Final thoughts

I am so very sorry you feel it's (lack of response) is not rare.
In all honesty, I can only speak for myself on this topic. I know I give it my personal best. I assume others do, as well. Members here are often unwell and response rates vary a lot, including on my threads. (I have to bump up mine, too.) I also feel some topics/titles draw more interest than others.

I do recognize your name as your being a member here.
I hope you feel more welcome asap.
I hope this for everyone.

Love to All!

WC

Something I didn't learn for a while on here is that your post may have been read 42 times but most of those reads are from people who are not members and therefore are not going to respond. The numbers are frustratbing so I ignore them.

I'm sorry for not being more active lately. I'm having my gallbladder removed Monday and have been sick for several months waiting for surgery. I've not been answering things I might normally answer but thinking is hard.

I’m guilty of reading a thread and just can’t think of advice to offer , happens to my threads too and I have been around for a long time. doesn’t mean I don’t care.

I’m just without advice that often has already been offered. So my viewing will show under the numbers.

If it’s a rather long thread and not numerous paragraphs I just can’t seem to read and follow, my eyes just cant manage it.

I’m in a very tough place right now so I’m just not always able to respond or even read some threads and that’s my struggle.

I use Tapatalk so I don’t have the option to hug only to thank

That's the thing, sometimes people just come to read. I mean I read a lot of threads and I just don't have it in me to answer. It isn't that I don't care, far from it, I just don't have the capacity to give because I am such a mess myself.

I offer hugs though, because sometimes its all I am able to give at a time.

Going back to the original posters thoughts, I don't see where there are well-defined "cliques" on PC. Sure, there are posters who write more often than others, but I certainly don't notice cliques (except in chat - IMO). I think her perceptions were her problem, not anything having to do with PC. I've posted threads which have received little response, but just figure my posts don't click with others...they have nothing to do with "cliques."

There are quite a few responses here on this thread. A thread is initiated by an OP in order to elicit responses. It's been a couple of days and no response (of any type noted) from the OP. Are we all being ignored?

Oh, Pheasant, where did you go?


WC

Pheasant did say "final thoughts" so she may have left the site already. I think the people who posted here did their best to reach out, so its really up the OP now.

I think there are many wonderful people here.

There are a number of posts that are well above my purview of "expertise". Relative to condition, I consider myself fortunate. I don't often reply because I don't believe my input would help, it might make matters worse, or it might sound superficial or contrived. I don't necessarily find the boards restrictive, but I do think that people who share the same condition often support each other because they can relate.

For example, I don't know what it is like to stay in bed all day. People post about this on occasion. I'm lucky - I can get up and get around. But every month or so, I put my fist through the wall. My primary BP symptom is violence. When I post my concerns, those that can relate will reply. But those that can't understand explosive anger will probably read it and move on.

Please don't be offended or get down about it. Perhaps your posts got lost in the shuffle, or perhaps the people who can relate just aren't around at the time. As many members have mentioned, the posts get shuffled down the line quickly. And some of the views might simply be from people who are curious about your post but can't really offer any feedback.

Stick around, we need balance!

I agree with your entire statement!

All things considered, everyone gives whatever they have to give here.


WC

I often have a different experience or different opinion than the general consensus, but I post anyway because I know someone will resonate with me, even if they don’t post.

I’ve learned a lot, and I think it is better to stick with us and be forgiving or give the benefit of the doubt if something seems bothersome. We all have our bad days here, but I do think we mean to be a helpful group.

I've been on PC for some years and I know exactly how the OP feels.

Pheasant?

Have you returned to see how much support has and is being offered ?

Are you okay Laurie ?

I am very sorry this is your experience.

It's so hard to tell, as I see you as very well integrated within the PC crowd.

Christina has asked if you are okay? I am also wondering if you need more from us right now?


WC

Sometimes we speak
Sometimes we listen
Sometimes we reach a hand out for help
Sometimes we grab that hand
But we're always here

Maybe this thread should be closed since the OP hasn’t returned?

Just a thought

It's not easy to come into a new community and see the camaraderie that took months or years to build and wonder why you can't get it immediately. I struggled with this too at first. I don't know if people really know who I am, yet, (come here for a couple of years) and I'm pretty sure that I don't really know any but a very few here, but I have come to recognize that it takes time to get to know a community and for them to get to know you. I hope you try again, because this is a helpful community to be a part of and we need to stick together.