[ASDandEDSfluid]

Hi!
Im new and Im wondering if there are any other people around with EDS?
Or possibly Hypermobility Syndrome (+/- Fibromyalgia, Chronic Fatigue/ME?)

[EmptyInside22]

I have been diagnosed with ME for a year and a half but been suffering more like 11 years.

I am also waiting to see rheumatologist the see whether i have EDS (hypermobility subtype) and/or fibro. I am constantly in a LOT of pain mostly in my joints and suffere regular dislocations in both my knees, my fingers and i think soon my right shoulder is going to go too.

(((hugs)))

[ASDandEDSfluid]

Originally Posted by EmptyInside22

I have been diagnosed with ME for a year and a half but been suffering more like 11 years.

I am also waiting to see rheumatologist the see whether i have EDS (hypermobility subtype) and/or fibro. I am constantly in a LOT of pain mostly in my joints and suffere regular dislocations in both my knees, my fingers and i think soon my right shoulder is going to go too.

my first diagnosis around 14yrs ago now was ME. its so frustrating. my left shoulder is completely unstable, i can put it in socket but it slips out almost immediately, has been like that for 2 years February now. I spent a lot of time mourning the life I expected to have xx