rant (meds, hypo-mania, and ramblings)

Sorry I know I'm not very helpful right now and I have no idea if this is going to be coherent or not so if you choose to read this good luck.

No one seems to care that my thyroid medication is throwing my whole body out of whack, leaving me dehydrated, dizzy and needing to hold on to things so I don't fall over. GP (PHP) say it can't do that, it doesn't cause dehydration. I seriously don't want to take it anymore. I have a nice agreement with my body that I don't **** with it anymore then I have to and it keeps me looking okay. My husband is thinking about having me get fluids but if I just really want to stop taking the stupid med..... Anyway that's annoying.

So Wednesday night I took the PRN because T really insisted that I needed to slow down and sleep. So Wednesday I slept, Thursday I felt drugged all day. last night/this morning . I went to bed thinking good the phones off it'll stopped talking to me. I think it was just a passing thought. Anyway because T asked me to take the PRN I put it for every 3rd day. Today, I'm just not there. I asked my husband to cancel my GYN appointment because I'm not really comprehending much so sounds to scary. I don't want to feel drugged but I can't think, everything is just noises. I've put my prn to take tomorrow, I don't want to sleep the next two days. Does seraquil stop making you sleepy? can it be split? would you take it?

I hated seroquel. Your pdoc should be able to give you something less suddating.

Aw MM, I found seroquel extremly sedating, more so than some other ap's. Some people adjust to it and the sedation wears off a bit. But if you are taking it as a prn that isn't likely. I used to split my seroquel and my dr was fine with that, so yes I would assume so.

Ok what about getting some electolites at least? I have no idea about thyroid meds but what have you been drinking? I remember you drink mountain dew..I have a good memory for things like that but I don't know if you have been managing to get other fluids with it. Electrolites because for one, prolonged anorexia shrinks your heart and causes other heart disturbances, and because elextrolite imbalance has a direct negative effect on your heart and tend to get imbalanced when dehydrated. Anorexics are kinda prone to heart failure so that always freaked me out a bit. Not that electrolites is a cure for not having heart failure but can't hurt and I worry about you.

Maybe pedialite, or coconut water...nun tablets even. You will feel much shitier till you restore hydration. I can understand not wanting to take the meds, since I do not know a lot about that I won't weigh in there. Well my dr told me ap's can't cause one to feel like a zombie.. if nothing else that is good for a laugh.

I'm on Seroquel. After being on Saphris, being beaten in the head with a hammer would have been better.

My doctor put me on Seroquel XR (extended release). It really helped with the fog. I get 8 hours of good sleep. Every once in a while I will have a bit of a hangover, but for the most part, I'm up and ready to go in the morning. One strange thing about it, if I take it too late in the evening it actually causes insomnia for me. I end up taking a Klonopin to get to sleep. When I do that, I'm completely wrecked in the morning. You can't split them, though. It negates the extended release.

Going sentience by sentience so you guys can piece it together because I doubt i'm grouping it properly.

I do only drink Mountain Dew (20 oz) and enough lemonade to swallow meds.
I was never sick, not like this, so that sucks.
I honestly feel this medication is going to kill me and it scares the hell out of me.
I'll have my husband get electrolites next time he leaves the house.
He knows how scared and confused I am but wants me to trust him for a month longer.
As long as I'm scared and confused he'll try to make sure medical intervention wont happen.
That I understand what's going on.
luckily I've never had any heart issues but my dr.'s are starting to worry about the effects my ED has had on my body.

I'm so weak but jittery as hell.
I swear how the can you fill weak as hell and energetic?
I hate that words aren't registering but somehow I can answer.
I don't even understand what I'm saying in response wtf.
My heads running and at this point all I'm able to do is put base to block all the other sounds out and wait for it to be less scary.

T kept telling me I need to slow down and sleep but I can't even really get up now. So how would I need to slow down?
How much sleep do I need?
I'm not taking the PRN until at least tomorrow and it'll only be half.
I understand that she wants to keep me and everyone around me safe and out of the hospital.
I don't know where I'm going with this.
I'm sorry thanks guys.

If I post incoherent responses right now just pretend I put "thinking of you" instead.
I miss stability already I don't even have the patents to find out if my husband is okay. All he asks is that I don't take the PRN the day before or the day of our pdoc/T appointments but I have to deal with my sons pdoc alone.
So I'm not sure that's a good idea but I have 11 days to collect myself.

I don't know what to do to help I'm so sorry
I'm terrified of seroquel - that's my next option from pdoc....

Watched my kids on it. Daughter Loved it - the small doses - caught her taking it to get high or zone out, she has an opiate history. Watched my son try to o/d on it, slept for 3 days straight in hospital. So I just lie to pdoc and say yep klonopin is enough.

I don't know what to think of it. Helps many, some hate it, some get high off it. Also both teens had visual & auditory hallucinations coming off it - just info I have to offer.

Please try the electrolytes like coconut water - acquired taste maybe but so amazing & helps lose weight (for me)... That stuff is miracle imho.

I know nothing about managing thyroid & very worried about you. Sending love & quiet gentle

MM I kinda wonder if the seroquel is not causing some of that weak tired energetic feeling, like progression to akathisia? Just kind of reminds me of how I felt on that stuff even at prn dose. I felt so confused and incoherant but conherant, it was awful. I wonder if it is not helping so much at this point but perhaps making you feel worse. I don't really know just my own experiences with it to go from.

And dont worry about what your posting here for heavens sake, please don't. We know you are having a hard time right now, and you have been around here with us for a long long time. it's all good, we care about you.

I know it must be very frustrating with the thyroid med. Is your dr just not listening? That's no good. When did you last have a thyroid check? Gosh I wish you could get a second opinion on that, is there other meds for your particular thyroid problem?

If you don't want to take the seroquel right now then it's ok, maybe you will be better able to tell what exactly it is doing. I don't think that is any easy ap for many people at all.

Try to focus on taking care of you right now. Hubby can take care of himself a lil, it's ok. It's hard not to worry about him so much I know but you also sound burnt out and I don't blame you. Been so much happening none stop for you to manage it all.

Glad he is gonna get you some electrolytes, try to keep yourself nourished because stability requires your body to be nourished as well as your mind. Whatever it is even if it a Boost shake or something .

C- It makes me feel drugged I only take 25 mg PRN but I want to see how it goes at 12.5 mg. luckily I hate feeling drugged.

I'm understanding things better today. If I watch people's lips I can for the most part 'get it'. It could be understanding more because my husband got me new headphones so I can control/block out both my head noise and the world's noise that seems to stress me because I can't understand it.

I wish I could blame the seroquel but I was having the confusion that and violent thoughts before the seroquel. I tried to circumvent this awhile ago when I first wanted to jump out of my skin and the seroquel made that feeling worse until I passed out. That was like 3 days before (trying) talking to T. I'm fine with the seroquel if it didn't cause me disturbing dreams and sleep / drugged feeling for days. I'd take it if my husband would cut it in half for me but he insist all the issues I'm having are because of the AP when he didn't even realize the first time and it all started with the other medication. If he wants me to stop inadvertently threatening 'pretty' bodily harm and the like he should let me take the stupid AP. It's really crappy that we both are currently interested in causing him harm. I still have his meds hidden. He's already warned me if he goes inpatient, I will be too.

T knows how hard it is for me to take meds, it took her 2 yrs to convince me to get a PRN. She spent a half hour longer with me then she was suppose to. Partially to deal with the incoherent, threatening one sided argument I had with my husband in her office. about taking the stupid thyroid medication and him saying I refuse to take the PRN (so not true). T really tried to get me to hold a conversation but kept repeating I need to try to take the AP. FYI descriptively threatening bodily harm directly to some one while in a therapists office, not a good idea.

The thyroid med is the one causing the weakness, dehydration, and dizziness. Okay it's probably my body adjusting to actually having an active thyroid but I truly believe whether it's because the medication is starting my thyroid and my body doesn't appreciate it or some weird scary side effect. Is your dr just not listening? I can't be sure I was even explaining it properly to her. She was probably a bit upset that I refuse to take the neurotin. When did you last have a thyroid check? I get it rechecked the 9th. I'm talking to pdoc about the thyroid medication on the 25th.

You're going to have kidney failure. You need 64oz of water daily and you're only drinking 20oz AND it's soda?! Soda works as a diuretic which means it's making you excrete more fluids than you normally would with water. Don't drink soda when you're thirsty, always water. You need to stop this habit or you will severely damage your kidneys. You need to go to the hospital to get hydrated and you need to stop that habit unless you don't mind kidney damage.

TRIGGER ED

Fox- That is all I have drank for the past 15+ years, and 20 oz is a large improvement for me. I'm drinking and not just chewing gum. I've tried for years to drink other things, my intake both of fluids and calories plummet when switching liquids. I'm aware of the horribleness of mountain dew but things like this can never be easy. THIS is why I have no thyroid, and am scared that the meds are messing me up so much. I had (have?) no metabolism and I guess no thyroid fixing those things can be very dangerous because we have no way of knowing how long I've been without thyroid functioning and how my body will react. My eating habits are not going to change this is my good. In this situation if I am working my way to an upswing my intake will drop to the point that I will not put anything in my mouth including meds and water. I tend to get violent without meds.

Hospitals are not a good idea right now:
My ability to understand what is going on right now is low. I'm easily scared,which can lead to paranoia and me trying to rip out the IV. Then that means they sedate me, fill me with 3 bags of fluid then release me in the care of my husband. Which leads me to feeling so violated and my intake drops to nothing. Worse is when I get hospitalized. I wish it was simpler but it's not.
Keeping me in the mental health system, medicated and alive is a very complex situation. I worry GP did not talk to pdoc first because I know T didn't know and T's suppose to have a heads up. There's also the issue thyroid messes with my mood. So messing with one med may mean an adjustment to another.

I know I sound like a little kid but right now with my fear, anger, unpredictability and lack of sleep my comfort area is important.

I don't know what to say. I hope your husband can comfort you in your time of need.

Hey there, all the symptoms you are describing can be directly related to your thyroid issue. Too much or too little, will cause all of it including the sleep problems and brain fog. When I was hyperthyroid, I was jumpy, nervous, and really paranoid. You should really see an endocrinologist, they specialize in that system and you need to find one that doesn't just look at your lab numbers. There is a reason your thyroid is wonky and they can figure it out. I know it's a pain to add another doc to the list, but my endo saved my life. Good luck!

My labs, pules, blood pressure and all that stuff has always come back strange. Usually they take it 3x and just average. I will look for an endocrinologist when I get well. I'm not in a stable spot to be looking for dr.'s but my comprehension is going up. This sucks.