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Old May 07, 2025, 06:43 AM
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Jimi the rat
 
Member Since: Dec 2008
Location: Northern Europe
Posts: 6,311
Can someone advice me how to talk to my doctor? If he ever gets back to me which I doubt. They Just drop you mid treatment here.

Anyway, I got a doctor that I felt was good IRL, but on the phone he had forgotten all about me and I felt that he didn't listen. In one case I got my way anyway. But he made me lower my thyroid dosage. It was in range and I was doing OK. But he said "he doesn't work like that", all doctors have something they don't do, because... IDK. I had one dosage of "Synthroid" 6 days a week and a lower dosage 1 day. He said I don't mix pills. I had to go back on the low dosage 7 days a week.

Of course it was a disaster, it was a dose that was too low 10 years ago.

The problem is I have put myself back on the working dosage, he will hate that I did that. I'm not usually messing around with dosages myself. So I don't know how to explain that. I will sound wreckless.

He also doesn't understand that suddenly undertreating can cause a new wave of inflammation activity. It happened with me and I got bloated, weak and felt really ill. My TPO was so high it couldn't be measured. He doesn't seem to know any of this and how it works. I'd really would like him to understand that he made me VERY ill and not to do that with others.

I just upped my dosage but I will be like this for a few months so he ruined my summer. I can't even walk up my stairs without having to rest. Any activity feels like I'm almost about to die. I can't even explain how bad it is. It feels like I'm lying.
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  #2  
Old May 26, 2025, 12:34 AM
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Jimi the rat
 
Member Since: Dec 2008
Location: Northern Europe
Posts: 6,311
I did what we all do these days, I chatted with AI that warned me that this is a myxedema crisis and that I could die. Always fun to know. With the right meds it takes about a YEAR to heal. WOW thanx mr DR for ruining my life.
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