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  #26  
Old Feb 23, 2019, 03:21 PM
Anonymous35014
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Originally Posted by tecomsin View Post
What dose of Rexulti were you on and what are your doses of the other meds? Make sure to tell your pdoc and therapist of your med change so they will be in the best position to help you.
Max dose, 4mg
Ritalin LA - 40mg
Lexapro - 5mg
Klonopin - 1mg
Lamictal - 400mg
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  #27  
Old Feb 23, 2019, 03:27 PM
tecomsin tecomsin is offline
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Originally Posted by bluebicycle View Post
I’m going to be careful with lamictal.
That's good to hear. That's a serious dose of lamictal and it would be unwise to stop cold turkey.

This is one of the other threads you wrote about your psychosis and paranoia and speculated you might have Schizoaffective Disorder. Do you think anxiety meds will help with delusional paranoia?

Did you tell your therapist about those symptoms?
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  #28  
Old Feb 23, 2019, 06:48 PM
still_crazy still_crazy is offline
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you're on a lot of different meds. my personal step 1 would be to see about trimming that med list, if possible. sometimes...it requires a new prescriber. :-(

does the Ritalin LA actually last all day for you? it didn't for me. I took a focalin tablet in the afternoon. Some people swear by Concerta. There's also Focalin XR now, which I guess is super-Ritalin (?).

Anyway...even 1mgs/Klonopin=20mgs/Valium, so try to taper slowly, if you can. A switch to valium often makes tapers more bearable.
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  #29  
Old Feb 24, 2019, 09:26 AM
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pirilin pirilin is offline
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Originally Posted by pirilin View Post
Have you checked IED?.
A good shrink can distinguish between bipolar rage
and Intermittent Explosive Disorder. Also incurable.
But treatable with antidepressants. Or so they say.

Good luck.

Cheers.
This could be your ticket out of Bipolarland.
Since IED sufferers don't have bipolar.
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and the master of what you keep. Unknown.
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  #30  
Old Feb 24, 2019, 08:19 PM
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I thought that you were diagnosed with schyzo affective disorder?????
Who made this diagnosis?
I am confused?
bizi
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  #31  
Old Feb 24, 2019, 11:37 PM
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How are you feeling?
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  #32  
Old Feb 25, 2019, 07:09 AM
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Originally Posted by bizi View Post
I thought that you were diagnosed with schyzo affective disorder?????
Who made this diagnosis?
I am confused?
bizi
No, I’ve never had schizoaffective diagnosis. I’ve only gotten bipoalr1 and bipolar 1 w/ psychotic features.

Some psychologist gave me the BP diagnosis, and another gave me the BP w/ mood-incongruent psychotic features diagnosis. But they hardly assessed my behavior during the evaluation, unlike my therapist has during our sessions, and they just made wild guesses and assumptions. So I think their diagnoses are trash. Plus, they were ONLY looking for BP, no personality issues, no OCD, no regular depression, etc. because my pdoc shittily wrote that he thought I had BP. I was bound to get the BP diagnosis.
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  #33  
Old Feb 25, 2019, 07:11 AM
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Originally Posted by ~Christina View Post
How are you feeling?
I’m ok, just tired from getting sh_tty sleep. I don’t trust psychologists, and my therapist knows me best.

I didn’t take rexulti on Friday, Saturday, or Sunday, and I’ve been feeling fine.
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  #34  
Old Feb 25, 2019, 09:43 AM
tecomsin tecomsin is offline
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In one of your previous threads, Blue, you wrote
"I have no idea why I'm not diagnosed with schizoaffective since my psychosis is persistent and since I share many symptoms with schizoaffective, but it is what it is. "

Maybe this is where the confusion comes from. If meds aren't for you then they aren't for you and my view is that is best just to accept whatever you decide to do. But then of course you will live with whatever consequences. Long term consequences can be hard to see.
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  #35  
Old Feb 25, 2019, 10:05 AM
liveforsummer liveforsummer is offline
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Hey blue, I'm sorry you're struggling with this. The diagnosing, the medications, differing opinions from medical professionals, the poor sleep can sooooo totally make you want to scrap it all.

I find myself thinking about what tecomsin wrote, [quote " If meds aren't for you then they aren't for you and my view is that is best just to accept whatever you decide to do. But then of course you will live with whatever consequences. Long term consequences can be hard to see."]




I Just hope you (we all) can figure out what course of action and treatment works best for each and every one of us whether its therapy or not, medications or not or whatever combo works best.
In other threads I've mentioned the tapering I am doing right now as I am not convinced I need to take all the meds I have been prescribed. This may end up ok or bad but I am doing it very very slowly. I think I'm starting to ramble but I just want you to be safe
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  #36  
Old Feb 25, 2019, 12:08 PM
tecomsin tecomsin is offline
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Blue,

If you don't have a psychotic disorder then stopping Rexulti or another AP is the right thing to do but if you do then you will see a return of psychotic symptoms you have written about many times on PC.

Even though I had had many psychotic episodes it was impossible to convince me at times that I needed to be on an antipsychotic. I thought, instead, I had a neurological disorder, a type of headache that responds specifically to Indomethacin. I really wanted to believe i had anything other than a psychotic disorder.

Unfortunately reality caught up with me. i agree with you about long term side effects of AP's, it's important not to take them unless you really need them and then it should be at the lowest effective dose. That's why I"m on 1 mg of Rexulti rather than 4 mg.

Maybe you have been overmedicated and you also do have a psychotic disorder (or not). Both things can be true.
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  #37  
Old Feb 25, 2019, 12:32 PM
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Highlighting mine.
Quote:
Originally Posted by tecomsin View Post
Blue,

If you don't have a psychotic disorder then stopping Rexulti or another AP is the right thing to do but if you do then you will see a return of psychotic symptoms you have written about many times on PC.

Even though I had had many psychotic episodes it was impossible to convince me at times that I needed to be on an antipsychotic. I thought, instead, I had a neurological disorder, a type of headache that responds specifically to Indomethacin. I really wanted to believe i had anything other than a psychotic disorder.
Thank you tecomsin. This is why so many have expressed concern, blue. There has been so much evidence of psychosis, yet now it is being denied. This totally follows the pattern we've seen. Psychosis, denial and questioning of meds, psychosis, denial and questioning of meds, rinse and repeat. Meds and amounts we could go on and on about, but at the end of the day, what the real concern is is about the return of symptoms. And with no one IRL to watch out for you, it is worrying how that could go for you, blue. You've latched onto this incident with your T as evidence because your T is who you want to believe right now, because you are in the phase of denial. And thinking the pdocs don't know anything because they're telling you what you don't want to hear.

Hope this doesn't come off too harshly. We only want the best outcome for you and we're just worried how this experiment will go. History very much suggests it won't go well and we'd hate to see that for you. Much
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  #38  
Old Feb 25, 2019, 01:38 PM
tecomsin tecomsin is offline
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All the way through my last episode, the one where I ended up in a forensic psychiatric ward for a month, I refused to take an antipsychotic, including when I was locked up. It wasn't until after I had pulled out of it that i came to grips with the fact that I have a psychotic illness of some kind, whether it is bipolar 1 with psychotic features or schizoaffective disorder. I thought I was part of a global conspiracy to take over the world and had special powers and that my whole house was bugged with not only cameras but ways of making noises like clicks and bangs. So I had paranoid delusions as well as hallucinations.

I settled on Rexulti as an insurance policy against having another breakdown. Only time will tell if it works though to be honest. I also live on my own and can easily go off the rails without anyone noticing as I don't work either. I am also presently taking a small dose of Olanzapine (1.25 mg) to sleep at night but am trying to get off it. So far, i seem to need it to stay asleep.

I had to sink all the way to the bottom in my life before I accepted that I am better off on an antipsychotic than off all of them.
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  #39  
Old Feb 27, 2019, 10:53 AM
Anonymous35014
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Originally Posted by Innerzone View Post
Highlighting mine.

Thank you tecomsin. This is why so many have expressed concern, blue. There has been so much evidence of psychosis, yet now it is being denied. This totally follows the pattern we've seen. Psychosis, denial and questioning of meds, psychosis, denial and questioning of meds, rinse and repeat. Meds and amounts we could go on and on about, but at the end of the day, what the real concern is is about the return of symptoms. And with no one IRL to watch out for you, it is worrying how that could go for you, blue. You've latched onto this incident with your T as evidence because your T is who you want to believe right now, because you are in the phase of denial. And thinking the pdocs don't know anything because they're telling you what you don't want to hear.

Hope this doesn't come off too harshly. We only want the best outcome for you and we're just worried how this experiment will go. History very much suggests it won't go well and we'd hate to see that for you. Much
My pdoc doesn't know me well as I've only seen him a handful of times and he doesn't know my history. And well, all these pdocs I've seen just shoved meds in my face without hearing me out. I was perfectly FINE on Lexapro and then the dose was reduced. Then I became horribly depressed.

My therapist told me during out appt today to talk to him -- and I will because she wants me to -- but I'm going to demand that I am taken off the lamictal. I have an appt with him 1 week from tomorrow anyway, so that's not too far away. And I'm never taking an antipsychotic again. I already told my therapist that. I also don't need a mood stabilizer at all.

My therapist knows me better than my pdoc for sure. I trust her more than anybody because I know she wouldn't lie to me about symptoms.
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  #40  
Old Feb 27, 2019, 10:56 AM
Anonymous35014
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Originally Posted by tecomsin View Post
All the way through my last episode, the one where I ended up in a forensic psychiatric ward for a month, I refused to take an antipsychotic, including when I was locked up. It wasn't until after I had pulled out of it that i came to grips with the fact that I have a psychotic illness of some kind, whether it is bipolar 1 with psychotic features or schizoaffective disorder. I thought I was part of a global conspiracy to take over the world and had special powers and that my whole house was bugged with not only cameras but ways of making noises like clicks and bangs. So I had paranoid delusions as well as hallucinations.

I settled on Rexulti as an insurance policy against having another breakdown. Only time will tell if it works though to be honest. I also live on my own and can easily go off the rails without anyone noticing as I don't work either. I am also presently taking a small dose of Olanzapine (1.25 mg) to sleep at night but am trying to get off it. So far, i seem to need it to stay asleep.

I had to sink all the way to the bottom in my life before I accepted that I am better off on an antipsychotic than off all of them.

I think I'll be fine without an antipsychotic. Nothing has happened since me stopping it. It sedated me a bit, and now thus my sleep is broken since I haven't been taking it, but otherwise, no problems. I doubt anything bad will happen.
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  #41  
Old Feb 27, 2019, 12:40 PM
tecomsin tecomsin is offline
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Originally Posted by bluebicycle View Post
I think I'll be fine without an antipsychotic. Nothing has happened since me stopping it. It sedated me a bit, and now thus my sleep is broken since I haven't been taking it, but otherwise, no problems. I doubt anything bad will happen.

I would sometimes go for years off all antipsychotics before I would have another psychotic episode. I got lulled into being overconfident that I would be fine. Even though I had olanzapine to take prn if I started having symptoms, I wasn't able or willing to admit what was going on when my mental state started to deteriorate and then I went off the deep end. In my 11 year history of bipolar this happened about 5 times.
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  #42  
Old Feb 27, 2019, 06:26 PM
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I think I'll be fine without an antipsychotic. Nothing has happened since me stopping it. It sedated me a bit, and now thus my sleep is broken since I haven't been taking it, but otherwise, no problems. I doubt anything bad will happen.


It takes time for a AP and Mood stabilizer to Leave the body completely then your brain has to go back working sans meds

Meds take time to work so it takes time to get off them and truly be med free. I quit lithium and I swear it took almost 3 months to get over it.

Check the half life of meds and general add 1-2 months to show what going with out meds will really leave you.

Safe landing
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  #43  
Old Feb 27, 2019, 07:39 PM
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Originally Posted by bluebicycle View Post
I'm pissed off. I've been duped.

I told my therapist I didn't think I had bipolar, and we spent the entire session (45 mins) skimming through all her notes. She said she's never seen me manic based on her notes. Yet during the previous appt, she said she saw me manic. So she lied to me. (And btw, I've been seeing her since 2016.)

I'm done with taking psych meds. **** it all. They are trying to control my brain and take my money by pretending there's something wrong with me. No one has ever seen me manic if my therapist hasn't, since I see her every 2 weeks (or every week if needed).

I'm going to give my meds up (except Ritalin) to the police station tomorrow since they do drug take backs and dispose of the meds for you in a safe manner. I'd flush them down the toilet right ******* now if it wasn't dangerous for the environment. Or if I didn't live in an apartment complex, I would ******* burn it all.

Since I have nothing wrong with me, my brain chemistry is obviously all ****** up now and permanently damaged, I bet. If I had bipolar, then the meds wouldn't damage the brain; in fact, they would HELP the brain. But no, if my therapist said she's never seen me manic, then obviously my brain is getting damaged by something I don't need. I've been lied to for 4 ******* years.
So the pdoc put you on Ritalin? So you're ADHD and bipolar combined? Bipolar 2 it's mostly just depression and you don't get the super manic symptoms. There's a very distinctive differance between the two of them. If he has you as bipolar 1 you would definitely know. I don't know a whole lot of bipolar 2 since it was just accepted in the metal health field back in 2000 i believe. It will probably change or be called a new name due to people not having some symptoms or only a few of them. Sadly there's not much regulation about how pdocs diagnosis mental disorders and why theres so many that r wrong

Where I'm at it's a 2 day ordeal that also requires 6 months of having a pdoc that can note all symptoms and give that report to the doctors that oversee the diagnosis so it's not another misdiagnosis and having people take medications they shouldn't be on.
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  #44  
Old Feb 28, 2019, 01:35 PM
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I would sometimes go for years off all antipsychotics before I would have another psychotic episode. I got lulled into being overconfident that I would be fine. Even though I had olanzapine to take prn if I started having symptoms, I wasn't able or willing to admit what was going on when my mental state started to deteriorate and then I went off the deep end. In my 11 year history of bipolar this happened about 5 times.
Well, if there is an underlying bipolar, then I guess we’ll find out. I need proof before I even consider going back on meds again because... would you give chemotherapy to treat someone’s cancer if they didn’t actually have cancer in the first place? Doing so would be harmful to that person. So, same situation with BP meds for someone who doesn’t have BP

The only thing that’s happened since stopping rexulti is I’m getting severe agitation and sleep issues, but I expect that to blow over after a few weeks. It’s just that the agitation makes me snap and do things I normally wouldn’t do. But again, it’ll blow over eventually. It’s just a minor withdrawal symptom. And the sleep issues are expected since rexulti makes me a little sedated, so I’m getting accustomed to sleeping normally.
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  #45  
Old Feb 28, 2019, 02:00 PM
Anonymous35014
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Originally Posted by ~Christina View Post
It takes time for a AP and Mood stabilizer to Leave the body completely then your brain has to go back working sans meds

Meds take time to work so it takes time to get off them and truly be med free. I quit lithium and I swear it took almost 3 months to get over it.

Check the half life of meds and general add 1-2 months to show what going with out meds will really leave you.

Safe landing
Well, 1-2 months isn’t too awful in the long run. I’m going to wait it out and hope for the best. Only a few minor bumps so far as I mentioned above.

Lamictal is a different story, of course. Haven’t started to taper that yet.
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  #46  
Old Feb 28, 2019, 02:16 PM
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severe agitation and sleep issues does not sound like fun.
How is work going?
bizi
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lamictal 2x a day
haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





  #47  
Old Feb 28, 2019, 02:25 PM
tecomsin tecomsin is offline
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Originally Posted by bluebicycle View Post
Well, if there is an underlying bipolar, then I guess we’ll find out. I need proof before I even consider going back on meds again because... would you give chemotherapy to treat someone’s cancer if they didn’t actually have cancer in the first place? Doing so would be harmful to that person. So, same situation with BP meds for someone who doesn’t have BP

The only thing that’s happened since stopping rexulti is I’m getting severe agitation and sleep issues, but I expect that to blow over after a few weeks. It’s just that the agitation makes me snap and do things I normally wouldn’t do. But again, it’ll blow over eventually. It’s just a minor withdrawal symptom. And the sleep issues are expected since rexulti makes me a little sedated, so I’m getting accustomed to sleeping normally.
I agree, and I think most people would, that people shouldn't take medications for conditions that they don't have. I am not sure what you would consider proof. You have written more than once about being psychotic, delusional etc. Those are the types of symptoms that AP's are meant to control, irrespective of underlying diagnosis. Unfortunately wishing them away, gone and forgotten, doesn't mean they are not going to rear their head again.
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