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#51
Mar 29, 2009, 03:38 PM
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[quote=roxyanne1;983351]
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Hi, I'm pretty new to PsychCentral. I have FMS as well as MH nasties. It's great to be able to post here. I'm feeling rubbish re my FMS atm, I've got so much other stuff going on atm, my brain is struggling to cope with that and being jumbled with fibro doesnt help.  Pain is hugely disabling right now. I'm sitting with a hot water bottle on my back. And I took 2 codydramol an hour ago. Does anyone else get supersensitive? Even clothes hurt me now, and bedsheets - gee 
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#52
Mar 30, 2009, 12:51 AM
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 grandma21964
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#53
Apr 06, 2009, 09:28 PM
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I really wish the weather would make up it's mind. One day sunny and warming up, the next day mega rain, raw and cold. My poor body doesn't know how to keep up with the changes and I ache all over......
 My knees and shoulders are taking the brunt of this flare.....feeling swollen and not moving as they should....oh to lie in bed for a full day with a pain killer or two....how nice that would be *dreamer....I'm nothing but a dreamer* sabby |
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#54
May 04, 2009, 11:47 PM
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i too have fibromyalgia. i was put on cymbalta for my depression and it did wonders for my pain. but now that i have been on it for awhile it doesn't seem to help as much with my pain.
__________________
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#56
May 06, 2009, 07:03 PM
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[quote=CLErical1;983974]
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#58
May 24, 2009, 03:31 PM
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OH MY GOODNESS this hurts right now. Already had painkillers today, got another 30mins till I can have anymore. My hips hurt, my knees hurt, my neck hurts, my lower abdo- maybe ovary or IBS pain and I feel dizzy and sick. I'm tired of this.
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#60
May 25, 2009, 08:49 PM
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((((((((((((( anna )))))))))))))))
It's not always easy to measure the time when we're in pain. I try to write it down when I take pain meds so I know exactly when I took it and when I can take it again. I never leave it up to this old foggy brain to remember on it's own LOL. Oh, I've also set the timer on my cell phone to remind me when to take my meds too...that's quite helpful  sabby |
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#61
May 27, 2009, 01:17 PM
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Just saw this! What a good idea.
Not a bad day, not a good day either. Fatigue is primary and my back is doing it's "spaz" dance. What pain meds are ppl on? I've been taking Naproxin but it barely does anything--takes the edge off muscle pain from working in the garden and some of the minor artheritis pain, but does nothing for the fibro----
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#62
May 29, 2009, 02:01 PM
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Welcome ((((((((( W_I ))))))))))
For the fibro, my doc put me on cymbalta and it helps with the pain most days and certainly helps with the depression as well. On the days I need a bit more help with the pain I'll take a celebrex or Ibuprofen 800mg and I get a bit more relief. Sometimes I'll even take some lorazepam because I feel the anxiety creeping in when I'm in a flare, and that helps even more. For the past 3 days I've been in a flare and it's getting worse each day. I'm sure most of it is caused by the weather, rainy and damp and dark and miserable. It's been causing me some sleep disturbance as well and now I'm feeling pretty exhausted. Ah well....onward and upward sabby |
 sweetyjss
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#63
May 31, 2009, 06:09 PM
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I have found that, for me, Tramadol takes just the edge off of the pain on most days. Of course, I take other medicines but none of the heavy narcotics seem to even touch the pain. I haven't known anyone who has found relief from the strong narcotics. They seem to just knock us out. My husband said that I groaned in my sleep when I was "out" from trying a narcotic. So, the pain was still there. I've enjoyed reading the posts. I don't mean that I enjoyed that all of you were in pain! I just felt like a part of you. It was interesting to hear about Cymbalta because I just started taking it. I'm tired of getting my hopes up only to crash. So, I will take it one day at a time.
sweetyjss |
| sabby
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#64
Jun 13, 2009, 01:00 PM
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I was diagnosed with EDS ~ benign hypermobility syndrome, fibromyalgia and CFS a few years ago. I take amitriptyline, pregabalin and tramadol for the pain, tho most days it is still there. Nights are bad, trying to get to sleep when my body feels like its collapsing in on itself, everything screams when i move and like someone said before even my hair hurts but mornings when its damp and cold and i feel like a dead spider and cant get dressed its more than a little depressing! Hopefully i am getting some silver ring splits soon for 3 fingers, they are expensive but i will get them all bit by bit if they help!
Mostly i am pretty resigned to the fact that my body doesnt work properly and i am rapidly losing my independance, i cannot go anywhere on my own, cook proper dinner ~ all sorts of things i once took for granted. I certainly dont like having to swap a love of walking in the mountains to one of walking with a stick and possibly needing a wheelchair in the future, but i have fantastic support and much to look forward to and be happy about. I am going to get married again and though i might say im too young, i am looking forward to my first grandchild one day. I am not feeling my best, my back and neck ache and my fingers, (as per usual) im tired but im having a reasonable head day so far. My fiance is home from work now and tho all i can see is his sleeping form on the webcam, he calms me and makes me smile. Have a good day everybody 
__________________
**Shadowsilence** All that we see or seem is but a dream within a dream....change is eternal, perpetual and immortal. |
| sabby
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#65
Jun 14, 2009, 06:55 AM
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((((((((((( sweetyjss ))))))))))))))
I hope you find the cymbalta works for you as well. There are days like today (pouring rain and yucky) that I'm having difficulties, but if I wasn't on the cymbalta I know I would have to stay in bed all day. At least I can slowly get up and move and do what I need to do. I too have found that the narcotics don't do a dang thing for the pain. Since I'm a home care provider for a disabled individual, I can't afford to be messed up on the narcotics anyways. Dealing with the fibro fog is as messed up as I can afford to be LOL. (((((((((( arcanum )))))))))))) I'm really sorry about the pain and disabling situation you are in. It sounds like you have a really positive outlook though and that is sooooooo important. Although I'm sure there are days when it's hard to find the positive I wish you much happiness with your upcoming nuptuals and having grandbabies! Grandbabies ROCK!  I have 2 and waiting on a third as we speak sabby |
| arcanum, sweetyjss
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#66
Jun 15, 2009, 07:06 AM
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Thank you for talking to me. I guess that it takes awhile for others to talk to a new person.
I do have a question. I'm an elementary music teacher and I miss a lot of days. I just can't afford not to work yet it is getting to the point that I don't know if i can go on! There are many reasons that have added to this. I just need guidance. I know that it would be easier to gude me if you knew the circumstances but I don't know how to let anyone know that. Thank you! sweetyjss |
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#67
Jun 17, 2009, 11:55 PM
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((((((((((( sweetyjss ))))))))))))
I'm sorry you are having such difficulties with work and all. I'm working as a home provider for a man with developmental disabilities. There are some days I just want to lie in bed and cover my head with the blankets, but I can't do that. I have to get up and deal with the day/night. I'll grant you, it is dang hard sometimes. At the same time, I don't consider my issues and pain to be extremely bad, more bothersome than anything else. You are welcome to pm me if you would like to and feel safe to do so if you want to give more info and maybe I can help. At least I will give it the old college try sabby |
| sweetyjss
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#68
Jun 18, 2009, 01:04 AM
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Folks, I am in a bad bad way. I had to have dilaudid at the hospital tonight. Started with something popping in my hip the other night.. pain spread searing hot needles down my legs. Then i woke up this morning and it was EVERYWHERE.
SO i may not be on much. They might be admitting me tomorrow. I dont know. I am just in bad bad shape. They want me to see a neuro for my brain and spine, to rule out other stuff plus work on getting my spine fixed.
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#69
Jun 18, 2009, 07:47 AM
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((((((((((((( Mandie ))))))))))))))
I'm so sorry you are going through all this pain. I do hope the drs can help you one way or another. Please take good care of you and we'll be waiting until you can update.  sabby |
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#70
Jun 22, 2009, 09:26 AM
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What does pm mean? I'm sorry but the fibro fog is here to torment me.  You know, I could never be a home provider. I admire your gumption. I took care of my parents for two years and I ended up having to miss the last six weeks of school. I am a teacher. I'm struggling with the fibro fog thing too. It seems to take me three times as long to prepare lesson plans and do paper work. The kids help me remember where I put things and help me with words. Thank you for your interest. sweetyjss 
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#71
Jun 22, 2009, 10:00 AM
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 Please take care. I will be thinking about you! sweetyjss |
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#72
Jun 24, 2009, 08:59 AM
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Hi sweetyjss,
A pm is a private message. I'm so sorry that the fibro fog is giving you such a difficult time. I surely understand. For the past 2 weeks it has rained 12 of the 14 days and not only do I feel brain dead, I'm aching to the core. Nothing is helping the pain or the ache or the fog it seems. I'm beginning to think I'm living in the rainforest  Gotta laugh or I'll cry Hang in there sweety.......I'm right there with you! sabby |
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#73
Jun 25, 2009, 06:53 AM
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(((Sabby))) I'm right there with you. We either have high heat and humidity - the humidity kills me - or it's storming. I'm so ouchy and my head feels like it's packed with cotton.
I'm looking forward to some 80 degree weather with no storms in sight.
__________________
 I'd rather have a visit, note or pretty picture than an "I'll say a prayer" or a "god bless you." Doesn't make me feel better, no meaning to me for sure. Can't stop you from praying and blessing me, and if that makes you feel better feel free. But keep it to yourself please, don't tell me. And let's all respect each other's feelings. With kindness, support and "sweet dreamings."
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| sabby
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#74
Jul 02, 2009, 06:42 PM
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((((((((((((( Pom ))))))))))))))))
I think I see mold growing on my feet and I know there are mushrooms growing on my north side *sigh* I don't remember moving to a rain forest. I really don't know how much more of this rainy weather I can take.....aside from feeling moldy....... I HURT like HECK!!! 
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| Pomegranate
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#75
Jul 05, 2009, 09:22 PM
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I know... the hot and dry days help me so much. But our weather has been cool, rainy, thunderstorms for over two weeks. I am super ouchy too.. the oxycodone does help between the back and the fibro.. Remember I updated about having to go to the doctor the other week I was so bad between my back and it making my fibro flare up? Well the fibro "flare" hasnt stopped.
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