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  #26  
Old Nov 06, 2012, 04:16 PM
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Trippin2.0 Trippin2.0 is offline
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My former pdoc refused to take me off lithium, even tho the tremors morphed into full-fledged shaking, honest, I couldnt even put a cigarette to my lips properly instead he sent me home with propanolol, and after some carefully pissed off consideration, I chucked the lot down the drain... Meds to treat effects of meds is where I draw the line (apparantly). Idk how else to treat those tremors tho,hope the suggestions of vitamins or propanolol help you. Tremors are scary and embarrassing as hell...

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  #27  
Old Nov 06, 2012, 05:27 PM
hamster-bamster hamster-bamster is offline
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Originally Posted by Anneinside View Post
Cogentin or propranolol can help with Abilify physical side effects. I have akathisia from Abilify and am on propranolol. The only time the akathisia effects showed up since was when I forgot the propranolol.
I am glad propranalol works so well, and my p-doc explained to me that the dose of propranalol used to combat akathisia is small, much smaller than the blood pressure lowering dose, so I (with my low blood pressure) can take propranalol safely. But I ended up not trying Abilify because reducing the dose of Geodon was sufficient. And I am sort of glad, because I already take Levoxyl to counteract the effect of Lithium on my thyroid, and I would ideally not want to take more anti-side effect drugs. Not that I have anything against the concept of anti-side effect drugs, but I think that taking one of them is enough.

Other things being equal, I prefer drugs with positive side effects. The drug I take for sleep, Amitriptyline, also reduces the frequency and severity of migraines. That is the kind of thing that I like. There should be more drugs like that.
  #28  
Old Nov 06, 2012, 05:30 PM
hamster-bamster hamster-bamster is offline
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Originally Posted by hamster-bamster View Post
My hands shake. I thought they shook from Depakote - I discontinued Depakote several weeks ago and they still shake! I am so scared that this is for life. Can a non-AP drug cause a side effect for life? I wish I never took Depakote!

I am also very scared that the same thing will happen with Geodon - I will discontinue but the orgasms will not return. Tardive. How scary! What a horrible word!
No more tremor and orgasming fine - my fears were unfounded, these side effects were not tardive.
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  #29  
Old Nov 08, 2012, 07:54 PM
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SeekerofLight SeekerofLight is offline
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Thank you all for sharing your advice and experience. I've been doing a lot of research and have contacted a few people about this. I GP wants my pdoc to treat it, but he won't, so I don't know where to turn. If anyone has any documentation on any of these vitamins, I would appreciate it. I have only been able to find studies that disprove their use. I need something to show to my doctor. It's keeping me up at night, as I can't seem to be still at all!
  #30  
Old Nov 08, 2012, 09:24 PM
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LucyG LucyG is offline
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Originally Posted by SeekerofLight View Post
Thank you all for sharing your advice and experience. I've been doing a lot of research and have contacted a few people about this. I GP wants my pdoc to treat it, but he won't, so I don't know where to turn. If anyone has any documentation on any of these vitamins, I would appreciate it. I have only been able to find studies that disprove their use. I need something to show to my doctor. It's keeping me up at night, as I can't seem to be still at all!
Here's part of an article I came across by googling 'tardive dyskensia, alternative treatment, vitamin E.'

Implications of Naturopathy for Tardive Dyskinesia

Of all the alternative treatments used to manage the symptoms of tardive dyskinesia, Vitamin E appears to be the most promising and poses the fewest risks. Technically known as tocopherol, Vitamin E occurs naturally in tree nuts, whole grains, olive oil and leafy green vegetables. Its effect on tardive dyskinesia is not entirely clear as studies conducted between 1987 and 1999 had mixed results. It appears however that Vitamin E therapy for tardive dyskinesia is most effective on younger patients whose symptoms have appeared only recently.
One significant fact about tardive dyskinesia is that in many patients, symptoms improve and in some cases disappear altogether when stress levels are lower. Stress management is part of naturopathic treatment, and may well be worth investigating. At the very least, these techniques (which include meditation, aromatherapy and massage) do no harm.

Here's the link:

http://www.tardivedyskinesia.com/tre...c-remedies.php

I'm reading a book by Nobel prize winner, Linus Pauling about mega-vitamin therapy [particularly vitamin C], and he says vitamin E is the second safest vitamin right behind vitamin C which it is virtually impossible to overdose on.

If you google just vitamin E, there's an article out there stating that vitamin E increases your risk of dying of EVERYTHING!!! Using that convoluted logic, if you take vitamin E, you increase your risk of being killed by a terrorist, a bee sting, in a house fire, in an earthquake, be murdered and the like. The article is so stupid, it's not even worth giving any credence to, but it's out there to convince people that vitamin E is terrible for you!!
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Thanks for this!
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  #31  
Old Nov 08, 2012, 09:53 PM
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Blue Poppy Blue Poppy is offline
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Hi Hammy,

At higher doses of anti-depressants, I have experienced extrapyramidal (pill rolling like in Parkinson's). I wasn't taking any other drugs. It occurs intermittently now, but I am also on lamictal.

I have decided that anything acting on the central nervous systems has the potential to give all sorts of weird side effects. The worst one was excessive blinking!
  #32  
Old Nov 09, 2012, 12:00 AM
hamster-bamster hamster-bamster is offline
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Originally Posted by Blue Poppy View Post
Hi Hammy,

At higher doses of anti-depressants, I have experienced extrapyramidal (pill rolling like in Parkinson's). I wasn't taking any other drugs. It occurs intermittently now, but I am also on lamictal.

I have decided that anything acting on the central nervous systems has the potential to give all sorts of weird side effects. The worst one was excessive blinking!
Wow, and what do you do then?! I know if you have extrapyramidal sife effects on AP's, you can take Cogentin or other similar drugs, but what if it is from an AD?
  #33  
Old Nov 10, 2012, 10:54 PM
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SeekerofLight SeekerofLight is offline
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Unfortunately, I'm old have had this for a long time. I've definitely noticed that meditation helps a lot. Tomorrow I'll be in Reiki training all day so I'll see if it diminishes. I've also noticed that if I don't focus on it so much it gets better.

Thank you!
  #34  
Old Nov 11, 2012, 01:55 AM
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Blue Poppy Blue Poppy is offline
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Originally Posted by hamster-bamster View Post
Wow, and what do you do then?! I know if you have extrapyramidal sife effects on AP's, you can take Cogentin or other similar drugs, but what if it is from an AD?

Hi there,

For the most part I try to hide it, my putting down whatever I am holding or hiding my hand in a pocket. There doesn't seem to be any rhyme or reason as to when it appears.

I do know that if it gets really bad, that clonazepam seems to relax my whole body and help somewhat.

If it starts to occur more frequently or if it intensifies, it will have to be addressed.
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