Hypothyroid

Can someone advice me how to talk to my doctor? If he ever gets back to me which I doubt. They Just drop you mid treatment here.

Anyway, I got a doctor that I felt was good IRL, but on the phone he had forgotten all about me and I felt that he didn't listen. In one case I got my way anyway. But he made me lower my thyroid dosage. It was in range and I was doing OK. But he said "he doesn't work like that", all doctors have something they don't do, because... IDK. I had one dosage of "Synthroid" 6 days a week and a lower dosage 1 day. He said I don't mix pills. I had to go back on the low dosage 7 days a week.

Of course it was a disaster, it was a dose that was too low 10 years ago.

The problem is I have put myself back on the working dosage, he will hate that I did that. I'm not usually messing around with dosages myself. So I don't know how to explain that. I will sound wreckless.

He also doesn't understand that suddenly undertreating can cause a new wave of inflammation activity. It happened with me and I got bloated, weak and felt really ill. My TPO was so high it couldn't be measured. He doesn't seem to know any of this and how it works. I'd really would like him to understand that he made me VERY ill and not to do that with others.

I just upped my dosage but I will be like this for a few months so he ruined my summer. I can't even walk up my stairs without having to rest. Any activity feels like I'm almost about to die. I can't even explain how bad it is. It feels like I'm lying.

I did what we all do these days, I chatted with AI that warned me that this is a myxedema crisis and that I could die. Always fun to know. With the right meds it takes about a YEAR to heal. WOW thanx mr DR for ruining my life.

i have been on levothyroxine for several years now and i used to be on a higher dosage but the doc lowered it significantly. i now feel like i am going to pass out or die from tiredness. it could be from other different pills im on, but i really only noticed it right after it was lowered. i do have several other conditions, even diabities that i take insullin for. i wonder if anyone else has had problems with the synthroid or levothyroxine?

I feel like undertreating is the new thing. I have heard stories now how people aren't allowed to be closer to the higher range normal on their t3 and others. I have tried to find info why they do this.

In the way past they treated by pulse rate and temperature, that worked better.

I realize I was one notch from myxedema coma (which isn't a coma, it is very sluggishness and near non responsive). I gained 10 kilo in water weight in 2 weeks, developed myxedema that made me change clothes size a lot (luckily I wear a lot of ovesize otherwise I'd have no clothes). I felt like suffocating if I did something minor. My leg muscles would just give out if I walked more than a few minutes. I was very confused. My eye brows fell off.

I added my real dosage back, it actually didn't do much, so I did a lot of hypothyroid stuff. Like taking selenium, zinc and vitamin D, also calcium. Drinking two servings of fluid replacement every day. It has sodium, potassium and magnesium. I'm finally bouncing back a bit. I'm not one to over salt food so I do well on extra sodium.

My doc did one good thing, he ordered TPO and uric acid tests. They came out extremely high which is a result of extreme undertreated thyroid when you lowered too much even when T3 is normal. He refused to address those now, but I have it on paper.

I feel like we're seen as tin foil hats because we get sick from how they treat us. Like they think we don't trust them. But I trust my body. Myxedema is not normal.

If I was more brave I'd go back to the first doc and tell him how he almost killed me. I was brave at some point in life but medical abuse has changed that. But I have to at least talk to a nurse to get refills.

Before all this happened, I couldn't pick up Synthroid before I had used up all tabs so I wouldn't hoard or take too much. This has only happened to me with addictive meds so something is really going on that I don't understand.

I have learned more too, like T3 in your blood doesn't have to show that you actually use it, there is an anti T3 thing that you can have in your blood so T3 doesn't get used. I wish they'd test for that.

I believe you and how you feel. Let me tell you why you feel this bad. I'm really sorry if I'm lecturing about things you know, but this was news to me. When you are on a too low dosage, ATP (the smallest food/energy molecule that food is broken down to), is not allowed into your cells. That means your body is starving. And it is a starvation that is worse than actually not eating while healthy, because then you can use your body fat. But with this you are limited in using food or body fat. This is really scary.

Wow that is scary, but dont worry I can handle it! The tempurtaures are so high lately and that also makes me depressed. Sitting in air conditioned rooms helps alot!!! I am even getting dizzy sitting typing now will get a drink of water soon. Thanks for being so understanding and its nice to hear someone listens and even feels a bit like what Ive been through. My doctor also put me on a vitamin D supplement and I take a multivitamin supplement also. I am also talking to a doctor about a new anti depressive med because ive been severly depressed after my son passed away on May 20 this year a little past this month. I was always a bit sluggish too but Im hoping I can get the pills for that through the antidepressants. Thanks for replying and I would like to text again soon so i can let you know how my ddoctor replies tomarrow!!!

There is more to this than t4 t3 tsh. The old tests were pulse rate resting and temperature. If these are off, you're too low.

Also you can show normal on t3 since there is a measurable anti t3 that prevents your body from using it. No one knows it.

And, you do need not to be low or mid range normal, that is actually never where a normal person is.

I'm finally feeling a little better and I can see how sick I was.

These doctors don't understand that thyroid replacement is not just a fancy med to feel better, we die if we don't take it. Would they want a person with diabetes to have such an uncontroled illness? It's a similar thing, just another hormone absolutely needed, just that the damage comes a bit faster.