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  #476  
Old Nov 04, 2019, 07:31 PM
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Sunflower123 Sunflower123 is offline
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Daylight Savings Time. Wow! Makes a big difference here. I may need a med adjustment.

Tomorrow, I have the first of four doctor’s visits/tests scheduled for this week to get these pains figured out. I’m looking forward to getting this resolved although the process of getting there leaves me reluctant. Anyway, chin up and positive thoughts! I’m going to meet M halfway Saturday so I’ll keep my mind focused on that.

Warm wishes to all for a good night of rest and a peaceful Tuesday.
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  #477  
Old Nov 04, 2019, 08:07 PM
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Ok day so far. Managed to have a shower and feel all squeaky clean.
Dunno why it’s so hard to do something that always makes me feel so good afterwards.
It’s another day of doing nothing much. I really need to come up with some plans. I’m beginning to find stability a little dull.
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Psych meds: Saphris, Seroquel XR, regular Seroquel.
PRN Diazepam and Zopiclone
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  #478  
Old Nov 04, 2019, 09:23 PM
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Scooter9 Scooter9 is offline
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I'm still sick, but I saw my doctor today. He says I have a bad cold and the beginnings of a sinus infection. No treatment yet, since it might clear up on its own.

I mentioned almost blacking out and having to sit for 2 days. He said that likely was caused by my severe dehydration. He listened to everything and offered an EKG test but said it's not necessary unless I wanted it. I skipped it.

I have to go back to work tomorrow because my work computer is broken. I was working on it and it just switched itself off and has not come on again since.

I've become obsessed with something these past several days. I need to try to cool it before it gets out of hand. There's no money involved but there's time and a lot of it. The problem: I feel good when I'm doing it. I guess I like feeling good and am overdoing it now.

I missed about 3 hours sleep during the past couple of nights, probably because of the time change. I hope things settle down.
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* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

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  #479  
Old Nov 04, 2019, 10:51 PM
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Quote:
Originally Posted by ~Christina View Post
I honestly have tried practically anything and everything over especially the last 10 years.

Whether I’d be an actual sleep med Or AP, AD if they actually do work they burn out within a couple months at most.

Was another reason I wanted a psych Med long vacation in hopes that one day something might help.

Right now I just take a 1mg Xanax ,I was taking 2 and often taking a gabapentin 900mg while I was on oral steroids, it helped me get an hour or 2 every couple days.

I can’t tell you how many times as a small child my mother would take the leather strap to me if she found me awake at night. I just could not sleep but I learned very quickly to appear sleeping if I heard her get up in the night

I have never once sleep more than 6 days in a row, and that’s getting 4-5 hours a night at most. I honestly wouldnt know how to act if I did sleep like most people roaming the earth.
I used to take .5mg of klonipin and I slept great.
Then pdoc decided that because I drank I should not have the benzo.
sigh
now I take melatonin and visteril and ear plugs!!!!....it works.
Sorry you struggle so.
(((((((HUGS)))))))
bizi
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lamictal 2x a day
haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





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  #480  
Old Nov 05, 2019, 01:06 AM
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Wild Coyote Wild Coyote is offline
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Quote:
Originally Posted by BirdDancer View Post
Wild Coyote, I care about you and everyone else here, very much. We are particularly vulnerable. I do, however, want to say that there are many people who are not disabled that struggle greatly because they can't afford proper medical care. Many don't even get the stupid Aetna that I referenced. Many work for a company/people that don't offer insurance. There are many people out there too proud to complain. There are many people who have to make choices between food and shelter and many other basic necessities in life. Many people have to accept alternative treatments because they can't afford certain ones that might be more beneficial. It's terrible!

You know, I used to be a frequent world traveler, but it is very stressful for me nowadays. The thought of having to perfect a language that I haven't studied for years is frightening to me. I hope, very much, that things improve greatly here. It would be wonderful if I didn't have to move.

Some people live from pay check to pay check and not that well. Do you know that many people in my state are paying $10,000 per year in property taxes alone? And I'm not talking big houses with big property. I love New Jersey. As I wrote, my family has been in this state for centuries. I can't count on some big inheritance to "save the day". My parents retired in their 50s. That would be a pipe dream to most.
You know, you make an excellent point!

Many do encounter some of the same challenges!

While many different groups are highly challenged, I so often think of the elderly.

I know I have been a huge supporter of the elderly and all some of them go through. They've worked hard, they've paid their taxes for oh, so many years! Yet, many of them suffer greatly, trying to keep a home, pay for meds, paying utilities, paying taxes, etc.

There are many programs available for the welfare of young families and for children. I think this is wonderful! At the same time, I see some of the elderly struggling, trying to make it from day-to-day. Many of the elderly are not offered enough resources/help.

Before I became ill and disabled, I'd found solace in the fact that I well enough to pick up another job, at any moment! When I became ill, i'd fel

Thanks for making an excellent point, BirdDancer!
Unfortunately, you are speaking truths.
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  #481  
Old Nov 05, 2019, 01:30 AM
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falcon09 falcon09 is offline
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I moved back into my apartment, except for my clothes, my grandma is washing them and will bring them tomorrow
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  #482  
Old Nov 05, 2019, 01:40 AM
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Quote:
Originally Posted by Scooter9 View Post
I'm still sick, but I saw my doctor today. He says I have a bad cold and the beginnings of a sinus infection. No treatment yet, since it might clear up on its own.

I mentioned almost blacking out and having to sit for 2 days. He said that likely was caused by my severe dehydration. He listened to everything and offered an EKG test but said it's not necessary unless I wanted it. I skipped it.

I have to go back to work tomorrow because my work computer is broken. I was working on it and it just switched itself off and has not come on again since.

I've become obsessed with something these past several days. I need to try to cool it before it gets out of hand. There's no money involved but there's time and a lot of it. The problem: I feel good when I'm doing it. I guess I like feeling good and am overdoing it now.

I missed about 3 hours sleep during the past couple of nights, probably because of the time change. I hope things settle down.
Hi!

You've not been feeling well for seemingly quite some time now.
I am not surprised your MD had some findings. I hope you feel better soon!

As I understand things, Mirapex might cause some "obsession" "and/ or (or some type of a "compulsion." Please do run this by your pdoc!

Additionally, Mirapex might also cause some insomnia.

Please report these experiences to your pdoc.
Even if your Mirarapex is now playing a role in current symptoms, most pdocs will simply decrease the Mirapex ..

As always, my best to you and to family.
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  #483  
Old Nov 05, 2019, 02:54 AM
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~Christina ~Christina is offline
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Quote:
Originally Posted by BirdDancer View Post
Hi Christina. I have experienced such attitudes about disability, as well. Even from my own brother, to a degree. He makes such statements about "others on disability/etc" or "leeches on society" but doesn't directly say these things about me. But obviously many others would.


It is hard to explain to some people how hard it is to be adequately functional to work. Such people may see you looking generally normal. I think they expect you to only be in bed or foaming at the mouth? Some people will never get it.


Thanks for asking about the troubling memories I mentioned a while back. I've put them out of my mind for now, but do plan to write about them.


Thank you for this. You are absolutely correct about not being bed bound etc for SSDI. I’m sorry your brother makes such careless comments it just hurts.

I hope your feeling better. How has your finger healed up ? Well I hope ..
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Last edited by ~Christina; Nov 05, 2019 at 03:36 AM.
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  #484  
Old Nov 05, 2019, 03:00 AM
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~Christina ~Christina is offline
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Originally Posted by wildflowerchild25 View Post
Am feeling a bit down from how sick I feel. I had a bad breakfast which didn’t fill me up, surprise. I’m just counting down till noon when I can reasonably have leftover chili. It won’t fill me up despite being high In protein and fiber. It didn’t last night. I’m so tired of this. I really feel for the people on here who are sick all the time, esp Christina and wild coyote. You two are rock stars! I’ve only felt sick for a few months and it’s really getting me down.


I’m taking my son to the trampoline park today. Will be fun for him. Not me. I don’t jump. I have no energy for that. But I do have to follow him around. He won’t let me just sit In the parents section. I don’t feel comfortable with that anyway. I am very protective of him.


He’s currently bringing every damn thing out of his room to put in the living room, which really annoys me because I hate clutter. But he’s having fun and he’s not on his iPad all day. So I’ll let it slide.


I’m sorry your not feeling good. I hope getting blood work done shows a reason for it and it can be treated even if you hear the dreaded “ you need to lose weight and exercise more” shyt !

Ahhh my pain.. I’m literally sick of talking and thinking of it about , but I have some days where I just am compelled to type about it. Sucks. But keep in mind you deal with your chronic back pain too I know there are times your literally going through hell

Trampoline park sounds great , I’d also not be out jumping but it’s got to be fun just watching you child likely having a blast

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Last edited by ~Christina; Nov 05, 2019 at 03:38 AM.
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  #485  
Old Nov 05, 2019, 03:08 AM
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~Christina ~Christina is offline
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Originally Posted by BirdDancer View Post
You know, my friends. I live in one of the richest countries in the world. Most people in my country call it "the best country in the world", which I find a little obnoxious, but understand most people love their native land, so to them it is. I love my country very much, too, so see it as the best, in most ways. However, responding to the conversation between Wild Coyote and Christina, I, too, think there is ZERO reason why anyone in the United States should be without medical coverage. It's not a privilege, in my view. It's a human right. Why do so many countries on continents like Europe have universal healthcare, and not us? Are they so much richer than those in the United States that they can manage it, but the US can't? Do those countries care more about their fellow citizens than the US citizens care about those who can't afford coverage? Why are the citizens in my husband's European country more than happy with their universal healthcare, than we are with our Aetna (big friggin name) insurance coverage? Why do they pay so much less than we do for the same procedures? Why do their citizens not end up in the poor house when they have major medical procedures? Why are they so lucky, but my husband and I have to struggle and worry about not being able to handle our medical issues in the future? Or retire. Ever! Why can they remain in their home areas, but my husband and I have to leave our home in the next few years because we can't afford to live where we do anymore?


So, should we "leave my country" because we complain about the status quo? "Love it or leave it??????????????" Yes, my husband was born in a European country, but my ancestors date back to the early 1700s in the state that I live in. But even if I didn't have my husband, I would still be impoverished and unable to afford healthcare if I lost my SSDI tomorrow. I would no longer be able to afford my doctors and medications, unless my brother (who refers to some people on disability as "leeches") or my sister helps me out financially. And can they really pay these bills? And really big bills? Or would I find myself in a situation where I die?


I vote. I vote for what I think serves my interests and the majority's interest the most. I will always vote in the elections for my country. I write my congressman/women and senators. That's as much as I can handle now. I'm otherwise at the mercy of the system. However, if I can't live a reasonable life in my country in the future I will go, unless things change for the better. I will have to be the one saying "Good riddance!" to a flawed country that doesn't take care of all of its citizens sufficiently.


People in my country ask "Where are you going to get the money to fund universal healthcare?" Well, there are a hell of lot of places to get the money. The fact is, there is a hell of a lot of resistance to taking money from some places vs. others. And those "others" are not doing me one lick of good.


So, my husband and I may be moving to France in a couple years because we have fears about the future. Believe me when I say, that there would be plenty of people in my country saying "Good riddance!" to me and my husband. Nice, huh?


Ditto to everything you typed. It is very sad in this country that people go with out what I feel is basic medical care.

It is sad that you will probably have to pick up and leave this country to financially have something to retire on and actually afford things.

Disgraceful it is!
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  #486  
Old Nov 05, 2019, 03:13 AM
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~Christina ~Christina is offline
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Quote:
Originally Posted by BirdDancer View Post
Wow! I just got done writing a 4-part (3,500 word total) story series for my blog. I wrote all of this since maybe 1 pm today. I still need to reread it for editing, but I will post at least "Part 1" tomorrow afternoon. I need to find photo images for at least the post headers. I've been thinking about this series for a couple days now. I actually referenced two of the stories yesterday in this thread. The first part and maybe the fourth are a little scary. All could be potentially triggering for some. All have references to some bipolar behavior, though bipolar disorder is not the main story in all. I've named the story series "Four Bouquets of Flowers".


Tomorrow morning, I meet my sister to go to visit my father. I'm not looking forward to that. I will then have to rush home and then go in the opposite direction to my therapy appointment. I'm glad I see my psychiatrist on Wednesday. This is too much running around for me. Too much stress. Too much of a lot of things.


I look forward to reading your blog !

Yes you have the stress of just seeing your father ?? What’s his status , physically? Medically? I hate that you then have to rush the other direction but I am glad you will have therapy after seeing your Dad it will likely help tremendously and then Pdoc too this week
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  #487  
Old Nov 05, 2019, 03:25 AM
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~Christina ~Christina is offline
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Quote:
Originally Posted by BirdDancer View Post
Wild Coyote, I care about you and everyone else here, very much. We are particularly vulnerable. I do, however, want to say that there are many people who are not disabled that struggle greatly because they can't afford proper medical care. Many don't even get the stupid Aetna that I referenced. Many work for a company/people that don't offer insurance. There are many people out there too proud to complain. There are many people who have to make choices between food and shelter and many other basic necessities in life. Many people have to accept alternative treatments because they can't afford certain ones that might be more beneficial. It's terrible!


You know, I used to be a frequent world traveler, but it is very stressful for me nowadays. The thought of having to perfect a language that I haven't studied for years is frightening to me. I hope, very much, that things improve greatly here. It would be wonderful if I didn't have to move.


Some people live from pay check to pay check and not that well. Do you know that many people in my state are paying $10,000 per year in property taxes alone? And I'm not talking big houses with big property. I love New Jersey. As I wrote, my family has been in this state for centuries. I can't count on some big inheritance to "save the day". My parents retired in their 50s. That would be a pipe dream to most.


You bring up many important lives of countless people that are deciding on food versus meds etc . Altho my taxes are not 10’s of thousands OMG. I can’t even imagine. They are only about 650.00 a year still hard to find.

When we went to Florida for those 8 months and Steve was really wanting to move back down.. we looked in many areas and we are simply priced out of doing that , no matter how much we would want to, I have never been a big fan of the idea but.. he truly is upset he can’t see Payton grow up like he wants too ) when we left back in 2004, we paid roughly 1200-1500 a year for home insurance, which was a bit high but we lived about 7-10 miles from the gulf, now?? Most people are paying 7000 + in the area now. freaking crazy !

I’ll just stay here in my little town. We have a car , truck , homeowners and xtra insurance on our 60x66 foot steel barn it’s roughly 160.00 a monthly.. just insuring my car in Florida was over 150.00 a month just one single car !!

I think the idea of retirement now a days is people literally working up to the day of the funeral. Very very sad
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Last edited by ~Christina; Nov 05, 2019 at 03:49 AM.
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  #488  
Old Nov 05, 2019, 03:27 AM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Jennifer 1967 View Post
Daylight Savings Time. Wow! Makes a big difference here. I may need a med adjustment.


Tomorrow, I have the first of four doctor’s visits/tests scheduled for this week to get these pains figured out. I’m looking forward to getting this resolved although the process of getting there leaves me reluctant. Anyway, chin up and positive thoughts! I’m going to meet M halfway Saturday so I’ll keep my mind focused on that.


Warm wishes to all for a good night of rest and a peaceful Tuesday.


I hope the pain can be figured out quickly !! Oh I’m so glad your going to be seeing your daughter. What a wonderful day to look forward too !!!
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  #489  
Old Nov 05, 2019, 03:29 AM
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~Christina ~Christina is offline
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Originally Posted by Pookyl View Post
Ok day so far. Managed to have a shower and feel all squeaky clean.

Dunno why it’s so hard to do something that always makes me feel so good afterwards.

It’s another day of doing nothing much. I really need to come up with some plans. I’m beginning to find stability a little dull.


I think it is very common to being stable and feeling dull and boring.

Right now I have the internet, books and Tv to entertain myself but I need to find an actual hobby to get into. Last year it was making scarves, but I have so many now.. I literally can’t draw, I’ve tried so hard and I give up.

Yes I need to figure out something too

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  #490  
Old Nov 05, 2019, 03:31 AM
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~Christina ~Christina is offline
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Originally Posted by Scooter9 View Post
I'm still sick, but I saw my doctor today. He says I have a bad cold and the beginnings of a sinus infection. No treatment yet, since it might clear up on its own.

I mentioned almost blacking out and having to sit for 2 days. He said that likely was caused by my severe dehydration. He listened to everything and offered an EKG test but said it's not necessary unless I wanted it. I skipped it.

I have to go back to work tomorrow because my work computer is broken. I was working on it and it just switched itself off and has not come on again since.

I've become obsessed with something these past several days. I need to try to cool it before it gets out of hand. There's no money involved but there's time and a lot of it. The problem: I feel good when I'm doing it. I guess I like feeling good and am overdoing it now.

I missed about 3 hours sleep during the past couple of nights, probably because of the time change. I hope things settle down.


I hope your cold and sinus infection does clear up on there own. I hope your body quickly adjusts to the stupid time change.
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  #491  
Old Nov 05, 2019, 03:35 AM
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~Christina ~Christina is offline
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Originally Posted by bizi View Post
I used to take .5mg of klonipin and I slept great.
Then pdoc decided that because I drank I should not have the benzo.
sigh
now I take melatonin and visteril and ear plugs!!!!....it works.
Sorry you struggle so.
(((((((HUGS)))))))
bizi


Thanks !! I stopped my melatonin a few months ago, my body just wuits responding to it after a couple months so I go on and off many times a year. Visteral causes me massive bladder retention, like 12-16 hours, holy hell it was so painful.

I’m glad you have a good combo that’s working well for you
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  #492  
Old Nov 05, 2019, 03:45 AM
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~Christina ~Christina is offline
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Originally Posted by Wild Coyote View Post
My heart goes out to you. I cannot imagine taking beatings in my own bed, for failing to sleep..


It sounds like you're a candidate for "sleep anxiety," which works against any approach to sleeping?


I am told I have this (by a sleep specialist). Mine is from my father chronically having very violent episodes throughout the night(s). It's quite disheartening. I do not consciously feel any anxiety; there's more of a reticence to let go and to sleep. It feels like a very unsafe thing thing to do. :I also have night terrors.


I do believe it's possible to overcome any "sleep anxiety," should you have any. I just have not yet found an approach which works for me yet.


.


Edit: It's likely pain is also interfering with sleep.?


One of the biggest factors to my insomnia and my T agrees I had one of “ those uncles “ between age 4 and 6 maybe 7. I heard the “ if you tell your parents I’ll kill them deals”

So I have a flat out fear of sleeping, I have done enormous work in Therapy about it all. But it can only help so much. It’s something that I just have to live with. Sucks.

I’m sorry your father had violent episodes
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  #493  
Old Nov 05, 2019, 03:45 AM
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~Christina ~Christina is offline
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Originally Posted by Daonnachd View Post
All of you are constantly in my thoughts - warm wishes for strength and resilience.

This morning I have good news of my sister. While I was out walking the dog (without my phone) she sent me a text about planning a menu for Thanksgiving. This is so reassuring. In the subsequent conversation, we set up a time for a phone call after I get home from work today.


Ahhh such great news
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  #494  
Old Nov 05, 2019, 03:55 AM
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~Christina ~Christina is offline
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Well I did our grocery shopping for the month today , 2 different stores! It’s so exhausting.. I do still need to go to feed store and get Dog food it’s much cheaper and a better quality that what we use to buy at Hellmart.

I’m making a big pot of chicken noodle soup tomorrow, very easy and will make at least 3 maybe 4 meals for us, it freezes really well. I am grateful it’s getting cold so chili and soups are so welcome !!!
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  #495  
Old Nov 05, 2019, 05:02 AM
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Scooter9 Scooter9 is offline
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Quote:
Originally Posted by Wild Coyote View Post
Hi!


You've not been feeling well for seemingly quite some time now.

I am not surprised your MD had some findings. I hope you feel better soon!


As I understand things, Mirapex might cause some "obsession" "and/ or (or some type of a "compulsion." Please do run this by your pdoc!


Additionally, Mirapex might also cause some insomnia.


Please report these experiences to your pdoc.

Even if your Mirarapex is now playing a role in current symptoms, most pdocs will simply decrease the Mirapex ..


As always, my best to you and to family.
Thanks WC.

I missed another 3 hours sleep again. As you mentioned I think it's the Mirapex.

I see my pdoc in a couple of weeks but I might have to make an earlier appointment.

All the best to you and wishing for a speedy recovery for your mother
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  #496  
Old Nov 05, 2019, 05:39 AM
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Wild Coyote Wild Coyote is offline
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Originally Posted by Scooter9 View Post
Thanks WC.

I missed another 3 hours sleep again. As you mentioned I think it's the Mirapex.

I see my pdoc in a couple of weeks but I might have to make an earlier appointment.

All the best to you and wishing for a speedy recovery for your mother
Thank you so very much!
I hope things work out well for you. I hope a small decrease in Mirapex might be helpful to you. I have shifted into taking a higher dose in the morning and a lesser dose at night.

Take care, Scooter!
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  #497  
Old Nov 05, 2019, 05:47 AM
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Wild Coyote Wild Coyote is offline
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Originally Posted by ~Christina View Post
Well I did our grocery shopping for the month today , 2 different stores! It’s so exhausting.. I do still need to go to feed store and get Dog food it’s much cheaper and a better quality that what we use to buy at Hellmart.

I’m making a big pot of chicken noodle soup tomorrow, very easy and will make at least 3 maybe 4 meals for us, it freezes really well. I am grateful it’s getting cold so chili and soups are so welcome !!!
A month!

I used to do this, when we'd lived out in the boondocks.
It was fun to cook all day on the next day.
Much Love!
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  #498  
Old Nov 05, 2019, 06:12 AM
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~Christina ~Christina is offline
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Yep a month lol

I do need to pick up some things as month goes by , milk, maybe bread we don’t eat it much at all, I always keep that in the freezer. Salad and some veggies that I don’t like frozen so maybe 3O-35 bucks total for the month.

Yes I often spend most of the day after cooking and just taking meats and put in portion size bags.

You know ... the one thing that took us a bit of time to get use to was to sharing one chicken breast. It just seemed strange. But when I saw how cheap I could make a meal?? Figure one chicken breast is about 1.50, one can of corn or green beans .65 and using plain rice and herbs maybe .50. A meal for 2 .. less than 3.00 LOL !

It’s all become a game of how can we eat well with as little money as possible Hahaha
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  #499  
Old Nov 05, 2019, 06:42 AM
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falcon09 falcon09 is offline
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Didn't sleep
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  #500  
Old Nov 05, 2019, 07:02 AM
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Originally Posted by ~Christina View Post
One of the biggest factors to my insomnia and my T agrees I had one of “ those uncles “ between age 4 and 6 maybe 7. I heard the “ if you tell your parents I’ll kill them deals”

So I have a flat out fear of sleeping, I have done enormous work in Therapy about it all. But it can only help so much. It’s something that I just have to live with. Sucks.

I’m sorry your father had violent episodes
Yes, that fear of sleeping, or sleep anxiety, is just horrible.
I've had that going on all night. Could not sleep.

I am sorry you also deal with this.
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