Dysautonomia

So, it's been two years since I got sick and all my doctors couldnt figure me out. I passed out one morning and hit my head and got a bleed in my brain, a concussion, memory loss, and other effects. I get head aches and migraines all the time, i sleep way too much, my chest hurts all the time,i pass out randomly, my heart will start racing, and i get dizzy. I have gone to more doctors then anyone ever wants to and have had more tests done on me then i have taken in school lol but my doctors think they finally have me figured out...
I go back in 10 days for the final answers but heres a link if anyone cares. Its called Dysautonomia and i am kind of scared if i really do have it. but yeah

http://www.dynakids.org/what.jsp

(((( COURT )))))

I know it's scarry....I did go to the link you provided to read a bit. The really good thing is that it's recognized....this is a very good thing...you can't treat what you don't know & you can't learn to take care of yourself if you don't know what you are dealing with.

It's good to know also that it's something & "NOT ALL IN YOUR HEAD"....I know I hated it when I was sick & they couldn't figure out what it was.....than it was all in your head....yes, the migraines were in my head.....but I wasn't making it up.

Having the medical worlds support with this should help you much more you can even imagine.

I'm happy that they are finding out....even if it took more testing than tests you have taken in school.....I can relate to that....lol.

I am sad that you have to deal with this frightening situation that your body is in right now...but know that they will take care of you.


Debbie

Yes, very scary, Court! Did you read the prognosis though? That's pretty good at least.

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The statistics demonstrate that a good number of these children will improve significantly by the time they reach their early to mid 20’s (if not sooner). Patients who do not fully recover will often see an improvement in their symptoms with the proper medical management and upon reaching full growth maturity.

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{{{Court Knee}}}