xolair is not a good match for me...it’s too risky in regards to the side effects and other autoimmune diseases that I have.

Hereditary Angioedema-I have one Firazyr injection remaining. My previous immunologist did not feel comfortable prescribing me a preventative medication. He said, the side effects were too much for my health.

I’m having a day of extreme frustration.

I’m tired of itchy chronic hives, not regular hives that feel like my skin is on fire covering my whole body and face.

I’m tired of my face, feet and hands looking like I was jumped into a gang.

I’m also tired of fatigue, sore throat and runny nose.

I’m tired of having so many chronic illnesses that finding treatments is difficult.

I’m also so hurt that I’ve lost multiple family members. The grief is so real. I know my ancestors are in my corner and watching over me but the pain of missing my family members hurts deeply.

I’ve been continuing to eat fresh fruits, vegetables, drinking a lot of water and non-caffeine herbal teas. Hoping this sinus infection will pass which would calm my flare ups. I purchased a new Fibromyalgia cookbook. I’m looking forward to feeling better and being able to cook the recipes.

sounds nice. what do you usually enjoy cooking?