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  #726  
Old Sep 21, 2019, 01:20 PM
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Nammu Nammu is offline
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Noise sensitivities happen for me when I'm in an episode, can be any episode mixed, manic or depressed. It's hardest when mixed tho cause my ability to use coping skills plummets.
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  #727  
Old Sep 21, 2019, 02:19 PM
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Quote:
Originally Posted by Nammu View Post
Noise sensitivities happen for me when I'm in an episode, can be any episode mixed, manic or depressed. It's hardest when mixed tho cause my ability to use coping skills plummets.
I am sorry you go through this, Nammu.

Many people write about this and find it very difficult to deal with.

I also have noise sensitivity as my moods change. My PTSD reaction to noises has a different quality than the type I experience with mood changes. My PTSD reactions to noise are very physically and mentally disabling and lasts for hours at a time. My mood changes sensitivity is aggravating but does not disable me physically or otherwise, although I do want to flee from the noise!

Uggh! Who needs it? We don't, do we, Nammu!
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  #728  
Old Sep 21, 2019, 03:05 PM
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No, no one needs it. I'm deaf, I'm lucky that I can take my hearing aids off and reduce noise, but when I'm like that light has noise too, movement and shadows are too much to handle. I once saw a futuristic model house that had a small room with a long very tall tunnel to the sky so you could see the stars. I always thought that would be a cool feature to have in a house. A sound prof room all in black with a very tall skylight.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #729  
Old Sep 21, 2019, 03:19 PM
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Quote:
Originally Posted by Nammu View Post
No, no one needs it. I'm deaf, I'm lucky that I can take my hearing aids off and reduce noise, but when I'm like that light has noise too, movement and shadows are too much to handle. I once saw a futuristic model house that had a small room with a long very tall tunnel to the sky so you could see the stars. I always thought that would be a cool feature to have in a house. A sound prof room all in black with a very tall skylight.
The room you 've design gets my vote!!!

It's an interesting and an ongoing topic here. It constantly raises my curiosity as to any relationship to migraine, Temporal Lobe Epilepsy and to any generalized
brain irritation. ?

No matter the cause, your dream room sounds great!!!
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  #730  
Old Sep 21, 2019, 04:01 PM
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I had a good day. Got out of the house a couple times. Got myself a new CD which I transferred over to my iPod. Music is the best.

Made this beef rice w/ vermicelli mix for dinner. Tomorrow I'm going to church, ideally I'd like to go at the 7:30am service if I can get up in time. I don't like going to the 9:30am service because everyone is there then and it's too overwhelming. If I don't get up in time for the really early one then I'll go to the evening mass at 5pm.
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  #731  
Old Sep 21, 2019, 04:58 PM
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Nammu Nammu is offline
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Quote:
Originally Posted by Wild Coyote View Post
The room you 've design gets my vote!!!

It's an interesting and an ongoing topic here. It constantly raises my curiosity as to any relationship to migraine, Temporal Lobe Epilepsy and to any generalized
brain irritation. ?

No matter the cause, your dream room sounds great!!!
I didn't design it, I saw it back in the 70's or 80's. It was a house designed with foam insulation I think. It also had a stream running though the living room. Was a very cool house.

I got Dave Barry's book already. Can't believe it. The library sent me a text that the books were ready, I'm already on the second chapter.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #732  
Old Sep 21, 2019, 05:05 PM
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Wild Coyote Wild Coyote is offline
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Quote:
Originally Posted by Nammu View Post
I didn't design it, I saw it back in the 70's or 80's. It was a house designed with foam insulation I think. It also had a stream running though the living room. Was a very cool house.

I got Dave Barry's book already. Can't believe it. The library sent me a text that the books were ready, I'm already on the second chapter.
Oh, well, was giving you credit for the room. A stream? Interesting!

Oh, I forgot. I was going to order one of his books. Which do you like the best?

EnJOY your book!
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  #733  
Old Sep 21, 2019, 05:14 PM
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Checking in. Still doing well without Abilify. I have an appointment with my NP Monday. I hope she’ll leave my meds alone for awhile since I’ve logged good days every day this month except one meh. I’ve NEVER been that stable. I’d like to enjoy it for a few months.

I went out to eat breakfast and run errands with mom this morning. I’ve spent the remaining time getting ready for tomorrow, listening to webinars and continuing my inner work.

Tomorrow will be a beautiful day to travel. Looking forward to seeing M and enjoying good food, good coffee and camaraderie. I love the brussel sprout/kale salad!

Warm wishes to all for a peaceful Sunday and hugs to those that are struggling.
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  #734  
Old Sep 21, 2019, 05:33 PM
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Been a pretty good couple of weeks. Concert, golf, dinner out, sequel to Handmaids Tale is finally here (The Testaments) and saw the release interview with Margaret Atwood, another event tomorrow .....a few edges of negativity and anxiety here and there but generally not stopping me from doing anything.

A summers warm evening here, love it.

Enjoy your evenings and a good nights sleep to all 😊
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  #735  
Old Sep 21, 2019, 05:38 PM
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Quote:
Originally Posted by Jennifer 1967 View Post
Checking in. Still doing well without Abilify. I have an appointment with my NP Monday. I hope she’ll leave my meds alone for awhile since I’ve logged good days every day this month except one meh. I’ve NEVER been that stable. I’d like to enjoy it for a few months.

I went out to eat breakfast and run errands with mom this morning. I’ve spent the remaining time getting ready for tomorrow, listening to webinars and continuing my inner work.

Tomorrow will be a beautiful day to travel. Looking forward to seeing M and enjoying good food, good coffee and camaraderie. I love the brussel sprout/kale salad!

Warm wishes to all for a peaceful Sunday and hugs to those that are struggling.
I hope the NP leaves your meds alone since you are pleased with them. I hope you will tell her you'd rather she leaves them alone! Furrow your brow and scowl at her when you say so and see what she does? She will leave you alone then!

I hope you have a wonderful day tomorrow!!!
Give M a huge hug!!!
Brussel sprouts and kale salad sounds great!!!

EnJOY!
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  #736  
Old Sep 21, 2019, 06:09 PM
fern46 fern46 is offline
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Quote:
Originally Posted by Jennifer 1967 View Post
Checking in. Still doing well without Abilify. I have an appointment with my NP Monday. I hope she’ll leave my meds alone for awhile since I’ve logged good days every day this month except one meh. I’ve NEVER been that stable. I’d like to enjoy it for a few months.

I went out to eat breakfast and run errands with mom this morning. I’ve spent the remaining time getting ready for tomorrow, listening to webinars and continuing my inner work.

Tomorrow will be a beautiful day to travel. Looking forward to seeing M and enjoying good food, good coffee and camaraderie. I love the brussel sprout/kale salad!

Warm wishes to all for a peaceful Sunday and hugs to those that are struggling.
You've really worked hard lately on your inner self. It seems to be paying off. Do you feel it is the major contributor to your stability? I feel like the two are related.
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  #737  
Old Sep 21, 2019, 06:14 PM
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Nammu Nammu is offline
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Quote:
Originally Posted by Wild Coyote View Post
Oh, well, was giving you credit for the room. A stream? Interesting!

Oh, I forgot. I was going to order one of his books. Which do you like the best?

EnJOY your book!
One of my favorites is Insane City, it's fiction. He does a lot of none fiction. Dave Barry turns 40, Dave Barry turns fifty, etc... His current book is Lessons from Lucy and is light but a good look at aging. It's a lighthearted book on a serious topic and isn't the laugh out loud funny but more of yeah, that's right funny.

Oh, I want to read The Testaments, too.
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  #738  
Old Sep 21, 2019, 06:15 PM
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Originally Posted by fern46 View Post
You've really worked hard lately on your inner self. It seems to be paying off. Do you feel it is the major contributor to your stability? I feel like the two are related.
Thank you for noticing. I really do think it’s been the major contributor to my stability. In my case, learning to manage my emotions, shifting to a more positive outlook and focusing on what I want versus what I don’t have really helped me be in a better frame of mind. I’ve been feeding my mind empowering, positive, uplifting things and it seems to be working.
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  #739  
Old Sep 21, 2019, 06:18 PM
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Originally Posted by Wild Coyote View Post
I hope the NP leaves your meds alone since you are pleased with them. I hope you will tell her you'd rather she leaves them alone! Furrow your brow and scowl at her when you say so and see what she does? She will leave you alone then!

I hope you have a wonderful day tomorrow!!!
Give M a huge hug!!!
Brussel sprouts and kale salad sounds great!!!

EnJOY!
Tehehe. You are so funny! I’ll try that and hope I don’t get kicked out.
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  #740  
Old Sep 21, 2019, 07:01 PM
fern46 fern46 is offline
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Quote:
Originally Posted by Jennifer 1967 View Post
Thank you for noticing. I really do think it’s been the major contributor to my stability. In my case, learning to manage my emotions, shifting to a more positive outlook and focusing on what I want versus what I don’t have really helped me be in a better frame of mind. I’ve been feeding my mind empowering, positive, uplifting things and it seems to be working.
Very inspiring work!! I feel it will continue to serve you well. I've also been very mindful of how I spend my mental, emotional and spiritual energy. It makes a huge difference.
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  #741  
Old Sep 21, 2019, 07:14 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by yellow_fleurs View Post
My boyfriend is visiting from out of town. It's been nice having him around to spend time with. We went to an improv show tonight.


I got really overwhelmed in a sensory sense at this one loud place we got dinner. I am really having a hard time with sensory sensitivity (light, noise, touch) and I am not sure what to do about it. It seems to go beyond just something that happens due to anxiety, and it actually feels mentally painful at time. I feel scared almost too.


Sending compassion to everyone


I would get overwhelmed with all that stuff. I have no real advice other that breathing and lots of self grounding.

Hope things settle down soon and you can enjoy time with your boyfriend
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  #742  
Old Sep 21, 2019, 07:36 PM
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Originally Posted by Wild Coyote View Post
I am so wiped out today. I am not sure as to why this is the case. I have respiratory sx,; yet, I think they are allergies. I am exhausted an am having cognitive difficulties. The only thing I have changed is the Seroquel; last night was my second night of decreasing it by just 25 mg, which is a 50% decrease.


I have a lot on my "to do" list today. So far, I have to scrap the list. I will have to take it up tomorrow. They are all tasks with immediate deadlines.


There was a big mix-up with my Enbrel today and the pharmacy was asking me for an over $600.00 co-pay today. It took an hour or so to get is squared away. Luckily, it was no more difficult than that. I am very fortunate, in that Amgen (the drug manufacturer) pays my monthly co-pay for now, as a part of their "good will" program.... or something like that. When you see Enbrel, Humira and similar meds advertised (as wonder drugs), please note these drugs cost $5500. to $7000. per MONTH! Outrageous! Luckily, Amgen is picking up the bill for co-pays in some instances. My current co-pay is $642./month. . I would never be able to afford it otherwise. I have not been on Enbrel for very long and I do not yet know if it will work for me.


I am having very difficult nights. I hope they improve soon.

I am hopeful!


Much Love!


I’m so sorry your feeling like crap ! I hope that it’s just allergies and not something brewing in your lung. For me this is prime time for me to get a hell of a Bronchitis.

When I was first put on Otezla for just fir psoriasis it was over 1500 ( my co pay) a month, with help from my Dermatologist and my pitiful income I was approved to receive it directly from the drug company for free.

My insurance covered Enbrel and now my Humira also covered at 100% it IS freaking crazy what these meds cost.

Enbrel help psoriatic arthritis well until about 1.5 years the Boom it just quit. Now on Humira shot 4 I’m hoping it helps. It is ridiculous what meds of all kinds cost.

I hope your body adjusts to the decreased dose of Seroquil ! You sleep but you need to have a working brain in the morning.

I hate that you are feeling so terrible. I demand you have a good day tomorrow
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  #743  
Old Sep 21, 2019, 08:50 PM
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I managed to sleep all day. Now im up watching a movie in bed. *insert swearing here*
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  #744  
Old Sep 21, 2019, 08:53 PM
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I was busy today and will be busy tomorrow preparing for our trip to the mountains/lake. I think I'm looking forward to it. It should be generally pleasant. Hubby will be doing a lot of work during the vacation for his consultant job, but will do so sitting near the lake with his laptop. I hope the place is as nice as on the photos. It's a whole house with a sauna, hot tub, three outdoor sitting areas, including one right next to the lake with a bonfire pit. There is a nice grill, which I'll take full advantage of, in addition to the full kitchen. Luckily, it's not too far away from home. I think it will be about the same situation, except the nicer environment. I'll have my laptop, too.

I told hubby that I want to go out on the lake in the small boat they provide. I like boats. Hubby will swim in the lake, but I think it's too cold for me. I'm not sure if we're going to hike anywhere nearby. We could use some exercise, though. The meals I planned should be diet-friendly. It would be nice if we could lose a couple pounds next week. Since our food supply is precisely planned, and I would likely not stray from the property, it should be safe. The weather looks OK where we're going. A sunny day, some partly cloudy, and partly sunny. The average highs will be 70 F (21 C) and lows 52 F (11 C). I'm bringing a couple sweaters and jeans/socks. I love that kind of weather! Hubby wants me to buy knockwurst so we can cook them on sticks over the bonfire. We did that on our wedding night. We stayed at my s-i-l's summer cottage in the woods of Bohemia (Bohemia is a portion of Czech Republic). It was romantic!

Tomorrow hubby wants to go to the "You Pick" apple orchard near us. Every year he buys too many apples. I only like apples cooked/baked or in salads. Hubby eats them by hand every day. We've got way too much to do to prepare! We could do some of the tasks on Monday morning before we leave.

Last edited by Anonymous46341; Sep 21, 2019 at 09:34 PM.
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  #745  
Old Sep 21, 2019, 09:30 PM
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Nammu Nammu is offline
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OH boy, I give Lessons from Lucy a B+ it's a really fast book and that last chapter is a tearjerker. I was crying so hard I had to stop reading until I could dry my tears. That last lesson is memorable.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #746  
Old Sep 21, 2019, 10:33 PM
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I went to the museum. It was super crowded by the time we left there was a huge line to get in. It was nice but we won't be doing it again. I came home and slept for an hour or so. I'm eating to much because it proves that I'm real. I'm so glad we have the day off tomorrow.
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  #747  
Old Sep 21, 2019, 11:08 PM
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@BirdDancer have a great vacation, it sounds lovely!
(((((HUGS)))))) to those who need them.
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  #748  
Old Sep 22, 2019, 04:32 AM
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I guess I am a bit excited about the trip and nervous about all of my "To Do" tasks. I fell asleep after midnight and woke up at 5 am. I was thinking about making the angel food cake, but don't want to wake up my husband. I'm going to try to get a little more sleep.

Last edited by Anonymous46341; Sep 22, 2019 at 06:31 AM.
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  #749  
Old Sep 22, 2019, 06:25 AM
fern46 fern46 is offline
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Originally Posted by BirdDancer View Post
I guess I am a bit of excited about the trip and nervous about all of my "To Do" tasks. I fell asleep after midnight and woke up at 5 am. I was thinking about making the angel food cake, but don't want to wake up my husband. I'm going to try to get a little more sleep.
Preparing for vacation can be so much work. I'm glad you will have such a beautiful space to relax in tomorrow. Just work your list one thing at a time in whatever time it takes. It will all get done and you'll do a wonderful job. Enjoy your trip!
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  #750  
Old Sep 22, 2019, 07:28 AM
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quiet day here

feel okay just in agony with my back
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