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  #26  
Old Apr 28, 2018, 01:53 AM
Wonderfalls Wonderfalls is offline
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Your PCP's made a good-faith effort to do everything he can think of --to rule out everything he can and to run any relevant tests. Now he suggests you see a psychiatrist. Why would you refuse to even consider that? No psychiatrist is going to make you take a medicine you don't want to take and it seems like you owe your PCP to at least follow his reasonable suggestion. He didn't say see a psychiatrist and take whatever drug he tries to prescribe you, did he?
Thanks for this!
rainbow8

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  #27  
Old Apr 28, 2018, 07:52 AM
Anonymous52976
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Originally Posted by rainbow8 View Post
My Drs. message said it could be the gabapentin but consider seeing a psychiatrist for my anxiety. I read it again. Idk what to think.
I'm not suggesting you don't go to the psych appt but I'd remind her you just had a blood clot and that you are taking blood thinners and ask her about the breathing and weakness in that context.

Glad to hear she looked into the side effects of gabapentin but it would be alarming if she didn't consider side effects from the warafin as there are dangers with any blood thinners.

There's so much she didn't look into but that doesn't mean you can't get treatment for anxiety at the same time. But imo it shouldn't be either or as that is reckless.
Thanks for this!
LonesomeTonight, rainbow8
  #28  
Old Apr 29, 2018, 12:36 AM
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rainbow8 rainbow8 is offline
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Originally Posted by Anne2.0 View Post
I'm a believer in getting information even when I think it is unlikely I'd be willing to do what a medical practitioner or any other non Western medicine provider I might see. About twenty years ago when I was in a different round of therapy, I was opposed to AD's but consulted a shrink. She listened to my worries and set about a rather unusual medication plan that would start off in very small doses and increase very very gradually. I was worried about side effects and had other concerns as well. I decided to try them and I was glad I did; it really increased the productivity of my therapy, made me feel less stressed, and in general decreased a lot of suffering I was feeling. I had no trouble getting off them 9 months later.

I'd encourage you to see a p doc and bring your concerns, bring questions like why do you think this will help me or how can I start slow so the side effects might be more minimal. I don't know when you last tried them, but there are new medications all the time and our bodies also respond differently as we age. You might note hate them if you tried them but most importantly, you can just go talk to the pdoc and still decide not to use any medication,.
Thanks, Anne. I'm not sure because I will probably have side effects. I just don't like meds.

Quote:
Originally Posted by Rayne_ View Post
Very glad to hear that as it would be a big red flag if your Dr. didn't consider. It sounds like you have a decent relationship with your GP, hope it stays sound.

Just like an ultrasound is normally used to find leg blood clots, if the weakness isn't related to Gaba or diabetes, a xray and stress test would not rule out heart issues. If I suspected heart issues I would get at a minimum echo and 24-48 hour holter.

I'm 500% sure the psychiatrist would not be able to rule out all other causes of weakness or even delineate medical vs psychological. It's such a vague symptom it could be 100+ things plus s/he'd check what is in her scope and leave the rest up to your GP and specialists. Gabapentin, like many psychotropics, does affect blood sugar.

I hope this turns out for the best. I'd still be wondering if this was related to what caused the blood clot as breathing problems and weakness could be a pumonary embolism (also an xray wouldn't find it). Please go to the ER again if you are unwell and don't let them tell you it's anxiety.

Keep us updated. Good luck!

Dr. Rayne
(just kidding )
Thanks again, Dr. Rayne. I had an echo with the stress test. Totally normal. I'm not out of breath a lot, and the weak feeling didn't happen today but now I have a sore throat and a cough. Haven't had that in about a year.

Quote:
Originally Posted by BudFox View Post
If it happens at the beginning of a meal, i'd be thinking about food allergy/sensitivity or histamine intolerance, and i'd be trying to track trigger foods.

Also sounds like an adrenaline surge.

I would not let a GP or Pdoc anywhere near such thorny, complex issues. I'd go straight to a functional medicine doc, get to the bottom of things. GPs and Pdocs seemingly will just add a new drug for every symptom, creating increasingly convoluted polypharmacy and side effects that cannot easily be traced.
Yeah, I hate meds unless absolutely necessary. What is a functional medical doc? Maybe it will just go away. I'm not sure if it's from foods. Could be. Could be anxiety sometimes. Or the gabapentin. I just don't know.

Quote:
Originally Posted by Wonderfalls View Post
Your PCP's made a good-faith effort to do everything he can think of --to rule out everything he can and to run any relevant tests. Now he suggests you see a psychiatrist. Why would you refuse to even consider that? No psychiatrist is going to make you take a medicine you don't want to take and it seems like you owe your PCP to at least follow his reasonable suggestion. He didn't say see a psychiatrist and take whatever drug he tries to prescribe you, did he?
She asked what I think. I tried Zoloft about 4 years ago and it made me shaky so the
pdoc gave me Valium and Ambien! I didn't like him at all!
Their job is to give meds. I don't like them.

Quote:
Originally Posted by Rayne_ View Post
I'm not suggesting you don't go to the psych appt but I'd remind her you just had a blood clot and that you are taking blood thinners and ask her about the breathing and weakness in that context.

Glad to hear she looked into the side effects of gabapentin but it would be alarming if she didn't consider side effects from the warafin as there are dangers with any blood thinners.

There's so much she didn't look into but that doesn't mean you can't get treatment for anxiety at the same time. But imo it shouldn't be either or as that is reckless.
I didn't read so much about warfarin side effects. I know I have to eat limited dark green foods, or eat them consistently, and I get blood tests often to get right dose of medicine.

I see vascular surgeon next week about blood clot, and I'll ask about varicose veins too. I wonder if any of these doctors will tell me if I need a throat culture. Probably a virus.
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LonesomeTonight
  #29  
Old Apr 29, 2018, 03:19 AM
Anonymous45390
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Have you had a glucose tolerance test? This takes several hours in the doctor’s office.

Blood sugar is normal and so is A1c on blood testing. These don’t catch hypoglycemia because your blood sugar reacts to what you are eating.

Fasting blood sugar is just one point in time with no food in play. A1c is an average blood sugar over time that does not catch hypoglycemia.

I sure hope your doc gave you this test before suggesting the psychiatrist...
Thanks for this!
LonesomeTonight, rainbow8
  #30  
Old Apr 29, 2018, 06:29 AM
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rainbow8 rainbow8 is offline
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Originally Posted by key tones View Post
Have you had a glucose tolerance test? This takes several hours in the doctor’s office.

Blood sugar is normal and so is A1c on blood testing. These don’t catch hypoglycemia because your blood sugar reacts to what you are eating.

Fasting blood sugar is just one point in time with no food in play. A1c is an average blood sugar over time that does not catch hypoglycemia.

I sure hope your doc gave you this test before suggesting the psychiatrist...
No, but I've tested my blood sugar often this last month before eating, when this happens, and after. It's never been abnormally low. I've had prediabetes for years. Maybe I shouldn't be on the one pill of Metformin anymore.

Right now my nose is stuffed making me not breathe right and got only 4 hours sleep which makes me anxious. Also read warfarin side effects are tiredness. I hate meds but have to be on warfarin. Says if you're weak on warfarin, tell them. But it's more likely gabapentin I think. It's a vicious cycle with me. I'm getting worked up. T is right!!
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  #31  
Old Apr 29, 2018, 07:14 AM
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LonesomeTonight LonesomeTonight is offline
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Quote:
Originally Posted by rainbow8 View Post
No, but I've tested my blood sugar often this last month before eating, when this happens, and after. It's never been abnormally low. I've had prediabetes for years. Maybe I shouldn't be on the one pill of Metformin anymore.

Right now my nose is stuffed making me not breathe right and got only 4 hours sleep which makes me anxious. Also read warfarin side effects are tiredness. I hate meds but have to be on warfarin. Says if you're weak on warfarin, tell them. But it's more likely gabapentin I think. It's a vicious cycle with me. I'm getting worked up. T is right!!
Hm, I wonder if the other meds could be affecting your blood sugar enough that the Metformin is causing issues? I didn't realize they gave that for prediabetes, thought was just for regular diabetes. If you're really sensitive to meds (which I am, too), it could be that you're also really sensitive to blood sugar increases and decreases.

I would also suggest seeing a functional medical doctor, which could also be called an integrative doctor or possibly a naturopath. They tend to look at the body more holistically in terms of things like vitamin/mineral/amino acid deficiencies, food intolerances (different from allergies), toxins (like mercury, etc.) that could be in your body, yeast overgrowth issues (like in your whole body), malabsorption of nutrients, etc. They will order (usually blood or urine) tests that a typical doctor wouldn't order.

Also, I know you don't want to try any psychiatric meds again, but you might do OK on a really low, "subclinical" dose. Thankfully, the p-doc I see now understands that some people need a very low dose (which minimizes side effects). Whereas my last one, if I was still having issues, just kept trying to increase the dose. Or add more medications. Which didn't work so well for me.
Thanks for this!
rainbow8
  #32  
Old Apr 29, 2018, 07:44 AM
Anne2.0 Anne2.0 is offline
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Originally Posted by rainbow8 View Post
Thanks, Anne. I'm not sure because I will probably have side effects. I just don't like meds.
I don't take any medication at all so obviously I don't like meds. I also stay away from doctors unless absolutely necessary.

But I have noticed (not saying this is true) that you have repeatedly explained an unwillingness to pursue certain strategies with rationales that seem less consistent with the open-mindedness I have seen from you here more recently. Above, you are kind of pessimistic and future-predicting about even a consultation. Maybe it's connected to your desire to be taken care of, as you acknowledge. This resonates with me so strongly because after being widowed I felt this often, especially in times of stress. At least it felt like to me after many years of being married, there were things that made me feel taken care of, I just didn't know it. And the responsibility of going it alone and all that comes with that can be pretty overwhelming after you've had someone to share the burden.

I'm not saying you have to do things recommended to you by people on the internet (and just like with legal advice, it's good to be skeptical with medical advice). I guess I'm just wondering if part of what's going on now is that your physical self is trying to get your attention and needs you to do something different than you're doing now, but you are reluctant listen. FWIW.
Thanks for this!
feralkittymom, Middlemarcher, rainbow8, unaluna
  #33  
Old Apr 29, 2018, 01:36 PM
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unaluna unaluna is offline
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This seems like the first time ive heard you were taking metformin. Thats not a neutral drug, at least not for me. My dr didnt let me stay on it for very long. Plus i think i started almost passing out from it.

You can check all your drug interactions yourself on google.
Thanks for this!
rainbow8
  #34  
Old Apr 29, 2018, 03:13 PM
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rainbow8 rainbow8 is offline
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Originally Posted by unaluna View Post
This seems like the first time ive heard you were taking metformin. Thats not a neutral drug, at least not for me. My dr didnt let me stay on it for very long. Plus i think i started almost passing out from it.

You can check all your drug interactions yourself on google.
I've been taking metformin for more than 15 years I think. My current Dr. cut it down from two 600mg. pills to one about 2 years ago. I never had a problem with it.

I had an incident this afternoon. It is definitely not anxiety! I had to get the Rx from my allergist ( private practice so he couldn't call in to the hospital), then went to the same nature center to walk around and then pick up my paintings because the exhibit is over. I felt good except for my throat, and allergy symptoms which are a combination of a virus and allergy today. After 40 minutes or so I got in the car and sat down. Immediatly I felt something. This time it may have been my heart racing I think. I ate a granola bar and peanut butter and crackers in the car, then drove home, about 15 minutes. My blood pressure and blood sugar were normal but pulse 103. I think it went up because I'm worried about what's wrong but I think I noticed the racing right away this time.

My medically knowledgeable friend thinks it may be heart arythmia? I think someone mentioned that here. I don't know much about that. I thought I was safe because EKG and stress test a nd echo were normal! She said I need the 24 hr. heart monitor test.

It could be meds causing this but it started before I knew I had blood clot.

So, how do I make this about therapy? My T says I am the boss of me! I decide what to do about this. I think my Dr. will listen now that there is no way I was anxious at the nature center! I'm very allergic but didn't have any weird symptoms like wheezing or swelling. I feel like updating T but I won't. I'll see what happens the rest of the day.
  #35  
Old Apr 29, 2018, 03:31 PM
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unaluna unaluna is offline
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When do you take your metformin? If you felt better after you ate, and if you have lost weight with all else that has been going on, maybe it isnt an appropriate med for you anymore. I looked up its side effects, and i think it matches at least some of what youre describing. Maybe check with your gp or whoever prescribed it?
Thanks for this!
LonesomeTonight, rainbow8
  #36  
Old Apr 29, 2018, 03:38 PM
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unaluna unaluna is offline
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Also, warfarin doesnt play well with many allergy meds - have you checked those interactions? I can only take guafinesin for any cold. Anything else makes my heart race.
Thanks for this!
rainbow8
  #37  
Old Apr 29, 2018, 06:12 PM
Anonymous52976
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Blood goes to your digestive area when you eat. If you have a vascular problem, eating can aggravate.

When is your appt with the vascular dr.?
Thanks for this!
LonesomeTonight
  #38  
Old Apr 29, 2018, 06:52 PM
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rainbow8 rainbow8 is offline
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Quote:
Originally Posted by Rayne_ View Post
Blood goes to your digestive area when you eat. If you have a vascular problem, eating can aggravate.

When is your appt with the vascular dr.?
Tuesday.
  #39  
Old Apr 29, 2018, 07:06 PM
Anonymous52976
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Oh Rainbow, it's probably just from a side effect. I just over worry about people getting misdiagnosed. Im glad you went out to the art gallery. Just too bad you got ill amd are still dealing with this
Thanks for this!
LonesomeTonight, rainbow8
  #40  
Old Apr 29, 2018, 07:36 PM
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feralkittymom feralkittymom is offline
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I don't know what you eat, nor the meds you seem to take. Reports of side effects from meds have to include every reported symptom and are not necessarily reflective of most peoples' reaction to a med. But the sort of symptoms you describe could easily be explained by diet (too little protein, too many carbs) and dehydration. But I think Anne is spot on in her opinion, and it just seems to me that you have reasons for not really being invested in addressing the issues in ways that could be within your control. There will always be another med test you can pursue; but the more exotic the condition, the less likely it is that you would have it, given your normal test results.

Maybe it would be worth it to talk with your T about what you can do to change this attitude around and learn to gain security from taking care of yourself. I think this is what she's referring to by encouraging you to take control. FWIW, I do think the sort of somatic work you've been doing for so long can exaggerate a hyper vigilance about body symptoms.
  #41  
Old Apr 29, 2018, 07:36 PM
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rainbow8 rainbow8 is offline
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Originally Posted by Rayne_ View Post
Oh Rainbow, it's probably just from a side effect. I just over worry about people getting misdiagnosed. Im glad you went out to the art gallery. Just too bad you got ill amd are still dealing with this
I'm trying to put a trigger warning here. Oh, I did.

Idk. I wrote T a goodbye note just now in case... I don't feel well but I don't want to go to the ER. I'm afraid not to take the gabapentin because I didn't call the pharmacist. I'm trying to breathe slowly. Maybe I'll try my inhaler.
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  #42  
Old Apr 29, 2018, 07:37 PM
Anonymous52976
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Quote:
But I have noticed (not saying this is true) that you have repeatedly explained an unwillingness to pursue certain strategies with rationales that seem less consistent with the open-mindedness I have seen from you here more recently. Above, you are kind of pessimistic and future-predicting about even a consultation.
I'm not sure if you missed the replies, but Rainbow said at least 3 times in this thread that she doesn't like/hates medications. So perhaps different than lack of open mindedness?
Thanks for this!
rainbow8
  #43  
Old Apr 29, 2018, 08:45 PM
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unaluna unaluna is offline
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Plus, a granola bar and peanut butter and crackers is my description of a carb binge. Its not what i would call a sensible snack? Its all white flour and sugar. But if its the type of thing you keep on hand because your blood sugar goes too low or you often get dizzy, i would definitely rethink the metformin.

Is there epinephrine in your allergy meds?

Dr Rayne, i propose we open an office together!
Im in franchise with Dr Larry, Dr Moe, & Dr Curley
Thanks for this!
feralkittymom, rainbow8
  #44  
Old Apr 29, 2018, 09:41 PM
Anonymous52976
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Sorry, too triggered by gaslighting related to past trauma. Gotta take break from here. Take care!

Last edited by Anonymous52976; Apr 29, 2018 at 10:39 PM. Reason: trigger
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Thanks for this!
rainbow8
  #45  
Old Apr 29, 2018, 09:42 PM
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rainbow8 rainbow8 is offline
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T emailed back. She ignored the goodbye part and said I will get better. She said it could be panic attacks even if I don't feel anxious but she hopes I get heart checked out. She thought they check for arrythmia during stress test but that's only at the time of test. I had written " I love you" in my email. She wrote "love you too." without the "I".
I notice details like that. I thought she might call and then I would cry. Oh well. I have to tell Drs. I have no appetite. You know, I'd rather be fat and healthy than this.
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  #46  
Old Apr 30, 2018, 06:25 AM
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rainbow8 rainbow8 is offline
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Originally Posted by unaluna View Post
Plus, a granola bar and peanut butter and crackers is my description of a carb binge. Its not what i would call a sensible snack? Its all white flour and sugar. But if its the type of thing you keep on hand because your blood sugar goes too low or you often get dizzy, i would definitely rethink the metformin.

XxxxxxxxPeanut butter is protein and the crackers are whole wheat/whole grain. I just started buying granola bars. I have to ask my Dr. about stopping the metformin.

Is there epinephrine in your allergy meds?
XxxxxxxxI don't know. Allergist just switched me to Allegra because he said it will make me less tired. I get maintenance allergy shots monthly too.

Dr Rayne, i propose we open an office together!
Im in franchise with Dr Larry, Dr Moe, & Dr Curley
Quote:
Originally Posted by Rayne_ View Post
Sorry, too triggered by gaslighting related to past trauma. Gotta take break from here. Take care!
You take care, and thanks for all your help!
Hugs from:
unaluna
Thanks for this!
unaluna
  #47  
Old Apr 30, 2018, 07:30 AM
Anne2.0 Anne2.0 is offline
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Originally Posted by rainbow8 View Post

So, how do I make this about therapy? My T says I am the boss of me! I decide what to do about this. I think my Dr. will listen now that there is no way I was anxious at the nature center! I'm very allergic but didn't have any weird symptoms like wheezing or swelling. I feel like updating T but I won't. I'll see what happens the rest of the day.
It seems to me that you could use a pdoc consultation as a source of information for your Dr. as well as for yourself. Seems to me it would be useful if the pdoc were to say, this is not anxiety and maybe (because these peeps do have medical degrees) that it might be x or y.

Some time ago on this board, if I'm not mistaken, you spoke of your "black and white thinking" and other kinds of inflexible thinking were sometimes a problem for you. I'm not trying to criticize or call you out, just that I experience your descriptions of what is happening and how you are thinking about it to be a little extreme and irrational. I know I don't always have the greatest perspective on what's going on with me and I don't have any investment in being right. Your T is right, you are the boss of you. And in case this is something helpful to you, I say what I think. You are free to tell me to shut up and go away.
Thanks for this!
rainbow8
  #48  
Old Apr 30, 2018, 07:45 AM
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rainbow8 rainbow8 is offline
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Originally Posted by Anne2.0 View Post
It seems to me that you could use a pdoc consultation as a source of information for your Dr. as well as for yourself. Seems to me it would be useful if the pdoc were to say, this is not anxiety and maybe (because these peeps do have medical degrees) that it might be x or y.

Some time ago on this board, if I'm not mistaken, you spoke of your "black and white thinking" and other kinds of inflexible thinking were sometimes a problem for you. I'm not trying to criticize or call you out, just that I experience your descriptions of what is happening and how you are thinking about it to be a little extreme and irrational. I know I don't always have the greatest perspective on what's going on with me and I don't have any investment in being right. Your T is right, you are the boss of you. And in case this is something helpful to you, I say what I think. You are free to tell me to shut up and go away.
Thank you, Anne. I am choosing the physical route first because what happens is very scary. From my experience, p-docs just want to prescribe meds. I want to rule out physical causes first. If none is found, I'll consider a pdoc. I don't believe I'm thinking in black and white; I'm thinking in colors! I'm thinking I'm on 2 new meds with side effects, plus my regular meds. Something medical is going on, which does cause anxiety. But this can't be coincidence. I have to find answers as to why this is happening to me.
  #49  
Old Apr 30, 2018, 03:21 PM
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rainbow8 rainbow8 is offline
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GUESS WHAT?

My chest x-ray shows mild pneumonia! I have a slight sore throat and cough for less than a week. Allergist wants my PCP to treat it. I don't think that could be cause of weakness for over a month, but you never know.

Rheumatologist appointment productive but I wonder if he'll change his mind after he hears about x-ray results. He said to get off gabapentin and I can taper it like I wanted, and it wouldn't be a bad idea to see a cardiologist. When I'm off gabapentin he said to consider nerve tests on my legs. I had them for arms and it was SO painful! I have to think about it.

I hope the pneumonia is reason I don't feel well since last week, but only part of the picture. No fever, just exhausted but of course gabapentin does that! The Dr. said it causes anxiety and depression too.
Hugs from:
LonesomeTonight, unaluna
  #50  
Old Apr 30, 2018, 05:16 PM
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rainbow8 rainbow8 is offline
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Quote:
Originally Posted by rainbow8 View Post
GUESS WHAT?

My chest x-ray shows mild pneumonia! I have a slight sore throat and cough for less than a week. Allergist wants my PCP to treat it. I don't think that could be cause of weakness for over a month, but you never know.

Rheumatologist appointment productive but I wonder if he'll change his mind after he hears about x-ray results. He said to get off gabapentin and I can taper it like I wanted, and it wouldn't be a bad idea to see a cardiologist. When I'm off gabapentin he said to consider nerve tests on my legs. I had them for arms and it was SO painful! I have to think about it.

I hope the pneumonia is reason I don't feel well since last week, but only part of the picture. No fever, just exhausted but of course gabapentin does that! The Dr. said it causes anxiety and depression too.
Dr. said not pneumonia!! A different Dr. Said probably anxiety!!
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LonesomeTonight, unaluna
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