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~Christina
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Default Sep 21, 2019 at 07:14 PM
  #741
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Originally Posted by yellow_fleurs View Post
My boyfriend is visiting from out of town. It's been nice having him around to spend time with. We went to an improv show tonight.


I got really overwhelmed in a sensory sense at this one loud place we got dinner. I am really having a hard time with sensory sensitivity (light, noise, touch) and I am not sure what to do about it. It seems to go beyond just something that happens due to anxiety, and it actually feels mentally painful at time. I feel scared almost too.


Sending compassion to everyone


I would get overwhelmed with all that stuff. I have no real advice other that breathing and lots of self grounding.

Hope things settle down soon and you can enjoy time with your boyfriend

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Default Sep 21, 2019 at 07:36 PM
  #742
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Originally Posted by Wild Coyote View Post
I am so wiped out today. I am not sure as to why this is the case. I have respiratory sx,; yet, I think they are allergies. I am exhausted an am having cognitive difficulties. The only thing I have changed is the Seroquel; last night was my second night of decreasing it by just 25 mg, which is a 50% decrease.


I have a lot on my "to do" list today. So far, I have to scrap the list. I will have to take it up tomorrow. They are all tasks with immediate deadlines.


There was a big mix-up with my Enbrel today and the pharmacy was asking me for an over $600.00 co-pay today. It took an hour or so to get is squared away. Luckily, it was no more difficult than that. I am very fortunate, in that Amgen (the drug manufacturer) pays my monthly co-pay for now, as a part of their "good will" program.... or something like that. When you see Enbrel, Humira and similar meds advertised (as wonder drugs), please note these drugs cost $5500. to $7000. per MONTH! Outrageous! Luckily, Amgen is picking up the bill for co-pays in some instances. My current co-pay is $642./month. . I would never be able to afford it otherwise. I have not been on Enbrel for very long and I do not yet know if it will work for me.


I am having very difficult nights. I hope they improve soon.

I am hopeful!


Much Love!


I’m so sorry your feeling like crap ! I hope that it’s just allergies and not something brewing in your lung. For me this is prime time for me to get a hell of a Bronchitis.

When I was first put on Otezla for just fir psoriasis it was over 1500 ( my co pay) a month, with help from my Dermatologist and my pitiful income I was approved to receive it directly from the drug company for free.

My insurance covered Enbrel and now my Humira also covered at 100% it IS freaking crazy what these meds cost.

Enbrel help psoriatic arthritis well until about 1.5 years the Boom it just quit. Now on Humira shot 4 I’m hoping it helps. It is ridiculous what meds of all kinds cost.

I hope your body adjusts to the decreased dose of Seroquil ! You sleep but you need to have a working brain in the morning.

I hate that you are feeling so terrible. I demand you have a good day tomorrow

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Default Sep 21, 2019 at 08:50 PM
  #743
I managed to sleep all day. Now im up watching a movie in bed. *insert swearing here*

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Default Sep 21, 2019 at 08:53 PM
  #744
I was busy today and will be busy tomorrow preparing for our trip to the mountains/lake. I think I'm looking forward to it. It should be generally pleasant. Hubby will be doing a lot of work during the vacation for his consultant job, but will do so sitting near the lake with his laptop. I hope the place is as nice as on the photos. It's a whole house with a sauna, hot tub, three outdoor sitting areas, including one right next to the lake with a bonfire pit. There is a nice grill, which I'll take full advantage of, in addition to the full kitchen. Luckily, it's not too far away from home. I think it will be about the same situation, except the nicer environment. I'll have my laptop, too.

I told hubby that I want to go out on the lake in the small boat they provide. I like boats. Hubby will swim in the lake, but I think it's too cold for me. I'm not sure if we're going to hike anywhere nearby. We could use some exercise, though. The meals I planned should be diet-friendly. It would be nice if we could lose a couple pounds next week. Since our food supply is precisely planned, and I would likely not stray from the property, it should be safe. The weather looks OK where we're going. A sunny day, some partly cloudy, and partly sunny. The average highs will be 70 F (21 C) and lows 52 F (11 C). I'm bringing a couple sweaters and jeans/socks. I love that kind of weather! Hubby wants me to buy knockwurst so we can cook them on sticks over the bonfire. We did that on our wedding night. We stayed at my s-i-l's summer cottage in the woods of Bohemia (Bohemia is a portion of Czech Republic). It was romantic!

Tomorrow hubby wants to go to the "You Pick" apple orchard near us. Every year he buys too many apples. I only like apples cooked/baked or in salads. Hubby eats them by hand every day. We've got way too much to do to prepare! We could do some of the tasks on Monday morning before we leave.

Last edited by Anonymous46341; Sep 21, 2019 at 09:34 PM..
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Default Sep 21, 2019 at 09:30 PM
  #745
OH boy, I give Lessons from Lucy a B+ it's a really fast book and that last chapter is a tearjerker. I was crying so hard I had to stop reading until I could dry my tears. That last lesson is memorable.

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Default Sep 21, 2019 at 10:33 PM
  #746
I went to the museum. It was super crowded by the time we left there was a huge line to get in. It was nice but we won't be doing it again. I came home and slept for an hour or so. I'm eating to much because it proves that I'm real. I'm so glad we have the day off tomorrow.

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Red face Sep 21, 2019 at 11:08 PM
  #747
@BirdDancer have a great vacation, it sounds lovely!
(((((HUGS)))))) to those who need them.
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Default Sep 22, 2019 at 04:32 AM
  #748
I guess I am a bit excited about the trip and nervous about all of my "To Do" tasks. I fell asleep after midnight and woke up at 5 am. I was thinking about making the angel food cake, but don't want to wake up my husband. I'm going to try to get a little more sleep.

Last edited by Anonymous46341; Sep 22, 2019 at 06:31 AM..
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Default Sep 22, 2019 at 06:25 AM
  #749
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Originally Posted by BirdDancer View Post
I guess I am a bit of excited about the trip and nervous about all of my "To Do" tasks. I fell asleep after midnight and woke up at 5 am. I was thinking about making the angel food cake, but don't want to wake up my husband. I'm going to try to get a little more sleep.
Preparing for vacation can be so much work. I'm glad you will have such a beautiful space to relax in tomorrow. Just work your list one thing at a time in whatever time it takes. It will all get done and you'll do a wonderful job. Enjoy your trip!
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Default Sep 22, 2019 at 07:28 AM
  #750
quiet day here

feel okay just in agony with my back
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Default Sep 22, 2019 at 08:01 AM
  #751
Doing okay. Watching another movie. Didn't do any work or read a book yesterday even though I desperately wanted to.

Only problem is that I didn’t take my meds last night. I fell asleep before I could remember to take them because I was exhausted from the previous day. I just wish I were more consistent with my meds. An alarm probably would've helped. I should start setting alarmsz

Anyway, I'm hoping today will be an overall good day for me. I have a lot of stuff to do this week. Should be very, very busy (unfortunately). I just hope the stress doesn't get to me, as I haven't been good at dealing with stress lately.
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Default Sep 22, 2019 at 08:04 AM
  #752
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Originally Posted by bluebicycle View Post
Doing okay. Watching another movie. Didn't do any work or read a book yesterday even though I desperately wanted to.

Only problem is that I didn’t take my meds last night. I fell asleep before I could remember to take them because I was exhausted from the previous day. I just wish I were more consistent with my meds. An alarm probably would've helped. I should start setting alarmsz

Anyway, I'm hoping today will be an overall good day for me. I have a lot of stuff to do this week. Should be very, very busy (unfortunately). I just hope the stress doesn't get to me, as I haven't been good at dealing with stress lately.
There's no way I would be able to take my meds correctly without an alarm. Go for it. It takes less than a minute to do. I haven't missed a dose.

Wishing you a low stress, but very productive week!
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Default Sep 22, 2019 at 09:36 AM
  #753
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Originally Posted by fern46 View Post
There's no way I would be able to take my meds correctly without an alarm. Go for it. It takes less than a minute to do. I haven't missed a dose.

Wishing you a low stress, but very productive week!
I have weekday and weekend alarms, and I use a special tone so it is distinctive. The Thames Television ident from the 70's and 80's will now be forever associated with psych meds.

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Default Sep 22, 2019 at 10:44 AM
  #754
I was very anxious and depressed yesterday, and today isn’t looking much better. I’m so anxious about my job. It’s so hard, much harder than I thought it would be. I’m so upset. I don’t know if I’ll ever get into the swing of things. I’m doubting all my abilities. I feel so overwhelmed.

I wish I could make as much money doing something else. Something less stressful. But I can’t. I think I just have to honor my contract, get through the year, and then make decisions then. I might be ok in a few weeks when I get better acquainted with the students and the school.

On top of this I really need to get to my doctor to get a blood test to check my blood sugar. I am thirsty all the time, I’m peeing like crazy, I’m hungry all the time, etc. all symptoms of diabetes. My dad and my uncle had type 1 diabetes but I’m likely to have type 2. It would be very unlikely for me to have type 1 so late in life. And maybe it’s nothing but I feel like I need to be checked. I am about 80lbs overweight so that’s a factor. The only problem is I don’t think my particular primary has evening hours. The office does, but it’s only for sick visits, not a general malaise. So I’m not sure how I’m going to get there. I also don’t have insurance until nov 1 so I have to wait anyway.

I hope everything’s ok. The last thing I need is to add a physical illness. I know many of you here deal with a boatload or physical illnesses on top of MI and it adds a lot of stress. I feel you guys!

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Heart Sep 22, 2019 at 11:47 AM
  #755
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Originally Posted by bluebicycle View Post
Doing okay. Watching another movie. Didn't do any work or read a book yesterday even though I desperately wanted to.

Only problem is that I didn’t take my meds last night. I fell asleep before I could remember to take them because I was exhausted from the previous day. I just wish I were more consistent with my meds. An alarm probably would've helped. I should start setting alarmsz

Anyway, I'm hoping today will be an overall good day for me. I have a lot of stuff to do this week. Should be very, very busy (unfortunately). I just hope the stress doesn't get to me, as I haven't been good at dealing with stress lately.
I had used alarms, especially when I'd had some mid-day meds to take.
Now that I only have meds twice a day, I have been able to take them on time. I have some extra incentive, I think? I start withdrawing from pain meds if I miss my bedtime meds.It is very, very unpleasant and does not resolve for at least 18 hours after I make up the missed dose.

I would have a very difficult time remembering meds if I had a schedule as busy as yours.

I do think you will feel better, more stable, if you can follow through on taking all doses on time. If you do not feel better from doing so, this is important information, too.

I hope you can minimize unnecessary stress this week. Do protect yourself and only deal with necessary stress.

Take excellent care of yourself this week. Get enough sleep, enough water, enough nutrition, etc. You might have more stamina if you attend to all aspects of self-care. I need to do the same this week.

Much Love, Blue!

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Heart Sep 22, 2019 at 12:02 PM
  #756
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Originally Posted by wildflowerchild25 View Post
I was very anxious and depressed yesterday, and today isn’t looking much better. I’m so anxious about my job. It’s so hard, much harder than I thought it would be. I’m so upset. I don’t know if I’ll ever get into the swing of things. I’m doubting all my abilities. I feel so overwhelmed.

I wish I could make as much money doing something else. Something less stressful. But I can’t. I think I just have to honor my contract, get through the year, and then make decisions then. I might be ok in a few weeks when I get better acquainted with the students and the school.

On top of this I really need to get to my doctor to get a blood test to check my blood sugar. I am thirsty all the time, I’m peeing like crazy, I’m hungry all the time, etc. all symptoms of diabetes. My dad and my uncle had type 1 diabetes but I’m likely to have type 2. It would be very unlikely for me to have type 1 so late in life. And maybe it’s nothing but I feel like I need to be checked. I am about 80lbs overweight so that’s a factor. The only problem is I don’t think my particular primary has evening hours. The office does, but it’s only for sick visits, not a general malaise. So I’m not sure how I’m going to get there. I also don’t have insurance until nov 1 so I have to wait anyway.

I hope everything’s ok. The last thing I need is to add a physical illness. I know many of you here deal with a boatload or physical illnesses on top of MI and it adds a lot of stress. I feel you guys!
I am sorry you are feeling so stressed.

I wonder if you have ever looked into the Vocational Rehab program in your state? The program exists to train, or to re-train people who are experiencing difficulties in their current profession/positions. A lot of the funding is federal. Each state administers the program. Many of these offices also offer career testing as a part of the re-training, etc. Often, the federal funding pays for any further education/training needed. Just a thought.

If you feel you need lab(s) primarily, maybe let your PC doc know and maybe s/he will order lab(s) and will get back to you re: results and as to whether or not you need to be seen.

One of the things you can do is to eat as though you are already diabetic. I do this and I feel better and my blood glucose levels are much improved. I have also eliminated hypoglycemia by eating this way. The glucose highs and lows are now stabilized. (My labs come out great!)

I hope you find answers and start feeling better soon!

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Heart Sep 22, 2019 at 12:07 PM
  #757
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One of my favorites is Insane City, it's fiction. He does a lot of none fiction. Dave Barry turns 40, Dave Barry turns fifty, etc... His current book is Lessons from Lucy and is light but a good look at aging. It's a lighthearted book on a serious topic and isn't the laugh out loud funny but more of yeah, that's right funny.

Oh, I want to read The Testaments, too.
Thanks, Nammu! I appreciate you steering me in some direction on this! I look forward to reading, especially with the weather getting colder here.

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Heart Sep 22, 2019 at 12:13 PM
  #758
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I went to the museum. It was super crowded by the time we left there was a huge line to get in. It was nice but we won't be doing it again. I came home and slept for an hour or so. I'm eating to much because it proves that I'm real. I'm so glad we have the day off tomorrow.
Wow! It is wonderful you have gotten out!
What type of a museum?

i so enjoy most museums.

Why do you write you won't be going again?

I hope you are having a good day today!

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Heart Sep 22, 2019 at 12:30 PM
  #759
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quiet day here

feel okay just in agony with my back
It's nice to hear from you!

So sorry your back hurts you.
Are you able to see a physical therapist to help you?

I wonder how life is going for you when you are away for awhile.

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Heart Sep 22, 2019 at 12:34 PM
  #760
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Originally Posted by ~Christina View Post
I’m so sorry your feeling like crap ! I hope that it’s just allergies and not something brewing in your lung. For me this is prime time for me to get a hell of a Bronchitis.

When I was first put on Otezla for just fir psoriasis it was over 1500 ( my co pay) a month, with help from my Dermatologist and my pitiful income I was approved to receive it directly from the drug company for free.

My insurance covered Enbrel and now my Humira also covered at 100% it IS freaking crazy what these meds cost.

Enbrel help psoriatic arthritis well until about 1.5 years the Boom it just quit. Now on Humira shot 4 I’m hoping it helps. It is ridiculous what meds of all kinds cost.

I hope your body adjusts to the decreased dose of Seroquil ! You sleep but you need to have a working brain in the morning.

I hate that you are feeling so terrible. I demand you have a good day tomorrow
Thanks, Christina. I know you go through much of the same. I am also sorry you are so often uncomfortable. So glad we have each other!
We will make it through!

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