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#1
Mar 28, 2006, 03:51 PM
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I need help finding some kind of online support group, as good as this one, that focuses on IBD.
My 26 year old son is struggling with being newly diagnosed with ulcerative colitis. It is kicking his *** mentally and physically. We are trying to find a local support group, but in the meantime, an online group would be very helpful for him, his wife, and his mom and dad. (His doctor has not been helpful in this regard. That is another issue. He is soon to be fired and replaced as soon as we can find a better one.) Your suggestions would be very welcome.
__________________
"...even the truth, when believed, is a lie. You must experience the truth, not believe it." Werner Erhard |
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#2
Mar 28, 2006, 05:56 PM
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Try WebMD:
www.webmd.com/hw/irritable_bowel_syndrome/shc66.asp I know they have support groups there.
__________________
"When they discover the center of the universe, a lot of people will be disappointed to discover they are not it." -Bernard Bailey |
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#3
Mar 28, 2006, 08:28 PM
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Hello,
I know what you are going through my sister has the same thing and it is not easy, I would be happy to help you in any way I can ,You are not alone in this. use google search for it there you should find alot of then, if you need anything Please feel free to pm me, Good Luck on everything.
__________________
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#4
Mar 29, 2006, 10:59 AM
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Hi,
I have UC and I'm more than glad to help you in any way I can. My best to your brother and family. ((((((((( Kvinn )))))))))) Cheers, Jan
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#5
Mar 29, 2006, 10:59 AM
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Hi,
I have UC and I'm more than glad to help you in any way I can. My best to your brother and family. ((((((((( Kvinn )))))))))) Cheers, Jan
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#6
Mar 29, 2006, 01:53 PM
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Thank you. I will send this info to my son.
It seems that this malady does not have nearly the same level of internet support activity as mental health issues. My son is a software engineer and his wife is a wired nerd. Maybe they can kick something into gear.
__________________
"...even the truth, when believed, is a lie. You must experience the truth, not believe it." Werner Erhard |
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#7
Mar 29, 2006, 01:53 PM
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Thank you. I will send this info to my son.
It seems that this malady does not have nearly the same level of internet support activity as mental health issues. My son is a software engineer and his wife is a wired nerd. Maybe they can kick something into gear.
__________________
"...even the truth, when believed, is a lie. You must experience the truth, not believe it." Werner Erhard |
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#8
Mar 29, 2006, 04:55 PM
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There are all kinds of support groups and info on the net. They should be able to google all types of help.
Jan
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#9
Mar 29, 2006, 04:55 PM
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There are all kinds of support groups and info on the net. They should be able to google all types of help.
Jan
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#10
Mar 29, 2006, 05:03 PM
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My son has it, too. His "quack" put him on Zoloft! They're masking the symptoms, if you as me!
__________________
Psalm 119:105 Thy word is a lamp unto my feet, and a light unto my path. |
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#11
Mar 29, 2006, 05:03 PM
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My son has it, too. His "quack" put him on Zoloft! They're masking the symptoms, if you as me!
__________________
Psalm 119:105 Thy word is a lamp unto my feet, and a light unto my path. |
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#12
Mar 29, 2006, 06:38 PM
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Tomi,
Is he only on Zoloft? Is that it? The zoloft will help with the depression that often comes with a chronic illness, but he needs realy UC meds! Hugs, Jan
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#13
Mar 29, 2006, 06:38 PM
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Tomi,
Is he only on Zoloft? Is that it? The zoloft will help with the depression that often comes with a chronic illness, but he needs realy UC meds! Hugs, Jan
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
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#14
Mar 30, 2006, 01:56 PM
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As far as I know, that's all the quack gave him... to aleviate the anxiety and stress he's under. John says he quit taking it after a month. I haven't spoken to him about it to know how he's doing now.
I know he needs real treatment for it, but he doesn't listen to me any more.
__________________
Psalm 119:105 Thy word is a lamp unto my feet, and a light unto my path. |
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#15
Mar 30, 2006, 01:56 PM
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As far as I know, that's all the quack gave him... to aleviate the anxiety and stress he's under. John says he quit taking it after a month. I haven't spoken to him about it to know how he's doing now.
I know he needs real treatment for it, but he doesn't listen to me any more.
__________________
Psalm 119:105 Thy word is a lamp unto my feet, and a light unto my path. |
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#16
Mar 30, 2006, 03:32 PM
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There is an active IBD group at http://health.groups.yahoo.com/group/colitiscrohns/
It is nothing like here, but this is a rare gem of a place.
__________________
"...even the truth, when believed, is a lie. You must experience the truth, not believe it." Werner Erhard |
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#17
Mar 30, 2006, 03:32 PM
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There is an active IBD group at http://health.groups.yahoo.com/group/colitiscrohns/
It is nothing like here, but this is a rare gem of a place.
__________________
"...even the truth, when believed, is a lie. You must experience the truth, not believe it." Werner Erhard |
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#18
Mar 30, 2006, 03:34 PM
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In my son's case, they have given him meds for the disease and ignored his mental health issues 100%.
__________________
"...even the truth, when believed, is a lie. You must experience the truth, not believe it." Werner Erhard |
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