anyone else here have ws?

I was just curious, hoping i'm not the only one. but does anyone else here have william's syndrome?

Hello, Lexi232. Although I do not have William's Syndrome, you piqued my curiosity. I wish you well.

hi lexi, i don't have it but read where one in 10,000 births do. i wonder why more ppl including me have never heard of this.

There's not quite 20,000 members here so looks like we are lucky to have you, Lexi!

Welcome.

Perna, is the 20k for this site only (where did you find it?) and the big number for all the sites combined???

Quote:

Threads: 174,001, Posts: 1,744,814, Members: 129,985

Thanks, you guys make me smile.

a lot of people dont know about ws. even alot doctors don't.

Please enlighten us...... what is ws?

Taken from this website - http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002105/

^^^ Sabby is right.
it has many clincical features, and behavior. it reminds me a lot of bpd, because a lot of people range in all diffrent degrees of it.
some can be very low in iq, and some can be very high in some areas but very low in others.
a lot of people have facial characteristics. lots of organs can have issues. the heart being one of them. colon can be another.
some are very empathic and others are very bully(very rare) like (just tends to be how one is taught growing up)
blood tests of a "FISH Chromosome 7" can tell you if you have it or not. but they also can do a micro array test. which i'm not really sure what that's for, because i've not had it before. (tho the doc is talking about doing this as well).

Here's a list of sypmtoms from the syndrome. Like BPD, many may have some but not all. But just having one or two doesnt mean you have it.

• Delayed speech that may later turn into strong speaking ability and strong learning by hearing

• Developmental delay

• Easily distracted, attention deficit disorder (ADD)

Feeding problems including colic, reflux, and vomiting
Inward bend of the small finger (clinodactyly)

• Learning disorders

• Mild to moderate mental retardation

• Personality traits including being very friendly, trusting strangers, fearing loud sounds or physical contact, and being interested in music

• Short compared to the rest of the person's family

Children with WS are overly social and outgoing, inappropriately friendly to adults and unwary of strangers. They are usually talkative, with intense enthusiasm bordering on obsession for topics that interest them.
Throughout childhood, the child with Williams syndrome may exhibit deficits in the ability to reason and in self-help skills.

and a lot more (this is a list that i have made up for my mom to read).

I was looking at the Member list/Search, says 19,130.

educational topic - thank you. Not something I have or anyone I personally know - but interesting never heard about it till now. thanks.

Heres 2 main sites on it.

i think this one was already mentioned. http://www.williams-syndrome.org/
and
http://www.wsf.org/

I think I've heard of this. I am just a medical nerd anyway I read textbooks instead of novels...

Do you experience very loose joints? Like double jointedness?
Thanks for the info.

wait.. double jointed joints fall under loose joints? lol !!
yeah, but i didn't know thats what that meant. my elbows are, my wrists are, my jaw is, my fingers are, my ankle is, and my knees are, but my knees have issues as they automaticly do double jointed ness and bend backwards and i have issues not falling and then pain because more stress is put on them than any of my other double jointed joints.

I had never heard of this but I also love medical stuff! Thanks for sharing this (It must be nice to be friendly and outgoing with strangers, one of the benefits I guess!)

thanks
and yeah it's nice. i find it one of my best qualities, and being able to know what someone is feeling by just the words they type or how they are looking (even when they think they are doing a great job at hiding it).
But i get critsized a lot for both too. everyone feels like i shouldn't post what i do on facebook all the time, or shouldnt post pictures of things (like me in the hospital), and just things like that, that i don't understand why it is so wrong. but that falls under the boundary and being friendly and outgoing with strangers i guess. which is what i can understand).
i think because of my past, i'm still friendly.. to a fault. ... but my outgoingness has sorta been ... hidden i guess i could say. i'm outgoing through the internet and other means. but anxiety and shy everywhere else. (tho when i was in the mental hospital, and around a lot of people for a long period of time, the outgoingness in me sorta came out and stayed out.. until i got out and slowly started isolating again.. then i'm back to the hidden outgoing ness... o_O if that makes sense. lol!)