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Old Aug 19, 2013, 05:11 AM
jean17 jean17 is offline
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Woke up about 0300 with my "dancing legs". I suppose that it is, what do you call it? Restless legs syndrome. I "danced" as long as I could stand it then got up. I don't ask my Nurse Practitioner about it because I have so many psychiatric things going on that she probably won't believe me. That's how I feel. I have moderate/severe back pain due to osteoarthritis, but no one will give me anything for pain relief. I had a feeling that they thought that I was just trying to get Tylenol #3 to abuse it and my psychiatrist finally asked me if I really needed all the Tylenol #1 that I'm taking or was I abusing it. I can't tolerate any of the NSAID's so I have no other choice. However, my psychiatrist is thinking about it. I don't like being accused or suspected of lying and/or drug abuse. It makes me feel like a bad person, makes me question myself, makes me want to hide problems so that people won't think bad things about me. This doesn't help me get good mental and physical health care as I can't tell "everything". I'm always holding back so as not to be accused of exaggerating. Going in today to get the results of a personality inventory that I did a couple weeks ago. I think it is to find out whether or not I have Borderline Personality Disorder. I don't know how I feel about that. I just feel like my therapy has been all over the place and hasn't lighted on any one modality. We've started "Mind over
Mood", "The Happiness Trap". "The Introvert Advantage", various relaxation techniques and Yoga for my back and to learn to be present in the moment. But we never carry on with any one approach. I feel just torn in several different directions. I don't know what I'm supposed to be doing. Maybe today's results will help. Just a bit .
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  #2  
Old Aug 19, 2013, 07:55 AM
Perfectly Broken Perfectly Broken is offline
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Unfortunately, hiding symptoms is something I did too because I didn't want to seem like I wanted attention or that I was making everything up. When I finally told my doctor half of everything, I was diagnosed with fibromyalgia and was started on pain medication. It was just Motrin and it wasn't until I said it wasn't working months later that I was upgraded to actual muscle relaxers. It took years for me to speak up about my depression, but a month after I started Prozac I felt like a new person and I saw how much time I had wasted by not mentioning it sooner. I still feel anxious about revealing my remaining "hidden" symptoms. It's better to tell your doctor. I've had a couple of skeptical doctors and I kept changing doctors until I found one who would listen to me. Hiding your symptoms/conditions won't help you, but telling your doctor just might (I heard it from a commercial, but the idea is the same.) It's a stretch to convince doctors that I've had fibromyalgia since I was 14, but there are doctors who will put their own skepticism aside and focus on you, the patient.
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Old Aug 19, 2013, 04:59 PM
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Rohag Rohag is offline
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Quote:
Originally Posted by jean17 View Post
I don't like being accused or suspected of lying and/or drug abuse. It makes me feel like a bad person, makes me question myself, makes me want to hide problems so that people won't think bad things about me.
This is a sad situation. Yes, there are suspicious doctors, and there are also suspicious medical establishments that impose restrictions on doctors or force their institutional suspicions on them.

Many hospitals (I think) have a "patient advocate." Is someone like that available to you in your system?

Edit: As for the restless legs, anything that interferes with your sleep is something to bring to the attention of your caregivers.
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Last edited by Rohag; Aug 19, 2013 at 05:26 PM. Reason: Restless Legs
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Old Aug 20, 2013, 07:30 AM
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bharani1008 bharani1008 is offline
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Do you have the option of changing to another dr? It sounds like it might be a good thing to do. A little less pop culture and more internal investigati on might be in order. I do think the mindfulness is useful for anyone. My brother just got diagnosed for an autoimmune disease that he has been suffering from for decades. He was put on a year course of prednisone which has made a huge difference in his pain. However, I don't advocate for it since it is a harsh medication which has systemic affects. My point is just that you need a second opinion all of it IMO.
I hope you get the help you need.
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Old Aug 20, 2013, 07:53 AM
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Fuzzybear Fuzzybear is offline
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Quote:
Originally Posted by Rohag View Post
This is a sad situation. Yes, there are suspicious doctors, and there are also suspicious medical establishments that impose restrictions on doctors or force their institutional suspicions on them.

Many hospitals (I think) have a "patient advocate." Is someone like that available to you in your system?

Edit: As for the restless legs, anything that interferes with your sleep is something to bring to the attention of your caregivers.
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