'85: "We Are The (Couch) World..."

sounds like a fun day minus the mother shopping. hows your MIL doing

I can't believe I missed the post about granite's son being back. I'm so happy to hear that!

T cancelled, I pretty much knew he would. Still dealing with some stuff concerning his son's health.. Oh well, I asked if he I could get in and he said he would look, still waiting for him to text me back.

Hope you can get in soon healed...

The library is not open til 1 today... Gah.

I want to make time to post here. I miss everyone.

My H and spent all day in a hospital to see if he qualifies for a clinical trial that 50% of the people get placebos. Then we had to go back again, and go Monday if he qualifies. The hospital is an hour away. We are so exhausted and I'm depressed. We hate their stupid rules!!

Anyone done clinical trials?

I've not 'done' clinical trials, but I've worked on them. Sorry that the rules are so limiting It is absolutely necessary. There needs to be a high level of control to ensure the safety (and efficacy!) of the drug in the long run, particularly if it's a later stage trial. I hope it works out for him.

Thanks, JustShakey. It seems so unfair that the drug may help, but if he's in the 50% who get a placebo, he will die before it's ever released to the public! Sorry to be so blunt but it is what it is. I understand they have to have strict rules but it's hard on the patients who are exhausted fromchemo in the first place! Sorry I just need to vent. Feeling a bit down.

Yeah, it seems unfair even when you know, intellectually, that it has to work this way. It is the only way they can find out whether the drug does work or not, but for each individual participant it looks like a gamble with their life. I'm so sorry you are in this situation, rainbow.

Rainbow, as someone who really relies on people like your H to do the work she does, I assure you it is VERY, VERY appreciated that you guys go through all of this knowing that it might not benefit you at all, but has a 100% chance of benefiting the research, and thereby future patients (even if the results are negative, it's a result that will help us move forward).

I'm sorry it's so tough. But I genuinely appreciate and admire what you and your H are doing.

I miss the library. I used to take my toddler there every week to borrow books, but since it is cold season we are staying away. The last thing I need is my baby girl to have to fight off a cold in addition to healing open wounds.

So, go figure.. T reschedules me for Monday.. And we are under a winter storm watch for Sunday through Monday.. We shall see. I am so over winter.

Hopefully, the storm is less than stellar that way you're able to go to your session.

I am also over winter. Unfortunately, we get snow every month of the year except July... so I don't consider winter over until then.

Rainbow, before I became disabled I oversaw clinical research studies. It is very important work that you and H are doing - thank you!!! It helps everyone when people participate in clinical research studies. I hope the outcome is positive for you.

I've been sitting here struggling to do my "homework." I guess there is always another day...

It doesn't just look like a gamble with their life. It is.
I had a go at T one day about this when he tried to tell me that science was all emotionless and intellectual.
I remember once being thanked (the team that I was working with, not me directly) by the family of a study participant after his death, not for trying to save his life, but for giving him hope in his final days. It's heartbreaking, if you let yourself think about it, working on the cusp of life and death... I won't even get into animal trials, but I will say that there is no saving lives without death.

Someone I love is in the throws of stage iv cancer. It can be rough. And the drugs/ treatments they try are incredibly toxic within themselves.

for the people struggling with serious illness in their life.

Cancer sucks big donkey d I c ks.

One advantage of medication weight gain for me is i fill out a bra now with a little bit of cleavage.

I did try to go for a bike ride last night and the ex didnt tight the seat properly so i rode home feeling like a kid riding a trike

Bah... Illness... Ugh. I hate that topic. It is beyond frustrating.

He really does not sound as if he acts like your friend. I am not certain I would rely on him for those sorts of things.

I think there is a difference in those who can give consent and those who cannot. And in torture versus death.
Death is not the worst thing that can happen in my opinion and I don't believe in any life versus quality of that life.
Sometimes my person looks at the medical personnel and tells them I don't use their services.

((Rainbow))