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  #1  
Old Apr 02, 2017, 04:02 AM
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qwerty68 qwerty68 is offline
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I have been getting extreme fuzzy brain. It is hard for me to grok simple concepts when I am like this and it leads to terrible headaches which makes it worse. My brain weak as it is is the only asset I have left. This is worrying.

It is really hard to explain, it is not related to my epilepsy, I know that much. I feel tight in my head, a little dizzy, panic sets in just a tad and any ability to learn or even follow conversations is challenging. It is also a physical response as it causes my tinnitus to increase in pitch and volume which drives me to want to poke holes in my eardrums, which is my newest compulsion. I have an appointment with an EENTdoc in a few weeks and I hope he can do something about the tinnitus.

Possible trigger:


Before you get too worried of what is in the trigger warning, I just found out my daughter is pregnant with her third child which is another reason to suffer through an otherwise pointless life. I really want to see what they turn into and despite my obvious bias, I really believe they will be very special. My grandson, for example, could start flying around and I wouldn't bat an eye. He walked at 7 months and hasn't slowed down at the ripe old age of 6.

This inability to use my brain is one reason I haven't posted as much lately and haven't really been responding to questions that I normally might be helpful with. I can't understand it well or form a rational and useful response.

I think thinking it might be klonopin withdrawal related. I heard that it sometimes takes years to get over benzos and I have been on low dosage of one type or another since 2011. I have been on 1mg klonopin for at least 2 years. As a test I took a klonopin about an hour ago and my head feels like it was been released and I feel clear-headed and have reading comprehension and my ability to write mind-numbingly long posts is back, sadly for you, dear reader.

On the other hand, I got this occasionally when I was on meds, so who knows? Anyone have any guesses?

Toda (Can MH disorders cause this or is am I still having withdrawals?)
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  #2  
Old Apr 02, 2017, 04:44 AM
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Coming off meds is hard. It is very possible that the withdrawal could cause these symptoms. Have you talked to your PDoc about this?
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"Do you know what’s really scary? You want to forget something. Totally wipe it off your mind. But you never can. It can’t go away, you see. And… and it follows you around like a ghost."
~ A Tale of Two Sisters (Janghwa, Hongryeon) (2003)

"I feel like an outsider, and I always will feel like one. I’ve always felt that I wasn’t a member of any particular group."
~ Anne Rice
Thanks for this!
qwerty68
  #3  
Old Apr 02, 2017, 03:06 PM
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Nope and I won't until I get a new one assigned to me.
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  #4  
Old Apr 02, 2017, 04:03 PM
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Quote:
Originally Posted by qwerty68 View Post
Nope and I won't until I get a new one assigned to me.
So you are doing this on your own?
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"Do you know what’s really scary? You want to forget something. Totally wipe it off your mind. But you never can. It can’t go away, you see. And… and it follows you around like a ghost."
~ A Tale of Two Sisters (Janghwa, Hongryeon) (2003)

"I feel like an outsider, and I always will feel like one. I’ve always felt that I wasn’t a member of any particular group."
~ Anne Rice
Thanks for this!
qwerty68
  #5  
Old Apr 02, 2017, 04:23 PM
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I tapered off under a pdoc but am completely untreated right now. It is a little scary but I am seeing how I will do.
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  #6  
Old Apr 02, 2017, 06:16 PM
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Well it's good that you did it under supervision. Did you do all of them at once or one at a time ?
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"Do you know what’s really scary? You want to forget something. Totally wipe it off your mind. But you never can. It can’t go away, you see. And… and it follows you around like a ghost."
~ A Tale of Two Sisters (Janghwa, Hongryeon) (2003)

"I feel like an outsider, and I always will feel like one. I’ve always felt that I wasn’t a member of any particular group."
~ Anne Rice
Thanks for this!
qwerty68
  #7  
Old Apr 02, 2017, 08:37 PM
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One at a time, I am not that crazy.

I spent about 1 week tapering off geodon since I was on the lowest dose and needed to get off it fast due to crazy hormone issues. I spent 6 weeks getting off Remeron and maybe a month on Klonopin.

I have been completely off everything(except for 1 or 2 klonopins a week) since mid-December. These issues I posted about were rare before but lately have been close to daily.
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  #8  
Old Apr 03, 2017, 01:52 AM
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Quote:
Originally Posted by qwerty68 View Post
One at a time, I am not that crazy.

I spent about 1 week tapering off geodon since I was on the lowest dose and needed to get off it fast due to crazy hormone issues. I spent 6 weeks getting off Remeron and maybe a month on Klonopin.

I have been completely off everything(except for 1 or 2 klonopins a week) since mid-December. These issues I posted about were rare before but lately have been close to daily.
LOL -- Sorry - I've known people who did that who experienced major problems.

It could still be withdrawal related I suppose, but it sounds like you tapered off correctly. Maybe an MD can help in the meantime?
__________________
"Do you know what’s really scary? You want to forget something. Totally wipe it off your mind. But you never can. It can’t go away, you see. And… and it follows you around like a ghost."
~ A Tale of Two Sisters (Janghwa, Hongryeon) (2003)

"I feel like an outsider, and I always will feel like one. I’ve always felt that I wasn’t a member of any particular group."
~ Anne Rice
Thanks for this!
qwerty68
  #9  
Old Apr 03, 2017, 03:14 AM
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KristenRenee KristenRenee is offline
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Quote:
Originally Posted by qwerty68 View Post
I tapered off under a pdoc but am completely untreated right now. It is a little scary but I am seeing how I will do.
Hi there. From personal experience I can tell you that going off your meds is a bad idea and can cause all sorts of unwanted system withdrawal. Do you not feel you need Psych meds anymore and if so why? I know a lot of people with mental health disorders try and go off their medications and it doesn't work out very well. This is just of course my personal opinion and I wish you all the best.
Thanks for this!
qwerty68
  #10  
Old Apr 03, 2017, 04:09 AM
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Quote:
Originally Posted by reb569 View Post
LOL -- Sorry - I've known people who did that who experienced major problems.

It could still be withdrawal related I suppose, but it sounds like you tapered off correctly. Maybe an MD can help in the meantime?
If I ask my primary doc a MH question she will refer me back to the VA's BHS.

Quote:
Hi there. From personal experience I can tell you that going off your meds is a bad idea and can cause all sorts of unwanted system withdrawal. Do you not feel you need Psych meds anymore and if so why? I know a lot of people with mental health disorders try and go off their medications and it doesn't work out very well. This is just of course my personal opinion and I wish you all the best.
Hola

I think I need them to some extent. Other than the apparent withdrawal issues I am not much worse or better than what I was on meds. My better days off meds is maybe a little better than on and my bad days are slightly worse but I think that has more to do with the issues I whined about.

On the other hand, I have been on at least 2 dozen psych meds in the past 22 years and not one of them really touched my depression but what they did do is give me horrifying side effects.

Tinnitus
Vertigo
Hyperprolactemia
Dangerously low testosterone
Gynecomastia - thankfully not too noticeable. More of a small painful lump
Restless legs
Low blood pressure
Too much sleeping
Insomnia
Exhaustion
Hyperlipidemia
Tachycardia
Increased anxiety
Weight gain
Disassociation
Twitching and tremors - already had it from my seizure disorder but a few meds made it worse.

I could go on for a while. I have no little to no benefit and lots of risk. It is not worth it for me. Sure, sometime down the road probably sooner than I want, I will need to go back on meds.

Thank you for the kind thoughts.
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  #11  
Old Apr 03, 2017, 11:15 AM
*Laurie* *Laurie* is offline
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Hi, I am so sorry you're having a hard time.

About the tinnitus - recently I have developed tinnitus. It is almost unbearable. Here's the interesting thing: I am also coming off of Klonopin. I've been on Klonopin for 20+ years and have spent the past 18 months titrating down on it very slowly. I have gotten far enough on my dropping down the Klonopin to have stopped my morning dose, and only take 1 mg. in the evening. I am now wondering if the tinnitus is caused by decreasing the Klonopin. Maybe the same is happening for you.
Thanks for this!
qwerty68
  #12  
Old Apr 03, 2017, 02:57 PM
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It might be making it worse. I used to have barely noticeable tinnitus from effexor so I have had annoying ringing for a few years.

It is not a good mix with my psychosis. I sometimes get compulsions to take a nail to my ears. I don't think I would do it as the compulsions are not very strong and it takes extremely strong compulsions to get me to act on it.
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