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  #776  
Old Sep 22, 2019, 05:57 PM
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I am still trying. Cannot function until mid to late afternoon. I cannot keep up with my life this way.

I think my meds are currently too much. I think I am having a downward mood swing which is making my current med regimen feel like way too much. Pdoc would reason that IF I had enough of a mood stabilizer on board, I would not be experiencing a mood swing into depression. I see her point, but I can only tolerate so much medication. I feel the goal is to be as functional as possible, not to be so sedated I miss most of the day. .
I have increased my Mirapex just a tiny bit, as that is all it takes with Mirapex. Lol.
Pdoc is out of the country for 2 weeks. What to do? I think I will try for being less sedated during the day. Wish me luck!.

Love to All!
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  #777  
Old Sep 22, 2019, 07:42 PM
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Originally Posted by wildflowerchild25 View Post
I was very anxious and depressed yesterday, and today isn’t looking much better. I’m so anxious about my job. It’s so hard, much harder than I thought it would be. I’m so upset. I don’t know if I’ll ever get into the swing of things. I’m doubting all my abilities. I feel so overwhelmed.


I wish I could make as much money doing something else. Something less stressful. But I can’t. I think I just have to honor my contract, get through the year, and then make decisions then. I might be ok in a few weeks when I get better acquainted with the students and the school.


On top of this I really need to get to my doctor to get a blood test to check my blood sugar. I am thirsty all the time, I’m peeing like crazy, I’m hungry all the time, etc. all symptoms of diabetes. My dad and my uncle had type 1 diabetes but I’m likely to have type 2. It would be very unlikely for me to have type 1 so late in life. And maybe it’s nothing but I feel like I need to be checked. I am about 80lbs overweight so that’s a factor. The only problem is I don’t think my particular primary has evening hours. The office does, but it’s only for sick visits, not a general malaise. So I’m not sure how I’m going to get there. I also don’t have insurance until nov 1 so I have to wait anyway.


I hope everything’s ok. The last thing I need is to add a physical illness. I know many of you here deal with a boatload or physical illnesses on top of MI and it adds a lot of stress. I feel you guys!


I hope things will settle down for you school wise, I’m sure you will be able to handle it , it takes time to find the routine,groove.

It’s certainly possible your blood sugar can be elevated

We have a walk in clinic here that’s open til 8 that serves as a primary care also. I” think” it’s a flat 50-60 bucks, but they could check your blood sugar and at least give you metforum as that’s usually given, and of course you will hear about diet and exercise.

Call around and see if you have any options like that in your area.
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  #778  
Old Sep 22, 2019, 07:46 PM
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Originally Posted by Wild Coyote View Post
I am still trying. Cannot function until mid to late afternoon. I cannot keep up with my life this way.


I think my meds are currently too much. I think I am having a downward mood swing which is making my current med regimen feel like way too much. Pdoc would reason that IF I had enough of a mood stabilizer on board, I would not be experiencing a mood swing into depression. I see her point, but I can only tolerate so much medication. I feel the goal is to be as functional as possible, not to be so sedated I miss most of the day. .

I have increased my Mirapex just a tiny bit, as that is all it takes with Mirapex. Lol.

Pdoc is out of the country for 2 weeks. What to do? I think I will try for being less sedated during the day. Wish me luck!.


Love to All!


I think what you and I discussed about changing the time of your night meds to much earlier could potentially give you a much more alert day.

I dunno ! But your Pdoc needs to take a better look at the WHOLE picture!!

Much love!
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  #779  
Old Sep 22, 2019, 08:03 PM
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I slept almost 24 hours straight but today I got up 4 hours earlier than usual and didnt nap at all. Now it's 9 pm and Im in bed.

I spent almost 6 hours today reading at starbucks. Then it was a friend's 🎂 birthday so 3 of us went out to dinner. She thanked me twice for dinner but it was expensive- she ordered steak - not the cheapest thing on the menu.

The afterhours person called me from pdoc's office to check in on me today. I said I was doing well today. Maybe too much sleep- blah- cured me of the visions?
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  #780  
Old Sep 22, 2019, 08:29 PM
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Pollen, Asthma, Fibro and Aggro manic-y not a good combo of things
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  #781  
Old Sep 22, 2019, 08:30 PM
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Originally Posted by ~Christina View Post
I think what you and I discussed about changing the time of your night meds to much earlier could potentially give you a much more alert day.

I dunno ! But your Pdoc needs to take a better look at the WHOLE picture!!

Much love!
@Wild Coyote

Have you considered Christina's suggestion above? The secret to me tolerating my Seroquel XR very well is to take it (and my other evening medications) preferably at 7 pm, or 8 pm at the latest. That helps me to avoid any "Seroquel XR hangover" and I think it might help similarly, to some degree, with regular Seroquel. I will say that after years on Seroquel XR, it actually takes a good 2 to 4 hours after taking my meds, for me to get sleepy. It's not as instant as it was years ago, when I first started taking it. Also, doses of 25 to 50 mg regular, during the day, no longer make me tired. I've grown tolerant. Such doses do still help me with anxiety and mild agitation, though.

My husband told me to bring my PRN regular Seroquel with me on my trip. I have been fine, but people have noted my increased energy. I did a LOT today.
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  #782  
Old Sep 22, 2019, 09:45 PM
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Thanks Christina and BirdDancer!

I do space my meds out. I have over 12 hours after my night time meds and before I need to function.

I have tried to tolerate this amount of lamotrigine (200mg twice daily)over and over again. I end up going back to 300mg (200mg at night and 100mg in the morning)every time. I am trying again. I am foggy, dizzy, stumbling and am generally messed up. I do not believe this is from changing Seroquel from 50mg to 25 mg. I cannot tolerate the increase in lamotrigine. I do like my pdoc. At the same time, she continues to tell me that I am the only patient who has ever told her that lamotrigine is sedating. And so? What does that mean? Lol. she believes in pushing the dose anyway, hoping the patient will eventually tolerate the dose. In the meantime, I am dizzy, stumbling, stupid, dysfunctional, etc. until 4 or 5pm.

How is this stability?

I did offer to take 300mg at night and stay at 100mg in the morning. She said this is a 12 hour drug and taking the extra at night won't help during the day.

Despite the fact that I am her only patient mentioning sedation from lamotrigine, I am sure that : Anyone can have any side-effect from any medicine at any time! I am quoting my Rheumy.

It is looking like it is best to bring the dose back down until pdoc is back from vacation.
She can then try an extended release formulation if she thinks it will be helpful.

Thanks again, Christina and BirdDancer!
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  #783  
Old Sep 22, 2019, 10:15 PM
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Most people can tolerate Lamictal but you have tried and tried .. yet you are one of the reasons there is a warning about the med possibly causing drowsy sedation side effects lol

Your Pdoc is daft thinking no one has this side effect. I have a cousin that can’t take a single Tylenol with out it knocking her out for 8 hours. Oh wow have I been jealous of her a lot with my constant struggle with insomnia. But a single Tylenol?? So yes any med can have any effect on a person.

Maybe she should try your psych meds and see if they cause her any difficulty ???? LOLOLOLOLOL!!

A IP Pdoc once wanted to try Depacoke on me and I said you first , he was like wha??? I said I have researched it and spoken to lots of people on it and I have no interest in being a guinea pig for THAT med. so you take it and we can talk tomorrow if you can pick your head up off your pillow. He thought I was hilarious, I was not kidding

You have been on Lamictal long enough to where if it were a temporary side effect it would have passed but now.

I say do what you can right now , she’s outta the country anyway. Deal with her possible reaction when she returns , your not just dropping the entire medication , your just trying to balance things out.
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  #784  
Old Sep 22, 2019, 10:42 PM
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Originally Posted by ~Christina View Post
Most people can tolerate Lamictal but you have tried and tried .. yet you are one of the reasons there is a warning about the med possibly causing drowsy sedation side effects lol

Your Pdoc is daft thinking no one has this side effect. I have a cousin that can’t take a single Tylenol with out it knocking her out for 8 hours. Oh wow have I been jealous of her a lot with my constant struggle with insomnia. But a single Tylenol?? So yes any med can have any effect on a person.

Maybe she should try your psych meds and see if they cause her any difficulty ???? LOLOLOLOLOL!!

A IP Pdoc once wanted to try Depacoke on me and I said you first , he was like wha??? I said I have researched it and spoken to lots of people on it and I have no interest in being a guinea pig for THAT med. so you take it and we can talk tomorrow if you can pick your head up off your pillow. He thought I was hilarious, I was not kidding

You have been on Lamictal long enough to where if it were a temporary side effect it would have passed but now.

I say do what you can right now , she’s outta the country anyway. Deal with her possible reaction when she returns , your not just dropping the entire medication , your just trying to balance things out.
Lol! She should try my psych meds?

She has tried Mirapex for her restless legs. She says she'd hugged the toilet all night long! I am sorry that was the case; yet, just a great example of how people react differently.

Get some shut-eye, Christina! Much Love!
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  #785  
Old Sep 22, 2019, 11:12 PM
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Originally Posted by Wild Coyote View Post

How is this stability?

I did offer to take 300mg at night and stay at 100mg in the morning. She said this is a 12 hour drug and taking the extra at night won't help during the day.
I’d be asking if she truly believes that taking Lamactil at night won’t help during the day then why has she got you on an evening dose at all??
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  #786  
Old Sep 22, 2019, 11:16 PM
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Im not sure if Im really sick or not
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  #787  
Old Sep 22, 2019, 11:48 PM
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Wc the half life is 29 hrs. I hope going down on the dose helps you feel better.
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  #788  
Old Sep 23, 2019, 04:42 AM
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Ugh, work... Don't wanna do work... but I've got to...

At least I am doing okay this morning. I hope that the rest of the day is at least okay for me too. I'm feeling kind of tired, though...

I woke up at 4am and it's nearing 6am now. I have a loooooong day ahead of me today. I also have to do some more cleaning. My place STILL isn't clean after all these months.
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  #789  
Old Sep 23, 2019, 06:46 AM
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Sitting outside of work feeling very depressed. Not as bad as yesterday but it’s still hanging on. I think I need to get insurance through the marketplace in case I need to go to evening iop. I’m thinking about it and if this depression continues for more than a couple of weeks I think I will. But I do feel better today so hopefully I will continue to feel a little better each day.

I’m having strong urges to hurt myself though. The only reason I didn’t yesterday is I don’t want RS to worry about me. I took a very hot shower instead. The water at my house gets very hot, it’s nice when it’s cold out or I’m stressed.

I had a lot of violent dreams last night which I do usually get when I’m stressed out. Disturbing but not surprising.

Wish me luck at work today.
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  #790  
Old Sep 23, 2019, 06:57 AM
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Hi Wild Coyote. Again, I totally agree with Christina again and the other responses that followed.

My father-in-law was a psychiatrist and neurologist. My husband told me that his father actually DID try many psychotropic medications despite not having any kind of mental illness. Stuff for neurological conditions, too. He did so because he wanted to see what some patients may be experiencing. He didn't try them long-term, though.

I don't see how/why 100 mg Lamictal in the morning and 300 mg at night would be not worth trying. That was your thought you mentioned. Of course I don't mean to influence how you take your meds, but there are times when we need to experiment. I confess that I have done so with past meds.

I have only taken 100 mg of Lamictal these last seven years, and have always taken it in the morning. I don't take any Lamictal at night. I see Lamictal as strictly an antidepressant for me. My other meds control my manias. Seroquel XR and Latuda do both, actually.
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  #791  
Old Sep 23, 2019, 07:37 AM
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Good morning, doing well. Slept great, got up went to the store, out to breakfast and then the pharmacy

Have an appointment at my college Thursday to see about starting classes again in the spring. A little nervous. Hopefully the meeting goes well. My case manager is coming with me

Hope everyone has a good day
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  #792  
Old Sep 23, 2019, 08:35 AM
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Many thanks Christina, BirdDancer, Pookyl and MM. Thanks, Bizi, too.
I will likely move doses around, taking 300mg at night and 100mg in the morning. If that still feels like too much, I will go back to the prior amount of 300mg/day.(100mg in AM and 200mg in PM).
I cannot spend my days dazed by meds! That's no life.

Much Love
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  #793  
Old Sep 23, 2019, 08:47 AM
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Originally Posted by Blue_Bird View Post
Good morning, doing well. Slept great, got up went to the store, out to breakfast and then the pharmacy

Have an appointment at my college Thursday to see about starting classes again in the spring. A little nervous. Hopefully the meeting goes well. My case manager is coming with me

Hope everyone has a good day
I hope your meeting goes well!
Are you looking to take on a full load of courses?Best wishes!
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  #794  
Old Sep 23, 2019, 08:48 AM
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Originally Posted by Wild Coyote View Post
I hope your meeting goes well!
Are you looking to take on a full load of courses?Best wishes!
Thank you

No, just two classes, I can't handle a full course load at the moment
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  #795  
Old Sep 23, 2019, 08:51 AM
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I had to take 2 semesters off due to psychosis so I'm just taking things slow. My doctor doesn't want me overwhelming myself
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  #796  
Old Sep 23, 2019, 08:56 AM
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Ugh, work... Don't wanna do work... but I've got to...

At least I am doing okay this morning. I hope that the rest of the day is at least okay for me too. I'm feeling kind of tired, though...

I woke up at 4am and it's nearing 6am now. I have a loooooong day ahead of me today. I also have to do some more cleaning. My place STILL isn't clean after all these months.
Hey blue! I hope you have a fruitful day!
Thinking of you!
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  #797  
Old Sep 23, 2019, 08:56 AM
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A friend called. Said he's only 20 minutes away and would I like to get together. I said yes. But he wants to meet half way- i cant do that; my car doesn't do highways. He's calling me back. I hope he doesn't cancel on me because I cant meet half way.
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  #798  
Old Sep 23, 2019, 08:59 AM
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Originally Posted by Wild Coyote View Post
Many thanks Christina, BirdDancer, Pookyl and MM. Thanks, Bizi, too.
I will likely move doses around, taking 300mg at night and 100mg in the morning. If that still feels like too much, I will go back to the prior amount of 300mg/day.(100mg in AM and 200mg in PM).
I cannot spend my days dazed by meds! That's no life.

Much Love
Good luck with this change. I hope you are able to find a combo that leaves you stable and able to handle your daily tasks with ease.
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  #799  
Old Sep 23, 2019, 09:13 AM
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Quote:
Originally Posted by Wild Coyote View Post
Many thanks Christina, BirdDancer, Pookyl and MM. Thanks, Bizi, too.
I will likely move doses around, taking 300mg at night and 100mg in the morning. If that still feels like too much, I will go back to the prior amount of 300mg/day.(100mg in AM and 200mg in PM).
I cannot spend my days dazed by meds! That's no life.

Much Love

This is sound judgement on your part. Good luck with the change.
((((((HUGS))))))
bizi
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  #800  
Old Sep 23, 2019, 09:23 AM
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Quote:
Originally Posted by Wild Coyote View Post
Many thanks Christina, BirdDancer, Pookyl and MM. Thanks, Bizi, too.
I will likely move doses around, taking 300mg at night and 100mg in the morning. If that still feels like too much, I will go back to the prior amount of 300mg/day.(100mg in AM and 200mg in PM).
I cannot spend my days dazed by meds! That's no life.

Much Love
I hope moving doses around helps you not feel so dazed.
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