[Bubbles&Buttercup]

I got approved for the unit!!!
I pick up the keys tomorrow and will move everything on Saturday. I'm so excited, but also dreading how sore I'm going to be next week after it's all done.
It'll be worth it though.

[Kiya]

Originally Posted by Bubbles&Buttercup

I got approved for the unit!!!
I pick up the keys tomorrow and will move everything on Saturday. I'm so excited, but also dreading how sore I'm going to be next week after it's all done.
It'll be worth it though.

YAAAAAAAAAAAAAY!!!!! congrats!!!!!

[Kiya]

Originally Posted by shattered sanity

hope that you can get in for the appointment

a week of kneck ache... sounds no fun at all

"Nothing today... she doesn't work on Fridays... oh we don't call on same day cancellations... we call the day before. Does that make sense?"
NO! it doesn't make sense.
I explained my situation. She asked for my name and birthdate.
I gave her my name, and before I could giver her my birthdate (she never asked for my phone #) she said "Ok I put in to everyone to call you if there's an opening." Click.
which means no.

bummed.
I don't have a rice pack, but I have an ice pack and some creams I can try. Thanks for the suggestions.

Originally Posted by Bubbles&Buttercup

I got approved for the unit!!!
I pick up the keys tomorrow and will move everything on Saturday. I'm so excited, but also dreading how sore I'm going to be next week after it's all done.
It'll be worth it though.

hey nice!

congrats

[Anxiousvalkyrie]

Hi all...it's 2:12am, I am awake and in a lot of pain. Mostly my legs and elbows. I've been killing myself at the gym even though my body keeps telling me to slow down. I know I am making things worse by doing this, but I've become obsessed with losing weight before my wedding in 3 weeks.

[cakeladie]

Congrads Bubbles. Moving will be a hassle but once you're in you can sleep for the next 2 weeks if need be. Good luck and take care

[Bubbles&Buttercup]

Thanks everyone! Going shopping with a friend today to get a microwave, toaster and a bunch of other bits and pieces and then the big move tomorrow!!
So excited to get my owl collection out of storage. Ha

[Kiya]

Hoping to help a personal friend of mine who's life goal is to help others -who live in pain like her- find a way to live well. She is so close ; she needs something like 200 votes on Facebook (see link below) to get the Chase bank approval to start her business (which helps all of us, wherever we are ). Could anyone here help by voting? Her resources help all of us!

Mission Main St Grants
https://www.missionmainstreetgrants.com/b/31521
(Might have to copy and paste)

"SO EXCITED--It is official! I am now a public member on the Oregon Pain Management Commission.
Now lets get that grant and take the Wow to the Streets! -Amber"

[January]

Bubbles, congrats on your new place! I'm so glad you can get your owl collection out and that you're getting the other things you need. What a special time. I hope you won't be too worn out by the time you're finished.

CakeLadie, if you feather your hair around your face, it should help your round face. Mine is very round, and mine is feathered and it helps. 'Just a suggestion. I'm sure you're beautiful with long hair or short!

Kiya, how dare that woman treat you like that. Grrrrr on her!

I know I'm leaving people out and I'm sorry. My intentions are to write to everyone. ((((( All ))))) I hope all of you have a good day and check back in this evening or whatever time you can. I love to hear from you, new and old comers alike.

I am having an ulcerative colitis flare which goes right along with the psoriasis and fibro flares. I don't think I'll make it to my family reunion tomorrow. My family won't understand... I don't know if I'm going to make it to Physical Therapy today. Eeek. The leg still isn't healing right. I have to be so careful and if I wasn't so sore I would crawl back in bed and hide.

[lizardlady]

Congratulations Bubbles!

Kiya, I tried to vote for your friend, but could not because I don't have a FB account.

Not sleeping Sunday night has caused havoc for me all week. I had a major case of fibro brain today and totally missed an appointment Krissy had at the vet. They called me at 3:30 to say they were concerned that we missed our appointment. I thought the appointment was at 4!

Okay, I'm going to go find some cheese to go with this whine!

[cakeladie]

Sorry Kiya, I am not on facebook. To much drama with my hubbys family.

Liz, sorry about you missing Krissy's appointment. Also sorry for the brain fog.

Jan, I feel your pain. this has been truly a bad week health wise for me. To top things off by husband thinks we should go away for thanksgiving. I really don't want to. The flight and just the travel just about kills me. But my husband works 6-7 days a week and if I am to sick to do laundry he does it. If I can't do the dishes he says don' worry about it.

Having a sick partner is hard on not just the person that is sick but on the whole family. He has been talking all week about going somewhere so finely he decided where we are going and I made reservations put then they system crashed and i had to call and he was thinking that I was doing something wrong when it wasn't me. Does this make sense?

I just want to sleep. I took my night meds so hopefully sleep will come.

This will also be the first time we have gone without our daughter and that makes me kinda of sad. She is mixed up with a guy that we do not approve of and we think he has some kind of hold on her.

My fur children are so much easier.

[Bubbles&Buttercup]

I am completely exhausted and sore everywhere. I'm also pretty happy.
All my furniture is in and I've done a fair bit of unpacking already. Lots more to do tomorrow but it's starting to look cute and it is so nice having my own place.
Not looking forward to waking up tomorrow and freaking out cos I won't know where I am.

I'm so sorry some of you are hurting pretty badly at the moment too. I hope there is something going on for each of you that makes it that bit easier and happier like there is for me!

[Kiya]

No worries, all!! ^_^
That's great bubbles!
Cake, when that situation happened with me with a boyfriend and he was trying to isolate me from my family my dad tried to kick me out but my mom stayed close, knowing that he might succeed if she didn't. It was one of the best thing she could have done. He was abusive and when I got away, my mom is the one who is there to help take care of things.
I don't know if that helps but maybe it will be useful.
Hugs to everyone!

[Kiya]

I can't remember if I mentioned the results of seeing the neurologist last week. He ignored what I said about the body being numb on the left side, seemed to decide everything was mental related, and put me on a blood pressure medication to help with the headaches. He said "you are a complex patient". Gee thanks. He didn't even want to schedule a follow-up. He said just let me know how you're doing by email.

[cakeladie]

Kiya,

I am still trying to be there for her but she verbally abuses me and my husband is done with it. For the last year she has done a pretty good job of not letting my husband hear her but he has and he is not having it anymore.

She is going to be 19 years old and from what we have heard from our friends is that it's the age I was hoping with her in college she would find someone else. Hopefully when she does not get any support from us she will see the light.I am praying.

I think you need to see another neurologist. Here's why. I also have lupus, RA along with the fibro and a few other things. My rhemy had to find a doctor who knew how to treat patients with lupus. Not all rhemys or neurologist have patients with lupus. If they do not have patients with lupus how do they know how to treat them or what to look for?

Yes they learned about it in medical school but how long ago was that? It makes me mad when they want to blame your symptoms on something else like a mental disorder. For me one big factor which keeps me out of the ER is once I am there the doctor will say it's just your lupus or this last time when my BP was so high and I could not stop throwing up the ER doctor who I saw for less then 5 minutes says to me do you realize how many medications you are on. Like really I never knew that. His next question was have you ever thought about cutting down? No I like taking 30 pills a day and doing 4 breathing treatments a day.

Give me a break. I was in so much pain Saturday that I took my meds a little early and so I feel asleep on the couch with sunny the cat. I found out something new about Sunny. He snores. I never hard a cat snore before.

Sometimes I have to get out of bed because of my husbands snoring and he claims he does not snore but I recorded him the other night But when I went into the front room to sleep Sammy the dog was snoring in her kennel(she's the dog below) and now Sunny snores. I need to get ear plugs.

Ok I will stop rambling. It's 4:10 in the morning here and since I went to bed early I woke up early.

Take care everyone.

[January]

I absolutely despise it when someone decides my health problem is mental or medicine related! How do they know? They're not me and I wouldn't go for help if I didn't have a real problem! I'm so sorry Kiya and Cakeladie that that happened to you. I remember a nurse laughing out loud at me when I had strept throat. He declared I wouldn't need any help if I didn't take so many meds. Really? Grrrrrrr.

[Mindful55]

Originally Posted by Kiya

Hoping to help a personal friend of mine who's life goal is to help others -who live in pain like her- find a way to live well. She is so close ; she needs something like 200 votes on Facebook (see link below) to get the Chase bank approval to start her business (which helps all of us, wherever we are ). Could anyone here help by voting? Her resources help all of us!

Mission Main St Grants
https://www.missionmainstreetgrants.com/b/31521
(Might have to copy and paste)

"SO EXCITED--It is official! I am now a public member on the Oregon Pain Management Commission.
Now lets get that grant and take the Wow to the Streets! -Amber"

Hi Kiya I voted

[Kiya]

I do worry about "when is Fibro NOT fibro?" I did have one T tell me "Yes, everything is trauma (genesis) until it's not."
Right - like you CHOSE to take 30 pills by yourself - prescribe them to yourself. Brilliant doc. They can be such lovely individuals. I had an ER guy like that, too... I felt like telling him "The patient can HEAR you" because he kept referring to me to others as "The patient in there who's mental..." Even when I had to have stitches once in urgent care, the gal said "Well, I guess I'll go sew up the girl". Where to people get off? I really should act on my impulses to say (again) "The GIRL can HEAR you... and besides; she's 36" (two years ago). Not a 'girl'. I know I was the last patient before closing, but 3 stitches? Honestly. Took all of 5 minutes. "I don't want to EVER see you in here again!" (for SI). I said "You won't" (I don't live in this town, anyway). Grrr. GET SOME BEDSIDE MANNERS! And learn to sew in a straight line. Meh. *cough*

As to the neuro.... yeah... I dunno. I thought this new doc might shed some light or say what you did. But there was no response. I guess it doesn't matter. (until it matters).
I'm back to seeing the PT I like again this week YAY! no more "calming my (uncalmable) nervous system". I suppose it is no wonder we go between extremes of emotions.... I want to throw things... like maybe an egg... and then I become apathetic because nothing matters to the docs.
Now I'M rambling.

Thanks Cake, Jan, Mindful! ((((((hugs to everyone)))))))))

[~Christina]

I spend 4 days cleaning and moving furniture and boxing up things to donate to Goodwill.

Of course I am now dealing with my fibro screaming.

I despise clutter.. Seriously if I had to leave I could fit everything that really means anything to me in my car and my dog can have the whole front seat. LOL

My husband? ugh no he hates throwing anything out.. We often butt heads over my insistant need to get rid of clutter LOL

Okay I will leave it as is, no point in me typing out details of my pain

Take care everyone

[Okaritix]

I deal with Fibro/ Lupus related pain.. it sucks today... sore everyplace..

[January]

Okaritix, I'm sorry you're in such pain. I don't have lupus, but I know it's awful and fibro just stinks. I hope you feel better soon. (((((Okaritix)))))

I go to see the GP PA today. Hopefully she will have some good words for me instead of bad ones because I gained weight while in the cast. She's very, very nice but firm. My ankle and foot were all inflamed from all the emergency housework yesterday but seem ok today. Hopefully I did no lasting harm. I ache today because of the stormy weather. This too, shall pass.

Hugs to all!

[Okaritix]

Hi January! They say that 1/3rd of people with Lupus have Fibro, and basically my pain is always here and just more enhanced with fibro triggers. Like, with fibro, my body is more stiff in the morning and takes me an hour or so to get out of bed, I shower, lay back down. There is a whole routine I do to help the fibro pain. My actual teeth hurt from fibro,.

Today I'm dealing with terrible neck pain... I got a very small bug bite on the right side of my neck .. and now the whole thing, and all the muscles ach, on my neck, shoulders, lower back. It's stiff and uncomfortable.. the bug bite is basically gone as well... Ice, heat.. ice.. heat.. alternated....

Hope your doctor appointment went well today!! and cast.. yikes.. The swelling, do you have hypermoblitiy? Lots with CFS/ Fibro/ Lupus, seem to have this.. it causes pain and sprains then the average person.

[Okaritix]

It still frustrates me that Fibro is considered "Somatic Disorder"

[lizardlady]

I saw a new primary care doc yesterday for a "get to know you" appointment. I asked her what her thoughts on fibro were. She asked what I meant. I told her I was going to be blunt, that I know some docs don't believe in fibro. She said she has some other patients who are diagnosed with fibro, but she always questions if there can be another cause for the pain. I pointed out that I was tested out the ying yang before I got the diagnosis. She said she didn't see any reason to put me through the tests again. Also said she does not prescribe narcotics - period. Seems she and I are on the same page with "treatment." I can't take Lyrica or Savalla. I won't take and she won't prescribe narcotics. I'm going to continue as I have, treating my symptoms as they come up.

I also like that she scheduled me for a full physical in a couple of weeks, with a blood draw for a full panel before then. I haven't had a physical in a couple of years, so have no problem with her wanting me to have one. And unlike my last primary care who ordered tests like a demon (she belonged to a practice that did the testing - $$$$$) this one is content with seeing me once a year as long as I don't have any problems. The other one had me in every 3-4 months. I always felt like it was more related to bringing money into the practice than it was any health concerns.

[Okaritix]

Originally Posted by lizardlady

I saw a new primary care doc yesterday for a "get to know you" appointment. I asked her what her thoughts on fibro were. She asked what I meant. I told her I was going to be blunt, that I know some docs don't believe in fibro. She said she has some other patients who are diagnosed with fibro, but she always questions if there can be another cause for the pain. I pointed out that I was tested out the ying yang before I got the diagnosis. She said she didn't see any reason to put me through the tests again. Also said she does not prescribe narcotics - period. Seems she and I are on the same page with "treatment." I can't take Lyrica or Savalla. I won't take and she won't prescribe narcotics. I'm going to continue as I have, treating my symptoms as they come up.

I also like that she scheduled me for a full physical in a couple of weeks, with a blood draw for a full panel before then. I haven't had a physical in a couple of years, so have no problem with her wanting me to have one. And unlike my last primary care who ordered tests like a demon (she belonged to a practice that did the testing - $$$$$) this one is content with seeing me once a year as long as I don't have any problems. The other one had me in every 3-4 months. I always felt like it was more related to bringing money into the practice than it was any health concerns.

My PCP has similar thoughts on Fibro. He is always looking to see what else could be causing the pain and to see if there is something else. The last time he sent me to a new doctor and they found Lupus after 3 doctors didn't before, and now it's showing up on blood work. The Rheumy's agree I prob have both.. but with extremities of flairs they said "it deffo was something more" , and it's honestly good to have a doctor look for it all and want to keep looking for answers (as long as they are supportive and trying to treat the fibro and not demising it..) then a doctor whom will just hand you pain meds and not speak with you at all about the pain.

Hopefully your new PCP will bring in helpful insight help you.. and not in it for all the $$$