Trigeminal Neuralgia Pain

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I have Tringiminal Neuralgia and some days cant stand the pain have to stay in bed. Also the pain goes into my head and hurts my eyes. It makes me sad that have to be careful when am around my daughter and family. Also watch what I eat, not to go out into the wind and how I talk to people either face to face or on the phone so dont have an attack and get very irritable.

Sweet Angel~

So sorry you got this too. Its no fun I know. Kimmydawn( who is an admin here at PC has this also) She gave me some good advice in this thread
#628228 - 09/05/07 12:06 pm . IF this link doesnt work , I found it in Health Support Forum on pg 12 clear down on the bottom. Also our sister site
Neurotalk ~ http://neurotalk.psychcentral.com/ has a Trigeminal Neuralgia Forum in case your interested in visiting there. I hope this helps in some way. Just make sure you take care of you ok? Thats so very important.

Hugz
Beth

Hi SweetAngel,

Sorry to hear you have TN. I have it also, but I have it in a different nerve branch than you do (V2). I feel for you. I imagine you are taking medications for it? I take Topamax currently, which has been helpful for me. I've taken other medications in the past, too.

You may already know this, but the Trigeminal Neuralgia Association is also a good source of support (they have a website online).

My thoughts are with you; it's a tough condition to be living with. Take good care of you....

Thinking of you,
ErinBear

I am so very sorry she has it too and no it isnt no fun. Trigeminal Neuralgia basically takes control of your life. I did also check out the link and join Neuro Talk it is an wonderful site. Some days feel like shutting myself off from the world but cant things have to be taken care of. I do also try to take care of myself too when can. Thank you for the concern appericate it.

I am so sorry you have it too. I do take Neurotin 600mgs 3 times day, Tegretol 400 mgs 3 times day and Lyrica 50 mgs 3 times an day for it. Also had pain injections for almost year but can feel the twinges just fear that am going to have attack and when do hope it is at home not out somewhere. Just wish that they could find an cure or better treatment for Trigeminal Neuralgia. Well need anyone to talk to feel free to contact me.

Hi SweetAngel,

I feel for you - sorry you have to deal with this, and are having such a rough time of it. That's a lot of medication to be dealing with, too. Have your neurologists suggested surgery of any kind to you? I'm not a surgical candidate, but I've met others who have had successful surgery and were helped by it.

Same here - if you ever need someone to talk to, feel free to PM me.

Take care,
ErinBear

I know about the pain of the trigeminal nerve, because
I too experience pain in one side of my face, and it's been
making one of my eyes hurt a lot these last few days.
But I try to keep my self settled, try to keep undisturbed, and
sometimes that helps a bit.
I do hope that you find something helpful because I know how much it can hurt.

Dear Rose3,

I'm sorry to hear that you, too, deal with trigeminal neuralgia. It's a tough thing to manage, and it's an uncommon health issue so not too many people are familiar with it. My thoughts go out to you. Feel free to email me, too, if you wish. Thinking of you and sending caring thoughts your way....
Take care,
ErinBear