[sabby]

Awwww (((((((( bowzz ))))))))))))))) I'm sorry hon.....

I woke this morning with a kink in my neck, hard to turn to the right. Between all the stress of the past couple of weeks, my funky computer situation and how I have to sit at it, I'm all balled up in a knot. Makes for a great time when having to hold up the guy I home provide for so he doesn't fall down.

Ok, I'm done whining now

Hope the weather turns soon and we can both feel better!


sabby

[anna342]

Walking down the stairs when I woke up I could feel my knees weren't happy today, then the rest of my body has just followed in hurting, not quite to the same extent. It's just making me want to do nothing even more.

[Pomegranate]

I'm having a rare good day pain-wise. Weather is cool and low humidity, that really helps.
But I'm sorry for everyone hurting today. (I always have some pain, so "good" is relative.) My knees are going I think. I love to work in my yard, take care of my flower garden. That means spending lots of time on my knees. It's gets more painful every year. Makes me sad.

[sabby]

((((((((( anna ))))))))))) I sure know what you mean about not wanting to do anything.

(((((((((( Pom ))))))))))))) I'm so glad you are having a relatively pain free day (less pain I should say LOL)

Unfortunately, I got up this morning and could barely get out of bed. So, I went potty, had a cuppa and went back to bed until a short time ago. Every major muscle is burning and tight and every single joint is screaming and I'm in so much pain today. I haven't been this bad in a long time. I do hope it goes away quickly. I don't cry easily but the tears are right at the forefront today.

I have some meds I can take when it gets this bad, but being a home provider for a disabled individual, I cannot take them They make me too loopy for too long a time.

I sure hope everyone else is feeling much much better than I am today!!


sabby

[Pomegranate]

(((((Sabby)))) I'm so sad to hear you are having such a bad day. How can you be a home care provider when you suffer so much!!??? Isn't there some other kind of work you can do that would involve so much physical movement, or responsibility so you could take your meds when you need them? It makes me hurt to think of you hurting and not taking your meds. I couldn't do it. I wish you could change things for yourself.

I went out and bought some big ol' knee pads yesterday afternoon. Something high school kids wear for football or hockey. The young girl at the store was very sweet. When I told her what I wanted - knee pads so I could garden because my knees are going bad - she said her mom has the same problem and fixed me up with some extremely comfortable and inexspensive knee pads. I look funny, but who cares. I can do more of my weeding and trimming and gardening chores that I love.

[sabby]

Awww thanks so much (((((((((( Pom )))))))))) for your care. Please don't worry too much about me, as this kind of pain only happens once in a great while. As the day went on I felt some relief so I wasn't almost in tears all day.

I really love the job I am doing and it pays quite well. Right now I need as much money as I can get as I'm not just supporting myself and my roommate, I'm also helping to support my kids in their home too. Don't ask, long story and it should be over with in a couple of months. LOL

Luckily enough, with this job, it's not always too physical and I am handling it pretty durn well. His family is close by as well so if I really needed some time, they could lend a hand. I think what I really need to do is go back to the dr and ask for something that won't zone me out so much or at all that can still give me some relief. I just haven't gotten around to doing that yet.

I'm sooooooooo glad you were able to get those knee pads. I hope they do the trick for you! I don't know if you have one of these or not, but they do make these kind of foam kneeling pads for gardeners. I think you can find them at any gardening store. I used to use that when I was still able to kneel and it helped a lot. Maybe with that and your knee pads you would get some really good relief!

Happy Gardening!!!


sabby

Sabs have you given Ultram/Tramadol a try? That works for some people.

What about low-dose tylenol 1?

What NSAIDS have you tried? What exactly have you tried in general?

[sabby]

I have celebrex that usually helps enough to take the edge off.

I've also used ibuprofen 800mg. with some relief.

I'll talk to the doc about the tramadol

(((((( bowzz ))))))))) Thanks!


sabby

[Pomegranate]

No fibro fog for several days now! But the pain, whether slight or severe, never ends. Nor does the friggin fatigue.

[sabby]

Originally Posted by Pomegranate

No fibro fog for several days now! But the pain, whether slight or severe, never ends. Nor does the friggin fatigue.

So does that mean you can think more clearly about the pain and the fatigue???

My joints and muscles are taking a beating this week. Shoulder and elbows are just a-screaming. Needing naps in the middle of the day as well.....would be nice if the sun came back out *sigh*

Hang in there ((((((((((( Pom )))))))))))))


sabby

[Pomegranate]

You too Sabby, consider yourself given a nice neck rub by me. If I was ever rich that's the first thing I'd have, my own private masseuse. Sigh.

Sometimes I think people dont "get" it. Really. They are like "oh you only have fibro? You shouldnt be THAT sick.

WELL. HUMPh. I have moderate-severe fibro, and beleive me it is disabling. Anyone with even mild fibro can tell you that!

[sabby]

I know what you mean Rain.....

I'm not saying that fibro is anything like MS (a lot of symptoms can be the same though) but, I've heard so many folks with MS say that people don't believe they are ill with it because they "look so healthy, so good, how could you be so sick?". I guess if people can't "see" an illness, it doesn't exist in their minds or they can't be compassionate enough to even try to understand how it might feel for someone else.

I would say that I have mild to moderate fibro. Most of the time it's mild and I can make it through my day without too much hassle. On the days that it is moderate, wooooooah nelly.....it's like a whole different world of pain and foggy brained. I can only imagine having severe fibro....and I'm so sorry you and others have to live with it.....so very sorry.

(((((((((( Pom )))))))))))) Loved the neck rub sweety! Thanks How I would so enjoy an hour massage, but wonder if I could really deal with it as just touching the skin is sometimes painful Would be nice to afford trying one out though

Gentle hugs to you both!

sabby

[dreamsofflight]

I've read that several ppl say they go to the ER when they have a bad flare up. I just am amazed that the ER would do anything for us? Just wanted to know more about this. thanks

[sabby]

Hi (((((((( dreamsofflight ))))))))))

I personally have not gone to the ER for any of my flares. I think my symptoms are not as bad as some folks have and I just deal with it for the most part. I started Cymbalta this past February and it has helped a lot with the depression and took the edge off a lot of the pain. There are times though when it's not enough but not very often.

I'm sorry you are having trouble and I hope you can find relief or at the very least, something that will take the edge off and make it bearable for you.

BTW, welcome to PC!


sabby

[blueangel1]

Originally Posted by Rainbowzz

I thought we could have a thread like neurotalk does to check in and tell how we are doing day to day or week to week ect.

So how is everyone doing?

I'm in a pain flare unfortunately, not too bad yet but its pretty ouchy, i might go to our little hospital tonight if it gets any worse.

I am having a terrible flair right now. I got a shot of torrodol but it did not help much. If you have any hints I would love to share. I hope you do not have to go to the hospital. Blessings..

[goldieinpain]

i hope u dont have to go to the hospital. damn I hate that! I have lupus. is that your diagnosis?

[goldieinpain]

dont know how this works. I am testing seeing if this goes anywhere, I have lupus and i am in pain 24/7.

[sabby]

Hi ((((((((((( goldieinpain )))))))))))))

Welcome to PC. New members have their first 5 posts in moderation and as soon as they are approved by the team, they will show up on the forums. It can take awhile sometimes, but after the first 5, then you are set to go and everything shows up as you post it

I'm sorry to hear of your lupus and being in so much pain. I have some friends who also have lupus and it is sure a difficult disorder to deal with. In many ways it reminds me of MS in the fact that at times you can look absolutely wonderful and yet be so dang sick and people just can't "see" it. I hope you find some relief from your flares soon.

Take good care!

Originally Posted by goldieinpain

dont know how this works. I am testing seeing if this goes anywhere, I have lupus and i am in pain 24/7.

[billieJ]

Originally Posted by AndyA

I was having problems for 4 years, and my symptoms were identical to my sister's, who was diagnosed with Fibromyalgia. I managed to clear up 90% of it with meditation and relaxation techniques. My sister said that wouldn't work for everyone, and some of the causes are physical.

For me though, I know I'm constantly tensing and could literally feel the tension melting away one day when doing some relaxation. After a couple days my legs and ankles felt 100% improved. (I mean over a couple days I'd take time for a few mediation/relaxation "sessions."... I did this at home, by the way.)Then I "focused" on my arms, shoulders, finger, base of my thumb... that got better in about three days. It was kind of like a miracle cure, but since nobody believes in miracle cures, I guess I better avoid using that term. I'm not selling anything... there's plenty of info on the net about meditation. To me, it wasn't a miracle anyway, I know I tense a lot, and have trouble relaxing. So I wasn't at all surprised that all my pains, burning, stinging, "under the skin itching" was caused by the constant strain of being tense. Doctors said to exercise, but that often made it worse or didn't help at all. They never said to do the opposite, to just do nothing.

Unfortunately it takes practice to get really relaxed and to concentrate. I started kind of infrequently doing some types of relaxation exercises three years ago. After a while, I could fall asleep in five or ten minutes a lot of nights. But for all my life, it would take me an hour to fall asleep, I just didn't know that I could turn my mind "off." and didn't know that when I laid down to bed, I shouldn't just let my thoughts do whatever they wanted, I could actually control them. I was talking to my mother about a month ago, and she said, "yeah, when I go to bed, whenever I start thinking, I remind myself to stop. I've done that most of my life." Oh gee, thanks for telling me NOW, mom! Oh well, she didn't know. We tell kids to "go to bed." but not, "Go to bed and stop thinking."

Andy, you are fortunate, talented and superior in your abilities to do this. I am amazed!

[billieJ]

(((((((Rainbowzz))))))). I love neurotalk as well. The thread is a good idea!

[wickedwings]

Dang. I think I'm undiagnosed with possibly CFS and FMS....... I don't know. I've a few days when even my hair hurt. It was weird. So far, I've experienced a bruised-like pain all over my body. Feels like the pain is in my muscles and bones. Even my skin would hurt. There were points where the pain seemed to concentrate on. The pain in my lower back and hips would wake me up in the night. Really, the pain has mostly been a dull one, but it's all over my body. Having so many physical complaints drives me nuts. Exercising would make it worse, big-time.

My docs are saying that it's arthritis. Arthritis don't get worse from exercising. Yeah, I would be in pain for a week. My doc says that fibromyalgia is always there and they don't come and go. Is this true?

For me, it can go but it's still there, in dormancy. Does that make sense? I'm feeling like I'm a hypochondriac with all these physical complaints. I have a very long history chronic major depression, which is being successfully managed.

[billieJ]

Originally Posted by freewill

I feel "crappy"... no matter how much sleep I get... morning or night.... though a good night's sleep... gives me more energy to cope..

Does any one have any experience with foam toppers for beds... if they help... or not.... which ones are good???

I take alot of sleep meds.... but still wake up.. in pain... I think from laying.. in one position..too much...

If it's pain that keeping awake from laying in one position, my temperpedic mattress took care of that, and I know that they make toppers. I still have energy problems, and pain problems, but I can get rid of most any pain by lying down on my mattress. billieJ

[billieJ]

Originally Posted by skymonk

Are you on any regular pain meds&do you have a Dr that specializes in the treatment of fibromyalgia? I see a rheumatologist&he's helped to a certain extent. My pain is only 50% controlled&my Dr seems to find this acceptable, but I don't&I can't afford to go to the ER when I have an especially bad day. I know someone else who has fibromyalgia that gets 2400mg of morphine&9 Percocets a day. That's way too much! I'm stuck w/the same pain med that I've been on since 1997-Vicodin. It's better than nothing, but not really helpful. Have you found any coping skills that work or a daily routine of how much activity you engage in or maybe even some excercises that help relieve the pain? I'd love to hear any suggestions that anyone may have.

Dear SkyMonk ~ sounds like you need to change to the doc that gives the morphine and just tell him you don't want that much medicine - just a change, maybe to just the Percocet or whatever will work. You could work you way up to something effective with that doc. In fact, if he happens to be in West Tx, kindly PM me his name and address! Just kidding. But PM me anytime. I'm on Davocet, and it is wearing thin, too. I don't have fibro - just a crumbling back. billieJ ~ Oh, PS - what about a rubdown with pain relief rub then a nap in a heated blanket?

[Pomegranate]

I have Fibro and RA. Both come and go - have "flair ups." I am in at least a small amount of pain almost every day, but there is a big difference in my pain level from day to day. Sometimes I'll have some relatively pain free days or weeks and sometimes it's just the reverse: days, weeks or even months of moderate to severe pain. Also fatigue that goes along with it. I found that doing my own research and using self help ideas I found that way was at least as helpful as any doctor. Especially with Fibro, each person's experience of it can be very different. And what helps one person may not help others at all.