Ouch... could it hurt more.. lol.... even my hair hurts... yes it does...

I am in the middle of a binge/purge cycle too.. so it is aggravating everything.....the depression... everything...

[tampalama]

I was hurting some today, too, and feeling kinda sick.

Hope tomorrow is better.

[CedarS]

I'm extra achy today, seems to be related to the changing weather. I did sleep well though last night.

I'm day dreaming about living somewhere near hot springs, maybe up in the mountains, in a well insulated warm cabin with a wonderful view. Everything I need available. I'll soak in the hot springs while watching woodland creatures.

[tampalama]

That sounds great, CedarS, especially the hot springs.

Today is a lot better than yesterday, here. I hate weather changes. Sigh.

Oh guys, am I feeling it or what too. It must be the colder weather coming because I just woke up hurting and i'm still hurting even with my stronger pain med i took.

Phooey on pain. It just drains you of all your get up and go you know? And being a single mom of an almost eight month old i feel bad when i just don't have the energy to play!

(((hugs))))to all of you. We should all be near those hot springs, communing with nature. sounds so nice.

[CedarS]

I was a single mom with fibro and chronic fatigue syndrome, I sure was exhausted, but ya know - my son turned out just fine!

If anyone wants to join in on developing our hot springs visualization with us, feel free. I'll add some friendly helper people to cook us great meals! Oh and they do the dishes afterwards too.

[tampalama]

If it isn't too personal for me to ask, I'm curious how many people here have a rough time with depression in connection with FM and CFS. Of the people I know personally who have FM (maybe 7 or 8 people besides myself), it seems that most don't really have depression. For me, it's a cycle I seem to go through with every flareup. This week, I paid more attention to it than I had before, and I really saw the cycle. Sunday night and Monday, it rained pretty hard. Sunday night, Monday, and Tuesday, I was hurting. Tuesday, I went and stocked up on more of my favorites of the foods that have good anti-inflammatory ratings (tuna, spinach, cantaloupe, strawberries, almonds, avocado) and started making sure they were a good percentage of what I ate. By Wednesday, the physical pain was less, but Wednesday and Thursday, I was depressed and negative and in a place I don't like to go emotionally/mentally. Today I feel more neutral and a little more like myself.

If I had the choice, I'd take the physical pain over the depression. At least when I'm hurting physically, I still try to do things that need to be done, even if I can't always do as much as I want to do, but when I'm depressed, I just don't care, so I don't even bother.

Tampa i suffer from depression, although im not sure its in accordance with the fibro. It does tend to get worse when the pain acts up however.

(((hugs))))

[helley]

Originally Posted by Rainbowzz

Tampa i suffer from depression, although im not sure its in accordance with the fibro. It does tend to get worse when the pain acts up however.

(((hugs))))

Hi - Firstly I think this thread is a great idea....
In answer to Tampa - yes I also suffer from depression and fibro along with Bipolar so I have a difficult time keeping on an even keel sometimes. At the moment I'm am depressed although getting better however I find it interesting to note that my fb is getting worse as I feel emotionally better....maybe because I'm relaxing more and not so tensed up that the pain is kicking in.....(ouch!)
I was interested to read in an earlier post about foods that are good for fb....I haven't heard this before - has anyone got any good receipes or ideas that may help?

[helley]

Originally Posted by Brian37

Hello, I'm Brian37's wife. I have both chronic fatigue syndrome and fibromyalgia. It started out as CFS when I was younger, but at some point, also developed FMS. I have people ask me if I feel bad everyday. My response is that even though I do have a few "good" days her and there, constant fatigue and muscle achiness is always there. Mentally, I have what I like to call "brain farts" because I feel really out of it and stupid as well. I'm 34 now. However, I wasn't dx until I was 21 yrs old, even then reluctantly by my doctor at the time who did not believe in it. The hardest part is that no one really understands. I don't "look" sick to other people, so they think everything's OK. I have a 3 1/2 yr old son who zaps alot of my energy. I feel guilty that he may be an only child because I'm not so sure I could handle another baby (sleep deprivation, postpartum depression, etc). Also, I noticed a post that said something about having hasimoto's thyroiditis. My GP said that is also what I have, but my endocrinolgist said I have a multi-nodular goiter. Either way, I have an underlying thyroid problem. Anyway, hope this helps. Therefore, it is possible to have other illnesses/conditions in addition to FMS. Approximately 70% of people who have CFS also have FMS and vice versa.

Hi there...I also have FMS (as well as bipolar) and actually work for 3 endocrinologists....it's surprising how many patients we have that have FMS as well as Hasmito's and/or multinodular goitres and/or a myriad of other thyroid/pituitary problems.....personally (although I'm no doctor) I think there's got to be some sort of connection.......??

[SweetSunshine]

Its rather difficult having to adjust to this cold and dreary weather. Its like I know what comes along with it and I hate it. The pains and aches of the fibro and arthritis pretty well keeps you from enjoying life. I am trying my best to keep moving , because I know that is what is best for me. Sitting around puts me in that place of depression and I've had enough of that to last me a lifetime already.

I told my husband today that after all these years , especially this past year, I have a new perspective on life. And it doesnt show me or him sitting around the house like we have nothing to do anymore. I know I probably shouldn't talk for him. But he goes by what I do most of the time. And hopefully, he will do the same on this. Once he see's me moving around more and getting things accomplished it will inspire him also.

[Rhapsody]

Originally Posted by tampalama

If it isn't too personal for me to ask,
I'm curious how many people here have a rough time with depression in connection with FM and CFS.

While I suffered from depression long before my RA & FM Dx - I can say that my depression did become worse during the first few years of me coming to terms with how these two disorders where stealing life out from under neath me...... I have since been able to accept life as it is and I do what I can when I am able and I rest/sleep when needed - I now have the best of both world.

[CedarS]

How is everyone doing out there?

I'm coping okay - winter time means more pain and fatigue for me but I am able to rest when needed.

Actually cedar i had a wonderful appointment with a great rheumy doc yesterday, im about to make a thread about it!

[Broken65]

HI Everyone I’m new to Fibromyalagia I was Just diagnosed yesterday I had no idea my Rheumatologist was even checking me for this but to my surprise here I am. I first went to the Rheumy for Psoriasis to rule out Psoriatic Psoriasis so he did all kinds of blood work x-rays and a complete physical in which took two visits he checked me from head to toe and poked me what seemed to be very hard and extremely painful made me jump and ouch a lot to the point I asked is this supposed to hurt he replied no it’s not and It really hurt I had no idea how much until he pushed on certain places around my neck shoulders, elbows, legs back and so on I will say that was the most complete physical I think I have ever had so when all was said and done he looked at me and said from the x-rays my back is out of alignment and have the starting signs of arthritis however I have Fibromyalgia and I’m sure like most I was shocked and confused with this diagnosis I mean I have Psoriasis how does one person end up with two issues that are so controversial is it real or not gee I feel crazed at the moment …. I look forward to getting to know everyone and learning more information. My rheumy has me on Lyrica, MTX, Folic Acid, My Physiatrist has me on Zoloft 300mg ,Xanax 1 mg 4 times a day and 2.5mg Abilify I realy wish i did not need to take so much meds.. I just am having a really hard time with this My husband said I'm in deniel I dont think I am I just find it hard to belive I feel like this is something the doctor throw at you when there is no reason for anything I hope someone can help me with this I have appointment with my Psyc Monday maybe he will be able to help me with this I'm so crazed right now sorry for the Rant

[lizardlady]

There is a cold front moving in which means my fibro is acting up. I HURT!!!

I have some good news to report!

I am on a new med called nortryptyline, and it seems to be helping immensely. The pain is way way down.

It is still there and every few days i need my pain meds but what a difference I am feeling!

[byoungusa]

glad to hear about you feeling better, please tell me what kind of drug nortryptilyn is?

Sure thats no problem at all.

Nortryptyline is a second generation tricyclic antidepressant. http://en.wikipedia.org/wiki/Nortriptyline

the above is a link to a broader selection of info about it.

[sabby]

((((((( Rain ))))))))))

I'm so glad the med is working for you. That is really great! I started on Cymbalta for my fibro a little over a week ago and I am feeling some relief as well. I am also having some difficulties with rising in the morning....feeling kinda hung overish, but I'm hoping that feeling will go away soon.

The Cymbalta doesn't take away all of the pain, but it does help with relieving enough to make it bearable right now. It's also helping with my mood and depression....so that's a good thing

to all who suffer

sabby

sabby sometimes its just hell with meds, damned if you do and damned if you don't. Personally, with this much anxiety, id love meds that sedate me

[sabby]

Gone are the days where we were happy with the following:

"Calgon......take me away"!!!!!!!!

I hear ya (((((( Bowzz )))))) there are days and then there are days!! LOL


sabby

[anna342]

I don't know what is suddenly caused this flare up, or if something else is wrong with me, but I hurt so much and I feel so weak some of the time too. It's making everyday tasks such an effort. This is with taking codiene.

[TooMuchPain]

Originally Posted by freewill

This thread is really good...

How do you get a doctor to give you any pain relief? They... the physicans that I have seem... a family, an internist.. and a reumothologist - all agree on the diagnosis...

The reumothologist sent me back to my family MD.. and she told me to "tough" it out.. and nothing that can be done... except some physical therapy.. which I did.. didn't help.. racked up a big co-pay bill..

Internist tried Lycria - but with my psych. meds it really did not mix well... was well "wacky".. so...she had said.. do not come back for 3 months...even when I called and said it wasn't working...

I went in to see.. her a few months ago to get help.. got stung by a bee in her waiting room... swelled.. had a reaction..

she said... "it is best to not come back - except for regular physicals - because I was 'one of those people'" one with a mental illness - therefore.. perhaps more "prone" to feeling physical aliments - more aware of my pain than others... even though.. she does acknodlwedge the fibrom.. DX..

For that visit - she marked "migrane headache"... as DX.. and I do not have headaches..

I am allergic to all asprin products.. very severe...

My family MD did say to take tyleonal.... but... other than that be "tough"..

My Therapist... glosses over my pain... though it is hard to sometimes sit that long...in session...

so.. how go you guys get... any help??????

I live in a very conservative area...

I have gotten help from doctors by telling them what it is that I need help with. If I am very direct with them, they tend to be very direct with me in how they help me. I don't hint at all. I would tell them, "I need help with my pain level, this is intollerable. I need a better plan for maintaining some level of normalcy." Now of course we both know that we cannot live like we don't have fibromyalgia when we do. We have to lower our expectations of what we can and cannot do in a days' time. For instance, I cannot get up and get going until about 10 am. If I do, I suffer more and have to go back to bed later in the day. I also cannot sleep before midnight because when I do that, I find I wake in the middle of the night and suffer tremendous pain. There are many maintanaince things I do to help myself cope with the pain including pacing myself and taking very hot showers! Someone mentioned foam. I sleep on two layers of waffle foam under my sheets. It helps tremendously. A good chiropracter can help too. I work out at Curves and I swim and dance. But though my muscles are strong, they ache and hurt a whole lot.

[roxyanne1]

[quote=Rainbowzz;804989]I thought we could have a thread like neurotalk does to check in and tell how we are doing day to day or week to week ect.

So how is everyone doing?

I'm in a pain flare unfortunately, not too bad yet but its pretty ouchy, i might go to our little hospital tonight if it gets any worse

Im constantly have aches and pains Dr's do nothing about it
but i take panadine forte to keep it in check
Roxyanne1