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#1
Jun 22, 2015, 12:22 PM
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My pdoc raised my Zoloft to 150 MG and prescribed Haldol as a prn for my psychotic symptoms. He said I didn't need to go IP as long as I do an IOP. So, I'll be doing intake this evening. I honestly only mentioned the hospital in passing.
 He also gave me his personal phone number which I thought was awesome, but we have a 17 year relationship so he knows I won't abuse it. He told me if things don't get better he will prescribe clozaril which I have never even heard of and will have to look into. Hopefully things will look up from here.
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
 Anonymous200280, BlackSheep79, Nammu
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#2
Jun 22, 2015, 12:23 PM
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I'm on clozaril. It's helped but makes me very tired so I'm coming off it
Sent from my iPhone using Tapatalk |
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#3
Jun 22, 2015, 12:56 PM
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How do you feel about all of that?
(Did that sound really therapisty? |
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#4
Jun 22, 2015, 12:59 PM
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Quote:
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
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#5
Jun 22, 2015, 04:45 PM
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I'm very happy you made it to Monday and your pdoc appt. Hopefully the med changes will help a bit and the PRN AP will be good. The part about him giving you his phone number is really good, since that was one of your big concerns over the weekend that you could not get ahold of him. I never heard of the new drug either, so I can't comment there. Just really glad you made it till Monday.
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dx: Bipolar II - Rapid Cycling |
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#6
Jun 22, 2015, 05:04 PM
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Clozaril don't play. Good for many, but basically last resort for psychosis for a lotta pdocs.
Please keep us posted! Best of luck! moogs
__________________
Current Status: Stable/High Functioning/Clean and Sober Dx: Bipolar 2, GAD Current Meds: Prozac 30mg, Lamictal 150mg, Latuda 40mg, Wellbutrin 150 XL Previous meds I can share experiences from: AAPs - Risperdal, Abilify, Seroquel SSRIs - Lexapro, Paxil, Zoloft Mood Stabilizers - Tegretol, Depakote, Neurontin Other - Buspar, Xanax Add me as a friend and we can chat 
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#7
Jun 22, 2015, 05:16 PM
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Standard..... blood work is weekly the first 6 months then monthly if all seems stable.
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Helping others gets me out of my own head ~ |
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#8
Jun 22, 2015, 05:44 PM
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Quote:
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
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#9
Jun 22, 2015, 05:48 PM
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Quote:
__________________
***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
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#10
Jun 22, 2015, 05:54 PM
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Once a IP Pdoc brought it up and downplayed the potential side effects and I called him on it, he dropped it...
Personally I would not take this medication until I had exhausted all other options. I know a few people on this medication and its been a lifesaver for them. As for Haldol I have taken that in the past. One thing I will say is have Cogention and Indural on hand it can certainly cause some wicked Akathesia in some people. Russian roulette is what psych meds are when it comes to " Help or harm" Hope you find some relief
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Helping others gets me out of my own head ~ |
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#11
Jun 22, 2015, 06:32 PM
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Your Pdoc sounds caring and concerned, I'm glad you have a good one. IOP is good, they can help with unbiased observations. I've never heard of clozaril either, my doc said AP don't have to be long term just a tool to get you over the hump. I'm sorry the voices have been more persistent I hope the hadal works. When I was on it it knocked me out and I got plenty of sleep which helped a lot.
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Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
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#12
Jun 22, 2015, 07:38 PM
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I'm glad you're going to IOP. I'm in an IOP right now and I think it's a good place to go to get extra support. Clozaril is an old AP I believe. I would be careful with it and only use it for short term until you can get stabilized on your other meds but that's just me. I hope you feel better soon. I know you've been having a really hard time. I haven't been commenting much but I've been coming here to see how you have been doing. Use the IOP as much as you can. It will help.
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Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
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#13
Jun 22, 2015, 07:48 PM
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I wouldn't jump to clorazil until you've tried all other APs. It's a serious drug. It causes more severe weight gain than Zyprexa! It is usually used as a last resort in severe, treatment resistant schizophrenia; not sure why your pdoc is bringing it up when you have so many other options...
Hopefully IOP will help. I've never done an IOP program before, but from what I've heard about them, you get a lot of care. I think it is like IP, but you go home at night. Do you feel like you can keep yourself safe? If you do, then IOP is probably a good option to get your symptoms under control for now. If you're feeling like you are in danger, then you probably should push for inpatient treatment.  I hope you find some peace soon. Don't hesitate to call your pdoc if it gets to be too much. He gave you his number for a reason.
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I dwell in possibility-Emily Dickinson Check out my blog on equality for those with mental health issues (updated 12/4/15) http://phoenixesrisingtogether.blogspot.com 
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#14
Jun 22, 2015, 07:58 PM
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Woah.......um, how many APs have you been on? Because Clozaril is supposed to be the last resort drug when all the others have failed. I don't know if it still does but even its' website used to say that. My pdoc and I have discussed it several times but have always agreed to try something else first (hence the loxapine, as rarely used as that is). I would be very, very wary of going on Clozaril unless there were no other options because of this.
I looked, it still says that it is for people who have failed standard antipsychotic treatment. And to me that means failing everything, and failing meaning "cannot take this med because my body cannot handle it, I am tolerating every side effect I possibly can" because this stuff is potentially really hard on your body, and it also would mean trying some older meds as routine meds (I am pretty certain that if I fail loxapine Clozaril will be start to become a much more likely med because I have failed many meds and some of the remaining ones are not especially safe for me because of some serious past reactions. I have been on: Abilify, Geodon, Risperdal, Seroquel, Seroquel XR, Latuda and loxapine. I am allergic to Invega so that's out and Saphris can't be tried with Seroquel. And I still haven't reached the point where Clozaril has been more than a discussion. I know my pdoc was glad it was on my insurance, although I'm sure I can't afford it. The FDA didn't even approve it for many years because of the side effects with white blood cells and it is approved as a last resort med only. I think it is required to say "last resort" or something of the sort. The loxapine I am taking now is actually a cousin to clozaril but I haven't been able to figure out how closely related they are. Loxapine is definitely safer by far. They are the only 2 meds in their class if I remember this correctly. I would be very, very wary of a dr who already tends to dose really high and with polypharmacy (and I'm on a lot of meds saying that but mine has logic for each choice that I'm aware of and I know why I'm on each and why I'm on each dose (and they were my choices)--and hopefully I'll come off my mood stabilizers soon as I'm on more AP) going anywhere near Clozaril. I am sorry if this is overly blunt but I would run really far away from your particular dr and a prescription for Clozaril. I am glad that you got things for now, but I wouldn't let him give me Clozaril for anything. I wouldn't take Clozaril from anyone but a top dr with a lot of expertise and I'd want to know why I hadn't been on any number of other drugs before that came up.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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#15
Jun 22, 2015, 08:05 PM
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As for this drug , I'm not sure either. I don't know how I feel about it. My pdoc is like Christina's ip pdoc. He said it was a drug a lot of pdoc's don't use because it requires a lot of bloodwork. He said it is extremely effective for both moods and psychosis. I'm on the highest dose of Abilify available.
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
| Secretum
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#16
Jun 22, 2015, 08:08 PM
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Right now I'm waiting for an assessment and I'm certain I will be here for HOURS!!! There is not an empty spot in the waiting room. I've been here before and it takes forever even if it's not close to full. JOY!
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
| Nammu, Victoria'smom
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#17
Jun 22, 2015, 08:13 PM
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If the highest dose of ABilify isn't working then that means abilify doesn't work, not that you need to jump to Clozaril.
Waiting sucks. I hope you get your eval soon. I can't believe you are sitll waiting this late. Will they send you to IP if they feel IOP isn't right? I don't know the process very well; all I know about IOP is about leaving the hospital and going to it and that I don't have a good place to do it around here.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
 cashart10
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#18
Jun 22, 2015, 08:18 PM
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Quote:
__________________
***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
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#19
Jun 22, 2015, 09:33 PM
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Quote:
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schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
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#20
Jun 22, 2015, 09:41 PM
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Quote:
__________________
***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
| Victoria'smom
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#21
Jun 22, 2015, 09:58 PM
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I'm sorry if I was too hard earlier. I just want you to have the best care possible and to not have meds that leave questions. I'm not good at accepting any type of medical care without knowing exactly what and why I'm doing it and making a decision for myself about whether it is good. It makes me passionate for other people too. I used to struggle with this when I was working and I knew a dr was doing something weird or that someone wasn't being treated the best way possible and I wasn't allowed to say anything to the patients. It's a big factor in why I burned out on nursing homes; 9 years of seeing sub-standard care gets to you eventually.
I think your dr. seems to have a "think big" attitude and I'm not sure that's always the best approach for psychiatric care. But it's none of my business. So I'm sorry.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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#22
Jun 22, 2015, 10:05 PM
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Quote:
__________________
***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
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#23
Jun 22, 2015, 10:09 PM
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It must have been the about to lose my mind (and I mean that literally), checking PC every 5 secs to keep from crying talking.
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***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
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#24
Jun 22, 2015, 10:09 PM
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I have blood work weekly-- mainly for my insurance Sent from my iPhone using Tapatalk |
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#25
Jun 22, 2015, 10:34 PM
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Cash, I think you are so brave. I would have so much trouble sitting there and waiting. I had to go to the ER with psychosis due to lithium toxicity once and they put me immediately in a room which I thought "awesome! No line!!!" until I realized it was a psych room and there was nothing in it but the cot and a tray table and that they kept peeking at me through a flap over the window in the door every 5-10 minutes so pacing wasn't a good idea (and then when they did the neuro exam and found how wobbly I was they didn't want me walking alone anyway, right up until the floor nurses realized how often someone on the rate of fluids I was on plus lithium messing up how much you pee anyway pees. I suddenly was allowed to walk again). But I hated it and had I had texting or a smart phone back then I surely would have complained and that was nothing compared to what you are doing tonight; I at least had my little cell and drs coming in and out.
You didn't say anything; I read what I wrote and thought JEN!!!! Too much. Your dr situation is so complicated. I know that. I know if you had someone else you'd have been there. But I also think you want to trust this guy. Remember he may have been head of the hospital---but now he isn't and drs. usually don't get moved along easily because of the club of secrets about mistakes etc. He makes me nervous for you that he's eventually going to do something that is hard to recover from. I've been through scary AP reactions and would never want to do that again or see anyone else experience them. Three different meds all caused dangerous side effects. One (risperdal) we tried more than once because it seemed so unlikely that it caused the problem and it worked so well for me. It caused the problem (in that case really high blood pressure. Scary high). For me those things happened on low doses just because my body doesn't process meds well but the scary doses and combinations can increase the likeliehood and I just don't want you to go through another kind of hell. I hope you can tell the evaluator EVERYTHING. You've certainly had time to prepare this evening! But I hope that this is the step toward what you really need, whatever that might be. I want to see you feeling better. Since I've started to crash a bit I figure I've got another couple months minimum before this is over and I hope you are all better long before I am (I just know this because it is how I cycle). But regardless, you caught too passionate Jen and that's not good. I've done stupid things before with this and probably will again. This other board I'm on for ankle surgery has me on permanent final warning apparently (they don't take it away and it's been there for 3 months or longer) because I got too passionate about someone who was giving misinformation and broke one of the hundreds of rules on that board by suggesting that a medical opinion might top a patient's opinion. I think the moderators on there are a little much but still I shouldn't have said anything. I have to stop typing and eat something so I don't get sick from my meds. But thinking and praying for you tonight.
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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