[Pflowers]

No apologies necessary @lizardlady ...

All pfeelings welcome here!

Hope the beast returns to it's cage sooner than later, & glad to hear the pflare has settled back down.

I've been struggling to eat again. well, maybe not to eat, but to be full. my quality of food (or to be more exact how I prepare it) is a serious issue- I am convinced that's why I'm not enjoying it.

struggled through another shower today, and 2 falls (one quite bad fall on tuesday morning, one less so bad on wednesday evening)

care team checked in with me yesterday, just with their usual crap... you're too damaged for us to help you, which I guess is another way of them saying well... we don't know what to do with you, so that's also not great

ah well: their goes another week of absolute **** all

[lizardlady]

Someone get some cheese to go with my whine. My knees, hips and left ankle are screaming obscenities at me today. It's arthritis, not fibro. Regardless the cause it hurts like bloody blue blazes.

[lizardlady]

Maybe it is fibro. My whole stinking body hurts today. Fibro fog made me a menace on the road. I was out working in the community today. Between the pain and fog I decided to come home. Damn this sucks!

[Pflowers]

((( @lizardlady ))) ...

It isn't easy to keep the mood & 'tude in check when this stuff is kicking our butts ...

Hoping it releases you pfrom its grip sooner than later!

[lizardlady]

Originally Posted by Pflower

It isn't easy to keep the mood & 'tude in check when this stuff is kicking our butts ...

So THAT'S why I hurt!

[lizardlady]

Break out more cheese cuz I'm gonna whine again.

My left knee hurts so stinkin' bad it woke me during the night. I had to use both hands to lift my leg and move it so I could turn over it hurt so much. Days like this I would happily cut the damned thing off!

[Pflowers]

... @lizardlady ...

[lizardlady]

Thanks pflower.

I feel like a whiney crybaby this week, but lord love a duck I hurt!

[Pflowers]

It's okay to have a pity party pfor ourselves @lizardlady ...

And God help anybody that tries to belittle me pfor it!

I'll show 'em what mood & 'tude is all about!

[~Christina]

Im in pain hell.. Between physical and the whole world on fire I am pretty much an Ostrich with my head in the sand.

Gentle hugs ladies

Honestly I think a fancy cupcake would improve my mood but thanks to now being diabetic that's a big fat NO !!!

[Pflowers]

Dang @~Christina!

No Cupcakes ?!?!?

Here's hoping that you are able to pfind some wonderfully scrumptious sugar pfree cupcakes!

[lizardlady]

I figured out why my knees hurt so bad. It's sitting at my desk for work. Having them bent all day seems to set off my arthritis. I'm trying to sit with them stretched out part of the time to see if it helps.

[lizardlady]

Christina, Wally World has some pretty good sugar free baked goods.

[Pflowers]

Just wanted to say I'm tired of being in constant pain & pfeeling bad all the time.

That's all ...

Originally Posted by Pflower

Just wanted to say I'm tired of being in constant pain & pfeeling bad all the time.

That's all ...

to add to that: sore throats suck.

had one for about 3 days now, and I've been coughing a lot and finding it difficult to swallow

but yay throat sweets to the rescue. or something

[lizardlady]

Saw a quote today that made me think of my fibro friends. Character is a book is in so much pain he says his eyebrows hurt.

[~Christina]

Originally Posted by lizardlady

Christina, Wally World has some pretty good sugar free baked goods.

Yeah I have seen a few things but then I look at the Carbs and I'm like I can have one damn small cookie Its just really depressing !

I had gestational diabetes when pregnant with my daughter and its very common to develop Diabetes type II later in life.

Right now I'm doing sugar free Jello .. It tastes exactly the same so I get my " sweet fix"

Pain wise is still the same...but I did go out today, had to pick up meds and I went to a thrift store.. Felt good to get out but just the walking has me hurting more.. Its so stupid!

I am on the hunt to find a " house Hippo" I belong to a Facebook page that people post all the odd strange second hand things they find around the world .. (they have 1.2 million followers) anyway its finding a House Hippo.. It brings good luck so they say. Anyway the Hippo has to be second hand, it can be made out of anything and tiny or large. So I will continue to search..

I hope everyone has a nice Sunday

[Pflowers]

Howdy @~Christina & @lizardlady ...

Hope y'all are doing as well as can be doing.

I have a question ...

Have either of y'all ever dealt with pressure spots that haven't become pressure sores yet?

Just kind chapped & discolored at present.

I've already started doing things to alleviate the pressure like switching positions every 30 minutes or so, but ...

I'm wondering if there is a specific cream or salve you'd recommend to help speed up the healing process?

Don't want it to advance into pfurther stages ...

Appreciate your encouragement, advice & support - Always,

Pflower!

[lizardlady]

Pflower, would vitamin E oil help? I have no idea if it works on pressure sores, but it helps heal cuts.

[Pflowers]

Thanks @lizardlady ...

I remember using Vitamin E liquid gels pfor cuts & scrapes back in the day!

I also spoke to the pharmacist & she recommends this ...



https://www.buttpaste.com/sites/butt...?itok=yh69oC7J

I'll pick up a little of both when I go to the store this week!

Hopefully between the two of those - and the seat cushion I've ordered - things will start clearing up quick.

Laying on my side or tummy just isn't working pfor me!

[Pflowers]

Good morning Pfibro Pfriends!

Hope all are well today.

That Beaudreaux's Butt Paste was instantly soothing!

Hopefully it nips the issue in the bud!



Have A Good Day!

[~Christina]

LOL we use to use that on Nursing home patients! Works wonders ! Glad it helping !!!

[Cocosurviving]

I actually believe I might be in the same boat as another person in our Xolair group. I believe Xolair injections might be making my Chronic Idiopathic Urticaria worse. I do write down...journal my flare ups.

I’m happy for folx that Xolair has been a game changer for Chronic Idiopathic Urticaria however it is misinformation to make posts that GUARANTEE results just because particular individuals are having success. The manufacturer does not GUARANTEE successful results. No pharmaceutical manufacturer can GUARANTEE successful results.

Everyone does *not have success with Xolair for Chronic Idiopathic Urticaria.

After having my second Xolair injections [300 mg] for May 2021. I called my immunologist office answering service. I spoke with a nurse on call and was instructed to go to a local urgent care clinic.

I had to be given higher dosages of steroids [and monitored] to calm down my Chronic Idiopathic Urticaria. Which I started also having Angioedema swells [top and bottom lip + my right thigh]. It’s painful and I’m on bed rest. My right thigh continues to swell with Angioedema.

It’s hard to think positive and hold out hope that these Xolair injections will begin to help when I’ve experienced zero improvement. I’ve continuously been instructed to go to urgent care or a hospital. Which my flare ups always happen in the wee hours of the night.

These medical bills are stressing me out. I’m already making payments but continue to return to urgent care or a hospital as instructed which creates more medical bills.

I’ve applied for medical financial assistance through a local hospital. I’ve been checking my mail waiting on a response. I also have multiple autoimmune diseases [Fibromyalgia, Hashimoto, Asthma, Atopic Dermatitis and Alopecia] and experience a domino effect.
My Fibromyalgia pain has been horrible as well. I treat my Fibromyalgia with medical cannabis, bath bombs, herbal teas, supplements and traditional medicinals. I don’t believe in pain medications [for me].

I’m not seeking any advice. I’d just rather post here because some individuals can relate to being frustrated with chronic illnesses.

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