[Techie180]

I am trying to find eating disorder treatment but the place i went to where i did the intake said it was not a diagnosis currently even though ive had it since 13 yrs old.

Making me frustrated so im thinking i might try another program hoping that they can treat my ED that returned weight embarrassment part partly due hearing things about my weight and being weighed embarrassment.

My primary care doc thinks that i need treatment and referred me in the first place.

Kinda nervous to contact the program but feel i need the help and the support.

any thoughts appreciated.

[bloomajs]

I'm sorry you're having a hard time figuring all of this out right now. And, that a facility you did intake with was invalidating to your experience...

I've pretty much run the gamut in terms of treatment for my ED. I have done IOP, PHP, residential, and inpatient treatment. I'm currently in need of a higher level of care, but not able to access such treatment. I am seeing 2 therapists and a dietitian as an outpatient, however. I've had both positive and negative experiences, but, in spite of the negative, I do feel it has always been beneficial in some way, shape, or form. Making the decision to seek therapy or treatment is difficult, but it is so important to do so.

What level of care are you seeking? Is there something in particular you need help with in terms of the ED? What kind of treatment is necessary at this point in time? What has worked for you in the past or, if you've never been in treatment, what do you think you need at this time? While I'm no expert, I have been around the block a few times and would be happy to talk to you further or help, if possible. I'm in the USA as well and am familiar with many programs and treatment modalities. Please feel free to PM me or reach out.

Keep pushing. Don't let one experience with one facility derail your efforts. Even though it's scary, you can do this. I believe in you!

[Techie180]

Originally Posted by bloomajs

I'm sorry you're having a hard time figuring all of this out right now. And, that a facility you did intake with was invalidating to your experience...

I've pretty much run the gamut in terms of treatment for my ED. I have done IOP, PHP, residential, and inpatient treatment. I'm currently in need of a higher level of care, but not able to access such treatment. I am seeing 2 therapists and a dietitian as an outpatient, however. I've had both positive and negative experiences, but, in spite of the negative, I do feel it has always been beneficial in some way, shape, or form. Making the decision to seek therapy or treatment is difficult, but it is so important to do so.

What level of care are you seeking? Is there something, in particular, you need help with in terms of the ED? What kind of treatment is necessary at this point in time? What has worked for you in the past or, if you've never been in treatment, what do you think you need at this time? While I'm no expert, I have been around the block a few times and would be happy to talk to you further or help, if possible. I'm in the USA as well and am familiar with many programs and treatment modalities. Please feel free to PM me or reach out.

Keep pushing. Don't let one experience with one facility derail your efforts. Even though it's scary, you can do this. I believe in you!

Outpatient programming ive had a bad experience with residential and IOP. And i need help with the weight part of it mostly im not really struggling with the food part although want to clean up my diet a little bit to be healthy and be at a healthy weight what has worked was a good nutritionist and therapist, i think i need outpatient programming now to help me especially
with the weight part. I want to thank you for your support i really appreciate it helps so much cause otherwise im lost and frustrated.

[Techie180]

So im not really taking in fluids lately or eating really the thought of food make me sick to my tummy even the smell of food makes me illl i almost threw up on her floor at the smell of food in my friends place .

I scared i might need inpatient and im wondering what happens when you do go inpatient and arent able to refrain from use of symptoms ?

I just need support and someone to talk to .

[Gr3tta_0]

So sorry you're having a hard time.
Please give the the feedback to your doctor that a billable dsmV code needs to be a current diagnosis to facilitate treatment. This may help.
Sometimes, depending on your insurance, seeing a dietician can be easier under medical problems, such as low albumin, electrolyte imbalances, anemia, etc, sometimes that is helpful? If you specifically want a referral to an eating disorder clinic, you should absolutely advocate for that, but sometimes seeking separate referrals for a therapist with ED experience, then also a dietician can be easier to accomplish. And in the end you get the same services and benefits, if outpatient is your goal. Additionally, if you start with these two services together, and fail to have progress, it helps you get approved for more intensive treatment later, IF you wind up needing it. - based on my own experience, yours may be different.

[Techie180]

Originally Posted by Gr3tta_0

So sorry you're having a hard time.
Please give the the feedback to your doctor that a billable dsmV code needs to be a current diagnosis to facilitate treatment. This may help.
Sometimes, depending on your insurance, seeing a dietician can be easier under medical problems, such as low albumin, electrolyte imbalances, anemia, etc, sometimes that is helpful? If you specifically want a referral to an eating disorder clinic, you should absolutely advocate for that, but sometimes seeking separate referrals for a therapist with ED experience, then also a dietician can be easier to accomplish. And in the end you get the same services and benefits, if outpatient is your goal. Additionally, if you start with these two services together, and fail to have progress, it helps you get approved for more intensive treatment later, IF you wind up needing it. - based on my own experience, yours may be different.

I cant do inpatient for my ed cause i would loose all my benefits so i can really only do outpatient plus if inpatient for a month or so i would loose where i am living.

I do see a nutritionist for the ed and she works with people with eds ,and yes i do have a billable dsm for it.

[eskielover]

Like with most ED's, the cause of your ED is most likely tied to the cause of your PTSD. when the stresses in my life flaired up, so did my ED. Treatment mostly tries to get the ED under control without working on the REAL underlying cause.

My GP while he had me in the medical hospital on & off for 2 months ran every medical test to prove it wasn't physical but no one bothered to help me deal with the trauma I was going through that was the REAL trigger for the anorexia at that final point I was so sick.

Everything is so tied together in our bodies between emotional & physical & most of the time our ED issues don't start off because of body image but turn into that with weight loss that becomes addictive. The real triggers however are things long before that point....the things that created the stress in our life in the first place. Yes, treatment providers find it easier to only look at the surface issues because the REAL depth of the problem is so complex & so individual, their only concern is getting the person to eat at that point in time so they survive. never got to the heart of the issue. For me I didn't get to the heart of my first time with anorexia in 1995 until just a few years ago around 2015 even after going through the second time I knew was triggered by the trauma.

Dealing with your PTSD will give you huge insight into your SH & your ED so keep focusing on that & continue allowing your nutritionist to help with accountability with your eating to try to keep as stable as possible during flair ups due to things treatment brings up

[Techie180]

Originally Posted by eskielover

Like with most ED's, the cause of your ED is most likely tied to the cause of your PTSD. when the stresses in my life flaired up, so did my ED. Treatment mostly tries to get the ED under control without working on the REAL underlying cause.

My GP while he had me in the medical hospital on & off for 2 months ran every medical test to prove it wasn't physical but no one bothered to help me deal with the trauma I was going through that was the REAL trigger for the anorexia at that final point I was so sick.

Everything is so tied together in our bodies between emotional & physical & most of the time our ED issues don't start off because of body image but turn into that with weight loss that becomes addictive. The real triggers however are things long before that point....the things that created the stress in our life in the first place. Yes, treatment providers find it easier to only look at the surface issues because the REAL depth of the problem is so complex & so individual, their only concern is getting the person to eat at that point in time so they survive. never got to the heart of the issue. For me I didn't get to the heart of my first time with anorexia in 1995 until just a few years ago around 2015 even after going through the second time I knew was triggered by the trauma.

Dealing with your PTSD will give you huge insight into your SH & your ED so keep focusing on that & continue allowing your nutritionist to help with accountability with your eating to try to keep as stable as possible during flair ups due to things treatment brings up

Yes i do think so also that it might help as well , but my t wont let me work on trauma so i cant process things in that way which sucks and I believe that if i can process som not all of it i might be able to deal better but not expecting much, im trying to find a new t one that specializes in trauma also ed's i have a doc appt today to go over my self injury im nervous about it .

[eskielover]

Just tell your doc everything has it's foundation that can't out of the trauma & you need help processing the trauma so that you can heal in these other areas of your mental struggles.

Really, I pray it will work out for your good.

[stranger04]

any changes since your first post?

[Techie180]

Hi , So Im in remission now and canceled my ed treatment , but mostly dealing with SI and deep depression.

[eskielover]

They are all related...its jyst a matter of which is active at any specific time. Deal with the foundational problem/trauma & these issues will get resolved too.

[Techie180]

Originally Posted by eskielover

They are all related...its jyst a matter of which is active at any specific time. Deal with the foundational problem/trauma & these issues will get resolved too.

Yes you are right and i am second guessing my treatment decisions with my current treatment team i just do not know if im making the right choice for group therapy and therapeutic meals an snacks im very scared im very scared .