[cakeladie]

I am getting ready to make a bunch for some friends. I can always send you one or check out relax wraps. They also work just has well and you can order them online.

[January]

Sabby, I hope the move goes great and is as pain free as absolutely possible.

[lizardlady]

Originally Posted by cakeladie

Sabby,

I hope the move goes good. Has anyone tried hot rice packs to help with the pain or a relax wrap? they sure help me when the pain is real bad. Lately I can hardly use my right arm. I got a shot in my shoulder and in my hip. It helped some but the pain is still there.

I have multiple rice packs I made in different sizes. I love them.

[January]

Thank you, Cakeladie. That's really nice of you. I'll see if I can find mine, and if I can't I might ask you for one if it wouldn't be an imposition. I'm not moving too well right now. I have a broken leg and I wasn't too coordinated before I got the cast!

[lizardlady]

Jan, easy way to make a rice pack is to fill a cotton sock with rice. Then tie off the top or sew it shut. It's quick and easy. I made most of the ones I have out of scraps of flannel. I also use terry cloth wash cloths. I fold them in half sew the sides most of the way shut, fill with rice and sew of the last little bit.

[Quebec01]

Hi Bubbles&Buttercup,
I'm so sorry you had to go through that on your birthday. Hope your doctor will listen to you. be helpful and offer you some relief.
Hang in there.

[Quebec01]

Thank you so much for this helpful hint. I do have what they call "Sac Magique", but I could have more to place everywhere it hurts.

[Quebec01]

Dear January,
I wish you a quick recovery. If you can, see if you can ask for help not to wear yourself down. I'd love to move to a better place, but just the thought of moving and I need to take a nap... lolll
Take care

[lizardlady]

Not sure this is appropriate for the thread, but it relates to fibro.

The latest news on the Germanwings plane crash is that the co-pilot recently learned he was losing his vision, which would end his career. Speculation is that lead him to crash the plane. I can't get my head around the idea of killing 150 other people because I could not cope with my own health problems. I'm sure I'm not the only person who contributes to this thread who has considered ending it all during a bad flare. There are times when my pain is at its max and lasts for days and days that I get the urge to end it permanently. But to take other people with me? Never! I don't understand that kind of thinking. I guess I hope I don't ever understand it.

[Quebec01]

Dear Lizardlady,
I did not know that he was told that he would eventually go blind. It must have been the end of the world for a such a young man. But better than ending his life, there were plenty of options and the best one would have been to seek some the help and support of a therapist. With all the progress in ophtalmology, maybe there was more hope than he thought. I agree with you that if he wanted to end his life, he should not have taken 150 lives with him. That is just not fair to all these people who did not make this choice. It's just like when a parent commits suicide and takes their children with them. Just aweful.

I can relate to the fact of ending it all when I look at the prospectives of the future. There is some help to get over this. I believe that moral support on a regular basis is a must. I see a social worker every two weeks and I am always looking forward to our meetings. He's the only one who offers me options and teaches me ways to cope with the everyday life. He helps me make peace with my "before fibro" and all I was able to do and the "Now".

I wish you a smooth Sunday,

[Quebec01]

Still, I insist, all other options would have been better than ending his life... Councelling, take a break, go for a vacation or call a suicide hotline if the urge is too strong, etc.

[Bubbles&Buttercup]

Trying to do tafe assessments and my shoulder is killing me. I want to get two done over the next couple days before I go visit my friends and family where I used to live, but I'm feeling sore, unmotivated and incapable of concentrating for long enough to get anything done.

[lizardlady]

Weather is changing - again! I feel like poo!

[sabby]

Gentle hugs and understanding to you all!

Well, the move is done and it was pretty horrid in many ways. The exhaustion and the pain just keeps on keepin' on. Love the new place for the most part and it's feeling more like home everyday by getting stuff unpacked and put in place.

The first night sleeping here was horrible. Every single piece of me was in great pain, even my hair hurt it seemed. I didn't sleep well, tossed and turned and cried all night it seemed. Has been better since then though so that's a good thing.

I'm pushing through and setting the place up, unpacking, cleaning and pulling my hair out...

Just took a moment to read a bit and update everyone. Gotta hit the hay now. Thinking of you all and sending healing thoughts to everyone!

[lizardlady]

I found this at another site. While the author humorously made up a new disorder, I think this is a great description of having fibro fog.

"A.A.A.D.D." - Age Activated Attention Deficit Disorder

This is how it goes: I decide to wash the car; I start toward the garage and notice the mail on the table. OK, I'm going to wash the car. But first I'm going to go through the mail. I lay the car keys down on the desk, discard the junk mail and I notice the trash can is full. OK, I'll just put the bills on my desk and take the trash can out, but since I'm going to be near the mailbox anyway, I'll pay these few bills first. Now, where is my checkbook? Oops, there's only one check left. My extra checks are in my desk. Oh, there's the coke I was drinking. I'm going to look for those checks. But first I need to put my coke further away from the computer, or maybe I'll pop it into the fridge to keep it cold for a while. I head towards the kitchen and my flowers catch my eye. They need some water. I set the coke on the counter and uh oh! There are my glasses. I was looking for them all morning! I'd better put them away first. I fill a container with water and head for the flowerpots - -

Aaaaaagh! Someone left the TV remote in the kitchen. We will never think to look in the kitchen tonight when we want to watch television, so I'd better put it back in the family room where it belongs. I splash some water into the pots and onto the floor, I throw the remote onto a soft cushion on the sofa and I head back down the hall trying to figure out what it was I was going to do? End of Day: The car isn't washed, the bills are unpaid, the coke is sitting on the kitchen counter, the flowers are half watered, the checkbook still only has one check in it and I can't seem to find my car keys! When I try to figure out how come nothing got done today, I'm baffled because I KNOW I WAS BUSY ALL DAY LONG!!! I realize this is a serious condition and I WILL get help, but FIRST I think I'll check my e-mail...

[lizardlady]

Sabby, I wondered how your move went. Thanks for letting us know. I'm sorry you were in so much pain. Is it lessening?

[lizardlady]

Today is day three of the current flare. I'm so tired I slept through all THREE of my alarm clocks this morning. I nodded off sitting at my desk at one point today.

Sabby, hear you about thinking even your hair hurts. I think my hair and toenails hurt today. It's one of those days that just wearing clothes hurts. I'm sitting here in a BIG t-shirt and my undies as I type this.

I thought it was the weather triggering this flare, but the weather is beautiful today. I'm thinking the stress of having the plumber here last weekend set things off. I had to have all the plumbing in my house replaced last weekend. They were here until 9:30PM Saturday. I was so tired I was ready to physically throw them out of the house. Oh, well, at least I don't have a flooded house anymore.

[Bubbles&Buttercup]

After being stuck on a cramped train for 5 hours I'm officially hurting.
Good to be visiting my parents and family, but for now it's straight to bed to cry.

[January]

My hair hurts sometimes. I honestly thought it was just me being weird. Today is a rainy day and we've got some different weather patterns arriving. I'll be sore and hurting for the next few days. Ah well...

Hugs to all!

[cakeladie]

Not sure about you guys but I did a lot of running around getting ready for Easter and now I can't move. When I finely sat down yesterday I could feel my muscles start to get tight and I was just thinking let me get home and to my meds. My husband and son had to help me get out of our truck and into the house. It really sucked. Now all I want to do do is sleep. I have also been getting really bad headaches.

I wish I could just get a break. Just for a day, no pain and no meds.

[Quebec01]

I'm just sore and exhausted. My family had two planned events. One on Saturday and one on Sunday. I noticed that 6 hours after awakening, I get sore. I need to lie down or take a hot shower and then relax. Maybe not sleep, but just abandon every tension, like if I was floating on water. So, when it's a supper or any other event, after these 6 hours I start getting sore. I took a nap after we came back. I feel like I'm shaking inside, everything burns and is stiff. Now, even if I would want to sleep, I would be too sore. I don't usually see my family or people. In a way, I like it this way. I hate explaining why I am not working and what fibro is. It makes things more simple. It's just in special occasions. The less I go out, or if I do, it must be for a short period. I don't know about you, but do you feel sounds resonating on you and in you when you are sore. Like when my family were speaking all at once at the restaurant or the radio in the car... It feels like the sound is bouncing all over me. Maybe I am just getting insane...

[January]

No, you're not insane. Sounds do that to me, too. It's like they hurt my muscles or something. I am so sore and stiff from yesterday, (Easter). It was very traumatic with anxiety and panic, but it was also traumatic with and to the fibro. I am so sore and stiff today. I don't have any idea how I'm going to manage to clean the kitchen today. Honestly, I don't.

[Quebec01]

Hi January,
Thanks for reassuring me. I read your post. It must look like a mountain when you look at all that must be done. From what I've learned, not all can be done at once. If you can do just one bit at a time and take a rest in between. Sometimes I write a list of all that needs to be done. I write it as it comes, not necessarely in the order of priority. Then I write numbers besides break it down in priortity. I start by number one. I cross out number one, then go to number two and see how I feel. If I need to leave it at that and take a rest or continue the next day. That list always makes me feel better because I see the progress and what I was able to do. It's like a small achievement. Maybe that can work. It's only a suggestion. Somewhere in between you might need a nap. Hope you get better.

[Mrs Justice]

I am new to this forum and I have been reading here for a while. I sometime think I might have Fibro, Im reading here and knowing about what others go through will help me get a idea if I do or not!

[January]

Welcome Mrs. Justice. You'll find many kind and wonderful people here. I hope you feel better and you find the answers you are seeking.

Thank you for the good suggestions Quebec. That's wonderful. I used to do that eons ago and need to start doing it again. Today I managed to put the clean dishes up. I didn't get the dirty dishes washed, but I double bagged the trash and got it ready to go out to the dumpster. (I have to ask a neighbor to do it for me right now until I'm out of my cast.) I laid down a lot but couldn't sleep, which I desperately wanted. Yet, the day is over and now I'm going to try to sleep for the night.