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#126
Mar 31, 2021, 06:29 AM
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(*(*(*(*Christina*)*)*)*)
Would you let us know what the doc says? |
 Pflowers, ~Christina
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 Pflowers, ~Christina
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#127
Apr 01, 2021, 02:23 PM
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I have been hurting extra bad today.
strange, really, since I've not done anything particularly strenuous back still really hurts though not been able to really get comfortable for a few hours |
| Pflowers
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| Pflowers
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#128
Apr 02, 2021, 03:47 AM
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I’m currently restricted from running
 however have been walking 15-20 minutes. My new immunologist is out of state. The other immunologist in the practice, I wanted to see to begin with. She was out with COVID and just returned to the office. I had an appointment with her yesterday. We have a game plan and now waiting on lab results. Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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| Pflowers
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#129
Apr 03, 2021, 10:37 AM
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Howdy chronic pain pals ...
I recently left MSF to pfocus on my physical health issues. Of course I realized after a day or two that leaving was a HUGE mistake! That HERE is exactly where I need to be ... So I came back. Out with the old & in with the new as they say.  ,Pflower! 
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| lizardlady
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#130
Apr 03, 2021, 12:06 PM
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I'm sorry to hear this @~Christina ...
 Hopefully the neurologist will be able to pfind some answers & help. Hurting all the time is bad enough so pfalling is the last thing needed!
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#131
Apr 03, 2021, 03:18 PM
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Quote:
I like your response, “above the dirt.” I use a cane 🦯 when my pain (Fibromyalgia) is at certain levels. I have grab bars installed in my restroom and a shower chair. I have an account on The Mighty. It has different medical related, mental illness communities, a supportive system, “distract me” and “check in on me.” Etc. I subscribe to newsletters. I like that writers for the communities will compile a survival kit (Fibromyalgia Survival Kit) based on reviews. Each article includes a list of recommended products when dealing with “Depression” and “Fibromyalgia” etc. I’ve added several items to my Amazon Wishlist. I recently ordered a foam roller to use after walking or running. Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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| Pflowers
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#132
Apr 04, 2021, 09:39 AM
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I hoped that my back wouldn't hurt so much on easter.
but it does. it's aweful. the last... I guess 4 days have been even worse than usual |
| Pflowers
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| Pflowers
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#133
Apr 04, 2021, 09:41 AM
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I think I've said this before but I wish I could just unscrew the ****er!. I need to speak to someone about getting a higher shower chair too, something I'm really going to have to do this week.. without fail... or I'll be showering on the floor
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| Pflowers
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| Pflowers
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#134
Apr 04, 2021, 11:06 AM
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Quote:
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| Pflowers
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#135
Apr 04, 2021, 12:03 PM
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| lizardlady
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#136
Apr 04, 2021, 03:49 PM
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Extra bad pain day today!
Not sure what I did wrong. Heck, I guess with this stuff you really don't have to do anything wrong. It has a mind of its own and is just gonna do what it wants to do when it wants to do it! It's days like today that I cry a little, pray a little & cuss a lot ... 
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| Anonymous32451, CANDC, lizardlady
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#137
Apr 05, 2021, 09:35 AM
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Quote:
I've posted about this before: but I'll say it again... wouldn't it be nice to have like a switch on your back which you could use to just unscrew it. of course, maybe their would be need to be a back up plan for something under it that doesn't hurt, but especially on shower day that would come in handy. unscrew it when I shower, then screw it back on doesn't hurt to dream... |
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| Pflowers
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#138
Apr 05, 2021, 09:38 AM
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today I emailed my care team to tell them that I was tired of waiting.
I'm getting really bad and what are you doing?. sitting their so help me or find someone who can. a little bold at my part, but may be the wake up they need |
| Pflowers
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| Pflowers
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#139
Apr 05, 2021, 09:57 AM
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Yes, @raging vortex ...
It hurts so bad so often that there's been many times I've wished that I could just remove the affected areas from my body, hang them on a hook in the closet, and pforget they ever were a part of me!
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| Anonymous32451, lizardlady
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#140
Apr 05, 2021, 05:47 PM
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Quote:
I like "cry a little, pray a little and cuss a lot", especially the cuss part ! |
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#141
Apr 06, 2021, 07:46 AM
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((( @lizardlady ))) ...
 God pforgive me, but I think the cussing is what helps me most on those days!
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#142
Apr 06, 2021, 06:17 PM
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Quote:
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| Pflowers
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#143
Apr 08, 2021, 05:26 PM
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Got my second covid shot yesterday. It triggered my CFS. :sad:
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#144
Apr 09, 2021, 07:21 AM
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| lizardlady
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#145
Apr 09, 2021, 12:01 PM
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Triggered fibro too
 I feel like poo..... |
| Pflowers
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| Pflowers
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#146
Apr 09, 2021, 02:30 PM
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| lizardlady
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| lizardlady
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#147
Apr 10, 2021, 07:31 AM
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SSDI Claim Update:
They denied my claim so my attorney will have to appeal the decision. They used medical info pfrom way back in 2013 as a basis pfor their decision but totally left out the medical info pfrom the orthopedic surgeon I saw at the end of last year! It makes absolutely no sense! Maybe it's their job to just make it as difficult as possible? In the meantime ... Wishing everyone a peaceful & relaxing weekend.
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| lizardlady
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#148
Apr 10, 2021, 08:08 AM
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Pflower, that sucks.
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| Pflowers
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| Pflowers
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#149
Apr 10, 2021, 11:02 AM
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Thanks, @lizardlady ... It really does!
However, if they think I'm just gonna quietly accept that and go away then they've got another think coming! 
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| lizardlady
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#150
Apr 11, 2021, 07:31 PM
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Quote:
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| Pflowers
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| Pflowers
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My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
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